scholarly journals Dementia in People with a Turkish Migration Background: Experiences and Utilization of Healthcare Services

2020 ◽  
Vol 77 (2) ◽  
pp. 865-875
Author(s):  
Jessica Monsees ◽  
Tim Schmachtenberg ◽  
Wolfgang Hoffmann ◽  
Amy Kind ◽  
Andrea Gilmore-Bykovskyi ◽  
...  
Keyword(s):  
Family Caregivers ◽  
Help Seeking ◽  
Qualitative Content Analysis ◽  
Relevant Information ◽  
Healthcare Services ◽  
Migration Background ◽  
Structured Interviews ◽  
Migrant Populations ◽  
Turkish Culture ◽  
Willingness To Use

Background: As the proportion of older people with migration background (PwM) increases, the proportion of older PwM with dementia might also increase. Dementia is underdiagnosed in this group and a large proportion of PwM with dementia and family caregivers are not properly supported. Healthcare utilization is lower among older migrant populations. Thus, a better understanding of how PwM and family caregivers perceive their situation and how they experience healthcare services is needed to improve utilization of the healthcare system. Objective: Analyze how family caregivers of PwM with dementia experience their situation, why healthcare services are utilized less often, and what can be done to reverse this. Methods: Eight semi-structured interviews were conducted with people with Turkish migration background caring for PwM with dementia. Qualitative content analysis was used for data analysis. Results: Daily care was performed by one family member with the support of others. Healthcare services were used by most participants. Participants identified a need for better access to relevant information and incorporation of Turkish culture into healthcare services. Conclusion: PwM face similar challenges in taking care of persons with dementia as those without migration background. There is a willingness to use services, and services embracing Turkish culture would help to reduce hesitance and make affected people feel more comfortable, thereby increasing utilization and satisfaction. A limitation of this study is that participants were already connected to health services, which may not reflect the help-seeking behavior of those in the Turkish community who are not involved in healthcare.

scholarly journals The role of research in improving responsiveness of palliative care to migrants and other underserved populations in the Netherlands: a qualitative interview study

2021 ◽  
Vol 20 (1) ◽  
Author(s):  
M. Torensma ◽  
B. D. Onwuteaka-Philipsen ◽  
X. de Voogd ◽  
D. L. Willems ◽  
J. L. Suurmond
Keyword(s):  
Palliative Care ◽  
Healthcare Professionals ◽  
Underserved Populations ◽  
Ethnic Disparities ◽  
Migration Background ◽  
Structured Interviews ◽  
Migrant Populations ◽  
Funding Agencies ◽  
Qualitative Interview Study ◽  
Palliative Patient

Abstract Background The aging of migrant populations across Europe challenges researchers in palliative care to produce knowledge that can be used to respond to the needs of the growing group of patients with a migration background and address ethnic disparities in palliative care. The aim of this study was to identify what factors influence researchers’ efforts to address responsiveness of palliative care to patients with a migration background and other underserved populations in their projects. Methods We conducted semi-structured interviews with 11 researchers involved in seven projects under the Dutch national program for palliative care innovation. Results Researchers’ efforts to address responsiveness of palliative care in their projects were influenced by individual factors, i.e. awareness of the need for responsiveness to patients with a migration background; experience with responsiveness; and, differences in perceptions on responsiveness in palliative care. Researchers’ efforts were furthermore influenced by institutional factors, i.e. the interaction with healthcare institutions and healthcare professionals as they rely on their ability to identify the palliative patient with a migration background, address the topic of palliative care, and enrol these patients in research; scientific standards that limit the flexibility needed for responsive research; and, the responsiveness requirements set by funding agencies. Conclusion Researchers play a key role in ensuring research addresses responsiveness to patients with a migration background. Such responsiveness may also benefit other underserved populations. However, at times researchers lack the knowledge and experience needed for responsive research. To address this we recommend training in responsiveness for researchers in the field of palliative care. We also recommend training for healthcare professionals involved in research projects to increase enrolment of patients with a migration background and other underrepresented populations. Lastly, we encourage researchers as well as research institutions and funding agencies to allow flexibility in research practices and set a standard for responsive research practice.

scholarly journals Perception of Childbirth Experiences of Japanese Women in Bali, Indonesia: A Qualitative Study

