scholarly journals A Multiform, Group-Based Rehabilitation Program for Visually Impaired Young People to Promote Activity and Participation. A Pilot Study

2019 ◽  
Vol 16 (19) ◽  
pp. 3682
Author(s):  
Anna-Liisa Salminen ◽  
Tuija Heiskanen ◽  
Tiina Suomela-Markkanen
Keyword(s):  
Young People ◽  
Visual Impairment ◽  
Goal Attainment ◽  
Positive Impact ◽  
Inpatient Rehabilitation ◽  
Well Being ◽  
Rehabilitation Program ◽  
Online Discussions ◽  
Institutional Setting ◽  
Group Meetings

Young people with visual impairment (YPWVI) face several challenges in their everyday lives. However, little is known about interventions that focus on promoting their participation that contributes to health and well-being and is considered the most relevant outcome in rehabilitation. Objectives: This study investigated the clinical outcomes and acceptability of a new one-year, multiform, group-based rehabilitation program for YPWVI. The aim of the pilot program was to support them becoming more independent and to promote their participation. Rehabilitation consisted of group-meetings in an institutional setting, online group meetings, individually tailored one-on-one guidance, individual online discussions and parents’ group meetings. Fifteen young persons with visual impairment were recruited and 14 completed the intervention, six of whom were blind or had severe visual impairment and eight had mild visual loss. Methodology: The study utilized a mixed methods triangulation design. Clinical outcome measures were goal attainment scaling (GAS) and occupational performance (COPM) completed with qualitative interview data. Focus group interviews with participants and parents were used to evaluate the acceptability of the program. Results: GAS-rated personal goals were widely achieved and the scores of both performance and satisfaction scales of COPM improved. Overall, the rehabilitation program proved to be acceptable. Group-based rehabilitation was deemed very important and it enabled peer support. However, two-day periods of inpatient rehabilitation, proved to be too short, whereas five-day periods were considered to disturb schoolwork. Conclusions: Group-based multi-form rehabilitation for YPWVI can have a positive impact on activity and participation of the participants. The program can support independence and the achievement of rehabilitation goals. The group format was applauded for providing social support and company. The program required some structural modifications.

scholarly journals The Association Between Sarcopenia and Functional Improvement in Older and Younger Patients Who Completed Inpatient Rehabilitation: A Prospective Cohort Study

2021 ◽  
Vol 2 ◽  
Author(s):  
Irina Churilov ◽  
Leonid Churilov ◽  
Kim Brock ◽  
David Murphy ◽  
Richard J. MacIsaac ◽  
...  
Keyword(s):  
Cohort Study ◽  
Goal Attainment ◽  
Functional Independence Measure ◽  
Inpatient Rehabilitation ◽  
Functional Independence ◽  
Rehabilitation Program ◽  
Functional Improvement ◽  
Goal Attainment Scaling ◽  
Standard Error Estimation ◽  
Measure Change

Objective: To investigate the association between sarcopenia and functional improvement in patients older and younger than 65 years upon completion of an inpatient rehabilitation program.Design: Prospective cohort study.Participants: Adult consecutive patients who completed the inpatient rehabilitation program at a metropolitan tertiary referral hospital general inpatient rehabilitation unit.Methods: Sarcopenia status was determined using the European Working Group on Sarcopenia in Older People 2 algorithm, using muscle mass measured by BioImpedance Analysis and grip strength. Progress in rehabilitation was measured using change in the Functional Independence Measure and Goal Attainment Scaling score. To investigate the age group by sarcopenia status interaction we used quantile regression models with bootstrapped standard error estimation for functional improvement and linear regression model with robust standard error estimation for GAS score.Results: 257 participants [128 (50%) male, median age 63 years (IQR: 52–72)], 33(13%) with sarcopenia, completed inpatient rehabilitation [median length of stay 16 days (IQR: 11–27.5)]. Participants' median Functional Independence Measure change was 24 (IQR 15–33.5) and mean total Goal Attainment Scaling score was 57.6 (SD 10.2). Adjusting for admission Functional Independence Measure score, the median difference in Functional Independence Measure change between participants with and without sarcopenia was: −4.3 (95% CI: −10.6, 1.9); p = 0.17 in participants 65 years and younger, and 4.6 (95% CI: 1.0, 8.2); p = 0.01 in participants older than 65; age-by-sarcopenia interaction p = 0.02.Conclusions: Unlike younger people, older people with sarcopenia have greater functional improvement in inpatient rehabilitation than those without sarcopenia.

