scholarly journals Barriers to Self-care Among Patients with Heart Failure: A Qualitative Study

Author(s):  
Reza Negarandeh ◽  
Ali Aghajanloo ◽  
Khatereh Seylani

Introduction: Heart failure is the most prevalent cardiovascular disease. It is the end stage of most cardiovascular diseases and is characterized by the reduced ability of the heart to pump enough blood to fulfill the metabolic needs of the body. Self-care is the basis of the management of chronic diseases such as heart failure. The aim of this study was to explore the barriers to self-care among patients with heart failure. Methods: This was a qualitative content analysis. Participants were fourteen patients with heart failure and three healthcare providers who were purposively recruited from cardiac care centers in Zanjan, Iran. Data were collected through in-depth semi-structured interviews and were analyzed through the conventional qualitative content analysis approach proposed by Elo and Kyngäs. Results: Self-care barriers -care among patients with HF were categorized into three main categories, namely personal factors, disease burden, and inefficient support system. Each category had three subcategories which were respectively lack of self-care knowledge, heart failure-related negative emotions, the difficulty of changing habits, progressive physical decline, comorbid conditions, financial strain, inadequate social support, healthcare providers’ inattention to self-care, and limited access to healthcare providers. Conclusion: Patients with heart failure face different personal, disease-related, and supportrelated barriers to self-care. Based on these barriers, healthcare providers can develop interventions for promoting self-care among patients with heart failure.

Work ◽  
2021 ◽  
pp. 1-9
Author(s):  
Joana Pereira Sousa ◽  
Cláudia Oliveira ◽  
Miguel Pais-Vieira

BACKGROUND: Patients with heart failure often have difficulty recognizing signs and symptoms of the disease, which delays seeking help, and therefore interferes with patient engagement and self-care management. Early detection of these symptoms could lead to care-seeking and avoid hospitalizations. OBJECTIVE: The purpose of this study was to design a complex intervention through a systematic literature review and qualitative study. METHODS: Our design followed the Medical Research Council’s recommendations. To design a complex intervention, we combined a systematic literature review on education, symptom recognition, and self-care management in patients with heart failure, and semi-structured interviews with cardiology healthcare providers and patients with heart failure admitted to a cardiology ward. RESULTS: The systematic literature review identified 582 studies published between 2005 and 2014, of which four were included in the final review. These suggested that patient education focused on symptom recognition, combined with reinforcements, led to better self-care behaviors. Additionally, content analysis of semi-structured interviews revealed three themes: health management, behavior management, and support received. CONCLUSIONS: Combining the findings of the literature review and the themes that emerged from the semi-structured interviews, we proposed the development and implementation of a complex intervention on symptom perception and fluid management.


2020 ◽  
Author(s):  
azade safa ◽  
Farzaneh Sabery ◽  
Mahdieh Sabery

Abstract BackgroundPrevention and management of compassion fatigue (CF) is one of the most serious issues facing the nursing profession today because CF is a complex phenomenon with many negative and destructive consequences. Given that cultural, religious, and socioeconomic differences can affect nurses’ perception about preventive strategies of CF; this study was conducted to obtain greater understanding about prevention and management strategies of CF among Iranian nurses. MethodsInductive content analysis study was conducted by the method proposed by Elo and Kyngäs. It includes three steps of open coding, creating classes and abstracting it. Purposive sampling was used to select the nurses in Tehran and Kashan (two cities in the center of Iran). Data was gathered by semi-structured interviews from June to October 2020. ResultsThe following two main themes, 5 categories and 13 subcategories were extracted. The labels of themes included "self-care strategies" and "social support strategies ". Self-care strategies consisted of 2 main categories of problem-based strategies and escape/ avoidance strategies. Social support strategies included 3 main categories of family support, organizational support and community support. ConclusionThe results showed that Iranian nurses use self-care strategies and social support strategies to prevent and manage CF; nevertheless, it seemed social support strategies outweighed self-care strategies. As a result, in addition to the importance of family and organizational support, the governmental support is also noticeable, thus, appropriate policy- making and culture-building activities to promote nursing dignity are necessary.


