The repercussions of caregiver burden on mental health after a loss due to cancer

Author(s):  
Julia Große
2018 ◽  
Vol 49 (2) ◽  
pp. 116-123 ◽  
Author(s):  
Amy Weisman de Mamani ◽  
Marc J. Weintraub ◽  
Jessica Maura ◽  
Ana Martinez de Andino ◽  
Caitlin A. Brown

2009 ◽  
Vol 4 (4) ◽  
pp. 285-292 ◽  
Author(s):  
H. Rigby ◽  
G. Gubitz ◽  
S. Phillips

Caregiver burden following stroke is increasingly recognised as a significant health care concern. A growing number of studies have evaluated the patient, caregiver, and social support factors that contribute to increased caregiver burden. We conducted a systematic review of this literature to guide future research. A search of the MEDLINE, PsyclNFO, CINAHL, and EMBASE databases (up to July 2008) and reference sections of published studies using a structured search strategy yielded 24 relevant articles. Studies were included if they evaluated predictors and/or correlates of caregiver burden in the setting of stroke. The prevalence of caregiver burden was 25–54% and remained elevated for an indefinite period following stroke. In studies that evaluated independent baseline predictors of subsequent caregiver burden, none of the factors reported were consistent across studies. In studies that assessed concurrent factors independently contributing to caregiver burden in the poststroke period, patient characteristics and social support factors were inconsistently reported. Several studies identified caregiver mental health and the amount of time and effort required of the caregiver as significant determinants of caregiver burden. Our findings highlight the need for more research to identify caregivers in need of support and guide the development and implementation of appropriate interventions to offset caregiver burden.


2020 ◽  
Vol 40 (12) ◽  
pp. 2939-2949
Author(s):  
Atul Hareendran ◽  
Krishnadas Devadas ◽  
Srijaya Sreesh ◽  
Tharun Tom Oommen ◽  
Jijo Varghese ◽  
...  

BMJ Open ◽  
2017 ◽  
Vol 7 (12) ◽  
pp. e017369 ◽  
Author(s):  
Christine Fekete ◽  
Hannah Tough ◽  
Johannes Siegrist ◽  
Martin WG Brinkhof

ObjectiveTo investigate associations of objective caregiver burden, subjective caregiver burden and positive aspects of caregiving with self-reported health indicators in caregiving partners of persons with a severe physical disability (spinal cord injury).DesignCross-sectional, observational.SettingCommunity, Switzerland.ParticipantsCaregiving partners of persons with spinal cord injury (n=118, response rate 19.7%).Outcome measuresGeneral health, role limitations due to physical health, role limitations due to mental health, pain intensity, mental health and vitality were assessed using items from the 36-Item Short Form Health Survey (SF-36). Three items were used to assess the frequency of different types of sleep problems.ResultsSubjective caregiver burden was associated to all self-reported health indicators. A high subjective burden was linked to poorer general health (OR 6.5, 95% CI 2.0 to 21.5), more role limitations due to physical health (OR 4.2, 95% CI 1.4 to 12.8), more role limitations due to mental health (OR 3.6, 95 % CI 1.1 to 11.7), higher pain intensity (OR 4.0, 95% CI 1.4 to 11.5), poorer mental health (coefficient −17.9, 95% CI −24.5 to −11.2), lower vitality (coefficient −20.3, 95% CI −28.4 to −12.1), and more frequent sleep problems (OR 5.3, 95% CI 1.6 to 18.4). Partners who indicated positive aspects of caregiving further reported better mental health (coefficient 6.5, 95% CI 0.2 to 12.8). Objective burden was not related to any health indicator.ConclusionsSubjective burden and lack of positive aspects of caregiving were associated with poorer physical and mental health. Caregiver health may be promoted through the strengthening of psychological and psychosocial resources.