scholarly journals Impact of the eye clinic liaison officer at an NHS foundation trust: a retrospective study

2020 ◽  
Vol 5 (1) ◽  
pp. e000587
Author(s):  
Vaishnavi Menon ◽  
Talia Treen ◽  
Michael A Burdon ◽  
Ruchika Batra
Keyword(s):  
Visual Impairment ◽  
Emotional Support ◽  
Vision Loss ◽  
Positive Impact ◽  
Demographic Data ◽  
Well Being ◽  
Outcome Variable ◽  
University Hospitals ◽  
Case Vignettes ◽  
Eye Clinic

ObjectiveVision loss has a significant impact on physical, mental and social well-being. Eye clinic liaison officers (ECLOs) have a crucial role in providing holistic care for patients with visual impairment. The aim of this study was to review the work of an ECLO over a period of 1 year at an NHS Trust to determine the volume of work and the areas of support provided by the ECLO.Methods and AnalysisA secondary data analysis of the ECLO case notes for all patients reviewed by the ECLO at University Hospitals Birmingham (UHB) NHS Trust during the year 2019, was performed. Demographic data and certification of visual impairment (CVI) status were noted. The main outcome variable recorded was the categories of support provided by the ECLO. Case vignettes were chosen to illustrate the variety of support offered to individual patients.ResultsA total of 1127 consecutive participants were reviewed by the ECLO at University Hospitals Birmingham (UHB) NHS Trust during the year 2019. Areas of support most commonly provided by the ECLO included aiding the process of registration for CVI, and assistance in accessing benefits,social support and low vision support. Severely sight impaired patients required significantly more areas of support than sight impaired patients (Χ2=52.7, p=2.16×10−6). Three case vignettes, chosen by the ECLO, highlighted the positive impact of the ECLO with respect to emotional support, practical advice and as a point of contact ensuring continuity of care, also during the COVID-19 pandemic.ConclusionsThe ECLO at UHB NHS Trust provides a core patient service within the ophthalmology department by being a key source of practical and emotional support and the crucial link between healthcare, social care and voluntary services.

The Contribution of Nonfamily Adults to Adolescent Well-Being

2018 ◽  
Author(s):  
Peter C. Scales ◽  
Eugene C. Roehlkepartain
Keyword(s):  
Young People ◽  
Youth Development ◽  
Spiritual Development ◽  
Positive Impact ◽  
Low Cost ◽  
Well Being ◽  
Extensive Literature ◽  
Developmental Relationships ◽  
Positive Identity ◽  
Sexual Responsibility

This chapter presents an extensive literature review and data from a sample of more than 30,000 children and youth from 30 countries, showing that young people worldwide do not experience an adequate level of developmental relationships with nonfamily adults that feature (a) care, (b) challenge, (c) support, (d) sharing of power with adults, and (e) expansion of young people’s possibilities. Young people who experience high-quality developmental relationships with nonfamily adults are significantly better off on a variety of well-being indicators, including positive identity, workforce readiness, educational attainment, spiritual development, and sexual responsibility. It is concluded that nonfamily adults represent a vast, largely untapped, resource for positive youth development and well-being globally. Implementing policies and practices to measure, track, and build those developmental relationships may be a relatively low-cost way to both promote youth well-being and efficiently multiply the positive impact of existing international aid and humanitarian investments.

scholarly journals There Is No Place Like Home: A Survey on Satisfaction and Reported Outcomes of a Home-Based Rehabilitation Program Among Orthopedic Surgery Patients

