scholarly journals Self-appraisal of caregiving in family caregivers of older adults with dementia in Iran: a content analysis study

2019 ◽  
Author(s):  
Akram Farhadi ◽  
Farahnaz Mohammadi ◽  
Mahshid Foroughan ◽  
Leila Sadeghmoghadam ◽  
Shima Nazari ◽  
...  
Keyword(s):  
Content Analysis ◽  
Family Caregivers ◽  
Personal Growth ◽  
Qualitative Content Analysis ◽  
The Elderly ◽  
Analysis Data ◽  
Structured Interviews ◽  
People With Dementia ◽  
Perceived Burden ◽  
The Family

Abstract Background The concept of caring appraisal, which includes positive and negative aspects of care, has been considered as one of the key concepts in caregivers' studies. The aim of the present study was to investigate the self-appraisal concept of caring from the viewpoint of family caregivers in the elderly with dementia in Iran.Methods This study was based on qualitative analysis. Data were collected through in-depth and semi-structured interviews. Twelve participants (family caregivers of elderly people with dementia) were interviewed between January and September 2016. They were selected from visitors to the Alzheimer's Association of Iran and Yadman Memorial Clinic (Tehran- Iran). The interviews were recorded and transcribed. The transcribed texts were analyzed using inductive qualitative content analysis recommended by Graneheim and Lundman (2004).Results The study explored two main categories include "perceived burden", "Losses and Threats," "satisfaction with care", "Personal growth", "caregiving gains", "philosophy of care" and 22 subcategories.Conclusion According to the results of this study, the family caregivers’ appraisal of their care not only does not have negative aspects but also covers a large number of positive aspects, in which the cultural and social conditions prevailing in the Iranian society play a significant role in the formation of these positive aspects.

scholarly journals Family achievements in struggling with schizophrenia: life experiences in a qualitative content analysis study in Iran

2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Fatemeh Darban ◽  
Roghayeh Mehdipour- Rabori ◽  
Jamileh Farokhzadian ◽  
Esmat Nouhi ◽  
Sakineh Sabzevari
Keyword(s):  
Content Analysis ◽  
Data Analysis ◽  
Family Caregivers ◽  
Qualitative Content Analysis ◽  
Psychiatric Hospitals ◽  
Analysis Data ◽  
Family Ties ◽  
Positive Experiences ◽  
Depth Interviews ◽  
Taking Care

Abstract Background The challenges of living with and taking care of a patient with schizophrenia can lead to positive changes depending on the experiences and reactions of family caregivers. Such changes may directly affect the family performance and the patient’s recovery stage. Present study aimed to explain the positive experiences reported by family caregivers of patients with schizophrenia. Methods The present study is a qualitative study of content analysis. Data were collected using semi-structured and in-depth interviews with 15 family caregivers of patients with schizophrenia referring to one of the psychiatric hospitals in Zahedan, Southeast part of Iran. Purposive sampling method was applied and data analysis was conducted using conventional content analysis proposed by Graneheim and Lundman. Results Data analysis created a theme entitled “family achievements in struggling with schizophrenia”. This theme included four categories including Developing positive personality traits in family members, Strengthening family ties, developing insight into the life, and social mobility. Conclusions The results provided insights that the experience of taking care of patients with schizophrenia led to positive consequences for family caregivers. Thus, it is recommended that psychiatrists or consultants help families rely on positive experiences and share these experiences with families with a newly-suffered patient.

scholarly journals Caregiver Burden in Caregivers of Patients Receiving Hemodialysis: A Qualitative Study

2020 ◽  
Author(s):  
Sima Hejazi ◽  
Meimanat Hosseini ◽  
Abbas Ebadi ◽  
Hamid AlaviMajd
Keyword(s):  
Content Analysis ◽  
Family Caregivers ◽  
Caregiver Burden ◽  
Structural Model ◽  
Qualitative Content Analysis ◽  
Time Dependent ◽  
Teaching Hospitals ◽  
Analysis Method ◽  
Structured Interviews ◽  
Content Analysis Method