2020 ◽  
Author(s):  
Kazuko Tanaka ◽  
Ni Made Dian Kurniasari ◽  
Desak Nyoman Widyanthini ◽  
Ni Luh Putu Suariyani ◽  
Rina Listyowati ◽  
...  
Keyword(s):  
Postnatal Care ◽  
Qualitative Content Analysis ◽  
Perinatal Care ◽  
Healthcare Services ◽  
Japanese Women ◽  
Structured Interviews ◽  
Related Information ◽  
Care Services ◽  
Japanese Residents ◽  
Childbirth Experiences

Abstract Background:Maternal healthcare services in Indonesia have seen dramatic improvements over the past 25 years and yet there is still room for improvement. The perception,by the women,of the perinatalcare provided,is a vital input to further improving theseservices. This study examineshow the perinatal care provided is experienced by Japanese women in Bali, using an interview survey.Methods:We conducted semi-structured interviews, from August to October 2017, with 14 Japanese women living in Badung Regency and Denpasar City in Bali Province, Indonesia to reporttheir perception of the perinatal care they experienced during their pregnancies. The interview guide included among others, the reasons for choosing specific (perinatal care) health facilities and their satisfaction with their experience of using the antenatal, delivery, and postnatal care services. The data were analysed using the qualitative content analysis method.Results:From the interview data, 12 categories across five themes were extracted. Participants reported experiencing various concerns during their pregnancies such as difficulty in obtaining perinatal care related information. Participants,from the beginning of their pregnancies gradually establishedtrusting relationships with midwives, but in many situations, they were disappointed with their childbirth experiences, as they felt that the care provided was not woman-centred.Through their own efforts and with the support of family members and other Japanese residents, many women were able to eventually consider their childbirth experiences as positive. Nonetheless, some women could not overcome their negative impressions even years after childbirth.Conclusions:Participants desired close attention and encouragement from nurses and midwives. Our results suggest that Japanese women in Bali expected a woman-centred perinatal care and active support from nursing/midwifery staff during their pregnancies and postnatal care.

scholarly journals How do older adults understand and manage distress? A qualitative study

2019 ◽  
Author(s):  
Alice Moult ◽  
Tom Kingstone ◽  
Carolyn Chew-Graham
Keyword(s):  
Older Adults ◽  
Primary Care ◽  
Older People ◽  
Help Seeking ◽  
Management Strategies ◽  
Healthcare Services ◽  
Ethical Review ◽  
Structured Interviews ◽  
Management Options ◽  
Community Groups

Abstract Background Anxiety and depression are prevalent in older adults, however, older people may be reluctant to seek medical help and may manage their own mood problems. Due to stigma, older adults are more likely to perceive and/ or recognise their mood problems as distress. Whilst previous literature has focused on how younger adults self-manage mood problems, little research has explored how older people self-manage distress. The study reported here seeks to address this gap through qualitative methods. Methods This study was approved by Keele University’s ethical review panel. Older adults who self-identified as distressed, depressed or anxious within the previous 12 months were recruited from community groups in North Staffordshire, England. Data were generated through semi-structured interviews and analysed thematically using constant comparison methods. A public and patient involvement and engagement group contributed to development of the research questions and methods, and offered their perspectives on the findings. Results Data saturation was achieved after 18 interviews. Key themes were: experiences of distress, actions taken, help-seeking from healthcare services and perceptions of treatments offered in primary care. Various forms of loss contributed to participants’ distress. Participants initiated their own self-management strategies which included: pursuing independent activities, seeking social support and attending community groups and church. Five participants reported having consulted a GP when distressed but described a lack of acceptable treatments offered. Conclusions To support older adults who are distressed, primary care healthcare professionals need to explore patients’ existing ways of managing mood problems, provide information about a range of management options and consider the use of sign-posting older adults to community resources.

scholarly journals “It’s extremely hard but it’s not a burden”: A qualitative study of family caregiving for people living with dementia in Vietnam

PLoS ONE ◽  
2021 ◽  
Vol 16 (11) ◽  
pp. e0259788
Author(s):  
Huong Nguyen ◽  
Trang Nguyen ◽  
Duyen Tran ◽  
Ladson Hinton
Keyword(s):  
Family Caregivers ◽  
Family Caregiving ◽  
Help Seeking ◽  
Healthcare Providers ◽  
Structured Interviews ◽  
Resource Setting ◽  
Vietnamese Women ◽  
Low Resource Setting ◽  
The Family ◽  
Multiple Challenges