2019 ◽  
Vol 7 (6) ◽  
pp. 1715-1723
Author(s):  
Roni Gagin ◽  
Neta HaGani ◽  
Itay Levy ◽  
Doron Norman
Keyword(s):  
Orthopedic Surgery ◽  
Repeated Measures ◽  
Inpatient Rehabilitation ◽  
Well Being ◽  
Rehabilitation Program ◽  
Clear Cut ◽  
Physical Support ◽  
Home Based ◽  
Repeated Measures Analysis

Background: Home-based rehabilitation (HBR) was previously found to be associated with positive outcomes that are equal to inpatient rehabilitation. Few studies have examined the challenges patients are facing during rehabilitation and recovery and their satisfaction from HBR. Objective: The purpose of this study was to examine the overall satisfaction and reported outcomes of HBR. Methods: A telephone survey was conducted among 146 orthopedic surgery patients who participated in an HBR program, at the end of the HBR and 6 months after. The questionnaire included information about level of independence, satisfaction from HBR, and difficulties during HBR. Findings: The overall satisfaction was high (73.1%). Patients reported on improvements in level of independence between the time of hospital discharge, the end of the program ( P = .0001), and the 6 months follow-up ( P = .004). Long wait for beginning of HBR, being a widower, and residing in a facility or with a nonfamilial caregiver were associated significantly with less general well-being and independence. The repeated measures analysis showed age lower than 71 and private health insurance ownership were associated with a better recovery. The most common difficulties reported were physical difficulties, lack of function, and caregivers’ burden. Conclusions: Patients and families need more emotional, social, and physical support during HBR. The increase in health services delivered in community settings requires a more clear-cut policy and supervision for HBR and the follow-up services.

scholarly journals Effects and Quality of Stroke Rehabilitation of BAR Phase D

2018 ◽  
Vol 02 (01) ◽  
pp. E16-E24 ◽  
Author(s):  
Marie-Luise Bussmann ◽  
Hans-Peter Neunzig ◽  
Joachim Gerber ◽  
Jochen Steinmetz ◽  
Svenja Jung ◽  
...  
Keyword(s):  
Acute Stroke ◽  
Stroke Rehabilitation ◽  
Inpatient Rehabilitation ◽  
Well Being ◽  
Rehabilitation Program ◽  
Medical Rehabilitation ◽  
Effect Sizes ◽  
Medium Effect ◽  
Subjective Well Being ◽  
Multicenter Survey

Abstract Background Stroke is a major public health problem of enormous epidemiological significance. Each year, approximately 200.000 people in Germany suffer a stroke. Stroke is the third leading cause of death and the most common cause of acquired disabilities in adults. About one fourth of stroke survivors report severe limitations in activities of daily living three months after acute stroke. The most common post-stroke conditions are motor and cognitive dysfunctions as well as affective problems. Stroke rehabilitation plays a crucial role in coping with stroke sequelae. The large number of strokes and the often debilitating consequences raise the question to what extent participation can be increased by medical rehabilitation. Methods A prospective, multicenter survey study was conducted in six neurological inpatient rehabilitation centers. Recruitment focused on patients with recent acute stroke and disease severity corresponding to BAR phase D. Patients completed questionnaires at three points of measurement: at the beginning and at the end of the inpatient rehabilitation and after four months. Primary outcome was participation, secondary outcomes included several parameters of subjective well-being. Furthermore, utilization of aftercare and satisfaction with the rehabilitation program were measured. Results At the beginning of the rehabilitation, patients experienced severe limitations in participation and reduced subjective well-being. At the end of inpatient rehabilitation, significant improvements of small effect sizes for subjective well-being and medium effect sizes for participation were achieved. After four months, effects had decreased, yet improvements compared to baseline were still noticeable. Patient ratings of the rehabilitation program and the outcomes achieved were consistently positive. Two thirds of the patients were advised to make use of aftercare offerings and most patients (83%) participated in an aftercare program of any kind. Conclusions The results of this study support the notion that stroke rehabilitation has significant and sustainable effects. Participation in particular seems to improve through medical rehabilitation. Partly decreased effects after four months raise the question of adequate aftercare.