Abstract Background Living with End Stage Kidney Disease and hemodialysis place too much burden on patients and their caregivers. The concept of caregiver burden describes a set of diverse caregiver experiences in providing care and requires a complex and multifaceted definition. Limited studies have looked at caregivers of patients receiving hemodialysis and the concept of caregiver burden from their perspective. This study aims to develop the concept of caregiver burden among family caregivers of patients receiving hemodialysis.Method This study was conducted using directed qualitative content analysis method. Twenty one family caregivers, patients, dialysis nurses, physicians, and social workers in teaching hospitals of Tehran and the Iranian Kidney Foundation, Tehran, Iran were enrolled using maximum variation purposive sampling method. Sampling was continued until data saturation was reached. The data collection method was in-depth and semi-structured interviews. In order to analyze the data, the directed qualitative content analysis method was conducted based on the method proposed by Elo and Kyngas which was modified by Assaroudi et al.Results A total of 1162 codes, 63 subcategories, 18 generic categories, and 5 main categories were extracted. The concept of caregiver burden in family caregivers of patients receiving hemodialysis and its dimensions based on the dimensions of the Structural Model of Caregiver Burden Model were approved and another dimension titled a time-dependent burden added to it. Conclusions The caregiver burden experienced by caregivers of patients receiving hemodialysis has physical, psychological, emotional, spiritual, financial, social, and time-dependent dimensions.

scholarly journals Experiences of Health Providers and patients in COVID‑19: A SWOT analysis

2021 ◽  
Author(s):  
Aliasghar kheirkhah ◽  
Ehsan Movahed ◽  
Fereshte gheyabi ◽  
Fatemeh kave Farsani ◽  
Fatemeh Rigabadi
Keyword(s):  
Content Analysis ◽  
Data Analysis ◽  
Health System ◽  
Swot Analysis ◽  
Qualitative Content Analysis ◽  
Main Theme ◽  
Health Providers ◽  
Structured Interviews ◽  
Community Members ◽  
The Family

Abstract Background: Health providers and patients face many problems in preventing and controlling COVID-19 in the family and the health system.Aim: The aim of the present study was to explore experiences of health providers and patients in COVID‑19.Methods: directional qualitative content analysis was applied and 15 participants, including 10 patients with COVID-19 and 5 health providers. Data were collected using semi-structured interviews and analyzed by Lundman and Graneheim qualitative content analysis methods. The MAXQDA10 software was used to manage qualitative data analysis.Results: During the data analysis, "strengths", "weaknesses", "opportunities", and "threats" were defined in terms of categories. The " Benefits and Barriers " was determined as the main theme.Conclusion: Community members and policymakers should support and reinforce the positive experiences of patients and health providers and the health system and families need to be more prepared for the crisis.

scholarly journals Medical Dominance in Nursing Education: Qualitative content analysis

2020 ◽  
Vol 11 (1) ◽  
pp. 61-69
Author(s):  
Mahdi Moosaeifard ◽  
Kourosh Zarea ◽  
Masoud Sirati Nir ◽  
Mohammadreza Dinmohammadi ◽  
Abolfazl Rahimi
Keyword(s):  
Medical Education ◽  
Content Analysis ◽  
Nursing Education ◽  
Data Analysis ◽  
Qualitative Content Analysis ◽  
Educational Status ◽  
Analysis Data ◽  
University Education ◽  
Structured Interviews ◽  
Medical Dominance

