scholarly journals KARAKTERISTIK DAN KESEDIAAN CAREGIVERS KELUARGA DARI PASIEN DENGAN PENYAKIT KRONIS TENTANG PEMBENTUKAN SUPPORT GROUP

2019 ◽  
Vol 2 (2) ◽  
pp. 53-62
Author(s):  
Sri Rahayu, Teti Rahmawati
Keyword(s):  
Family Caregivers ◽  
Chronic Diseases ◽  
Support Groups ◽  
Support Group ◽  
Quantitative Research ◽  
Cross Sectional Study ◽  
Public Attention ◽  
Cross Sectional ◽  
The Family ◽  
Minimum Age

Family caregivers have a crucial role in patients with chronic diseases. During caregiving care, they might have various experiences, successes, failures, problems, and also obstacles in caring the patients. Surely, they might feel stressed, anxious, frustrated, depressed, feel alone, and health problems. Subsequently, they need public attention to by finding solutions such as the idea of creating a group. The purpose of this study was to identify the characteristics and willingness of family caregivers of patients with chronic diseases related to creating support groups. Quantitative research with cross-sectional study design was used. A total of 97 family caregivers of patients with chronic diseases were involved in this study with inclusion and exclusion criteria. The results showed that family caregivers aged an average of 45.71 ± 13.94 years with a minimum age of 20 years and a maximum age of 83 years, 69 people (71.1%) were female, 46 people (47.4%) had high school education level, 58 people (59.8%) was employee, 41 people (42.3%) have a relationship with patients as housewife, and 69 people (71.1%) are willing to build a support group. The conclusion of this study is expected to be the foundation in creating a support group in the family caregivers of patients with chronic diseases.

scholarly journals ONLINE SUPPORT GROUP UNTUK CAREGIVERS KELUARGA

2020 ◽  
Vol 11 (1) ◽  
pp. 126
Author(s):  
Sri Rahayu ◽  
Teti Rahmawati
Keyword(s):  
Family Caregivers ◽  
Support Groups ◽  
Support Group ◽  
Cross Sectional Study ◽  
Online Support ◽  
Online Support Groups ◽  
Sectional Study ◽  
Online Support Group ◽  
Cross Sectional ◽  
Face To Face

AbstrakSebutan “Caregivers” di Indonesia masih asing dibanding dengan negara lain. Mereka juga belum mendapat perhatian sepenuhnya dari masyarakat. Padahal, 85% pemberi perawatan kepada pasien adalah caregivers keluarga. Sehingga dapat digarisbawahi bahwa peran caregivers keluarga dalam merawat pasien dengan penyakit kronis adalah sangat penting. Tidak dapat dipungkiri, kemungkinan mereka mengalami berbagai permasalahan, stress, cemas, khawatir, dan terbebani akan kondisi pasien dengan penyakit kronis. Maka dari itu perlu adanya sebuah wadah yang dapat menampung permasalahan yang mereka hadapi, seperti pembuatan group baik secara ketemu langsung atau online. Tujuan penelitian ini adalah untuk mengidentifikasi kebutuhan caregivers keluarga dari pasien dengan penyakit kronis tentang online support group (OSG).  Metode penelitian yang digunakan adalah metode deskriptif dengan pendekatan cross sectional study dengan jumlah responden sejumlah 97 orang. Hasil penelitian menunjukkan bahwa (56,7%) caregivers keluarga menyatakan pentingnya support group, (57,7%) memilih untuk bertemu langsung dibanding online group, (70,1%) bersedia untuk tergabung dalam OSG, dan (80,5%) memilih WhatsApp sebagai media yang sering digunakan. Sehingga dapat disimpulkan bahwa temuan pada penelitian ini sangatlah menarik karena selain ingin ketemu langsung, caregivers keluarga lebih cenderung ingin terlibat dalam OSG.Kata Kunci : Caregivers, Keluarga, Online Support Group AbstractThe term "Caregivers" in Indonesia is not as popular as another country. They also have not received attention from society. An 85% of people giving care to the patients are family caregivers. It can be underlined that the role of family caregivers in caring for patients with chronic diseases is vital in the health care system. It is not a public secret that they may face various problems, stress, anxiety, worry, and burdened with the condition of patients with chronic illness. At this level, they need such kind of forum to accommodate their problems. For example, create groups either face to face or online. The purpose of this study was to identify the needs of family caregivers of patients with chronic diseases regarding online support groups (OSG). The research method used is a descriptive method with a cross-sectional study approach with a total of 97 samples. The results showed that (56.7%) family caregivers expressed the importance of support groups, (57.7%) chose to meet directly compared to online groups, (70.1%) were willing to enter online support groups, and (80.5%) chose WhatsApp as the most media frequently used. It can be concluded that the findings in this study are very attractive because apart from the face to face group, family caregivers prefer to join OSG. Keywords: Caregivers, Family, Online Support Group

scholarly journals Preparedness among Family Caregivers of Patients with Non-Communicable Diseases in Indonesia

