scholarly journals Implementation of an Advance Care Planning Inventory and Its Possible Effect on Quality of Dying: A Nationwide Cross-Sectional Study in Group Homes for Persons with Dementia in Japan

Healthcare ◽  
2021 ◽  
Vol 10 (1) ◽  
pp. 62
Author(s):  
Seira Takada ◽  
Yasuko Ogata ◽  
Yoshie Yumoto ◽  
Masaomi Ikeda
Keyword(s):  
Advance Care Planning ◽  
Group Homes ◽  
Cross Sectional Study ◽  
Care Planning ◽  
Sectional Study ◽  
Cross Sectional ◽  
Quality Of Dying ◽  
Advance Care ◽  
Planning Implementation

This study aimed to develop an inventory for advance care planning implementation for persons with dementia in group homes and to examine the association between inventory implementation and residents’ quality of dying. A nationwide cross-sectional study was conducted via questionnaires mailed from 2000 group homes in Japan, selected through stratified random sampling. Participants were managers and care planners who had provided end-of-life care for recently deceased residents. The newly developed inventory was used to assess advance care planning implementation for persons with dementia, and the Quality of Dying in Long-term Care Scale was used to evaluate quality of dying. The valid response rate was 28.5% (n = 569). The factor structure of the newly developed Advance Care Planning Practice Inventory and the association between its implementation and quality of dying were verified using factor analysis and internal consistency, and logistic regression, respectively. The composite score and the factor score of the newly developed inventory were significantly associated with quality of dying (p < 0.05). The implementation of advance care planning improves the quality of dying. These findings can be used in development of educational programs, as well as research on advance care planning for care providers.

scholarly journals Primary Care Professionals’ Self-Efficacy Surrounding Advance Care Planning and Its Link to Sociodemographics, Background and Perceptions: A Cross-Sectional Study

2021 ◽  
Vol 18 (17) ◽  
pp. 9034
Author(s):  
Cristina Lasmarías ◽  
Amor Aradilla-Herrero ◽  
Cristina Esquinas ◽  
Sebastià Santaeugènia ◽  
Francisco Cegri ◽  
...  
Keyword(s):  
Primary Care ◽  
Logistic Regression ◽  
Advance Care Planning ◽  
Self Efficacy ◽  
Cross Sectional Study ◽  
Stepwise Logistic Regression ◽  
Care Planning ◽  
Sectional Study ◽  
Cross Sectional ◽  
Advance Care

Primary care (PC) professionals have been considered the most appropriate practitioners for leading Advance care planning (ACP) processes with advanced chronic patients. Aim: To explore how PC doctors’ and nurses’ self-efficacy surrounding ACP is linked to their sociodemographic characteristics, background and perceptions of ACP practices. Methods: A cross-sectional study was performed. Sociodemographics, background and perceptions about ACP in practice were collected using an online survey. The Advance Care Planning Self-Efficacy Spanish (ACP-SEs) scale was used for the self-efficacy measurement. Statistical analysis: Bivariate, multivariate and backward stepwise logistic regression analyses were performed to identify variables independently related to a higher score on the ACP-SEs. Results: N = 465 participants, 70.04% doctors, 81.47% female. The participants had a mean age of 46.45 years and 66.16% had spent >15 years in their current practice. The logistic regression model showed that scoring ≤ 75 on the ACP-SEs was related to a higher score on feeling sufficiently trained, having participated in ACP processes, perceiving that ACP facilitates knowledge of preferences and values, and perceiving that ACP improves patients’ quality of life. Conclusion: Professionals with previous background and those who have a positive perception of ACP are more likely to feel able to carry out ACP processes with patients.

Factors Relating to Caregivers’ Preference for Advance Care Planning of Patients in Japan: A Cross-Sectional Study

2019 ◽  
Vol 36 (8) ◽  
pp. 727-733 ◽  
Author(s):  
Fumio Shaku ◽  
Madoka Tsutsumi ◽  
Asumi Nakamura ◽  
Hiroshi Takagi ◽  
Takahiro Otsuka ◽  
...  
Keyword(s):  
Advance Care Planning ◽  
Short Form ◽  
Care Home ◽  
Cross Sectional Study ◽  
Care Planning ◽  
Health Providers ◽  
Sectional Study ◽  
Cross Sectional ◽  
Living Together ◽  
Advance Care

Objectives:The aim of this study was to examine the preferences of home caregivers on patient advance care planning (ACP), including life-sustaining treatment (LST) and the factors relating to these preferences.Background:Personalized ACP aims to respect the autonomy and choices of terminally ill patients regarding end-of-life care. However, there have been cases wherein doctors must instead discuss ACP with surrogates (including caregivers) for various reasons such as dementia, intractable neurologic diseases, and cerebrovascular accident.Methods:In this cross-sectional study, self-written questionnaires (filled by individuals themselves) were distributed to 506 in-home caregivers in 6 Japanese prefectures; the questionnaires contained items on caregiver and patient demographics, number of people living together in a caregiver’s home (aside from patients), care duration, comprehension level of doctors’ explanations regarding their patient’s condition, patient diseases, whether caregivers have or have not told patients about their disease, level of nursing care, and caregiver LST preference (preferred or not preferred). The questionnaire package also contained the Burden Index of Caregiver-11, Patient Health Questionnaire-9, and Short Form-8 Health Survey.Results:Valid responses were obtained from 309 caregivers. More than half of them were not sure of their patient’s LST preference. Sex, number of people living together in a care home, comprehension level of doctors’ explanations, and care duration were found to be the significant factors relating to caregivers’ LST preference ( P < .05).Conclusion:Health providers should be cognizant of the background factors relating to caregiver ACP preference when deciding on LST for terminal patients.

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