scholarly journals Youth and parent perspectives on the acceptability of a group physical activity and coping intervention for adolescents with type 1 diabetes

2021 ◽  
Author(s):  
Melissa DeJonckheere ◽  
Kevin Joiner ◽  
Garrett I. Ash ◽  
Mary Savoye ◽  
Mackenzie Adams ◽  
...  

Introduction: To maintain optimal glycemic levels and prevent long-term complications, adolescents with type 1 diabetes (T1DM) should engage in regular moderate to vigorous activity (MVPA) in addition to other diabetes self-care behaviors. Though interventions to prepare adolescents safely increase MVPA have been developed and tested, barriers continue to limit dissemination and engagement in clinical and community settings. Objective: To examine youth and parent perspectives on the acceptability of a group physical activity and coping intervention for adolescents with T1DM.Subjects: 18 adolescents (11-19 years) with T1DM who completed the intervention and at least one of their parents.Methods: Adolescents completed an exit survey measuring satisfaction with the intervention (program components, comfort, and instructors) on a 5-point scale. Semi-structured interviews were conducted with adolescents and at least one parent. Qualitative description was used to develop themes that summarize participant experiences during the intervention. Results: The intervention was rated highly: program components (M=4.5), comfort (M=4.4), and instructors (M=4.3). Themes included: (1) Adolescents and parents valued being around others with T1DM and their families; (2) The intervention helped adolescents gain knowledge and reinforce diabetes self-management behaviors; (3) Challenges included convenience and sustaining participant engagement; and (4) Adolescents intended to sustain physical activity and diabetes self-management behaviors after the intervention.Conclusions: Adolescents with T1DM and their parents viewed a group physical activity and discussion intervention as a positive experience. Because participants highly valued the group aspect of the intervention, future MVPA interventions would likely benefit from integrating social interactions with others with T1DM.

2021 ◽  
Vol 47 (5) ◽  
pp. 367-381
Author(s):  
Melissa DeJonckheere ◽  
Kevin L. Joiner ◽  
Garrett I. Ash ◽  
Mary Savoye ◽  
Mackenzie Adams ◽  
...  

Purpose To examine youth and parent perspectives on the acceptability of Bright 1 Bodies, a group physical activity and coping intervention for adolescents with type 1 diabetes mellitus (T1DM). Methods Adolescents participated in 12 weekly sessions of moderate to vigorous physical activity and discussion with peers with T1DM. Adolescents completed an exit survey measuring satisfaction with the intervention on a 5-point Likert scale. Semistructured interviews were conducted with adolescents and at least one parent. Qualitative description was used to develop themes that summarize the acceptability of the intervention. Results Mean scores for survey subscales were: 4.5 (SD = 0.39) for program components and strategies, 4.4 (SD = 0.44) for comfort with the intervention, and 4.3 (SD = 0.62) for instructors. Themes included: (1) adolescents and parents valued being around others with T1DM and their families, (2) the intervention helped adolescents gain knowledge and reinforce diabetes self-management behaviors, (3) challenges included convenience and sustaining participant engagement, and (4) adolescents intended to sustain physical activity and diabetes self-management behaviors after the intervention. Conclusions Adolescents and parents viewed the intervention as acceptable across multiple domains. Participants valued the group aspect of the intervention, and future interventions would benefit from integrating social interactions with others with T1DM.


2021 ◽  
Vol 102 ◽  
pp. 106279
Author(s):  
Holly K. O'Donnell ◽  
Tim Vigers ◽  
Suzanne Bennett Johnson ◽  
Laura Pyle ◽  
Nancy Wright ◽  
...  

2012 ◽  
Vol 08 (02) ◽  
pp. 77 ◽  
Author(s):  
Jessica C Kichler ◽  
Ashley Moss ◽  
Astrida S Kaugars ◽  
◽  
◽  
...  

The Pediatric Self-Management Model provides an overview of how behavioral factors influence children’s chronic medical illnesses. This general framework is used to organize the present review of how self-management behaviors, contextual factors, and processes impact health outcomes for adolescent youth with type 1 diabetes. Adherence has been widely studied in the diabetes literature, and there are consistent findings demonstrating associations between aspects of self-management, adherence, and metabolic control, yet there are still equivocal approaches to adherence assessment methodology (e.g. global versus specific measures). Metabolic control is a hallmark health outcome for youth with type 1 diabetes, but additional outcomes need to be further explored. Future research should utilize the Pediatric Self-Management Model’s operational definitions to guide empirically-supported interventions for youth with type 1 diabetes.


