scholarly journals Associations of Caregiving Knowledge and Skills With Caregiver Burden, Psychological Well-Being, and Coping Styles Among Primary Family Caregivers of People Living With Schizophrenia in China

2021 ◽  
Vol 12 ◽  
Author(s):  
Zonglei Zhou ◽  
Yao Wang ◽  
Ping Feng ◽  
Tongxin Li ◽  
Jacob Kraemer Tebes ◽  
...  
Keyword(s):  
Family Caregivers ◽  
Caregiver Burden ◽  
Coping Styles ◽  
Well Being ◽  
Cross Sectional ◽  
Passive Coping ◽  
Psychological Well Being ◽  
Knowledge And Skills ◽  
And Coping ◽  
Primary Family

Background: There is a lack of clarity regarding the correlation of caregiving knowledge and skills with caregiving experiences of people living with schizophrenia (PLSs). To address this gap, this comprehensive study examines the relationships of caregiving knowledge and skills to the primary family caregiver's experiences of burden, psychological well-being (stress, anxiety, depression, caregiving rewarding feelings), and coping styles in China.Methods: A total of 395 primary family caregivers of PLSs were enrolled in a cross-sectional study between May 2019 and September 2019. Each family caregiver was independently assessed on caregiving knowledge and skills, caregiver burden, and psychological well-being, as well as coping styles.Results: A higher level of caregiving knowledge and skills was positively correlated with less stress (b = −0.48, P < 0.001), anxiety (b = −0.23, P = 0.029), depression (b = −0.29, P = 0.013), and more caregiving rewarding feelings (b = 0.54, P < 0.001). Also, caregivers with more knowledge and skills were more inclined to adopt positive coping strategies (b = 0.44, P < 0.001). Despite these differences, caregivers with different levels of caregiving knowledge and skills reported comparable caregiver burden (b = 0.11, P = 0.705) and the use of a passive coping style (b = 0.10, P = 0.169).Conclusion: Caregiving knowledge and skills are a reliable predictor of psychological well-being and active coping among the primary family caregivers of PLSs. These findings inform the development of psychoeducational interventions to support family caregivers of PLSs.

scholarly journals The psychosocial profile of family caregivers of children with chronic diseases: a cross-sectional study

2020 ◽  
Vol 14 (1) ◽  
Author(s):  
Filiberto Toledano-Toledano ◽  
David Luna
Keyword(s):  
Family Support ◽  
Family Caregivers ◽  
Chronic Diseases ◽  
Caregiver Burden ◽  
Parental Stress ◽  
Well Being ◽  
Cross Sectional Study ◽  
Cross Sectional ◽  
Psychosocial Profile ◽  
Anxiety Depression

Abstract Background A family caregiver is defined as a person who has a significant emotional bond with the patient; this caregiver is a family member who is a part of the patient’s family life cycle; offers emotional-expressive, instrumental, and tangible support; and provides assistance and comprehensive care during the chronic illness, acute illness, or disability of a child, adult, or elderly person. The objectives of this study were to identify the psychosocial profiles of family caregivers of children with chronic diseases and to establish the relationship between these profiles and sociodemographic variables. Methods A cross-sectional study was conducted involving 401 family caregivers of children with chronic diseases at the National Institute of Health in Mexico City. The participants responded to the Sociodemographic Variables Questionnaire (Q-SV) for research on family caregivers of children with chronic disease and a battery of 7 instruments that examined anxiety, caregiver burden, family support, depression, resilience, parental stress, and the World Health Organization Well-Being Index. Results A hierarchical cluster analysis and its confirmation through a nonhierarchical cluster analysis confirmed two profiles of caregivers of pediatric patients with chronic diseases. Profile 1, called Vulnerability of family caregivers, is characterized by high levels of anxiety, depression, parental stress and caregiver burden, accompanied by low levels of family support, resilience, and well-being. Profile 2, called Adversity of family caregivers, shows an inverse pattern, with high levels of family support, resilience, and well-being and low levels of anxiety, depression, parental stress and caregiver burden. The sociodemographic characteristics are similar for both profiles, with the exception of the caregiver’s family type. Profile 1 shows more single-parent caregivers, while profile 2 includes more caregivers with a nuclear family. However, the type of family did not reach significance for predicting the caregiver’s profile in a bivariate logistic regression model. Conclusions The psychosocial profile of family caregivers of children with chronic diseases can be structured according to their psychosocial characteristics. Although no causal factors were detected that define criteria for belonging to one or another profile, the characteristics identified for each indicate the need for specific and differentiated intervention strategies for families facing adversity, risk and vulnerability during a child’s disease.

scholarly journals Level of Burden and Health-Related Quality of Life in Caregivers of Palliative Care Patients

