scholarly journals Patient and Provider Experience With Cystic Fibrosis Telemedicine Clinic

2021 ◽  
Vol 9 ◽  
Author(s):  
Kalen Hendra ◽  
Fatima Neemuchwala ◽  
Marilynn Chan ◽  
Ngoc P. Ly ◽  
Elizabeth R. Gibb

In response to the novel coronavirus (COVID-19) pandemic, all in-person cystic fibrosis (CF) appointments were converted to telemedicine visits at UCSF Benioff Children's Hospital. The purpose of our study was to learn about the experiences that patients, families, and providers had with telemedicine visits and to assess their interest in using telemedicine in the future. Our hypothesis was that most patients, families, and providers want to continue telemedicine visits in the future. An anonymous 11-question survey was distributed to patients, families, and providers in November and December 2020. The survey was completed by 46 of 72 families (64% response rate) and 24 of 25 providers (96% response rate). Thirty-seven families (80%) and 21 providers (88%) were satisfied with their telemedicine experience. Thirty-three families (72%) want to have telemedicine visits in the future. Thirty-five families (76%) and 22 providers (92%) were satisfied with their experience using Zoom. Forty families (87%) and 19 providers (90%) want 2 or more visits each year to be via telemedicine. Our study showed that most families and providers were satisfied with telemedicine, would like to continue using telemedicine, and prefer to have at least 2 of the 4 recommended annual CF visits via telemedicine. Our survey identified the following benefits to telemedicine: decreased travel time, decreased cost, and avoiding exposure to COVID. However, we need to ensure that we do not exacerbate existing health disparities for families that do not speak English and/or do not have the internet capabilities to support telemedicine technology.

2020 ◽  
Vol 9 (2) ◽  
pp. 136-138 ◽  
Author(s):  
Md. Siddikur Rahman ◽  
Noah C. Peeri ◽  
Nistha Shrestha ◽  
Rafdzah Zaki ◽  
Ubydul Haque ◽  
...  

2020 ◽  
Vol 37 (3) ◽  
pp. 97-102
Author(s):  
Luke Tredinnick ◽  
Claire Laybats

This paper compiles a series of responses from key information professionals to the novel coronavirus pandemic of 2020. Respondents were invited to answer the questions how the pandemic has impacted on their work, and how it might change the way of working in the future. Contributors to the article include Scott Brown, Steve Dale, Denise Carter, Alison Day, Hal Kirkwood and Emily Hopkins.


2020 ◽  
Vol 36 (Supplement_1) ◽  
pp. S138-S168 ◽  
Author(s):  
Kashif Malik ◽  
Muhammad Meki ◽  
Jonathan Morduch ◽  
Timothy Ogden ◽  
Simon Quinn ◽  
...  

Abstract The COVID-19 pandemic threatens lives and livelihoods, and, with that, has created immediate challenges for institutions that serve affected communities. We focus on implications for local microfinance institutions in Pakistan, a country with a mature microfinance sector, serving a large number of households. The institutions serve populations poorly-served by traditional commercial banks, helping customers invest in microenterprises, save, and maintain liquidity. We report results from ‘rapid response’ phone surveys of about 1,000 microenterprise owners, a survey of about 200 microfinance loan officers, and interviews with regulators and senior representatives of microfinance institutions. We ran these surveys starting about a week after the country went into lockdown to prevent the spread of the novel coronavirus. We find that, on average, week-on-week sales and household income both fell by about 90 per cent. Households’ primary immediate concern in early April became how to secure food. As a result, 70 per cent of the sample of current microfinance borrowers reported that they could not repay their loans; loan officers anticipated a repayment rate of just 34 per cent in April 2020. We build from the results to argue that COVID-19 represents a crisis for microfinance in low-income communities. It is also a chance to consider the future of microfinance, and we suggest insights for policy reform.