2020 ◽  
Vol 10 (3) ◽  
pp. 339-349
Author(s):  
Ike Wuri Winahyu Sari ◽  
Novita Nirmalasari
Keyword(s):  
Family Caregivers ◽  
Essential Element ◽  
Sampling Technique ◽  
Cross Sectional Study ◽  
Communicable Diseases ◽  
Cross Sectional ◽  
Non Communicable Diseases ◽  
The Family ◽  
Patients With Diabetes

Background: Family caregivers spend 24 hours a day looking after and assisting patients. However, they are not always adequately prepared for all the problems they face. There is a lack of evidence exploring caregivers’ preparedness among family caregivers of patients with non-communicable diseases in Indonesia.Purpose: This study aimed to identify caregivers’ preparedness among family caregivers of patients with non-communicable diseases.Methods: This was a cross-sectional study conducted on 120 Indonesian family caregivers for patients with non-communicable diseases, who were selected using a purposive sampling technique. Data were collected using the Indonesian version of the Preparedness for Caregiving Scale (PCS) which had been validated before its use. The possible scores of this tool ranged from 0.00 to 4.00. The higher the score, the more prepared the family caregivers were. Data were analyzed using one way ANOVA .Results: Family caregivers reported feeling of moderately prepared for caregiving. The score of family caregiver preparedness for patients with diabetes, cancer, and chronic kidney disease were 2.97±0.42; 2.83±0.40; 2.89±0.49, respectively with possible range from 0.00 to 4.00. There were no differences on the caregivers’ preparedness among family caregivers of patients with non-communicable diseases (p=0.387).Conclusion: Caregivers’ preparedness is an essential element of patient care. Nurses have to be proactive in assessing each family caregiver’s preparedness to enhance the quality of life of both the family caregivers and the patients themselves, so that they can be empowered as a source of nursing care.

scholarly journals How cancer of oral cavity affects the family caregivers? – A cross-sectional study in Wardha, India, using the Caregiver Quality of Life Index – Cancer questionnaire

2020 ◽  
Vol 09 (01) ◽  
pp. 62-65
Author(s):  
Sourav Goswami ◽  
Subodh Saran Gupta
Keyword(s):  
Oral Cancer ◽  
Family Caregivers ◽  
Cross Sectional Study ◽  
Psychosocial Impact ◽  
Cross Sectional ◽  
The Family ◽  
Caregiver Quality ◽  
Quality Of Life Index ◽  
Index Cancer ◽  
Study Participants

Abstract Introduction: Oral cancer is now a major public health problem in India. It does not only affect the patient, but also has a deep psychosocial impact on the family caregivers who are deeply involved with the cancer patient for nursing, timely medication, and consulting the doctor. Studies have found that the caregivers often suffer from depression, anxiety, and fear of losing their near and dear ones. This study aims to capture the psychosocial impact of oral cancer on the family caregivers. Materials and Methods: This was a cross-sectional study carried out in a tertiary care hospital with the primary caregivers of those oral cancer patients who completed their treatment and came for follow-up after 2–3 months of treatment completion. The study participants were recruited till a sample size of 100 was reached. This was adequate to report proportions with an error of 10%. We have used “The Caregiver Quality of Life Index – Cancer” scale to capture the psychosocial impact of oral cancer on primary caregiver of the patient. The study was initiated after obtaining approval from the Institutional Ethics Committee. Informed written consents were obtained from all the study participants before beginning the interviews. Results: Caregivers played an important role in the recovery of the patients. However, the strain of caregiving resulted in increased emotional stress among them. We found 56% of the family caregivers were female and 41% were male. Majority of the caregivers who accompanied the patients to hospital were the spouses. For the caregivers, the mean score for burden of the disease was found to be 60.0 (±20.2), that for disruption was 50.4 (±21.7), and for positive adaptation was 61.4 (±20.7). Conclusion: Caregivers, who are usually invisible to the health-care team, should be recognized and their mental and physical well-being should also be given attention.

