Symptom perception management education improves self-care in patients with heart failure

BACKGROUND: Patients with heart failure often have difficulty recognizing signs and symptoms of the disease, which delays seeking help, and therefore interferes with patient engagement and self-care management. Early detection of these symptoms could lead to care-seeking and avoid hospitalizations. OBJECTIVE: The purpose of this study was to design a complex intervention through a systematic literature review and qualitative study. METHODS: Our design followed the Medical Research Council’s recommendations. To design a complex intervention, we combined a systematic literature review on education, symptom recognition, and self-care management in patients with heart failure, and semi-structured interviews with cardiology healthcare providers and patients with heart failure admitted to a cardiology ward. RESULTS: The systematic literature review identified 582 studies published between 2005 and 2014, of which four were included in the final review. These suggested that patient education focused on symptom recognition, combined with reinforcements, led to better self-care behaviors. Additionally, content analysis of semi-structured interviews revealed three themes: health management, behavior management, and support received. CONCLUSIONS: Combining the findings of the literature review and the themes that emerged from the semi-structured interviews, we proposed the development and implementation of a complex intervention on symptom perception and fluid management.

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Does Symptom Recognition Improve Self-Care in Patients with Heart Failure? A Pilot Study Randomised Controlled Trial

Nursing Reports ◽

10.3390/nursrep11020040 ◽

2021 ◽

Vol 11 (2) ◽

pp. 418-429

Author(s):

Joana Pereira Sousa ◽

Hugo Neves ◽

Miguel Pais-Vieira

Keyword(s):

Quality Of Life ◽

Heart Failure ◽

Care Management ◽

Controlled Trial ◽

Self Care ◽

Fluid Restriction ◽

Symptom Recognition ◽

Patients With Heart Failure ◽

Randomised Controlled

Patients with heart failure have difficulty in self-care management, as daily monitoring and recognition of symptoms do not readily trigger an action to avoid hospital admissions. The purpose of this study was to understand the impact of a nurse-led complex intervention on symptom recognition and fluid restriction. A latent growth model was designed to estimate the longitudinal effect of a nursing-led complex intervention on self-care management and quality-of-life changes in patients with heart failure and assessed by a pilot study performed on sixty-three patients (33 control, 30 intervention). Patients in the control group had a higher risk of hospitalisation (IRR 11.36; p < 0.001) and emergency admission (IRR 4.24; p < 0.001) at three-months follow-up. Analysis of the time scores demonstrated that the intervention group had a clear improvement in self-care behaviours (βSlope. Assignment_group = −0.881; p < 0.001) and in the quality of life (βSlope. Assignment_group = 1.739; p < 0.001). This study supports that a nurse-led programme on symptom recognition and fluid restriction can positively impact self-care behaviours and quality of life in patients with heart failure. This randomised controlled trial was retrospectively registered (NCT04892004).

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Does Symptom Recognition Improve Self-Care in Patients With Heart Failure? A Growth Latent Model

10.20944/preprints202102.0468.v1 ◽

2021 ◽

Author(s):

Joana Pereira Sousa ◽

Hugo Neves ◽

Miguel Pais-Vieira

Keyword(s):

Quality Of Life ◽

Heart Failure ◽

Care Management ◽

Self Care ◽

Control Group ◽

Fluid Restriction ◽

Symptom Recognition ◽

Patients With Heart Failure ◽

The Impact

Patients with heart failure have difficulty in self-care management, as daily monitoring and recognizing symptoms do not readily trigger an action to avoid hospital admissions. The purpose of this study was to understand the impact of a nurse-led complex intervention on symptom recognition and fluid restriction. A latent growth model was designed to estimate self-care management and quality of life changes on patients with heart failure and assessed by a pilot study, for three months, to sixty-three patients (33 control, 30 intervention). Patients in the control group had a higher risk of hospitalisation (IRR 11.36; p<.001) and emergency admission (IRR 4.24; p<.001) at three-months follow-up. Analysis of the time scores demonstrated that the intervention group had a clear improvement in self-care behaviours (βSlope. Assign-ment_group=-.881; p<.001) and in the quality of life (βSlope. Assignment_group=1.739; p<.001). This study supports that a nurse-led program on symptom recognition and fluid restriction can have a positive impact on self-care behaviours and quality of life in patients with heart failure.