Background: Training specialist manpower requires social justice in higher education and inequality leads to the emergence of hierarchies of power and types of dominant or dominated groups. Aim: The aim of the present study was to explain the perceptions and experiences of the heads of nursing departments of Iranian nursing schools regarding medical dominance in nursing education. Methods: The present study was a conventional content analysis. Data collection was carried out using purposeful sampling and in-depth semi-structured interviews with 24 participants. The data analysis process was performed according to Graneheim and Lundman’s qualitative content analysis (2004).  Findings: Data analysis led to the emergence of the theme of "Medical dominance in nursing education" and the three main categories of “physician-centered university education", "weakened educational status", and "belittling nursing education in medical system”. Conclusion: The findings of the present study indicated that physicians enjoy special and superior position in the structure of the Ministry of Health and Medical Education of Iran. Physicians manage the entire system including medical education due to their greater power in managing the system at all micro and macro levels. Thus, other disciplines including nursing education, which are closely related to medicine, are highly ignored.

scholarly journals Self-Efficacy of People with Chronic Conditions: A Qualitative Directed Content Analysis

2018 ◽  
Vol 7 (11) ◽  
pp. 411 ◽  
Author(s):  
Fatemeh Ebrahimi Belil ◽  
Fatemeh Alhani ◽  
Abbas Ebadi ◽  
Anooshirvan Kazemnejad
Keyword(s):  
Content Analysis ◽  
Self Efficacy ◽  
Qualitative Content Analysis ◽  
Final Analysis ◽  
Chronically Ill ◽  
University Hospitals ◽  
Structured Interviews ◽  
The Family ◽  
Empowerment Model ◽  
Chronically Ill Patients

Background: Given the increasing prevalence of chronic illnesses and their complications, supporting and empowering chronically ill patients seems crucial. Self-efficacy is considered as a predictor for empowerment. The purpose of this study to explore of different aspects of self-efficacy among persons with chronic physical conditions based on the Family-Centered Empowerment Model (FCEM). Methods: this qualitative study is part of a larger study; sequential exploratory mixed-method for designing an instrument for the FCEM was conducted from May 2015 to March 2016 in two university hospitals. The sample was 22 participants, including chronically ill patients, family caregivers, and nurses. Data were collected through personal semi-structured interviews. Data analysis was performed concurrently with data collection through directed qualitative content analysis. Results: after determining the self-efficacy attributes in the family-center empowerment model, a category matrix was developed and the codes are placed in subcategories of the matrix. Most participants were female (58.0%), with a mean age of 49.50 years. The final analysis yielded a total of 247 units of analysis dispersed in eight subcategories belonging to four generic-categories. Conclusions: the findings of this study represent the dimensions of chronically-ill individuals’ self-efficacy that can be used to develop and implement programs for empowering chronic ill patients.

scholarly journals Family caregivers of elderly with dementia Relationship between religiosity, resilience, quality of life and burden

2018 ◽  
Vol 12 (4) ◽  
pp. 408-414 ◽  
Author(s):  
Carla Fabiana Carletti Pessotti ◽  
Lineu Corrêa Fonseca ◽  
Gloria Maria de Almeida Souza Tedrus ◽  
Diana Tosello Laloni
Keyword(s):  
Quality Of Life ◽  
Depressive Symptoms ◽  
Family Caregivers ◽  
Neuropsychiatric Symptoms ◽  
The Elderly ◽  
Clinical Aspects ◽  
People With Dementia ◽  
The Family ◽  
Severity Of Dementia

ABSTRACT There are gaps in knowledge regarding how the family caregiver deals with the burden of caring for elderly people with dementia. Objective: To evaluate the family caregivers’ perception of quality of life (QoL), burden, resilience and religiosity and relate them with cognitive aspects and occurrence of neuropsychiatric symptoms of elderly with dementia. Methods: Data from the QoL-AD scale, caregivers’ version, burden interview, resilience scale, Beck depression inventory and PDUREL of 50 family caregivers were correlated with disability assessment for dementia, neuropsychiatric inventory and clinical aspects of 50 elderly with dementia. Results: Linear regression showed that resilience is related with better perceived QoL (p<0.001), severity of dementia (p=0.008), higher intrinsic religiosity (IR) (p=0.044) and lower occurrence of depressive symptoms (p=0.001). Increased burden of family caregivers was associated with a higher occurrence of neuropsychiatric symptoms, education of the elder with dementia, and worse perceived QoL (p<0.001). Lower level of organizational religiosity was associated with severity of dementia. Conclusion: The most resilient caregivers had higher QoL and IR, fewer depressive symptoms, and cared for elders with more severe dementia. Cognitive and sociodemographic aspects, as well as neuropsychiatric symptoms, in the elderly with dementia were associated with QoL and greater caregiver burden.