scholarly journals The psychosocial profile of family caregivers of children with chronic diseases: a cross-sectional study

2020 ◽  
Vol 14 (1) ◽  
Author(s):  
Filiberto Toledano-Toledano ◽  
David Luna
Keyword(s):  
Family Support ◽  
Family Caregivers ◽  
Chronic Diseases ◽  
Caregiver Burden ◽  
Parental Stress ◽  
Well Being ◽  
Cross Sectional Study ◽  
Cross Sectional ◽  
Psychosocial Profile ◽  
Anxiety Depression

Abstract Background A family caregiver is defined as a person who has a significant emotional bond with the patient; this caregiver is a family member who is a part of the patient’s family life cycle; offers emotional-expressive, instrumental, and tangible support; and provides assistance and comprehensive care during the chronic illness, acute illness, or disability of a child, adult, or elderly person. The objectives of this study were to identify the psychosocial profiles of family caregivers of children with chronic diseases and to establish the relationship between these profiles and sociodemographic variables. Methods A cross-sectional study was conducted involving 401 family caregivers of children with chronic diseases at the National Institute of Health in Mexico City. The participants responded to the Sociodemographic Variables Questionnaire (Q-SV) for research on family caregivers of children with chronic disease and a battery of 7 instruments that examined anxiety, caregiver burden, family support, depression, resilience, parental stress, and the World Health Organization Well-Being Index. Results A hierarchical cluster analysis and its confirmation through a nonhierarchical cluster analysis confirmed two profiles of caregivers of pediatric patients with chronic diseases. Profile 1, called Vulnerability of family caregivers, is characterized by high levels of anxiety, depression, parental stress and caregiver burden, accompanied by low levels of family support, resilience, and well-being. Profile 2, called Adversity of family caregivers, shows an inverse pattern, with high levels of family support, resilience, and well-being and low levels of anxiety, depression, parental stress and caregiver burden. The sociodemographic characteristics are similar for both profiles, with the exception of the caregiver’s family type. Profile 1 shows more single-parent caregivers, while profile 2 includes more caregivers with a nuclear family. However, the type of family did not reach significance for predicting the caregiver’s profile in a bivariate logistic regression model. Conclusions The psychosocial profile of family caregivers of children with chronic diseases can be structured according to their psychosocial characteristics. Although no causal factors were detected that define criteria for belonging to one or another profile, the characteristics identified for each indicate the need for specific and differentiated intervention strategies for families facing adversity, risk and vulnerability during a child’s disease.

scholarly journals RELATIONSHIP SOCIAL SUPPORT AND RESILIENCE WITH STRESS LEVELS OF FAMILY CAREGIVERS HEMODIALYSIS PATIENTS SURABAYA

2020 ◽  
Vol 9 (2) ◽  
pp. 56
Author(s):  
A Fahmil Haq Aplizuddin ◽  
Harmayetty Harmayetty ◽  
Elida Ulfiana
Keyword(s):  
Social Support ◽  
Family Caregivers ◽  
Family Caregiver ◽  
Negative Relationship ◽  
Cross Sectional Study ◽  
Hemodialysis Patients ◽  
Cross Sectional ◽  
The Social ◽  
The Family ◽  
Stress Levels

Introduction: Hemodialysis is a life-long treatment for end-stage renal disease (ESRD). ESRD has physical and psychosocial challenges to experience stress which not only affects but patients but also family members who care for them or also called family caregivers. Analyzing the relationship of social support and resilience to the level of stress in the family caregiver of hemodialysis patients at Haji Hospital Surabaya.Methods: A cross-sectional study with a population of family caregiver members of hemodialysis patients at RSU Haji Surabaya. The sample size was 92 respondents with criteria, namely families who treat hemodialysis patients at RSU Haji Surabaya, live in one house with patients, aged > 18 years, and can read and write. The variables of this study are social support, resilience, and stress levels. Data collection was performed using a questionnaire and analyzed using Spearman’s Rho test. Results : There was a significant negative relationship between social support and stress levels (p = 0.004 and r = -0.296) and resiliency with stress levels (p = 0.003 and r = -0.311).Discussion: The level of stress in a family caregiver hemodialysis patient can be influenced by the social support received and the level of resilience they have. The social support has an important role for family caregivers obtained from the family and significant other.

scholarly journals Predictors of Quality of Life among Parents of Children with Chronic Diseases: A Cross-Sectional Study

