Refugee Children’s Wellbeing in Greece: Methodological and Ethical Challenges

2020 ◽  
Vol 15 (2-2020) ◽  
pp. 160-173
Author(s):  
Antoanneta Potsi ◽  
Zoi Nikiforidou ◽  
Lydia Ntokou
Keyword(s):  
Data Collection ◽  
Qualitative Data ◽  
Ethical Issues ◽  
Well Being ◽  
Refugee Children ◽  
Participatory Methods ◽  
Ethical Challenges ◽  
Individual Interviews ◽  
Children’S Wellbeing

This paper brings to the fore the methodological and ethical issues we faced in the process of collecting qualitative data from refugee children in Greece in the context of the Children’s Understandings of Well- Being study. The aim of this contribution is to expose the methodological and ethical challenges we encountered before and during the data collection. Through the case study of 4 children we critically reflect on the methodological tools used as a means of exploring refugee children’s sense of wellbeing. These were individual interviews initially and more participatory methods. Contextual factors are discussed and our dilemmas as researchers are unpicked for further analysis.

scholarly journals Overcoming Ethical Challenges in Conducting Research Among Persons With Dementia

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 20-21
Author(s):  
Jeanine Yonashiro Cho ◽  
Elizabeth Avent ◽  
Roberta Peterson ◽  
Laura Mosqueda ◽  
Zachary Gassoumis
Keyword(s):  
Ethical Issues ◽  
Well Being ◽  
Lessons Learned ◽  
Ethical Challenges ◽  
Care Partners ◽  
Moderate Dementia ◽  
Conducting Research ◽  
The Right

Abstract By 2060, the number of older adults with Alzhemier’s Disease or related dementias (ADRD) is expected to encompass approximately 13.9 million Americans. Recognizing this, the federal government has prioritized research on ADRD and their effect on the physical, emotional, and psychological well-being of persons with dementia (PWD). Such research is complicated by disease-associated decline in cognitive and functional capacity among PWDs which can impair participant ability to process and communicate information, potentially increasing their exposure to negative research-related experiences and compromising the accuracy and reliability of provided data. Nevertheless, as a key stakeholder group, PWD should have the right to participate in research on ADRD. This session will present a case study of ethical issues that emerged in an NIH-funded study utilizing mixed-methods to examine caregiving and care dyad relationships between PWD and their care partners over an 18-month follow-up period. Ethical issues examined will include: (1) PWD capacity to consent to research at baseline and (2) during follow-up visits, (3) Obtaining accurate and reliable data from persons with mild to moderate dementia, (4) Assessing PWD distress while engaging in data collection processes, and (5) Reporting of negative caregiving and life experiences, such as elder mistreatment. The discussion of these topics and presentation of lessons learned holds promise for improving research methodology in studies involving PWD and enabling researchers to increase the involvement of persons with mild to moderate dementia in research on ADRD.

“When My Hands Were Tied, You Were Able to Continue”

2021 ◽  
Vol 2 (2) ◽  
pp. 161-176
Author(s):  
Mary Kimani ◽  
Catherine Vanner
Keyword(s):  
Child Abuse ◽  
Qualitative Case Study ◽  
Case Study Research ◽  
Document Analysis ◽  
Research Process ◽  
Research Assistant ◽  
Ethical Challenges ◽  
Individual Interviews ◽  
Abuse Case

This paper discusses our experiences harnessing the complementarity of perspectives, positions, and resources as an outsider lead researcher and an insider research assistant while reporting a child abuse case that we learned of during qualitative case study research in Kenya. We use collaborative autoethnography to examine our experiences during the research process, with semi-structured individual interviews of each other and document analysis of our email correspondence. We provide a narrative of vulnerability regarding the complexity of reporting child abuse and offer recommendations on how researchers can navigate their limitations and strategically draw from insider-outsider partnerships when managing ethical challenges.

Self-case study as a catalyst for personal development in cognitive therapy training

2010 ◽  
Vol 3 (3) ◽  
pp. 107-116 ◽  
Author(s):  
Niccy Fraser ◽  
Jan Wilson
Keyword(s):  
Cognitive Therapy ◽  
Personal Development ◽  
Ethical Issues ◽  
Narrative Structure ◽  
Life Changes ◽  
Narrative Study ◽  
Individual Interviews ◽  
Introductory Course ◽  
Collection Data

AbstractPersonal development is a vital requirement of counsellor development, and educators need to consider how best to promote and support students’ personal development throughout training. ‘Self-case study’ can provide both learning and personal development opportunities for counselling students. This qualitative narrative study explores seven students’ perspectives about their experiences of completing a self-case study as a learning requirement for a compulsory introductory course in cognitive therapy at undergraduate level. Unstructured individual interviews were used for data collection. Data analysis involved identifying themes and analysing the narrative structure of stories. The findings emphasized the view that self-case study provides useful learning opportunities in the areas of theory, practice and personal development. Most participants described transformational life changes resulting from completing a self-case study. This paper presents selected findings. The ethical issues and limitations of this study are discussed. Self-case study is recommended as a potentially effective education strategy.

scholarly journals Qualitative Methods Used to Generate Questionnaire Items: A Systematic Review

