21. Optimal care in rheumatoid arthritis: Preliminary findings from a focus group study

2007 ◽  
Vol 30 (4) ◽  
pp. 38
Author(s):  
S. Bernatsky ◽  
D. Feldman ◽  
M. Roper ◽  
E. Rosenberg
Keyword(s):  
Rheumatoid Arthritis ◽  
Health Care ◽  
Content Analysis ◽  
Focus Group ◽  
Chronic Diseases ◽  
Computer Assisted ◽  
Care Providers ◽  
Focus Group Study ◽  
Optimal Care ◽  
Good Communication

The objective of our work was to identify facilitators of optimal care, as well as potential barriers, for patients with rheumatoid arthritis (RA). The design was a focus group study. Individuals with established RA were identified through invitation letters sent using a random sample of the Quebec Arthritis Society mailing list. Patients were eligible for participation if they had a diagnosis of RA confirmed by a rheumatologist and if they had sought care within the McGill Réseau Universitaire Intégré de Santé network. We planned a series of focus group meetings (90 minutes each) to obtain sufficient data in terms of spectrum of ideas. In each moderator-led group, participants were asked to discuss five questions related to quality care. A co-moderator was available to document non-verbal communication, with audio-taping of all sessions and professional transcription for data analysis. Qualitative content analysis, based on grounded theory, was the chosen means of identifying recurring themes and categories. Two focus group sessions have been completed with two more scheduled. Preliminary findings indicate the importance of good communication between family physicians, specialists, and allied health care workers. Final coding of transcripts and computer-assisted content analysis is being completed. However it appears that focus group may be useful in studying optimal care for chronic diseases such as RA. Our preliminary findings emphasize the necessity of good communication among health care providers. Ultimately we hope to generate knowledge that can be transformed into better health for Canadians with arthritis and other chronic diseases.

A focus group study of DES daughters: implications for health care providers

2000 ◽  
Vol 9 (5) ◽  
pp. 439-444 ◽  
Author(s):  
Suzanne S. Duke ◽  
Sarah A. Mcgraw ◽  
Nancy E. Avis ◽  
Amanda Sherman
Keyword(s):  
Health Care ◽  
Focus Group ◽  
Health Care Providers ◽  
Care Providers ◽  
Focus Group Study

scholarly journals Changing the Way We Talk with Elders: Promoting Health Using the Communication Enhancement Model

1995 ◽  
Vol 41 (2) ◽  
pp. 89-107 ◽  
Author(s):  
Ellen Bouchard Ryan ◽  
Sheree D. Meredith ◽  
Michael J. MacLean ◽  
J. B. Orange
Keyword(s):  
Older Adults ◽  
Health Care ◽  
Health Promotion ◽  
High Risk ◽  
Risk Groups ◽  
Educational Interventions ◽  
Formal Care ◽  
Care Providers ◽  
Optimal Care ◽  
Good Communication

Good communication is an essential component of optimal delivery of health care and health promotion efforts. In this article, we address the communication predicament faced by older adults when their opportunities for optimal care are limited by inappropriate communication with formal care providers. We then introduce the Communication Enhancement Model which promotes health in old age by stressing recognition of individualized cues, modification of communication to suit individual needs and situations, appropriate assessment of the health/social problems, and empowerment of both elders and providers. Applications of the Communication Enhancement Model are discussed for two high-risk groups (elders from ethnocultural communities and elders with dementia) to show how it can function as a guide for the development and evaluation of educational interventions with health and social professionals working with elders.

Optimal care for rheumatoid arthritis: a focus group study

2010 ◽  
Vol 29 (6) ◽  
pp. 645-657 ◽  
Author(s):  
Sasha Bernatsky ◽  
Debbie Feldman ◽  
Mirella De Civita ◽  
Jeannie Haggerty ◽  
Pierre Tousignant ◽  
...  
Keyword(s):  
Rheumatoid Arthritis ◽  
Focus Group ◽  
Focus Group Study ◽  
Optimal Care

scholarly journals SAT0640-HPR RHEUMATOLOGY CARE OF MIGRANTS FROM SUB-SAHARAN AFRICA; A QUALITATIVE PILOT STUDY OF PATIENTS’ PERSPECTIVES