2019 ◽  
Vol 16 (23) ◽  
pp. 4806 ◽  
Author(s):  
Perpiñá-Galvañ ◽  
Orts-Beneito ◽  
Fernández-Alcántara ◽  
García-Sanjuán ◽  
García-Caro ◽  
...  
Keyword(s):  
Palliative Care ◽  
Family Caregivers ◽  
Caregiver Burden ◽  
Short Form ◽  
Depression Scale ◽  
Anxiety And Depression ◽  
Cross Sectional ◽  
Post Traumatic Growth ◽  
Post Traumatic ◽  
Primary Family

The complexity of palliative care means that the emotional distress and burden that primary family caregivers suffer under can be particularly high. The objective of this study was to determine the level of burden endured by these primary family caregivers and to identify the variables that predict it in the caregiving relatives of people who require home-based palliative care. A descriptive-correlational cross-sectional study was conducted. Socio-demographic and clinical data were collected from caregivers through a self-administered questionnaire that included questions from the 12-Item Short Form Health Survey (SF-12), Zarit Caregiver Burden Interview (ZBI), Hospital Anxiety and Depression Scale (HADS), Brief Resilient Coping Scale (BRCS), Post Traumatic Growth Inventory (PTGI), and Fatigue Assessment Scale (FAS). A total of 77 caregivers participated; 66.2% were women, and the mean age was 61.5 years. Most (62.3%) were providing care to cancer patients. From among these data, the presence of anxiety as a clinical problem (48.1%), a high average fatigue score (FAS) of 23.0 (SD = 8.5), and the prevalence of intense overload (41.6%) stood out. We found statistically significant correlations between the variables of burden, fatigue, post-traumatic growth, anxiety, and depression, with the latter two being the main predictive variables of burden. In addition, caregiver burden was associated with a worsening of health. Identifying the factors that influence the appearance of overburden will allow the specific needs of careers to be assessed in order to offer them emotional support within the healthcare environment.

scholarly journals Psychosocial Factors Predicting Resilience in Family Caregivers of Children with Cancer: A Cross-Sectional Study

2021 ◽  
Vol 18 (2) ◽  
pp. 748
Author(s):  
Filiberto Toledano-Toledano ◽  
David Luna ◽  
José Moral de la Rubia ◽  
Silvia Martínez Valverde ◽  
Carlos Alberto Bermúdez Morón ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Family Caregivers ◽  
Psychosocial Factors ◽  
Caregiver Burden ◽  
Well Being ◽  
World Health ◽  
Children With Cancer ◽  
Psychological Well Being ◽  
Sociodemographic Variables

Chronic diseases in childhood can affect the physical and mental health of patients and their families. The objective of this study was to identify the sociodemographic and psychosocial factors that predict resilience in family caregivers of children with cancer and to define whether there are differences in the levels of resilience derived from these sociodemographic variables. Three hundred and thirty family caregivers of children with cancer, with an average age of 32.6 years were interviewed. The caregivers responded to a battery of tests that included a questionnaire of sociodemographic variables, the Measuring Scale of Resilience, the Beck Depression Inventory, the Inventory of Quality of Life, the Beck Anxiety Inventory, an interview of caregiver burden and the World Health Organization Well-Being Index. The main findings indicate that family caregivers of children with cancer reported high levels of resilience, which were associated positively with quality of life, psychological well-being and years of study and associated negatively with depression, anxiety and caregiver burden. The variables that predicted resilience in families of children with cancer were quality of life, psychological well-being, depression and number of children. Family caregivers who were married and Catholic showed higher resilience scores. We conclude that being a caregiver in a family with children with cancer is associated with symptoms of anxiety and with depressive episodes. These issues can be overcome through family strength, well-being, quality of life and positive adaptation processes and mobilization of family resources.

Caregiver Burden and Coping Strategies in Caregivers of Elderly Patients with Stroke

2020 ◽  
Author(s):  
Azar Kazemi ◽  
Jalil Azimian ◽  
Maryam Mafi ◽  
Kelly-Ann Allen ◽  
Seyedeh Ameneh Motalebi
Keyword(s):  
Elderly Patients ◽  
Coping Strategies ◽  
Caregiver Burden ◽  
Coping Skills ◽  
Well Being ◽  
Cross Sectional Study ◽  
Cross Sectional ◽  
Male Caregivers ◽  
Negative Coping ◽  
And Coping