Background Vietnam is one of the fastest-aging countries in the world with a rising number of people with Alzheimer’s disease and related dementias (ADRD). Families in Vietnam provide most of the care for persons living with dementia, yet our understanding of their experiences and needs is limited. This study examined the family caregiving experience in a semi-rural region outside of central Hanoi from the perspectives of family caregivers and other key informants. Materials Semi-structured interviews were conducted with 21 key stakeholders (12 family caregivers and 9 healthcare providers and community leaders). A descriptive, thematic analysis was conducted. Results Qualitative data analysis revealed four themes related to the family caregiving experience: 1) perceptions of dementia symptoms as a normal part of aging rather than a disease, 2) caregiving as a moral and expected familial obligation, 3) patterns of caregiving that are heavily influenced by both gender and sibling order, and 4) multiple challenges or hardships, including time constraints, loss of income, increased social isolation, a toll on their perceived physical health, and emotional distress. Caregivers rejected the notion that caregiving was a “burden” and expressed their distress through terms such as frustration, sadness, and exhaustion. Conclusions In this low-resource setting, the stress of family caregiving may be amplified by lack of community resources, cultural stigma discouraging outside help-seeking, and economic impact of care provision. The study highlights the vulnerability and predicament of Vietnamese women who often face multiple challenges in their caregiving role as well as the urgent need for the development of community-based programs and supports.

scholarly journals Caregiver Burden in Caregivers of Patients Receiving Hemodialysis: A Qualitative Study

2020 ◽  
Author(s):  
Sima Hejazi ◽  
Meimanat Hosseini ◽  
Abbas Ebadi ◽  
Hamid AlaviMajd
Keyword(s):  
Content Analysis ◽  
Family Caregivers ◽  
Caregiver Burden ◽  
Structural Model ◽  
Qualitative Content Analysis ◽  
Time Dependent ◽  
Teaching Hospitals ◽  
Analysis Method ◽  
Structured Interviews ◽  
Content Analysis Method

Abstract Background Living with End Stage Kidney Disease and hemodialysis place too much burden on patients and their caregivers. The concept of caregiver burden describes a set of diverse caregiver experiences in providing care and requires a complex and multifaceted definition. Limited studies have looked at caregivers of patients receiving hemodialysis and the concept of caregiver burden from their perspective. This study aims to develop the concept of caregiver burden among family caregivers of patients receiving hemodialysis.Method This study was conducted using directed qualitative content analysis method. Twenty one family caregivers, patients, dialysis nurses, physicians, and social workers in teaching hospitals of Tehran and the Iranian Kidney Foundation, Tehran, Iran were enrolled using maximum variation purposive sampling method. Sampling was continued until data saturation was reached. The data collection method was in-depth and semi-structured interviews. In order to analyze the data, the directed qualitative content analysis method was conducted based on the method proposed by Elo and Kyngas which was modified by Assaroudi et al.Results A total of 1162 codes, 63 subcategories, 18 generic categories, and 5 main categories were extracted. The concept of caregiver burden in family caregivers of patients receiving hemodialysis and its dimensions based on the dimensions of the Structural Model of Caregiver Burden Model were approved and another dimension titled a time-dependent burden added to it. Conclusions The caregiver burden experienced by caregivers of patients receiving hemodialysis has physical, psychological, emotional, spiritual, financial, social, and time-dependent dimensions.

scholarly journals Perception of childbirth experiences of Japanese women in Bali, Indonesia: A qualitative study

2020 ◽  
Author(s):  
Kazuko Tanaka ◽  
Ni Made Dian Kurniasari ◽  
Desak Nyoman Widyanthini ◽  
Ni Luh Putu Suariyani ◽  
Rina Listyowati ◽  
...  
Keyword(s):  
Postnatal Care ◽  
Qualitative Content Analysis ◽  
Perinatal Care ◽  
Healthcare Services ◽  
Japanese Women ◽  
Structured Interviews ◽  
Related Information ◽  
Care Services ◽  
Japanese Residents ◽  
Childbirth Experiences