2020 ◽  
Vol 79 (Suppl 1) ◽  
pp. 1279.1-1279
Author(s):  
Z. Rutter-Locher ◽  
J. Galloway ◽  
H. Lempp
Keyword(s):  
Rheumatoid Arthritis ◽  
Health Care ◽  
Health Care Providers ◽  
Unmet Need ◽  
Primary Care Providers ◽  
Sub Saharan Africa ◽  
Care Providers ◽  
Specialist Care ◽  
Sub Saharan ◽  
The Uk

Background:Rheumatological diseases are common in Sub-Saharan Africa [1] but specialist healthcare is limited and there are less than 150 rheumatologists currently serving 1 billion people in Sub-Saharan Africa [2]. Rheumatologists practising in the UK NHS are likely to be exposed to migrant patients. There is therefore, an unmet need for health care providers to understand the differences in rheumatology healthcare provision between Sub-Saharan Africa and the UK and the barriers which migrants face in their transition of rheumatology care.Objectives:To gain an understanding of the experiences of patients with rheumatological conditions, about their past healthcare in Sub-Saharan Africa and their transition of care to the UK.Methods:A qualitative study using semi-structured interviews was conducted. Participants were recruited from two rheumatology outpatient clinics in London. Thematic analysis was applied to identify key themes.Results:Seven participants were recruited. Five had rheumatoid arthritis, one had ankylosing spondylitis and one had undifferentiated inflammatory arthritis. Participants described the significant impact their rheumatological conditions had on their physical and emotional wellbeing, including their social and financial implications. Compared to the UK, rheumatology healthcare in Sub-Saharan Africa was characterised by higher costs, limited access to specialists, lack of investigations and treatments, the use of traditional medicines and poor communication by clinicians. Barriers to transition of rheumatology care to the UK were: poor understanding of rheumatological conditions by the public and primary care providers, lack of understanding of NHS entitlements by migrants, fear of data sharing with immigration services and delayed referral to specialist care. Patient, doctor and public education were identified by participants as important ways to improve access to healthcare.Conclusion:This study has described, for the first time, patients’ perspectives of rheumatology health care in Sub-Saharan Africa and the transition of their care to the UK. These initial findings allow healthcare providers in the UK to tailor management for this migrant population and suggests that migrants need more information about their NHS entitlements and specific explanations on what non-clinical data will be shared with immigration services. To increase access to appropriate care, a concerted effort by clinicians and public health authorities is necessary to raise awareness and provide better education to patients and migrant populations about rheumatological conditions.References:[1]G. Mody, “Rheumatology in Africa-challenges and opportunities,” Arthritis Res. Ther., vol. 19, no. 1, p. 49, 2017.[2]M. A. M. Elagib et al., “Sudan and Sweden Active Rheumatoid Arthritis in Central Africa: A Comparative Study Between,” J. Rheumatol. J. Rheumatol. January, vol. 43, no. 10, pp. 1777–1786, 2016.Acknowledgments:We are grateful to the patients involved in this study for their time and involvement.Disclosure of Interests:None declared

scholarly journals Seen but not heard – ethnic minorities’ views of primary health care interpreting provision: a focus group study

2010 ◽  
Vol 11 (02) ◽  
pp. 132 ◽  
Author(s):  
Duncan S. Barron ◽  
Caroline Holterman ◽  
Pieter Shipster ◽  
Sherma Batson ◽  
Mohammed Alam
Keyword(s):  
Health Care ◽  
Primary Health Care ◽  
Focus Group ◽  
Ethnic Minorities ◽  
Focus Group Study ◽  
Primary Health

Weight Bias and Psychosocial Implications for Acute Care of Patients With Obesity

2017 ◽  
Vol 28 (3) ◽  
pp. 254-262 ◽  
Author(s):  
Rachel Smigelski-Theiss ◽  
Malisa Gampong ◽  
Jill Kurasaki
Keyword(s):  
Health Care ◽  
Acute Care ◽  
Health Care Providers ◽  
Physical Environment ◽  
Medical Condition ◽  
Weight Bias ◽  
Care Providers ◽  
Optimal Care ◽  
Childhood Experiences ◽  
Appropriate Care

