Development of a Clinic Screening Tool to Identify Burdensome Health-Related Issues Affecting People Living With HIV in Spain

BackgroundNumerous health-related issues continue to undermine the health and health-related quality of life (HRQoL) of people living with HIV (PLHIV). We developed a clinic screening tool (CST-HIV) for the purpose of identifying these issues in routine specialist clinical care in Spain.MethodsWe used the following established instrument development procedures: (1) a literature review; (2) four focus group discussions (FGDs), two that convened 16 expert HIV care providers, and two that convened 15 PLHIV; (3) prioritisation, selection and definition of constructs (health-related issues) to include in the CST-HIV and drafting of initial item pool; and (4) a pilot study to analyse psychometric properties and validity of items and to determine which to retain in the final CST-HIV. The FGD interview scripts incorporated an exercise to prioritise the health-related issues perceived to have the greatest negative effect on HRQoL. The online questionnaire used for the pilot study included the pool of CST-HIV items and validated measures of each construct.ResultsWe identified 68 articles that reported on factors associated with the HRQoL of PLHIV. The most burdensome health-related issues identified in the FGDs related to stigma, socioeconomic vulnerability, sleep/fatigue, pain, body changes, emotional distress, and sexuality. Based on the literature review and FGD findings, we selected and defined the following constructs to include in the initial CST-HIV: anticipated stigma, emotional distress, sexuality, social support, material deprivation, sleep/fatigue, cognitive problems, and physical symptoms. Two researchers wrote six to eight items for each construct. Next, 18 experts rated 47 items based on their clarity, relevance, and representativeness. Pilot testing was carried out with 226 PLHIV in Spain. We retained 24 items based on empirical criteria that showed adequate psychometric properties. Confirmatory factor analysis confirmed the eight-factor structure with a good fit to the data (RMSEA = 0.035, AGFI = 0.97, CFI = 0.99). We found strong positive correlations between the instrument’s eight dimensions and validated measures of the same constructs. Likewise, we found negative associations between the dimensions of the CST-HIV and HRQoL.ConclusionThe CST-HIV is a promising tool for use in routine clinical care to efficiently identify and address health-related issues undermining the HRQoL of PLHIV.

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Psychometric properties of self-reported measures of health-related quality of life in people living with HIV: a systematic review

Health and Quality of Life Outcomes ◽

10.1186/s12955-021-01910-w ◽

2022 ◽

Vol 20 (1) ◽

Author(s):

Huan Wen ◽

Zhongfang Yang ◽

Zheng Zhu ◽

Shuyu Han ◽

Lin Zhang ◽

...

Keyword(s):

Quality Of Life ◽

Psychometric Properties ◽

Methodological Quality ◽

People Living With Hiv ◽

Health Related Quality ◽

Sf 36 ◽

Related Quality ◽

Health Related ◽

Living With Hiv

Abstract Objective To identify and assess the psychometric properties of patient-reported outcome measures (PROMs) of health-related quality of life (HRQoL) in people living with HIV (PLWH). Methods Nine databases were searched from January 1996 to October 2020. Methodological quality was assessed by using the Consensus-based Standards for the Selection of Health Measurement Instruments (COSMIN) Risk of Bias Checklist. We used the COSMIN criteria to summarize and rate the psychometric properties of each PROM. A modified Grading, Recommendations, Assessment, Development, and Evaluation (GRADE) system was used to assess the certainty of evidence. Results Sixty-nine studies reported on the psychometric properties of 30 identified instruments. All studies were considered to have adequate methodological quality in terms of content validity, construct validity, and internal consistency. Limited information was retrieved on cross-cultural validity, criterion validity, reliability, hypothesis testing, and responsiveness. High-quality evidence on psychometric properties was provided for the Medical Outcomes Study HIV Health Survey (MOS-HIV), the brief version of the World Health Organization's Quality of Life Instrument in HIV Infection (WHOQoL-HIV-BREF), 36-Item Short Form Survey (SF-36), Multidimensional Quality of Life Questionnaire for Persons with HIV/AIDS (MQoL-HIV), and WHOQoL-HIV. Conclusions The findings from the included studies highlighted that among HIV-specific and generic HRQoL PROMs, MOS-HIV, WHOQoL-HIV-BREF, SF-36, MQoL-HIV, and WHOQoL-HIV are strongly recommended to evaluate HRQoL in PLWH in research and clinics based on the specific aims of assessments and the response burden for participants.

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Psychometric properties of self-reported measures of health-related quality of life in people living with HIV

JBI Evidence Synthesis ◽

10.11124/jbies-20-00190 ◽

2021 ◽

Vol Publish Ahead of Print ◽

Author(s):

Zhongfang Yang ◽

Zheng Zhu ◽

Huan Wen ◽

Shuyu Han ◽

Weijie Xing ◽

...