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Does Symptom Recognition Improve Self-care in Patients with Heart Failure? A Pilot Study Randomised Controlled Trial

10.20944/preprints202106.0081.v1 ◽

2021 ◽

Author(s):

Joana Pereira Sousa ◽

Hugo Neves ◽

Miguel Pais-Vieira

Keyword(s):

Quality Of Life ◽

Heart Failure ◽

Pilot Study ◽

Care Management ◽

Self Care ◽

Fluid Restriction ◽

Symptom Recognition ◽

Patients With Heart Failure ◽

The Impact

Patients with heart failure have difficulty in self-care management, as daily monitoring and recognizing symptoms do not readily triggers an action to avoid hospital admissions. The purpose of this study was to understand the impact of a nurse-led complex intervention on symptom recognition and fluid restriction. A latent growth model was designed to estimate self-care management and quality of life changes on patients with heart failure and assessed by a pilot study, for three months, to sixty-three patients (33 control, 30 intervention). Patients in the control group had a higher risk of hospitalisation (IRR 11.36; p<.001) and emergency admission (IRR 4.24; p<.001) at three-months follow-up. Analysis of the time scores demonstrated that the intervention group had a clear improvement in self-care behaviours (βSlope. Assignment_group=-.881; p<.001) and in the quality of life (βSlope. Assignment_group=1.739; p<.001). This study supports that a nurse-led program on symptom recognition and fluid restriction can have a positive impact on self-care behaviours and quality of life in patients with heart failure.

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The relationship between health literacy and self-care in patients with heart failure

British Journal of Cardiac Nursing ◽

10.12968/bjca.2020.0128 ◽

2021 ◽

pp. 1-10

Author(s):

Katie Nesbitt ◽

Huiyun Du ◽

Paul Nolan ◽

Susie Cartledge ◽

Parichat Wonggom ◽

...

Keyword(s):

Heart Failure ◽

Health Literacy ◽

Patient Group ◽

Care Management ◽

Self Care ◽

Randomised Control Trial ◽

Adequate Health Literacy ◽

Patients With Heart Failure ◽

Literacy Knowledge ◽

The Relationship

Background/Aims Research has shown that health literacy can influence an individual's ability to practise self-care, particularly for patients with heart failure. This study aimed to assess health literacy and its relationship with heart failure knowledge and self-care practices in this patient group. Methods An observational sub-study was conducted with the data from a large randomised control trial that evaluated the relationship between patients' health literacy, general literacy, knowledge of heart failure and self-care. Results A total of 36 participants were recruited, of which 33 (89.9%) had adequate levels of health literacy. Health literacy was positively associated with heart failure knowledge. However, 67.7% of participants with adequate health literacy were found to have inadequate levels of self-care management. Conclusions Health literacy may facilitate better heart failure knowledge, but it does not necessarily lead to improved self-care management in patients with heart failure. This suggest that clinicians need to put more emphasis on translating knowledge into behavioural changes for self-care in this patient group.

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Validity and reliability of the Korean version of self-care of heart failure index

Journal of Nursing Education and Practice ◽

10.5430/jnep.v8n10p96 ◽

2018 ◽

Vol 8 (10) ◽

pp. 96 ◽

Cited By ~ 3

Author(s):

Jin Shil Kim ◽

Minjeong An ◽

Hyojeong Seo ◽

Seon Young Hwang ◽

Jae Lan Shim

Keyword(s):

Heart Failure ◽

Care Management ◽

Self Care ◽

Psychometric Testing ◽

Validity And Reliability ◽

Failure Index ◽

Korean Version ◽

Reliability Estimates ◽

Patients With Heart Failure ◽

Therapeutic Recommendations

Purpose: Self-care and associated decisions for therapeutic recommendations have been a focus of attention recently in Korea. The purpose of this study was to address the dimensionality and reliability of a Korean version of Self-care of Heart Failure Index (SCHFI v.6.2), a measure of self-care of patients with heart failure within a clinical context.Methods: The study sample completed 120 surveys that consisted of demographic variables and the SCHFI v.6.2, which was created to measure self-care maintenance, self-care management, and self-care confidence in HF patients. Confirmatory factor analysis using Mplus verified a robust structural fit of the three dimensionality for each subscale.Results: Self-care maintenance, CFI = .92, TLI = .88, SRMR = .06, RMSEA = .07; self-care management, CFI = .93, TLI = .78, SRMR = .05, RMSEA = .24; self-care confidence, CFI = .95, TLI = .92, SRMR = .05, RMSEA = .13. Multidimensionality yielded the self-care maintenance scale having 4-factor structures, while each self-care management and confidence scale had a unidimensionality. Reliability estimates using methods compatible with each scale’s dimensionality were adequate to high, ranging from .71 to .96.Conclusions: Psychometric testing of the SCHFI demonstrates a sound model fit, with desirable reliability estimates given each scale dimensionality, using Cronbach’s alpha coefficient and alternative options.