2018 ◽  
Vol 29 (1) ◽  
pp. 149-156 ◽  
Author(s):  
Laetitia Ricci ◽  
Jean-Baptiste Lanfranchi ◽  
Fabienne Lemetayer ◽  
Christine Rotonda ◽  
Francis Guillemin ◽  
...  
Keyword(s):  
Systematic Review ◽  
Content Analysis ◽  
Data Collection ◽  
Qualitative Methods ◽  
Qualitative Data ◽  
Item Generation ◽  
Individual Interviews ◽  
Data Content ◽  
Collection Methods ◽  
Qualitative Data Collection

A systematic review of articles using qualitative methods to generate questionnaire items identified in MEDLINE and PsycINFO from 2000 to 2014 was carried out. Articles were analyzed for (a) year of publication and journal domain, (b) qualitative data collection methods, (c) method of data content analysis, (d) professional experts’ input in item generation, and (e) debriefing of the newly developed items. In total, 371 articles were included and results showed (a) an acceleration of published articles, (b) individual interviews and focus groups were common ways of generating items and no emergent approach was identified, (c) the content analysis was usually not described (43% of articles), (d) experts were involved in eliciting concepts in less than a third of articles, (e) 61% of articles involved a step of further submission of newly developed items to the population of interest. This review showed an insufficient reporting of qualitative methods used to generate new questionnaires despite previous recommendations.

Ethical Issues in Qualitative Data Collection and Management

2019 ◽  
pp. 697-713
Author(s):  
Cees Th Smit Sibinga
Keyword(s):  
Qualitative Research ◽  
Data Collection ◽  
Personal Experience ◽  
Qualitative Data ◽  
Ethical Issues ◽  
External Influence ◽  
Collection And Management ◽  
Fair Chance ◽  
Qualitative Data Collection ◽  
The Way

Qualitative data collection is largely defined by the personal experience and opinions of the examinee. The examinee is central in the approach, and not so much the researcher. The essence is a communication between the researcher and the examinee, where interpretation of both the questions asked and the answers provided serves the purpose of understanding. This type of research is interpretative and almost exclusively subjective, because the personal or subjective way of understanding and interpretation is central. However, there is certainly a serious possibility for external influence on the answers to be provided or even the way answers are interpreted. Additionally, there is a fair chance that the questions are phrased towards expected answers. There are various moments where ethics are paramount to the quality and acceptability of the research. To protect objectivity, ethical professionalism and professional morale are important. This chapter aims to describe and discuss ethical issues related to collection and management of data from qualitative research.

Ethical Issues in Qualitative Data Collection Among Vulnerable Populations in Healthcare Setting

2018 ◽  
pp. 80-97
Author(s):  
Seng Fah Tong ◽  
Wen Ting Tong ◽  
Wah Yun Low
Keyword(s):  
Data Collection ◽  
Therapeutic Relationship ◽  
Vulnerable Populations ◽  
Qualitative Data ◽  
Ethical Issues ◽  
Healthcare Providers ◽  
Healthcare Setting ◽  
Future Patient ◽  
Qualitative Data Collection

The chapter aims to highlight the ethical issues in qualitative data collection among vulnerable populations. Among the ethical issues are the conflict role of interviewers, adverse impact on future patient-therapist relationship, and emotional trauma both during and after data collection. The interviewers, usually healthcare providers, may subconsciously assume the role as a therapist during the interviews. Furthermore, the interviewers may encounter the participants (patients) in future clinical consultations; hence, information exchanges during the interviews could influence the therapeutic relationship. Recollection of experiences with an illness during the interviews can be a painful experience for patients. These ethical dilemmas can be addressed with appropriate sampling of participants and constant awareness of the researcher roles and relationships with the participants. Debriefing the participants with support is important to handle emotional upheavals.

scholarly journals Cross-Sectoral Big Data

2019 ◽  
Vol 11 (3) ◽  
pp. 327-339 ◽  
Author(s):  
Graeme T. Laurie
Keyword(s):  
Big Data ◽  
Ethical Issues ◽  
Health Sector ◽  
Well Being ◽  
Biomedical Data ◽  
Ethical Values ◽  
Ethics Framework ◽  
Full Explanation ◽  
Health And Well Being

Abstract Discussion of uses of biomedical data often proceeds on the assumption that the data are generated and shared solely or largely within the health sector. However, this assumption must be challenged because increasingly large amounts of health and well-being data are being gathered and deployed in cross-sectoral contexts such as social media and through the internet of (medical) things and wearable devices. Cross-sectoral sharing of data thus refers to the generation, use and linkage of biomedical data beyond the health sector. This paper considers the challenges that arise from this phenomenon. If we are to benefit fully, it is important to consider which ethical values are at stake and to reflect on ways to resolve emerging ethical issues across ecosystems where values, laws and cultures might be quite distinct. In considering such issues, this paper applies the deliberative balancing approach of the Ethics Framework for Big Data in Health and Research (Xafis et al. 2019) to the domain of cross-sectoral big data. Please refer to that article for more information on how this framework is to be used, including a full explanation of the key values involved and the balancing approach used in the case study at the end.