Abstract Background: Maternal healthcare services in Indonesia have seen dramatic improvements over the past 25 years and yet there is still room for improvement. The perception, by the women, of the perinatal care provided, is a vital input to further improving these services. This study examines how the perinatal care provided is experienced by Japanese women in Bali, using an interview survey.Methods: We conducted semi-structured interviews, from August to October 2017, with 14 Japanese women living in Badung Regency and Denpasar City in Bali Province, Indonesia to report their perception of the perinatal care they experienced during their pregnancies. The interview guide included among others, the reasons for choosing specific (perinatal care) health facilities and their satisfaction with their experience of using the antenatal, delivery, and postnatal care services. The data were analysed using the qualitative content analysis method.Results: From the interview data, 12 categories across five themes were extracted. Participants reported experiencing various concerns during their pregnancies such as difficulty in obtaining perinatal care related information. From the beginning of their pregnancies, participants gradually established trusting relationships with midwives, but in many situations, they were disappointed with their childbirth experiences, as they felt that the care provided was not woman-centred. Through their own efforts and with the support of family members and other Japanese residents, many women were able to eventually regard their childbirth experiences as positive. Nevertheless, some women could not overcome their negative impressions even years after childbirth.Conclusions: Participants desired close attention and encouragement from nurses and midwives. Our results suggest that Japanese women in Bali expected a woman-centred perinatal care and active support from nursing/midwifery staff during their pregnancies and postnatal care.

scholarly journals Self-appraisal of caregiving in family caregivers of older adults with dementia in Iran: a content analysis study

2019 ◽  
Author(s):  
Akram Farhadi ◽  
Farahnaz Mohammadi ◽  
Mahshid Foroughan ◽  
Leila Sadeghmoghadam ◽  
Shima Nazari ◽  
...  
Keyword(s):  
Content Analysis ◽  
Family Caregivers ◽  
Personal Growth ◽  
Qualitative Content Analysis ◽  
The Elderly ◽  
Analysis Data ◽  
Structured Interviews ◽  
People With Dementia ◽  
Perceived Burden ◽  
The Family

Abstract Background The concept of caring appraisal, which includes positive and negative aspects of care, has been considered as one of the key concepts in caregivers' studies. The aim of the present study was to investigate the self-appraisal concept of caring from the viewpoint of family caregivers in the elderly with dementia in Iran.Methods This study was based on qualitative analysis. Data were collected through in-depth and semi-structured interviews. Twelve participants (family caregivers of elderly people with dementia) were interviewed between January and September 2016. They were selected from visitors to the Alzheimer's Association of Iran and Yadman Memorial Clinic (Tehran- Iran). The interviews were recorded and transcribed. The transcribed texts were analyzed using inductive qualitative content analysis recommended by Graneheim and Lundman (2004).Results The study explored two main categories include "perceived burden", "Losses and Threats," "satisfaction with care", "Personal growth", "caregiving gains", "philosophy of care" and 22 subcategories.Conclusion According to the results of this study, the family caregivers’ appraisal of their care not only does not have negative aspects but also covers a large number of positive aspects, in which the cultural and social conditions prevailing in the Iranian society play a significant role in the formation of these positive aspects.

scholarly journals Perception of childbirth experiences of Japanese women in Bali, Indonesia: A qualitative study

2020 ◽  
Author(s):  
Kazuko Tanaka ◽  
Ni Made Dian Kurniasari ◽  
Desak Nyoman Widyanthini ◽  
Ni Luh Putu Suariyani ◽  
Rina Listyowati ◽  
...  
Keyword(s):  
Postnatal Care ◽  
Qualitative Content Analysis ◽  
Perinatal Care ◽  
Healthcare Services ◽  
Japanese Women ◽  
Structured Interviews ◽  
Related Information ◽  
Care Services ◽  
Japanese Residents ◽  
Childbirth Experiences