Abstract Background Coping strategies play a key role in modulating the caregiving burden. The present study was aimed to determine the severity of the burden of care and its relationship with coping strategies among caregivers of post-stroke elderly patients in Zanjan City, Iran. Methods A total of 110 caregivers of elderly patients who had previously had a stroke participated in this descriptive and cross-sectional study. A demographic checklist, Zarit Burden Interview, and Lazarus and Folkman questionnaires were used for data collection. Questionnaires were completed by the caregivers, who were selected using convenience sampling. The collected data were analyzed using Pearson's correlations and independent t-tests. Results The mean age of 110 caregivers participated in the study was 32.09 ± 8.70 years. The most commonly used coping strategies were reappraisal and seeking social support. Results of the independent t-test showed that male caregivers used the reappraisal strategy (t(110) = 2.76; p = 0.007) and responsibility (t(110) = 2.26; p = 0.026) significantly more than female caregivers. Pearson’s correlation showed a significant positive correlation between caregiver burden and emotional-focused strategies including escaping (r = 0.245, P = 0.010) and distancing (r = 0.204, P = 0.032). Conclusions Based on the results, caregivers with higher burden care used more negative coping strategies, such as escape and distancing. In order to encourage caregivers to utilize effective coping skills, appropriate programs should be designed and implemented to support caregivers. Use of effective coping skills to reduce the level of personal burden can improve caregiver physical health and psychological well-being.

Staff attitudes towards young people in looked after accommodation

2014 ◽  
Vol 16 (4) ◽  
pp. 257-267 ◽  
Author(s):  
Jennifer Copley ◽  
Dan Johnson ◽  
Stella Bain
Keyword(s):  
Young People ◽  
Protective Factor ◽  
Coping Styles ◽  
Well Being ◽  
Staff Attitudes ◽  
Negative Attitudes ◽  
Psychological Well Being ◽  
Content Type ◽  
Client Group ◽  
And Coping

Purpose – To consider the power of psychological well-being, empathy and coping style in predicting staff attitudes towards young people in looked after accommodation, involved in or at risk of offending behaviour. The purpose of this paper is to understand more about staff attitudes which have a significant role in the care and rehabilitation of this client group. Design/methodology/approach – Psychological well-being, empathy and coping style are discussed in terms of their impact on attitudes towards young people. The predictive power of each factor is considered using multiple regression analysis of participants’ responses on an adapted version of the Attitudes to Prisoners (ATP) scale, the General Health Questionnaire (GHQ), the Interpersonal Reactivity Index (IRI) and the Coping Styles Questionnaire (CSQ). Findings – Multiple regression analyses showed that empathic concern (affective empathy) was the only factor predictive of attitudes towards young people. The paper discusses the applied implications for employers, including the possibility of empathy training for staff members and highlights the need for further consideration of the factors impacting on staff attitudes. Practical implications – The outcome suggests that empathy may serve as a protective factor against the development of negative attitudes. This highlights the importance of fostering staff empathy and the possible use of empathy training. Originality/value – The research findings question the robustness of the relationships between staff psychological well-being, empathy, coping styles and attitudes towards their client group. The outcome suggests that empathy may serve as a protective factor against the development of negative attitudes.

scholarly journals Predicting Caregiver Reactions to Challenging Behaviors in the Context of Dementia

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 1023-1023
Author(s):  
Darby Simon ◽  
Benjamin Mast
Keyword(s):  
Family Caregivers ◽  
Caregiver Burden ◽  
Challenging Behaviors ◽  
Depression Scale ◽  
Well Being ◽  
Anticipatory Grief ◽  
Psychological Well Being ◽  
Behavior Frequency ◽  
Zarit Burden Inventory ◽  
Total Behavior

Abstract Challenging behaviors exhibited by people living with dementia have been associated with a variety of negative outcomes including greater caregiver burden, nursing home placement, and lower quality of life. Although there has been considerable research on psychological and behavioral changes in dementia, little research has explored family caregiver reactions to these changes and what caregiver characteristics are associated with stronger emotional reactions. This research examined the relationship between established indicators of caregiver mental health (depression, burden, grief, well-being) and caregiver reaction scores on the Revised Memory and Behavior Problems Checklist (RMBPC). The sample consisted of 76 family caregivers for people living with dementia, aged 25 to 93, who participated in a study on caregiver burden and grief. Multiple regression was used to predict RMBPC caregiver reaction scores from the Zarit Burden Inventory, Geriatric Depression Scale, Ryff Psychological Well-Being Scale, and Anticipatory Grief Scale while controlling for RMBPC total behavior frequency scores. RMBPC total behavior frequency scores and Zarit Burden Inventory were significant predictors of caregiver reaction scores (F(2,74) = 87.559, p < .001, R2 = .703). More frequent, challenging behaviors were associated with more distressing reactions and higher caregiver burden also predicted more distress on the RMBPC reaction scores. Psychological well-being was associated with lower reactions at the bivariate level but was not significant in the full regression model. Future research is needed to better understand these relationships and implement this knowledge to benefit family caregivers.

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