scholarly journals Practitioners’ and Policymakers’ Successes, Challenges, Innovations, and Learning in Promoting Children’s Well-being During COVID-19: Protocol for a Multinational Smartphone App Survey (Preprint)

2021 ◽  
Author(s):  
Jennifer C Davidson ◽  
Dimitar Karadzhov ◽  
Graham Wilson
Keyword(s):  
Data Collection ◽  
Local Governments ◽  
Large Scale ◽  
Health And Safety ◽  
Well Being ◽  
Health Impact ◽  
Smartphone App ◽  
Children And Families ◽  
Children’S Wellbeing ◽  
Smartphone Technology

BACKGROUND The advent of COVID-19 abruptly thrust the health and safety of children and families into greater risk around the world. As regional and local governments, nongovernmental organizations, communities, families, and children grapple with the immediate public health impact of COVID-19, the rights and well-being of children, especially those who are already marginalized, have been overlooked. Those working with children have likely encountered unprecedented challenges and responded in innovative ways in efforts to address the needs and rights of all children. OBJECTIVE This paper presents a protocol for a large-scale, multinational study using a new smartphone app to capture the real-time experiences and perspectives of practitioners and policymakers supporting children and families during the COVID-19 pandemic around the globe in relation to a children’s human rights <i>4P</i> framework of protection, provision, prevention, and participation. METHODS This protocol describes a mixed methods survey utilizing a custom-built iOS and Android smartphone app called the COVID 4P Log for Children’s Wellbeing, which was developed in close consultation with 17 international key partner organizations. Practitioners and policymakers working with and for children’s well-being across 29 countries and 5 continents were invited to download the app and respond to questions over the course of 8 weeks. The anticipated large amount of qualitative and quantitative response data will be analyzed using content analysis, descriptive statistics, and word frequencies. RESULTS Formal data collection took place from October 2020 until March 2021. Data analysis was completed in July 2021. CONCLUSIONS The findings will directly inform the understanding of the ways in which COVID-19 has impacted practitioners’, managers’, and policymakers’ efforts to support children’s well-being in their practices, services, and policies, respectively. Innovative and ambitious in its scope and use of smartphone technology, this project also aims to inform and inspire future multinational research using app-based methodologies—the demand for which is likely to continue to dramatically rise in the COVID-19 era. Mitigating the risks of longitudinal remote data collection will help maximize the acceptability of the app, respondents’ sustained engagement, and data quality. INTERNATIONAL REGISTERED REPORT DERR1-10.2196/31013

scholarly journals Shape up or ship out. Experiences of micro and small business entrepreneurs in the Bulawayo Metropolitan Province of Zimbabwe

2016 ◽  
Vol 13 (2) ◽  
pp. 173-183 ◽  
Author(s):  
Gwendoline Nani ◽  
Simon Radipere
Keyword(s):  
Small Business ◽  
Capacity Building ◽  
Study Design ◽  
Qualitative Data ◽  
Case Study Design ◽  
Individual Interviews ◽  
Data Collecting ◽  
Entry Strategy

This study was part of a larger study that sought to find out why businesses tended to imitate one another. However, this particular study focused on the challenges faced by micro and small entrepreneurs in the Bulawayo Metropolitan Province in Zimbabwe as a result of business imitations. A case study design was adopted and individual interviews were used as data collecting instruments. Qualitative data were collected from 30 purposively selected micro and small business entrepreneurs. Findings revealed that while micro and small business entrepreneurs used imitation as a business entry strategy, they also faced challenges of imitation by other players. Recommendations are that capacity building workshops be conducted to educate these entrepreneurs on appropriate strategies to remain relevant in the market

scholarly journals Using theory and reflexivity to preserve methodological rigour of data collection in qualitative research

2022 ◽  
pp. 263208432110613
Author(s):  
Kimberly Jamie ◽  
Adam Pattison Rathbone
Keyword(s):  
Qualitative Research ◽  
Data Analysis ◽  
Data Collection ◽  
Medical Research ◽  
Qualitative Data ◽  
Case Study Research ◽  
Theoretical Perspectives ◽  
Medical Researchers ◽  
Qualitative Data Collection

This paper examines the place of theory in qualitative medical research. While theory’s place in research planning and data analysis has been well-established, the contribution of theory during qualitative data collection tends to be overlooked. Yet, data collection is not an asocial or apolitical process and requires reflection and analysis in and of itself. Therefore, drawing on an exemplar case study research project which focused on patients’ use of medicines, the paper argues that engaging with theory to think reflexively, throughout a project but particularly during the process of data collection can ensure the rigour and trustworthiness of qualitative data. In this case study, we draw on sociologist Erving Goffman’s theoretical framework of the dramaturgical metaphor to address the multiplicity of roles that healthcare practitioners undertaking qualitative research have to occupy and navigate. Rather than painting researchers out of their research through a naïve search for ‘objectivity’, reflexivity that is scaffolded by theory, offers a way through which researchers’ biases and subjectivities can be made explicit and their data analysis transparent. In making this argument, we encourage medical researchers to engage with, and be attuned to, theoretical perspectives outwith their own discipline.

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