Abstract Background: Maternal healthcare services in Indonesia have seen dramatic improvements over the past 25 years and yet there is still room for improvement. The perception, by the women, of the perinatal care provided, is a vital input to further improving these services. This study examines how the perinatal care provided is experienced by Japanese women in Bali, using an interview survey.Methods: We conducted semi-structured interviews, from August to October 2017, with 14 Japanese women living in Badung Regency and Denpasar City in Bali Province, Indonesia to report their perception of the perinatal care they experienced during their pregnancies. The interview guide included among others, the reasons for choosing specific (perinatal care) health facilities and their satisfaction with their experience of using the antenatal, delivery, and postnatal care services. The data were analysed using the qualitative content analysis method.Results: From the interview data, 12 categories across five themes were extracted. Participants reported experiencing various concerns during their pregnancies such as difficulty in obtaining perinatal care related information. From the beginning of their pregnancies, participants gradually established trusting relationships with midwives, but in many situations, they were disappointed with their childbirth experiences, as they felt that the care provided was not woman-centred. Through their own efforts and with the support of family members and other Japanese residents, many women were able to eventually regard their childbirth experiences as positive. Nevertheless, some women could not overcome their negative impressions even years after childbirth.Conclusions: Participants desired close attention and encouragement from nurses and midwives. Our results suggest that Japanese women in Bali expected a woman-centred perinatal care and active support from nursing/midwifery staff during their pregnancies and postnatal care.

Exploring the Barriers Related to the Healthcare System and Healthcare Professionals in Implementing Quality Intravenous Chemotherapy: A Qualitative Study

2021 ◽  
Author(s):  
shahin salarvand ◽  
Masoumeh Sadat Mousavi ◽  
Mohammad Almasian
Keyword(s):  
Cancer Patients ◽  
Family Caregivers ◽  
Healthcare System ◽  
Healthcare Professionals ◽  
Qualitative Content Analysis ◽  
Healthcare Providers ◽  
Routine Care ◽  
Structured Interviews ◽  
Intravenous Chemotherapy ◽  
Individualized Care

Abstract Purpose: This study aimed to explore barriers related to the healthcare system (HCS) and healthcare providers (HCPs) in implementing quality intravenous (IV) chemotherapy (CT) from the perspectives of cancer patients, family caregivers, and healthcare professionals.Methods: Using an explanatory descriptive qualitative method, this study was conducted in 2019. Forty-one participants (6 patients, 5 family caregivers, 12 oncologists, and 18 nurses) were selected through purposive sampling. In-depth semi-structured interviews were conducted to collect the data, which were analyzed using qualitative content analysis. Lincoln and Guba’s criteria of rigor were employed to ensure the trustworthiness of the study.Results: Data analysis showed two categories, each with three subcategories: Barriers related to HCPs that contains “educational and communication barriers”, “failure to establish trust” and “unskilled healthcare professionals”; Barriers related to the HCS, which consists of “inadequate physical and care infrastructures to provide services”, “lack of support in the disease trajectory from diagnosis to rehabilitation” and “mismanagement of CT wards/procedures”.Conclusion: The identification and removal of the barriers related to HCPs and HCS from routine care are crucial. Education of and communication with cancer patients and their family caregivers are two important pillars in the quality of intravenous chemotherapy (IV CT) and this education and communication should be based on individualized care and tailored to the unique needs of each patient.

A Qualitative Study of Older Patients’ and Family Caregivers’ Perspectives of Transitional Care From Hospital to Home

2021 ◽  
pp. RTNP-D-20-00067
Author(s):  
İlknur Dolu ◽  
Mehmet İIlkin Naharcı ◽  
Patricia A. Logan ◽  
Piret Paal ◽  
Mojtaba Vaismoradi
Keyword(s):  
Family Caregivers ◽  
Older Patients ◽  
Transitional Care ◽  
Care Program ◽  
Healthcare Services ◽  
Structured Interviews ◽  
High Quality ◽  
Rehabilitation Model ◽  
Hospital To Home ◽  
Discharge From Hospital

Background and PurposeThe need for high-quality long-term healthcare services is increasing across the globe as the population ages. Strategies for improving transitional care from hospital to home are needed. This study aimed to explore the perspectives of patients aged 65 years and over and their family caregivers transitioning from hospital to home in an urban area of Turkey.MethodsThematic analysis of in-depth semi-structured interviews was conducted with older patients (n = 14), with at least one chronic disease and admitted to the hospital for a minimum of 3 days, and family caregivers (n = 11) who voluntarily participated.ResultsMain themes were “confused feelings of safety and stress”; “worried about being left alone”; and “disrupted healthcare journey.” The proactive rehabilitation model was used to elaborate on the study findings and interpret the perspectives and experiences of older patients and their family caregivers, which can be used for improving the quality of care after discharge from hospital.Implications for PracticeA high-quality transitional care program requires taking care of the feeling of safety in older patients and their family caregivers by the multidisciplinary team and their enhanced involvement in care initiatives after hospital discharge.

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