2020 ◽  
Vol 46 (5) ◽  
pp. 444-454
Author(s):  
Manuela Sinisterra ◽  
Katherine Patterson Kelly ◽  
Caitlin Shneider ◽  
Ashley El-Zein ◽  
Ellen Swartwout ◽  
...  

Purpose The purpose of the study was to explore facilitators and barriers to self-management behaviors in adolescents with type 1 diabetes (T1D) to inform the development of an mHealth platform. Methods Eight adolescents with T1D, 9 parents, and 13 health care providers participated in separate focus groups that explored teen self-management behaviors. Results Adolescents and their parents have distinct preferences for handling diabetes management and use of mHealth technologies. Health care providers support the use of new technologies yet acknowledge concern meeting the potential increased volume of communication requests from teens and families. Conclusion Stakeholders agreed that an ideal mHealth platform would facilitate open communication between teens and their care network and easily integrate with other diabetes technologies. Future directions include incorporating additional feedback from stakeholders to build and modify the mHealth platform. The use of mHealth platforms could be integrated into clinical practice to optimize self-management and support communication between educators, providers, and families in between clinic visits.


2020 ◽  
Vol 21 (6) ◽  
pp. 979-986
Author(s):  
Ashley M. Butler ◽  
Bridget E. Weller ◽  
Caryn R. R. Rodgers ◽  
Ashley E. Teasdale

2021 ◽  
Author(s):  
Nahid Zarifsanaiey ◽  
Masoomeh Otrodi Shirazi ◽  
Manoosh Mehrabi ◽  
Zahra Bagheri

Abstract Background: This study aimed to assess the effects of digital storytelling on the self-management behavior of adolescents with type 1 diabetes (TID). Methods: In this randomized controlled clinical trial, 60 adolescents with TID were randomly allocated into two parallel groups: intervention (training with digital storytelling method, n=33) or control (training with a conventional method, n=33). The primary outcome was the assessment of the Self-Management behavior of adolescents with TID (SMOD-A), at baseline and three months after the intervention.Results: The results revealed that digital storytelling can lead to significant improvement in self-management behaviors amongst the adolescents with TID (P=0.005), while in the control group no significant changes were observed (P>0.05). The results also showed that the level of collaboration with parent’s dimension scores had a significant reverse relationship with the adolescent age after digital storytelling (p = 0.048). With respect to HbA1c levels, significant changes were not observed in any of the groups (P>0.05).Conclusions: Digital storytelling is practicable and a potentially beneficial training modality for adolescents with TID.Trial registration: This trial was respectively registered.ClinicalTrials.gov Identifier: IRCT20191220045828N1. Date of registration: Oct 29. 2020(https://clinicaltrials.gov/ct2/show/NCT04608058?term=zarifsanaiey&draw=2&rank=1)


Author(s):  
Jefferson Dantas da Costa ◽  
Keila Maria de Azevedo Ponte Marques ◽  
Kairo Cardoso da Frota ◽  
Luciane Silva Oliveira

This study aimed to identify the synthesis of scientific knowledge about the contribution of educational technologies in the care of children with type 1 Diabetes Mellitus. This is an integrative review conducted in June and July 2020 in the MEDLINE, LILACS, and BDENF databases of articles from 2015 to 2019. After adopting the inclusion and exclusion criteria, eight articles were selected. The educational technologies used were digital platforms, educational workshops, case simulations, poster, and educational booklet. We identified limitations of studies with validation of technologies that addressed themes such as physical activity, healthy eating, and coping with psychosocial situations. The importance of the nursing team's performance was identified in educational interventions run in a playful and creative way, including parents and caregivers during the process.


2017 ◽  
Vol 12 (2) ◽  
pp. 412-414 ◽  
Author(s):  
Danielle Groat ◽  
Hiral Soni ◽  
Maria Adela Grando ◽  
Bithika Thompson ◽  
Curtiss B. Cook

Studies have found variability in self-care behaviors in patients with type 1 diabetes, particularly when incorporating exercise and alcohol consumption. The objective of this study was to provide results from a survey to understand (1) insulin pump behaviors, (2) reported self-management behaviors for exercise and alcohol, and (3) perceptions of the effects of exercise and alcohol on blood glucose (BG) control. Fourteen participants from an outpatient endocrinology practice were recruited and administered an electronic survey. Compensation techniques for exercise and alcohol, along with reasons for employing the techniques were identified. Also identified were factors that participants said affected BG control with regard to exercise and alcohol. These results confirm the considerable inconsistency patients have about incorporating exercise and alcohol into decisions about self-management behaviors.


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