2018 ◽  
Vol 22 (3) ◽  
pp. 382-392 ◽  
Author(s):  
Danielle J Edwards ◽  
Kristin Wicking ◽  
Wendy Smyth ◽  
Linda Shields ◽  
Tonia Douglas

This study investigated the information needs, priorities and information-seeking behaviours of parents of infants recently diagnosed with cystic fibrosis (CF) following newborn screening, by piloting the ‘Care of Cystic Fibrosis Families Survey’. The questionnaires were posted to eligible parents ( n = 66) attending CF clinics in hospitals in two Australian states; reply-paid envelopes were provided for return of the questionnaires. Twenty-six were returned (response rate 39.4%). The most common questions to which parents required answers during their initial education period related to what CF is, how it is treated and how to care for their child. Parents preferred face-to-face consultations to deliver information, and yet all reported using the Internet to search for more information at some point during the education period. Many parents provided negative feedback about being given their child’s CF diagnosis via telephone. The timing, content and method of information delivery can all affect the initial education experience. We can deliver education to better suit the information needs and priorities for education of parents of infants recently diagnosed with CF. The Care of Cystic Fibrosis Families Survey was successfully piloted and recommendations for amendments have been made for use in a larger study across Australia.


Author(s):  
Yoshihiro Yamahata ◽  
Ayako Shibata

BACKGROUND Japan implemented a large-scale quarantine on the Diamond Princess cruise ship in an attempt to control the spread of the novel coronavirus severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2) in February 2020. OBJECTIVE We aim to describe the medical activities initiated and difficulties in implementing quarantine on a cruise ship. METHODS Reverse transcription–polymerase chain reaction (RT-PCR) tests for SARS-CoV-2 were performed for all 3711 people (2666 passengers and 1045 crew) on board. RESULTS Of those tested, 696 (18.8%) tested positive for coronavirus disease (COVID-19), of which 410 (58.9%) were asymptomatic. We also confirmed that 54% of the asymptomatic patients with a positive RT-PCR result had lung opacities on chest computed tomography. There were many difficulties in implementing quarantine, such as creating a dividing traffic line between infectious and noninfectious passengers, finding hospitals and transportation providers willing to accept these patients, transporting individuals, language barriers, and supporting daily life. As of March 8, 2020, 31 patients (4.5% of patients with positive RT-PCR results) were hospitalized and required ventilator support or intensive care, and 7 patients (1.0% of patients with positive RT-PCR results) had died. CONCLUSIONS There were several difficulties in implementing large-scale quarantine and obtaining medical support on the cruise ship. In the future, we need to prepare for patients’ transfer and the admitting hospitals when disembarking the passengers. We recommend treating the crew the same way as the passengers to control the infection. We must also draw a plan for the future, to protect travelers and passengers from emerging infectious diseases on cruise ships.


2020 ◽  
Author(s):  
Emil O. W. Kirkegaard ◽  
Wael Taji ◽  
Arjen Gerritsen

Taking countermeasures to protect against future events requires predicting what the future will be like. In late 2019, a novel coronavirus known as NCov-2019 emerged in Wuhan, China, and has since spread to most countries in the world. Anticipatory responses by civilians facing the crisis have included self-isolation measures, extreme stockpiling of food or medical supplies, and other forms of preparation to meet the expected crisis. However, no consensus exists as to the accuracy of civilian expectations, nor toward the relative value of different informational sources used by citizens to build these expectations (e.g. mainstream news as opposed to an educational background in virology). In the present study, we used an online survey (n = 333 in final sample) to collect individual characteristics and general knowledge regarding viruses and the novel coronavirus, in addition to their forecasts for the various outcomes expected to result from it in the near future. This will allow for the individual correlates of accurate forecasting to be known by 2021, which could prove important for assigning relative weights to forecasts for other events in the future.