2019 ◽  
Vol 1 (2) ◽  
pp. 64
Author(s):  
Yosevin Karunia Nababan ◽  
Ah Yusuf ◽  
Lailatun Nimah

Pendahuluan: Keluarga sebagai caregiver penderita ODGJ mengalami beban berupa gangguan fisik, emosional dan finansial karena perilaku abnormal pasien, disfungsi sosial serta ketidakmampuan untuk menghidupi dirinya sendiri. Akibat beban yang mereka alami, caregiver ODGJ menunjukkan gejala stress dan kecemasan yang tinggi hingga mempengaruhi pola interaksi. Metode: Rancangan penelitian ini adalah cross sectional . Sampel sejumlah 123 caregiver keluarga penderita ODGJ yang berkunjung di Poliklinik kesehatan jiwa RSJ Menur Surabaya dan didapatkan dengan menggunakan teknik konsekuetive sampling. Data diperoleh dari kuesioner Zarit Caregiver Burden Questionaire dan kuesioner pola interaksi kemudian dianalisis dengan uji statistik korelasi Spearman Rho. Hasil: Hasil penelitian menunjukkan bahwa ada hubungan yang signifikan antara beban pengasuhan dengan pola interaksi (p=0,032) pada nilai signifikansi < 0,05. Koefisien korelasi r=-0,194. Hal ini menunjukkan bahwa terdapat hubungan yang rendah dengan arah negatif, sehingga semakin tinggi beban pengasuhan yang dirasakan semakin rendah pola interaksi yang dialami oleh caregiver keluarga penderita ODGJ. Kesimpulan : Terdapat hubungan yang rendah dan bermakna antara beban pengasuhan dengan pola interaksi caregiver keluarga penderita ODGJ dengan arah negatif, yang berarti semakin tinggi beban pengasuhan yang dirasakan oleh caregiver, maka pola interaksinya semakin rendah. ABSTRACTIntroduction: Families as caregivers their family with mental disorder experience the burden of physical, emotional and financial disturbances due to the patient's abnormal behavior, social dysfunction and inability to support themselves. Due to the burden they experience, caregivers show symptoms of high stress and anxiety to affect patterns of interaction.Method: The design of this study was cross sectional. A sample of 123 family sufferers of mental disorder member who visited the mental health polyclinic at the Menur General Hospital in Surabaya was obtained using a consistent sampling technique. Data were obtained from the Zarit Caregiver Burden Questionaire and the interaction pattern questionnaire was then analyzed using the Spearman Rho correlation test.Results: The results showed that there was a significant relationship between the burden of caregiving with interaction patterns (p = 0.032) at a significance value <0.05. The correlation coefficient r = -0,194. This shows that there is a low relationship with a negative direction, so that the higher the burden of caregiving is felt the lower the interaction patterns experienced by family caregivers of people with mental disorder.Conclusion: There is a significant relationship between caregiving burden with the negative caregiver interaction patterns of mental disorder sufferers' families, which means that the higher the caregiver burden felt by caregivers, the lower the interaction patterns.


2003 ◽  
Vol 23 (2_suppl) ◽  
pp. 200-205 ◽  
Author(s):  
Setsuko Shimoyama ◽  
Orie Hirakawa ◽  
Keiko Yahiro ◽  
Toshimi Mizumachi ◽  
Andrea Schreiner ◽  
...  