Obesity is a complex medical condition that has psychosocial and physiological implications for those suffering from the disease. Factors contributing to obesity such as depression, childhood experiences, and the physical environment should be recognized and addressed. Weight bias and stigmatization by health care providers and bedside clinicians negatively affect patients with obesity, hindering those patients from receiving appropriate care. To provide optimal care of patients with obesity or adiposity, health care providers must understand the physiological needs and requirements of this population while recognizing and addressing their own biases. The authors describe psychosocial and environmental factors that contribute to obesity, discuss health care providers’ weight biases, and highlight implications for acute care of patients suffering from obesity.

scholarly journals Health workers' views on factors affecting caregiver engagement with bubble CPAP

2020 ◽  
Author(s):  
Sangwani Salimu ◽  
Maggie Woo Kinshella ◽  
Marianne Vidler ◽  
Mwai Banda ◽  
Laura Newberry ◽  
...  
Keyword(s):  
Health Care ◽  
Health Care Providers ◽  
Health Workers ◽  
Health Management ◽  
Care Providers ◽  
District Health ◽  
Severe Respiratory Distress ◽  
Good Communication ◽  
District Hospitals ◽  
Bubble Cpap

Abstract Background Severe respiratory distress is a leading cause of mortality among neonates in Malawi. Despite evidence on the safety, cost effectiveness and efficacy of bubble continuous positive airway pressure (CPAP) in managing the condition, its use in Malawian health facilities is limited and little is known about caregivers' engagement with perspectives of bubble CPAP. The purpose of this study was to explore caregiver perspectives for bubble CPAP at both central and district hospitals and key factors that enable effective caregiver engagement in Malawi. Methods This was a descriptive qualitative study employing secondary analysis of 46 health care worker in-depth interviews. We interviewed the health workers about their thoughts on caregiver perspectives regarding use of bubble CPAP. We implemented the study at a tertiary facility and three district hospitals in southern Malawi. This was a part of a larger study to understand barriers and facilitators to implementing neonatal innovations in resource-constrained hospitals. Interviews were thematically analysed in NVivo 12 software (QSR International, Melbourne, Australia). Health workers were purposively selected to include nurses, clinicians and district health management involved in the use of bubble CPAP.Results Emerging issues included caregiver fears around bubble CPAP equipment as potentially harmful to their new-borns and how inadequate information provided to caregivers exacerbated knowledge gaps and was associated with refusal of care. However, good communication between health care providers and caregivers was associated with acceptance of care. Caregivers’ decision-making was influenced by relatives and peer advocates were helpful in supporting caregivers and alleviating fears or misconceptions about bubble CPAP.Conclusions Since caregivers turn to relatives and peers for support, there is need to ensure that both relatives and peers are counselled on bubble CPAP for improved understanding and uptake. Health workers need to provide simplified, accurate, up-to-date information on the intervention as per caregivers’ level of understanding. Notably, contextualised comprehensible information will help alleviate caregivers’ fear and anxieties about bubble CPAP.

A Qualitative Study of Sport Enjoyment in the Sampling Years

2007 ◽  
Vol 21 (4) ◽  
pp. 400-416 ◽  
Author(s):  
Paul J. McCarthy ◽  
Marc V. Jones
Keyword(s):  
Content Analysis ◽  
Focus Group ◽  
Sport Participation ◽  
Psychosocial Support ◽  
Social Recognition ◽  
Social Involvement ◽  
Informational Support ◽  
Older Children ◽  
Focus Group Study ◽  
High Standards

This focus group study examined the sources of enjoyment and nonenjoyment among younger and older English children in the sampling years of sport participation (ages 7–12). Concurrent inductive and deductive content analysis revealed that, consistent with previous research, younger and older children reported sources of enjoyment such as perceived competence, social involvement and friendships, psychosocial support, and a mastery-oriented learning environment. Nonenjoyment sources included inappropriate psychosocial support, increasing competitive orientation, negative feedback and reinforcement, injuries, pain, and demonstrating a lack of competence. Differences between younger and older children’s sources of enjoyment and nonenjoyment also emerged. Younger children reported movement sensations as a source of enjoyment and punishment for skill errors and low informational support as nonenjoyment sources. Older children reported social recognition of competence, encouragement, excitement, and challenge as sources of enjoyment with rivalry, overtraining, and high standards as sources of nonenjoyment. These differences underscore the importance of tailoring youth sport in the sampling years to the needs of the child.

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