Personal and environmental factors contributing to participation in romantic relationships and sexual activity of young adults with cerebral palsy

2012 ◽  
Vol 34 (17) ◽  
pp. 1481-1487 ◽  
Author(s):  
Diana J. H. G. Wiegerink ◽  
Henk J. Stam ◽  
Marjolijn Ketelaar ◽  
Peggy T. Cohen-Kettenis ◽  
Marij E. Roebroeck ◽  
...  
2010 ◽  
Vol 52 (6) ◽  
pp. 576-582 ◽  
Author(s):  
DIANA JHG WIEGERINK ◽  
MARIJ E ROEBROECK ◽  
WILMA MA VAN DER SLOT ◽  
HENK J STAM ◽  
PEGGY T COHEN-KETTENIS ◽  
...  

2010 ◽  
Vol 91 (9) ◽  
pp. 1423-1428 ◽  
Author(s):  
Diana J. Wiegerink ◽  
Henk J. Stam ◽  
Jan Willem Gorter ◽  
Peggy T. Cohen-Kettenis ◽  
Marij E. Roebroeck

2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Jennifer Yarger ◽  
Abigail Gutmann-Gonzalez ◽  
Sarah Han ◽  
Natasha Borgen ◽  
Martha J. Decker

Abstract Background Social distancing measures to reduce the spread of COVID-19 may profoundly impact young people’s relationships. This study compared adolescent and young adults’ romantic relationships and sexual activity before and after social distancing policies were enacted. Methods In June 2020, 351 youth participating in an ongoing intervention study in Fresno County, California completed an online survey about their experiences related to COVID-19. The survey included open and closed-ended questions about their romantic relationships, sexual activity, and online romantic or sexual interactions before and during social distancing restrictions. We used the chi-square test of independence to compare adolescent (ages 13–17) and young adults’ (ages 18–21) responses. Results were also compared to responses in the intervention study’s baseline survey. Results One-third (37%) of youth were dating or in a romantic relationship and 28% spent time in person with a partner early in the COVID-19 pandemic. Among those dating or in a relationship, 34% physically distanced from their partner due to parental restrictions related to COVID-19. Youth also spent less time in person with their partners during the pandemic than before. Although most youth (69%) were not sexually active before or during the pandemic, 22% had sex during the social distancing period. Young adults were more likely to spend time with their partners and have sex during the restrictions than adolescents. Most youth were not involved in sexting or online dating, before or during the pandemic. Conclusions Adolescents and young adults have continued to engage in sexual and romantic relationships during the COVID-19 pandemic, although many reported physical distancing from their partners. Results suggest that youth continue to need access to sexual health education and services during emergencies such as the COVID-19 pandemic.


Author(s):  
Gitte Normann ◽  
Kirsten Arntz Boisen ◽  
Peter Uldall ◽  
Anne Brødsgaard

AbstractObjectivesYoung adults with cerebral palsy (CP) face potential challenges. The transition to young adulthood is characterized by significant changes in roles and responsibilities. Furthermore, young adults with chronic conditions face a transfer from pediatric care to adult healthcare. This study explores how living with CP affects young adults in general, and specifically which psychosocial, medical and healthcare needs are particularly important during this phase of life.MethodsA qualitative study with data from individual, semi-structured, in-depth interviews with six young adults with CP (ages 21–31 years) were transcribed verbatim and analyzed. The participants were selected to provide a maximum variation in age, gender, Gross Motor Function Classification System score and educational background. A descriptive thematic analysis was used to explore patterns and identify themes.ResultsThree themes were identified: “Being a Young Adult”, “Development in Physical Disability and New Challenges in Adulthood” and “Navigating the Healthcare System”. The three themes emerged from 15 sub-themes. Our findings emphasized that young adults with CP faced psychosocial challenges in social relationships, participation in education and work settings and striving towards independence. The transition to young adulthood led to a series of new challenges that the young adults were not prepared for. Medical challenges included managing CP-related physical and cognitive symptoms and navigating adult health care services, where new physicians with insufficient knowledge regarding CP were encountered.ConclusionThe young adults with CP were not prepared for the challenges and changes they faced during their transition into adulthood. They felt that they had been abandoned by the healthcare system and lacked a medical home. Better transitional care is urgently needed to prepare them for the challenges in young adulthood.


BMC Neurology ◽  
2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Catherine Arnaud ◽  
Carine Duffaut ◽  
Jérôme Fauconnier ◽  
Silke Schmidt ◽  
Kate Himmelmann ◽  
...  

Abstract Background Effective inclusion in society for young people with disabilities is increasingly seen as generating opportunities for self-development, and improving well-being. However, significant barriers remain in the vast majority of activities meaningful for young adults. Research argues that various personal (disabilities, health) and environmental (access to the resources needed, accessible environment, discrimination, lack of personal economic independence) factors contribute to limited participation. However, previous studies conducted in young people with cerebral palsy (CP) mainly investigated the transition period to adulthood, and did not fully consider the whole range of impairment severity profiles or environmental barriers. In this study, we will use the follow-up of the SPARCLE cohort and a comparison group from the general population (1) to investigate the impact of the environment on participation and quality of life of young adults with CP, (2) to determine predictors of a successful young adulthood in educational, professional, health and social fields, (3) to compare quality of life and frequency of participation in social, work and recreational activities with the general population, (4) to document on participation and quality of life in those with severe disabilities. Methods The SPARCLE3 study has a combined longitudinal and cross-sectional design. Young adults with CP aged 22 to 27 years in 6 European regions previously enrolled in the SPARCLE cohort or newly recruited will be invited to self-complete a comprehensive set of questionnaires exploring participation (daily life and discretionary activities), health-related quality of life, body function, personal factors (health, personal resources), and contextual factors (availability of needed environmental items, family environment, services provision) during home visits supervised by trained researchers. Proxy-reports or adapted questionnaires will be used for those with the most severe impairments. The recruitment of a large group from the general population (online survey) will enable to identify life areas where the discrepancies between young people with CP and their able-bodied peers are the most significant. Discussion This study will help identify to what extent disabilities and barriers in environment negatively affect participation and quality of life, and how previous valued experiences during childhood or adolescence might modulate these effects.


2021 ◽  
pp. 0192513X2199413
Author(s):  
Byron Miller ◽  
Savanah Catalina ◽  
Sara Rocks ◽  
Kathryn Tillman

Although attitudes toward interracial romantic relationships (IRRs) have generally improved over the years, many Americans still disapprove of their family members being in IRRs. Prior studies have examined correlates of individual-level attitudes about interracial romance, but less is known about whether family members’ attitudes are directly associated with young people’s decisions to date interracially. Using data collected from 790 romantically involved college students at two large public four-year universities, we find that young adults who believe their siblings, parents, and grandparents approve of IRRs have greater odds of dating interracially. Compared to Whites, Blacks and Hispanics are more likely to be interracially involved but their decision to do so is much less dependent on the approval of their parents and grandparents. We also find young adults are more likely to date interracially if they have five or more relatives with IRR experience themselves. The findings and their implications are discussed.


2017 ◽  
Vol 57 ◽  
pp. 1
Author(s):  
Tomas Wahlgren ◽  
Meta Nyström-Eek ◽  
Roy Tranberg ◽  
Roland Zügner

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