Objective Recent studies have found that patients with chronic renal failure suffer from depression and other symptoms of decreased mental health. However, little is know about caregiver burden and mental health among patients’ families. In the present study, we examined the relationship in Japan between peritoneal dialysis (PD) patients and caregivers with regard to health-related quality of life (HRQOL) and caregiver burden. Method In March of 2002, we recruited 60 subjects—26 patients on continuous ambulatory peritoneal dialysis (CAPD), and 34 caregivers—from a PD patient support group in southern Japan. We used the Kidney Disease Quality of Life Short Form (KDQOL-SF) and the Medical Outcomes Study Short Form 36 (SF-36) to measure HRQOL. We used the Zarit Burden Interview (ZBI) to measure caregiver burden. Data was also collected on each patient's duration of illness, treatment modality, age, sex, and medical history. All data were collected by mail surveys. Results Mean age of the PD patients was 48.2; mean age of the caregivers was 46.6. Mean caregiver burden on the ZBI was 14.1, which is considerably lower than that reported among caregivers for patients with dementia or stroke. Caregivers and patients both rated their general health and vitality among the lowest of the eight dimensions on the KDQOL-SF. In addition, patients scored lower than a normative population in all dimensions and significantly lower than caregivers in the dimensions of role physical functioning, role emotional functioning, and social functioning. Compared to national normative data for their age group, caregivers scored substantially lower in general health, vitality, and mental health. Conclusions Patients on CAPD are at risk for social role dysfunction, and their caregivers are at risk for decreased mental health. Further research is needed to identify interventions that can improve the HRQOL of CAPD patients and their family caregivers.


2020 ◽  
pp. 089198872093334
Author(s):  
Divyansh Dixit ◽  
John Spreadbury ◽  
Rosanna Orlando ◽  
Elaine Hayward ◽  
Christopher Kipps

Background: Quality of life (QoL) has seldom been investigated or explicitly measured in young-onset dementia (YoD). The aims of this study were (1) to investigate and compare QoL self- and proxy reports in a sample of YoD patients and caregivers using different conceptual assessments of QoL and (2) to examine the relationship between caregiver QoL and both burden and mental health. Methods: There were 52 participants (26 YoD patient–caregiver dyads). The design was cross-sectional and part of a larger longitudinal prospective cohort study of YoD patients and caregivers. Primary measures included generic QoL (World Health Organization Quality of Life–short version [WHOQOL-BREF]), dementia-specific QoL (Quality of Life in Alzheimer’s Disease Scale [QoL-AD]), health-related QoL (EQ5D), and a single-item QoL measure. Secondary measures included caregiver burden (Zarit Burden Index), mental health (Hospital Anxiety and Depression Scale), and dementia severity (Clinical Dementia Rating). Results: Patient QoL self-reports were higher than caregiver proxy reports on the QoL-AD ( P = .001). Patient QoL self-reports for the WHOQOL-BREF ( P < .01) and single-item QoL ( P < .05) measure were significantly higher than caregiver self-reports. Dementia severity had no relationship with QoL self-reports. Caregiver burden, anxiety, and depression were negatively correlated with QoL when measured using a generic and single-item measure, but not with the health-related measure. Discussion: Patients and caregivers show a disparity in QoL reports, with patients tending to report higher QoL. Caregiver burden, anxiety, and depression should be areas targeted for interventions when supporting caregivers.


2021 ◽  
Vol 75 (Supplement_2) ◽  
pp. 7512510270p1-7512510270p1
Author(s):  
Yan-hua Huang ◽  
Ciara Nagao ◽  
Kelsey Michelle Santos ◽  
Madison Werchowsky

Abstract Date Presented Accepted for AOTA INSPIRE 2021 but unable to be presented due to online event limitations. This study surveyed 101 Asian-American caregivers of elderly people on factors that influence perceived caregiver burden. Spirituality was found to be a statistically significant predictor of caregiver burden. Furthermore, mental health help-seeking attitudes were negatively correlated with caregiver burden. This research informs OTs of the value of incorporating spirituality and mental health education with family caregivers to provide holistic, culturally competent services. Primary Author and Speaker: Yan-hua Huang Additional Authors and Speakers: Ciara Nagao, Kelsey Michelle Santos, and Madison Werchowsky


2017 ◽  
Vol 27 (3) ◽  
pp. 757-767 ◽  
Author(s):  
Julia Große ◽  
Julia Treml ◽  
Anette Kersting

Sign in / Sign up

Export Citation Format

Share Document