scholarly journals This is me: A qualitative investigation of young people’s experience of growing up with visual impairment

PLoS ONE ◽  
2021 ◽  
Vol 16 (7) ◽  
pp. e0254009
Author(s):  
Alexandra O. Robertson ◽  
Valerija Tadić ◽  
Jugnoo S. Rahi
Keyword(s):  
Young People ◽  
Visual Impairment ◽  
Psychosocial Development ◽  
Developmental Change ◽  
Sense Of Self ◽  
Well Being ◽  
Self Report ◽  
Clinical Population ◽  
Childhood And Adolescence ◽  
Growing Up

Background Childhood visual impairment (VI) has a profound impact on many aspects of childhood and adolescence. This is well-documented in cross-sectional and/or quantitative studies utilizing self-report instruments which compare children with and without VI. Young people’s views on the experience of growing up with VI as a developmental, change-driven process remain largely unexplored. Methods As part of our broader research programme on quality of life of visually impaired children and young people in the United Kingdom, in-depth, semi-structured interviews were conducted between March and June 2015, with a stratified sample of 17 young people with VI, aged 16–19 years. An age-sensitive, empirically-based topic guide encouraged retrospective reflections on participants’ experiences of growing up with VI, including age-normative and vision-specific challenges. Results Descriptions of growing up with VI largely centered on an overarching higher-order theme labelled becoming me. Four themes representing everyday activities, attitudes, preferences and perceptions in relation to i) social relationships, ii) independence and responsibilities, iii) the future, and iv) rising to challenges emerged and were used by participants in their description of three stages in which they developed a sense of self: i) laying the foundations, ii) testing the waters, and iii) this is me. Differences in manifestation of VI influenced how young people made sense of their experiences and their sense of self. Conclusions Findings are discussed in relation to normative and vision-specific changes in psychosocial development during adolescence, including the development of identity. They highlight the need for ongoing monitoring of subjective well-being in a clinical population with a unique early life course trajectory.

Human potential in the system of social and economic development: problems and prospects of Vinnytsia region

2020 ◽  
pp. 71-80
Author(s):  
Olesya Tomchuk
Keyword(s):  
Economic Development ◽  
Human Development ◽  
Rural Areas ◽  
Structural Changes ◽  
Agricultural Sector ◽  
Positive Impact ◽  
Well Being ◽  
Human Potential ◽  
High Tech ◽  
Social And Economic Development

The article highlights the problems and prospects of human development, which is the basis for the long-term strategies of social and economic growth of different countries and regions at the present stage. Submitting strategies of this type provides an opportunity to focus on individual empowerment and to build a favorable environment for effective management decisions in the field of forming, maintaining, and restoring human potential. The analysis of the Vinnytsia region human potential dynamics in the regional system of social and economic development factors was carried out. Application of generalized assessment of the regional human development index components allowed the identification of the main trends that characterize the formation of human potential of the territory, including the reproduction of the population, social environment, comfort and quality of life, well-being, decent work, and education. The article emphasizes that despite some positive changes in the social and economic situation of the region and in assessing the parameters of its human development level relative to other regions of Ukraine, Vinnytsia region is now losing its human potential due to negative demographic situation and migration to other regions and countries. The main reason for such dynamics is proven to be related to the outdated structure of the region's economy, the predominance of the agricultural sector, the lack of progressive transformations in the development of high-tech fields of the economy. An important factor is the low level of urbanization of the region, which leads to the spread of less attractive working conditions and less comfortable living conditions. The key factors that cause the growth of urbanization in the region have been identified, including the significant positive impact of the transport and social infrastructure expansion, the lack of which in rural areas leads to a decrease in the level and comfort of life. Without progressive structural changes in the economy and the resettlement system, the loss of human potential will continue.

Sign in / Sign up

Export Citation Format

Share Document