Keyword(s):

Quality Of Life ◽

Psychometric Properties ◽

People Living With Hiv ◽

Health Related Quality ◽

Related Quality ◽

Health Related ◽

Living With Hiv

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Psychometric Properties of a DSM-5-Based Screening Tool for Women's Perceptions of Premenstrual Symptoms

Psychological Reports ◽

10.1177/0033294120979696 ◽

2021 ◽

pp. 003329412097969

Author(s):

Meghan A. Richards ◽

Kirsten A. Oinonen

Keyword(s):

Psychometric Properties ◽

Screening Tool ◽

Physical Symptoms ◽

Premenstrual Symptom ◽

Future Research ◽

Premenstrual Symptoms ◽

Screening Measure ◽

Dsm 5 ◽

Symptom Screening ◽

Women’S Perceptions

A premenstrual screening tool is needed when time constraints and attrition limit the feasibility of daily ratings. The present study examines the utility of a novel, 33-item, retrospective, dimensional, DSM-5-based, screening measure developed to explore women’s perceptions of premenstrual symptomatology. This is the first measure that examines perception of impairment for each DSM-5 symptom and assesses the frequency criterion. Participants (N = 331) reported symptoms ranging from none to a level consistent with a provisional DSM-5 diagnosis of Premenstrual Dysphoric Disorder (PMDD). Initial psychometric properties indicated a five-factor structure: (1) affective symptoms; (2) fatigue, sleep, and anhedonia; (3) symptom frequency; (4) impairment and severity of appetite change and physical symptoms; and (5) difficulty concentrating. The total symptom scale and the frequency, severity, and impairment subscales demonstrated high internal consistency. Strong correlations between this dimensional measure and other retrospective and prospective premenstrual symptom measures suggest strong convergent, concurrent, and predictive validity. Premenstrual symptom groups created using this screening measure (minimal, mild/moderate, severe) differed on other retrospective and prospective measures of premenstrual symptoms. There was evidence of divergent validity and lack of an acquiescence bias. We also report data describing women’s perceptions of the frequency, level of impairment, and level of severity for each DSM-5 PMDD symptom over a 12-month period and discuss implications for future research on premenstrual phenomenology. Initial evidence for the reliability and construct validity of this symptom screening measure suggests potential value for assessing premenstrual symptomatology in research and practice.

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Consequences of COVID-19 crisis for persons with HIV: the impact of social determinants of health

BMC Public Health ◽

10.1186/s12889-021-10296-9 ◽

2021 ◽

Vol 21 (1) ◽

Author(s):

Kristie C. Waterfield ◽

Gulzar H. Shah ◽

Gina D. Etheredge ◽

Osaremhen Ikhile

Keyword(s):

Public Health ◽

Health Care ◽

Clinical Care ◽

Hiv Infections ◽

People Living With Hiv ◽

Negative Consequences ◽

Persons Who Inject Drugs ◽

Persons Living With Hiv ◽

Living With Hiv ◽

The Impact

Abstract Background With the indiscriminate spread of COVID-19 globally, many populations are experiencing negative consequences such as job loss, food insecurity, and inability to manage existing medical conditions and maintain preventive measures such as social distancing and personal preventative equipment. Some of the most disadvantaged in the COVID-19 era are people living with HIV/AIDS and other autoimmune diseases. Discussion As the number of new HIV infections decrease globally, many subpopulations remain at high risk of infection due to lack of or limited access to prevention services, as well as clinical care and treatment. For persons living with HIV or at higher risk of contracting HIV, including persons who inject drugs or men that have sex with men, the risk of COVID-19 infection increases if they have certain comorbidities, are older than 60 years of age, and are homeless, orphaned, or vulnerable children. The risk of COVID-19 is also more significant for those that live in Low- and Middle-Income Countries, rural, and/or poverty-stricken areas. An additional concern for those living the HIV is the double stigma that may arise if they also test positive for COVID-19. As public health and health care workers try to tackle the needs of the populations that they serve, they are beginning to realize the need for a change in the infrastructure that will include more efficient partnerships between public health, health care, and HIV programs. Conclusion Persons living with HIV that also have other underlying comorbidities are a great disadvantage from the negative consequences of COVID-19. For those that may test positive for both HIV and COVID-19, the increased psychosocial burdens stemming from stress and isolation, as well as, experiencing additional barriers that inhibit access to care, may cause them to become more disenfranchised. Thus, it becomes very important during the current pandemic for these challenges and barriers to be addressed so that these persons living with HIV can maintain continuity of care, as well as, their social and mental support systems.

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Experiences engaging in a group-based physiotherapist-led exercise programme for adults living with HIV and complex multimorbidity: a qualitative study

BMJ Open ◽

10.1136/bmjopen-2020-045158 ◽

2021 ◽

Vol 11 (7) ◽

pp. e045158

Author(s):

Tina S. Homayouni ◽

Alex Ruth ◽

Zoe Abbott-Tate ◽

Helen Burger ◽

Shaera Rahim ◽

...