2020 ◽  
Vol 6 ◽  
Author(s):  
Ferdinando Iellamo ◽  
Barbara Sposato ◽  
Maurizio Volterrani

Advances in technology now make it possible to manage heart failure (HF) from a remote to a telemonitoring approach using either noninvasive solutions or implantable devices. Nowadays, it is possible to monitor at-home parameters that can be recorded, stored and remotely transmitted to physicians, allowing them to make decisions for therapeutic modification, hospitalization or access to the emergency room. Standalone systems are available that are equipped with self-intelligence and are able to acquire and elaborate data that can inform the remote physician of impending decompensation before it results in additional complications. The development of miniature implantable devices, which could measure haemodynamic variables and transmit them to a monitor outside the body, offers the possibility for the physician to obtain more frequent evaluations of HF patients and the opportunity to take these data into account in management decisions. At present, several telemonitoring devices are available, but the only Food and Drug Administration-approved system is the cardio-microelectromechanical system, which is an implantable pulmonary arterial pressure (PAP) monitoring device that allows a direct monitoring of the PAP via a sensor implanted in the pulmonary artery. This information is then uploaded to a web-based interface from which healthcare providers can track the results and manage patients. At present, the challenge point for telemedicine management of HF is to find the more relevant biological parameter to monitor the clinical status.


2019 ◽  
Author(s):  
Malin Östman ◽  
Siv Bäck-Pettersson ◽  
Ann-Helén Sandvik ◽  
Annelie J Sundler

Abstract Background Heart failure (HF) is a chronic condition with a variety of diverse symptoms. Patients with HF are usually elderly with multimorbidity, which are both multifaceted and challenging. Being a next of kin to patients with HF is described as a complex task consisting of managing care and treatment, monitoring illness and being an emotional support, while also being able to navigate the healthcare system especially in long-term contact. However, few studies have investigated next of kin's perceptions of continuity of care in connection with HF. The present study aimed to describe continuity of care as perceived by the next of kin who care for patients with HF. Methods This study used a qualitative descriptive design. Semi-structured interviews were conducted with the next of kin (n=15) of patients with HF to obtain their perceptions of continuity of care. A phenomenographic analysis method was used to capture the participants' perceptions of the phenomenon. Results The analysis reveals that the next of kin perceive that support from healthcare professionals was strongly associated with experiences of continuity of care. Four categories reveal the next of kin's perceptions of continuity of care: Want to be involved without being in charge; A desire to be in control without acting as the driving force in the care situation; A need for sustainability without being overlooked; and Focusing on making life meaningful while being preoccupied with caregiving activities. Conclusions Next of kin perceive continuity of care to entail well-functioning, long-term and reliable contact with healthcare providers that support them in reducing unnecessary medical and nursing hindrances. They have a variety of needs for continuity and support in connection with their caregiving activities so they can continue to live a meaningful life under the prevailing circumstances. In order to strengthen the next of kin's contact with healthcare providers, it is important to consider the need for continuity of care in relation to patients with HF. Keywords Continuity of care, Heart failure, Next of kin, Phenomenography, Qualitative research


Author(s):  
Ina Thon Aamodt ◽  
Anna Strömberg ◽  
Ragnhild Hellesø ◽  
Tiny Jaarsma ◽  
Irene Lie

Self-care monitoring at home can be a challenge for patients with heart failure (HF). Tools that leverage information and communication technology (ICT), comprise medical devices, or have written material may support their efforts at home. The aim of this study was to describe HF patients’ experiences and their prioritization of tools that support, or could support, self-care monitoring at home. A descriptive qualitative design employing semi-structured interviews was used with HF patients living at home and attending an HF outpatient clinic in Norway. We used a deductive analysis approach, using the concept of self-care monitoring with ICT tools, paper-based tools, medical devices, and tools to consult with healthcare professionals (HCPs) as the categorization matrix. Nineteen HF patients with a mean age of 64 years participated. ICT tools are used by individual participants to identify changes in their HF symptoms, but are not available by healthcare services. Paper-based tools, medical devices, and face-to-face consultation with healthcare professionals are traditional tools that are available and used by individual participants. HF patients use traditional and ICT tools to support recognizing, identifying, and responding to HF symptoms at home, suggesting that they could be used if they are available and supplemented by in-person consultation with HCPs.