Healthcare ◽  
2020 ◽  
Vol 8 (4) ◽  
pp. 456
Author(s):  
Filiberto Toledano-Toledano ◽  
José Moral de la Rubia ◽  
Laura A. Nabors ◽  
Miriam Teresa Domínguez-Guedea ◽  
Guillermo Salinas Escudero ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Social Support ◽  
Family Functioning ◽  
Chronic Diseases ◽  
Family Income ◽  
Cross Sectional Study ◽  
Sectional Study ◽  
Cross Sectional ◽  
The Family

Quality of life (QOL) is a key aspect of the health care process for children with chronic diseases and their families. Although clinical evidence regarding the impact of chronic disease on children exists, few studies have evaluated the effects of the interaction between sociodemographic and psychosocial factors on the family caregiver’s QOL, indicating a significant gap in the research literature. The present study aimed to identify the predictors of the QOL of parents of children with chronic diseases. Three parental sociodemographic predictors (age, schooling, and family income) and four psychosocial predictors (family functioning, social support, depression, and resilience) were examined. In this cross-sectional study, 416 parents of children with chronic diseases who were hospitalized at a National Institute of Health in Mexico City were interviewed. The participants completed a sociodemographic variables questionnaire (Q-SV) designed for research on family caregivers of children with chronic disease. The predicted variable was assessed through the World Health Organization Quality of Life Questionnaire. The four psychosocial predictors were assessed through the Family Functioning Scale, Social Support Networks Scale, Beck Depression Inventory, and Measurement Scale of Resilience. The regression model explained 42% of the variance in parents’ QOL. The predictors with positive weights included age, schooling, monthly family income, family functioning, social support networks, and parental resilience. The predictors with negative weights included depression. These findings suggest that strong social relationships, a positive family environment, family cohesion, personal resilience, low levels of depression, and a family income twice the minimum wage are variables associated with better parental QOL.

scholarly journals PERAN PETUGAS KESEHATAN DAN PENGETAHUAN KELUARGA TERHADAP PENINGKATAN KEMAMPUAN MERAWAT KLIEN GANGGUAN JIWA DI RUMAH

2018 ◽  
Vol 2 (2) ◽  
pp. 83
Author(s):  
Edi Purnomo ◽  
Zulhaini Sartika A. Pulungan ◽  
Andi Milawati
Keyword(s):  
Mental Disorders ◽  
Quantitative Research ◽  
Health Workers ◽  
Family Members ◽  
Cross Sectional Study ◽  
Cross Sectional ◽  
Care Workers ◽  
The Family ◽  
At Home

Mental disorder schizophrenia is a disorder psychic who ranks second in diseases that cause the greatest burden after heart disease. Its burden of mental disorders is mainly felt by the families who have family members with mental disorders. Patients with mental disorders who live with the family does not always indicate the best condition for the recovery of the client. The purpose of this study was to determine the effect of the role of the clerk and the knowledge of the family in improving the ability of families caring for clients with mental disorders at home. This research method is descriptive quantitative research design descriptive analytic approach cross sectional study.  The samples used were 30 families who have family members experiencing mental disorders withpurposivesampling method. The research was conducted in Puskesmas Ulumanda Majene district. Results showed no effect between family knowledge (p=0.005) and the role of health care workers (p=0.008) with the ability of families in caring for clients with mental disorders at home. Conclusion the role of health workers and knowledge affect the ability of families caring for clients with mental disorders at home. Advised the family to be more active in seeking information about the treatment of people with mental disorders at home and health officials often approach to the family to help care clients with mental disorders.

scholarly journals Deconversion Processes in Adolescence—The Role of Parental and Peer Factors

Religions ◽  
2020 ◽  
Vol 11 (12) ◽  
pp. 664
Author(s):  
Małgorzata Łysiak ◽  
Beata Zarzycka ◽  
Małgorzata Puchalska-Wasyl
Keyword(s):  
Social Support ◽  
Support Groups ◽  
Support Group ◽  
Cross Sectional Study ◽  
Sectional Study ◽  
Cross Sectional ◽  
Moral Criticism ◽  
High Social Support ◽  
Peer Factors