scholarly journals The Perceptions of Families of Comatose Patients in the Intensive Care Unit: A Qualitative Study

2121 ◽  
Vol 7 (1) ◽  
pp. 9-16
Author(s):  
Mansoureh Karimollahi ◽  
◽  
Zahra Tazakori ◽  
Roghiyeh Falahtabar ◽  
Mehdi Ajri-Khameslou ◽  
...  
Keyword(s):  
Content Analysis ◽  
Intensive Care ◽  
Qualitative Content Analysis ◽  
Sampling Technique ◽  
Analysis Method ◽  
Structured Interviews ◽  
Patient Status ◽  
Content Analysis Method ◽  
The Family ◽  
Data Saturation

Background: There are specific challenges regarding the perceptions of families of comatose patients in Intensive Care Units (ICUs). Identifying these perceptions may attract the cooperation of families with nurses and provide better care for patients. This study aimed to explore the perceptions of families of comatose patients in ICUs. Methods: This was a qualitative content-analysis study. Seventeen families with comatose patients were recruited by the purposive sampling technique. The necessary data were generated by semi-structured interviews, continued until data saturation, and concurrently analyzed by an inductive content analysis method. Results: Four main categories were manifested, including shock and disbelief, the effort for adaptation, exhaustion, and burnout, as well as hope and support. Conclusion: The obtained results signified the importance of nurses’ awareness concerning the family members’ perceptions of their comatose patient status in ICUs. The relevant findings reflected the need for nurses to pay attention to the feelings and emotions of the families of these patients.

scholarly journals Explain the Experience of Family Caregivers Regarding Care of Alzheimer's Patients: A Qualitative Study

2021 ◽  
Vol 12 ◽  
Author(s):  
Hadis Ashrafizadeh ◽  
Mahin Gheibizadeh ◽  
Maryam Rassouli ◽  
Fatemeh Hajibabaee ◽  
Shahnaz Rostami
Keyword(s):  
Content Analysis ◽  
Qualitative Study ◽  
Family Caregivers ◽  
Personal Growth ◽  
Structured Interviews ◽  
Term Care ◽  
Care Experience ◽  
Four Dimensions ◽  
Data Saturation

Introduction: Due to the long-term and progressive nature of Alzheimer's disease, these patients need caregivers who will be responsible for their long-term care and who may then experience an increasing burden related to the progressive disease course, so it is important to understand the experiences of caregivers. The aim of this study was to explain the experience of family caregivers regarding care of Alzheimer's patients.Methods: The present qualitative study employed a conventional content analysis approach and was conducted in Iran in 2020. This research was done through in-depth and semi-structured interviews with 11 qualified caregivers enrolled in a purposive sampling method. Interviews continued until data saturation. Data analysis was performed simultaneously with data collection. Interviews were recorded, transcribed and analyzed through Graneheim and Lundman style content analysis and data management was done with MAXQDA software. In order to achieve the accuracy and validity of the study, the Four-Dimensions Criteria (FDC) by Lincoln and Guba, credibility, dependability, confirmability, and transformability were considered and used.Results: A total of 11 caregivers with mean age and standard deviation 48, ±26.12 participated in the study. The acquired data were put in two main categories of “burnout and exhaustion” with six subcategories and “excellence and personal growth” with three subcategories.Conclusion: In this study, we found that perceptions of caregivers' role were not the same among study participants, who experienced both positive and negative dimensions of care provision to AD patients. The care experience has a spectrum that, in some people, leads to positive outcomes such as growth. A major part of caregiver challenges is related to the burden of caregiving strain and the erosive nature of the disease. Therefore, health planners should identify the challenges, pain and suffering of caregivers and seek to address them through appropriate strategies.