Author(s):  
Sang Suk Kim ◽  
Ho Jeong Song ◽  
Jung Jae Lee

Although clinical nurses use online platforms to acquire health-related information and communicate with other healthcare providers, there are increasing reports on their incivility exposure in cyberspace. However, an in-depth understanding of their cyberincivility experience is lacking. This study aimed to identify Korean clinical nurses’ perception and experience of cyberincivility. A qualitative study was conducted. Twenty clinical nurses from seven private and public hospitals in the Seoul metropolitan area were recruited using purposive sampling. Individual semi-structured interviews were conducted with the nurses from June to September 2019. Conventional content analysis was applied for the interview data analysis. Clinical nurses perceived cyberincivility as disrespectful and condemning behavior as users hide under the shield of anonymity to persecute others without fear of retribution. Four themes regarding participants’ cyberincivility experience emerged: unprofessional behavior, hierarchical communication, lack of respect and morality, and forming an inefficient work environment. The results of this study provide an understanding regarding clinical nurses’ experience of cyberincivility that goes beyond that of previous studies, which mainly focused on students. These results could increase awareness of cyberincivility among clinical nurses, and provide key information for the design of cybercivility educational programs and guidelines to curb cyberincivility, nurture professional online communication, and consequently improve quality of care.


2021 ◽  
Vol 20 (Supplement_1) ◽  
Author(s):  
K Baldewijns ◽  
HP Brunner-La-Rocca ◽  
S Bektas ◽  
C Rhode ◽  
L De Maesschalck ◽  
...  

Abstract Funding Acknowledgements INTERREG NWE IVb Background According to ESC-guidelines non-pharmacological interventions such as patient-education on lifestyle and self-care support are important to maintain quality of life (QOL) and to prevent (re)hospitalisation in Heart-Failure (HF). Additionally, these guidelines state that HF treatment should be organised in multidisciplinary programs. However, at this moment it remains unclear what kind of information and self-care support is provided by which health care (HC) professional in the regions Noorder-Kempen and Maastricht. Purpose The aim of this study is to describe which part of patient-education and self-care support is provided by different HC-providers in both regions Methods Semi-structured interviews with Cardiologists (CA), General Practitioners (GP’s) and Heart Failure Nurse (HFN) took place, followed by qualitative content analysis with a five-step approach, resulting in 2 main and 9 sub-themes. Results GP’s in both region express they spend very little time on life-style adjustments, symptom monitoring and self-care support.  GP’s in Noorder-Kempen spend most consultation time on physical follow-up and pharmacological treatment of HF-patients, leaving no or little time for non-pharmacological interventions. GP’s in Maastricht notice that non-pharmacological treatment is someone else"s responsibility e.g. practice nurses, HFN, CA. All interviewed HC-professionals  inform patients considering their diagnosis. GP’s and CA in both regions educate patients considering pharmacological treatment and implanted devices. Moreover GP’s and CA in Noorder-Kempen emphasize the importance of compliance to therapy.  HFN in both regions offer comprehensive advice regarding lifestyle adjustments. HFN in Maastricht explicitly mention self-care support as an important part of their interventions. Conclusion Little regional differences could be found in the non-pharmacological interventions offered by the different HC professions involved in HF-management, however each profession has its own focus. GP’s and CA mainly focus on pharmacological and device therapy and therefore educate patients considering these aspects of HF-treatment. HFN mainly focus on lifestyle adjustments and self-care support.


2017 ◽  
Vol 6 (3) ◽  
pp. 152-158 ◽  
Author(s):  
Leonie Klompstra ◽  
Tiny Jaarsma ◽  
Jan Mårtensson ◽  
Anna Strömberg

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