2020 ◽  
Vol 19 (2) ◽  
pp. 1-17
Author(s):  
Joseph Olusegun Adebayo ◽  
Blessing Makwambeni ◽  
Colin Thakur

The initial focus of this study was on exploring the potential impact of the Fourth Industrial Revolution (4IR) on future elections in Africa. The Fourth Industrial Revolution is fundamentally changing the way we live, work and relate to one another. In its scale and complexity, 4IR could change humanity and human existence as we presently know it. The suddenness with which the novel coronavirus pandemic has shut down life across the globe, including the cancellation and postponement of scheduled elections, led to a realignment of the research goals. The study thus includes ways in which 4IR and unforeseen global emergencies like pandemics can impact future elections, with specific reference to Africa.


2021 ◽  
Vol 4 (3) ◽  
pp. 437-451
Author(s):  
Hazel Gibson ◽  
Sam Illingworth ◽  
Susanne Buiter

Abstract. In the early months of 2020, as the novel coronavirus (COVID-19) swept across the globe, millions of people were required to make drastic changes to their lives to help contain the impact of the virus. Among those changes, scientific conferences of every type and size were forced to cancel or postpone in order to protect public health. Included in these was the European Geosciences Union (EGU) 2020 General Assembly, an annual conference for Earth, planetary, and space scientists, scheduled to be held in Vienna, Austria, in May 2020. After a 6-week period of changing the format to an online alternative, attendees of the newly designed EGU20: Sharing Geoscience Online took part in the first geoscience conference of its size to go fully online. This paper explores the feedback provided by participants following this experimental conference and identifies four key themes that emerged from an analysis of the following questions: what did attendees miss from a regular meeting, and to what extent did going online impact the event itself, both in terms of challenges and opportunities? The themes identified are “connecting”, “engagement”, “environment”, and “accessibility”. These themes include concepts relating to discussions of the value of informal connections and spontaneous scientific discovery during conferences, the necessity of considering the environmental cost of in-person meetings, and the opportunities for widening participation in science by investing in accessibility. The responses in these themes cover the spectrum of experiences of participants, from positive to negative, and raise important questions about what conference providers of the future will need to do to meet the needs of the scientific community in the years following this coronavirus outbreak.


2020 ◽  
Vol 9 (3) ◽  
pp. 185-198
Author(s):  
Ahmet Sahbaz

In recent years, technological devices and the Internet have become an integral part of our lives, changing many of our habits and daily routines. This change became more rapid and intense during the early months of the COVID-19 pandemic when countries compulsorily locked down their populations in an attempt to impede or halt the spread of the novel coronavirus. In order to continue their education, students stayed at home and were required instead to study online using a computer or a mobile device such as a smartphone. According to UNESCO (n.d.), “more than 1.5 billion students are or have been affected by school and university closures during this period.” As a result, distance education has become the “new normal” of the educational system. Prior to the pandemic, many studies had been conducted regarding the opinions and attitudes of university students toward distance education; however, publications on this subject since the beginning of the pandemic are still very new. Indeed, the current study aimed to reveal the views and evaluations of university students towards distance education since the beginning of the pandemic. This qualitative study was carried out at the Turcology Department of Tuzla University in the Bosnia Herzegovina Federation. A questionnaire comprised of 12 open-ended questions was used to collect the data, which was then analyzed using the conventional content analysis approach. From the results of the study, it can be concluded that almost 90% of the participants were against distance education, but firm supporters of face-to-face education.


2020 ◽  
Vol 148 ◽  
Author(s):  
Brian McCloskey ◽  
David L. Heymann

Abstract The response to the novel coronavirus outbreak in China suggests that many of the lessons from the 2003 SARS epidemic have been implemented and the response improved as a consequence. Nevertheless some questions remain and not all lessons have been successful. The national and international response demonstrates the complex link between public health, science and politics when an outbreak threatens to impact on global economies and reputations. The unprecedented measures implemented in China are a bold attempt to control the outbreak – we need to understand their effectiveness to balance costs and benefits for similar events in the future.


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