scholarly journals Family achievements in struggling with schizophrenia: life experiences in a qualitative content analysis study in Iran

2020 ◽  
Author(s):  
fatemeh darban ◽  
Roghayeh Mehdipour_Rabori ◽  
Jamileh Farokhzadian ◽  
Esmat Nouhi ◽  
Sakineh Sabzevari
Keyword(s):  
Content Analysis ◽  
Data Analysis ◽  
Family Caregivers ◽  
Qualitative Content Analysis ◽  
Psychiatric Hospitals ◽  
Analysis Data ◽  
Family Ties ◽  
Positive Experiences ◽  
Depth Interviews ◽  
Taking Care

Abstract Background: The challenges of living with and taking care of a patient with schizophrenia can lead to positive changes depending on the experiences and reactions of family caregivers. Such changes may directly affect the family performance and the patient's recovery stage. Present study aimed to explain the positive experiences reported by family caregivers of patients with schizophrenia.Methods: The present study is a qualitative study of content analysis. Data were collected using semi-structured and in-depth interviews with 15 family caregivers of patients with schizophrenia referring to one of the psychiatric hospitals in Zahedan, Southeast part of Iran. Purposive sampling method was applied and data analysis was conducted using conventional content analysis proposed by Graneheim and Lundman. Results: Data analysis created a theme entitled “family achievements in struggling with schizophrenia”. This theme included four categories including Developing positive personality traits in family members, Strengthening family ties, developing insight into the life, and social mobility.Conclusions: The results provided insights that the experience of taking care of patients with schizophrenia led to positive consequences for family caregivers. Thus, it is recommended that psychiatrists or consultants help families rely on positive experiences and share these experiences with families with a newly-suffered patient.

scholarly journals Psychoeducational Program for the Family Member Caregivers of People with Dementia to Reduce Perceived Burden and Increase Patient’s Quality of Life: A Randomized Controlled Trial

2021 ◽  
Vol 12 ◽  
pp. 215013272110140
Author(s):  
Nadia M. Tawfik ◽  
Noha A. Sabry ◽  
Hatem Darwish ◽  
Maha Mowafy ◽  
Saeed S.A. Soliman
Keyword(s):  
Quality Of Life ◽  
Family Caregivers ◽  
Controlled Trial ◽  
Control Group ◽  
Study Group ◽  
Psychoeducational Program ◽  
People With Dementia ◽  
Perceived Burden ◽  
The Family

Background: Dementia is one of the world’s greatest public health issues. Most people with dementia receive home care, and family members are vulnerable to feeling burdened and depressed that reinforces the need for caregiver-driven services to mitigate these negative effects. Objective: The purpose of this research was to evaluate the effect of the psychoeducational program on burden and quality of life of family caregivers for people with dementia. Methods: This randomized controlled trial (RCT) was conducted on 60 family caregivers. Participants were randomly assigned to receive either the 8-session psychoeducational program (study group) or routine care only (control group). The demographic data of the caregivers and their patients, the burden of caregivers using Zarit Burden Interview (ZBI), and the quality of life of the patients using Quality of Life in Alzheimer Disease (QoL-AD) questionnaire were measured before and after the psychoeducational program and compared between the study group and the control group. Results: The results revealed that 80% of the family caregivers were female and 42% were daughters. The mean ± SD of the baseline burden was 61 ± 13.7 and 60.9 ± 10 in the study and the control group, respectively. ZBI burden score in the study group demonstrated a significant drop after the psychoeducational program compared to the control group. Logistic regression analysis showed that caregivers who received the psychoeducational program have OR (95% CI) of 14 (3.1-67.8) compared to those who did not receive the psychoeducational program. Conclusions: Psychoeducational program is effective in reducing the family caregivers’ perceived burden. These findings need to be considered in developing comprehensive dementia care programs to well increase the strategies that help caregivers to deal with their patients.

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