The phenomenon of abandonment of faith, which in psychology is referred to as deconversion, is observed today. Deconversion is particularly widespread in young people. In this paper we examine the parents’ religiosity, parents’ care, and social support as potential predictors of deconversion in adolescents. Specifically, we aimed to analyse whether or not parents’ religiousness, individual differences in childrens’ attachment to their parents, and received support from family, friends, and significant others differentiate adolescents in deconversion processes. The hypotheses were tested on a sample of 232 adolescents in a cross-sectional study, which applied three scales. The Adolescent Deconversion Scale, Parental Bonding Instrument, and Multidimensional Scale of Perceived Social Support. The results showed that adolescents having both caring and religious parents are less prone to abandon faith and to moral criticism than those having caring but not religious parents or those having religious but not caring parents. The low social support group was more likely to abandon faith and moral criticism than moderate or high social support groups. Regression analyses revealed that deconversion in adolescence is negatively predicted by the mother’s care and friends’ support.

scholarly journals Burden and Depression among Jordanian Caregivers of Hemodialysis Patients: A Cross-sectional Study

2021 ◽  
Vol 15 (1) ◽  
pp. 29-37
Author(s):  
Eman Khamis Alnazly
Keyword(s):  
Travel Time ◽  
Family Caregivers ◽  
Caregiver Burden ◽  
Multinomial Logistic Regression ◽  
Cross Sectional Study ◽  
Patient Age ◽  
Cross Sectional ◽  
Caregiving Burden ◽  
Patient Âgé ◽  
The Family

Introduction: Caring for patients receiving hemodialysis places a burden on caregivers. Objectives: To examine caregiving burden and depression in the family caregivers of patients receiving hemodialysis and associated factors. Methods: A cross-sectional design was used. Participants were 204 adult caregivers of patients receiving hemodialysis. Questionnaires included sociodemographic characteristics, the Oberst Caregiving Burden Scale-Difficulty (OCBS-D) subscale, Bakas Caregiving Outcomes Scale (BCOS), and the Patient Health Questionnaire-9 to measure the burden and depression of caregivers. Descriptive statistics, two linear regression analyses, and multinomial logistic regression were used in data analysis. Results: The majority (59.0%, n = 120) of caregivers had a moderate level of depression with scores ranging from 11 to 16. The analysis showed that the mean score of OCBS-D was 42.0 (SD = 4.7) with scores ranging from 26.9 to 58.9 (range = 32.0), while the caregivers' mean score of BCOS was 52.1 (SD = 9.3) with scores ranging from 38.0 to 82.5 (range = 44.5). Given that the expected score of OCBS-D and BCOS ranged from 15 to 75 and 15 to 105, respectively, the analysis indicated a moderate to a high level of burden among caregivers. Age and travel time were associated with a higher likelihood of negative outcomes in the family caregivers, while higher patient age was associated with a greater caregiver burden. Relevance to Clinical Practice: It is important to assess and address the practical issues that caregivers experience, such as employment-related responsibilities, financial difficulties, and the need to learn specific skills related to patients’ chronic illnesses. Conclusion: Caregivers of patients receiving hemodialysis are likely to experience moderate depression and burden. Caregiver burden increases with patient age and travel time to the hemodialysis units.

scholarly journals Association Between Family Caregiver Burden and Affiliate Stigma in the Families of People with Dementia

2020 ◽  
Vol 17 (8) ◽  
pp. 2772 ◽  
Author(s):  
Jian-An Su ◽  
Chih-Cheng Chang
Keyword(s):  
Family Caregivers ◽  
Caregiver Burden ◽  
Family Caregiver ◽  
Cross Sectional Study ◽  
Cross Sectional ◽  
Affiliate Stigma ◽  
People With Dementia ◽  
The Family ◽  
Male Caregivers ◽  
Family Caregiver Burden

Family caregivers of people with dementia (PWD) have a heavy care burden. Affiliate stigma is the stigma internalized by individuals associated with PWD. Limited research has addressed the affiliate stigma among caregivers of PWD and its influence on caregiver burden. Thus, our study investigated the burden of caregivers of PWD and its relationship with affiliate stigma. In addition, we examined the factors related to affiliate stigma. This cross-sectional study was conducted in a general hospital in Taiwan. We recruited 270 PWD and their family caregivers from the outpatient department. Relevant demographic and clinical assessment data of the patients and caregivers were evaluated. Regression analysis was performed to examine the factors associated with affiliate stigma. In total, 23.7% of the family caregivers had depression and 37.4% had anxiety. Male caregivers had higher levels of anxiety and heavier care burdens related to affiliate stigma compared with female caregivers. Moreover, characteristics such as younger age and low levels of dependence in daily activities among PWD were associated with increased affiliate stigma. A higher family caregiver burden was related to more severe affiliate stigma. Interventions for decreasing the family caregiver burden might reduce the effect of affiliate stigma.

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