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Barriers to Self-care Among Patients with Heart Failure: A Qualitative Study

Journal of Caring Sciences ◽

10.34172/jcs.2020.026 ◽

2020 ◽

Author(s):

Reza Negarandeh ◽

Ali Aghajanloo ◽

Khatereh Seylani

Keyword(s):

Heart Failure ◽

Content Analysis ◽

Qualitative Content Analysis ◽

Healthcare Providers ◽

Self Care ◽

The Body ◽

Financial Strain ◽

Personal Factors ◽

Structured Interviews ◽

Patients With Heart Failure

Introduction: Heart failure is the most prevalent cardiovascular disease. It is the end stage of most cardiovascular diseases and is characterized by the reduced ability of the heart to pump enough blood to fulfill the metabolic needs of the body. Self-care is the basis of the management of chronic diseases such as heart failure. The aim of this study was to explore the barriers to self-care among patients with heart failure. Methods: This was a qualitative content analysis. Participants were fourteen patients with heart failure and three healthcare providers who were purposively recruited from cardiac care centers in Zanjan, Iran. Data were collected through in-depth semi-structured interviews and were analyzed through the conventional qualitative content analysis approach proposed by Elo and Kyngäs. Results: Self-care barriers -care among patients with HF were categorized into three main categories, namely personal factors, disease burden, and inefficient support system. Each category had three subcategories which were respectively lack of self-care knowledge, heart failure-related negative emotions, the difficulty of changing habits, progressive physical decline, comorbid conditions, financial strain, inadequate social support, healthcare providers’ inattention to self-care, and limited access to healthcare providers. Conclusion: Patients with heart failure face different personal, disease-related, and supportrelated barriers to self-care. Based on these barriers, healthcare providers can develop interventions for promoting self-care among patients with heart failure.

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A psychometric evaluation of the Caregiver Contribution to Self-Care of Heart Failure Index in a Thai population

Health and Quality of Life Outcomes ◽

10.1186/s12955-021-01814-9 ◽

2021 ◽

Vol 19 (1) ◽

Author(s):

Nittaya Srisuk ◽

Nutchanath Wichit ◽

David R. Thompson ◽

Chantal F. Ski

Keyword(s):

Heart Failure ◽

Factor Analysis ◽

Care Management ◽

Self Care ◽

The Self ◽

Thai Population ◽

Heart Failure Patients ◽

Failure Index ◽

Patients With Heart Failure ◽

Confirmatory Factor

Abstract Background Caregivers are major contributor to the self-care of patients with heart failure. The Caregiver Contribution to Self-Care of Heart Failure Index (CC-SCHFI) measures these contributions across three scales: self-care maintenance (symptom monitoring and treatment adherence); self-care management (dealing with symptoms); and confidence in contributing to the self-care (self-efficacy in managing self-care) of patients with heart failure. Informal caregivers play a vital role in supporting family members with heart failure in Thailand, yet no validated tool exists to measure their contribution. We examined the psychometric properties of the CC-SCHFI in a Thai population. Methods The CC-SCHFI was translated into Thai using a standard forward and backward translation procedure. A cross-sectional design was used to examine the psychometric properties of the Thai version of the CC-SCHFI in 100 family caregivers of heart failure patients in Southern Thailand. Confirmatory factor analysis was used to assess construct validity, and factor score determinacy coefficients were computed to evaluate internal consistency reliability. Results The Thai version of the CC-SCHFI demonstrated acceptable internal consistency (composite reliability of each scale ranged from 0.76 to 0.99). Reliability estimates were adequate for each scale (McDonald’s omega ranged from 0.75 to 0.96). Confirmatory factor analysis supported the original factor structure of the instrument, with good fit indices for all three scales (comparative fit index = 0.98–1.00; root-mean-square error of approximation = 0.00–0.07). Conclusions The Thai version of the CC-SCHFI appears to be a valid and reliable instrument for measuring caregiver contributions to self-care maintenance and self-care management as well as contributing to caregiver confidence in the self-care of Thai heart failure patients.

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