Keyword(s):

Exercise Programme ◽

Community Dwelling ◽

People Living With Hiv ◽

Demographic Questionnaire ◽

Flexible Schedule ◽

Health Related ◽

Qualitative Descriptive ◽

Perceived Impacts ◽

Exercise Programmes ◽

Living With Hiv

ObjectiveTo explore experiences participating in a group-based physiotherapist (PT)-led exercise programme among people living with HIV and complex multimorbidity.DesignWe conducted a qualitative descriptive study using semistructured interviews.Recruitment and settingWe recruited community-dwelling adults living with HIV who engaged in a group-based PT-led exercise programme within an HIV-specialty hospital in Toronto, Canada. Interviews were conducted in-person or by telephone.ParticipantsEight men and two women with a median age of 58 years and median of six concurrent conditions in addition to HIV, who had attended ≥2 classes of the exercise programme.Data collectionInterviews explored (1) reasons for engaging in the programme, (2) experiences with exercise prior to and after joining the programme, (3) facilitators and barriers to engagement and (4) perceived impacts of participation on health and disability. We administered the HIV Disability Questionnaire and a demographic questionnaire.ResultsExperiences spanned perspectives prior to, during and after the PT-led exercise programme. Reasons for engaging in the programme included addressing health-related goals. Participants identified accessibility, the flexible schedule, interprofessional staff and the HIV-specific, group-based environment as facilitators to engagement. Participants reported high attendance rates, but identified episodic health challenges and overcrowded space as potential barriers to attending exercise classes. Perceived impacts on health and disability outcomes included improved physical, mental, social and cognitive health, and activities of daily living. Anticipated or actual experiences transitioning to independent exercise included facilitators (supportive programme leaders) and barriers (challenges motivatiing self to exercise alone).ConclusionsFeatures of the programme that facilitated engagement included the interprofessional, group-based environment that offered tailored exercise in an HIV-specific facility, whereby participants perceived benefits in domains of health and disability. However, challenges transitioning to independent exercise remain. Group-based PT-led exercise programmes may facilitate engagement in exercise among adults living with HIV and complex multimorbidity.

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PIN159 Factors Associated with Health-Related Quality of Life and Medical Costs of People Living with HIV in Italy

Value in Health ◽

10.1016/j.jval.2020.08.1000 ◽

2020 ◽

Vol 23 ◽

pp. S570

Author(s):

E. Foglia ◽

B. Menzaghi ◽

G. Rizzardini ◽

E. Garagiola ◽

L.B. Ferrario ◽

...

Keyword(s):

Quality Of Life ◽

Medical Costs ◽

People Living With Hiv ◽

Health Related Quality ◽

Factors Associated ◽

Related Quality ◽

Health Related ◽

Living With Hiv

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Health State Utility Values (Hsuvs) Measured By The Euroqol 5-Dimensions (Eq-5d) Questionnaire In People Living With Hiv (Plhiv): A Systematic Literature Review (Slr) Using Rapid Review Methodology

Value in Health ◽

10.1016/j.jval.2016.09.416 ◽

2016 ◽

Vol 19 (7) ◽

pp. A418

Author(s):

AM Buchanan-Hughes ◽

LA Eddowes ◽

Q Ma ◽

R Perard ◽

P Hay

Keyword(s):

Literature Review ◽

Systematic Literature Review ◽

Health State Utility ◽

Rapid Review ◽

People Living With Hiv ◽

Health State ◽

Utility Values ◽

Health State Utility Values ◽

Living With Hiv

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The role of basic psychological need satisfaction, sleep, and mindfulness in the health-related quality of life of people living with HIV

Journal of Health Psychology ◽

10.1177/1359105316678305 ◽

2016 ◽

Vol 24 (4) ◽

pp. 535-545 ◽

Cited By ~ 14

Author(s):

Rachel Campbell ◽

Maarten Vansteenkiste ◽

Liesbeth Delesie ◽

Bart Soenens ◽

Els Tobback ◽

...

Keyword(s):

Quality Of Life ◽

Sleep Quality ◽

Need Satisfaction ◽

People Living With Hiv ◽

Health Related Quality ◽

Psychological Need ◽

Related Quality ◽

Health Related ◽

Living With Hiv

Research has not yet examined the relationship between psychological need satisfaction, sleep, mindfulness, and health-related quality of life in people living with HIV. This cross-sectional study ( N = 101; 84% male; mean age = 45.48, SD = 12.75) found need satisfaction to relate positively to physical and mental health. Sleep quality fully mediated the association with physical health and partially mediated the association with mental health. Furthermore, mindfulness related to higher sleep quality through higher need satisfaction. Findings underscore the role of need satisfaction in determining health-related quality of life and sleep quality in people living with HIV and suggest that mindfulness may facilitate need satisfaction.

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