scholarly journals Home-Based Care for People with Alzheimer’s Disease and Related Dementias (ADRD) during COVID-19 Pandemic: From Challenges to Solutions

Author(s):  
Atiqur sm-Rahman ◽  
Chih Hung Lo ◽  
Azra Ramic ◽  
Yasmin Jahan

There has been supporting evidence that older adults with underlying health conditions form the majority of the fatal cases in the current novel coronavirus disease (COVID-19) pandemic. While the impact of COVID-19 is affecting the general public, it is clear that these distressful experiences will be magnified in older adults, particularly people living with Alzheimer’s disease and related dementia (ADRD), making them the most vulnerable group during this time. People with differing degrees of ADRD are especially susceptible to the virus, not only because of their difficulties in assessing the threat or remembering the safety measures, but also because of the likelihood to be subject to other risk factors, such as lack of proper care and psychological issues. Therefore, in this article, we will discuss the challenges related to home-based care for people with ADRD during a pandemic and propose a formulation of systematic solutions to address these challenges and to alleviate the social and economic impact resulting from the crisis.

2018 ◽  
Vol 30 (8) ◽  
pp. 1109-1117 ◽  
Author(s):  
Jun Li ◽  
Matteo Cesari ◽  
Natalia Del Campo ◽  
Sandrine Andrieu ◽  
Birong Dong ◽  
...  

ABSTRACTBackground:To estimate the impact of comorbid diabetes on caregiver stress in Alzheimer's disease (AD) patients from the Impact of Cholinergic Treatment Use (ICTUS) study.Methods:Using the Data from the ICTUS study, diabetes mellitus (DM) was recorded at baseline and caregiver burden was assessed twice per year using the Zarit Burden Interview (ZBI) scale. The three-factorial model of ZBI (the effect on the social and personal life of caregivers, the psychological burden and the feelings of guilt) was adopted. Linear mixed models were used to examine the relation between DM and the scores of ZBI.Results:The present analyses were conducted on 1,264 AD subjects. A total of 156 patients (12.3%) had DM with taking antidiabetic medication and/or self-report of a history. At baseline, the caregivers of patients with or without DM had similar ZBI global scores and similar scores of three different factors of ZBI. Unadjusted and adjusted models both indicated that ZBI global score increased over a 24-month follow-up without significant effect of DM. Similarly, unadjusted model showed that DM was not determining any significant difference in the score of any factor. However, adjusted model indicated that in diabetic patients, the scores of the social and personal life of caregivers and the psychological burden increased more slowly than those in non-diabetic patients (p = 0.04 and 0.01, respectively).Conclusions:DM may affect the caregivers’ daily social and personal life and psychological burden in AD patients. It is necessary for further research.


2003 ◽  
Vol 27 (1) ◽  
pp. 1-11 ◽  
Author(s):  
Leslie D. Frazier ◽  
Victoria Cotrell ◽  
Karen Hooker

This study examined how future self-representations are affected by two different chronic illnesses, one focused on cognitive losses, early-stage Alzheimer's disease (AD), and one focused on physical losses, Parkinson's disease (PD). The impact of illness on possible selves (perceptions of self in the future) was made salient by a comparison with healthy older adults in order to better understand developmental issues in later life. Findings show that although there were no differences in the total number of domains reported by the groups, specific domains were reported differently by patient groups and all domains were likely to become infused with illness. As expected, patient groups had less self-efficacy and lower outcome expectancies for their future selves, and PD patients reported less distance from their feared selves. Although these findings are intuitive, this is the first empirical effort to document the impact of illness on older adults' self-representations. Group differences are explained in terms of disease context, and the importance of possible selves and self-regulatory functions as therapeutic mechanisms for adaptation to illness are emphasised.


Author(s):  
Eguzki Urteaga

Resumen<br /><br />El riesgo de dependencia, que concierne a las personas mayores y discapacitadas, despierta un interés creciente entre los responsables políticos y se constatan unos avances significativos en esta materia: adecuación de los instrumentos de financiación, modernización de los centros y de los servicios de ayuda domiciliaria, mejora de la integración de estas personas, etc. Pero, el incremento de las necesidades cuando la generación de los baby-boomers llegará a una edad avanzada plantea la cuestión de la sostenibilidad del gasto, del impacto sobre las familias que supone la atención de una persona dependiente así como la de los medios específicos que es preciso movilizar para las personas que padecen la enfermedad de Alzheimer. El debate en torno al “quinto riesgo” gira sobre su naturaleza con respecto a los demás riesgos cubiertos por la Seguridad social, la población concernida, la parte que incumbe al público, a los hogares y a los seguros en la financiación. Ante esta situación, existen dos posibilidades en cuanto a la financiación de la dependencia: la primera caracterizada por el mantenimiento de una parte mayoritaria de la solidaridad colectiva, mientras que la segunda privilegia la solicitación del seguro privado y del seguro de previsión.<br /><br />Abstract<br /><br />The risk of dependency, which concerns the major and disabled persons, generates an increasing interest between the politicians and a few significant advances are observed in this matter: adequacy of the instruments of financing, modernization of the centers and services of domiciliary help, improvement of the integration of these persons, etc. But, the increase of the needs when the generation of the baby-boomers will come to an advanced age raises the question of the sustainability of the expense, the impact on the families that the attention of one dependent person supposes as well as the specific means that is precise to mobilize for the persons who suffer Alzheimer's disease. The debate concerning the "fifth risk" turns on his nature comparing with other risks covered by the social security, the concerned population, part that is incumbent on public, to the families and to the insurances in the financing. In front of this situation, two possibilities exist for the financing of the dependency: the first one characterized by the maintenance of a majority part of the collective solidarity, whereas the second one favours the solicitation of the private insurance and the insurance of forecast.


2017 ◽  
Vol 59 (2) ◽  
pp. 565-574 ◽  
Author(s):  
Kalpana P. Padala ◽  
Prasad R. Padala ◽  
Shelly Y. Lensing ◽  
Richard A. Dennis ◽  
Melinda M. Bopp ◽  
...  

2006 ◽  
Vol 14 (7S_Part_28) ◽  
pp. P1466-P1467
Author(s):  
Neil W. Thomas ◽  
Nora Mattek ◽  
Thomas Riley ◽  
Phelps Witter ◽  
Christina L. Reynolds ◽  
...  

2021 ◽  
Author(s):  
Anne-Marie Greenaway ◽  
Slawomir Nasuto ◽  
Aileen Ho ◽  
Faustina Hwang

2012 ◽  
Vol 27 (6) ◽  
pp. 397-405 ◽  
Author(s):  
Fang Yu ◽  
Ruth M. Swartwood

Background: The subjective experience of participating in aerobic exercise is unknown in Alzheimer’s disease (AD). Objective: The purpose of this study was to understand the subjective perceptions of the feasibility and impact of a 6-month, moderate-intensity aerobic exercise intervention by older adults with AD and their family caregivers. Methods: Ten older adults with AD who completed the intervention and their family caregivers participated in four focus group interviews. Results: Four converging themes were identified: “There was no perceived positive change in cognitive symptoms,” “The 6-month exercise program was socially rewarding,” “The 6-month exercise program increased physical strength,” and “Participation in aerobic exercise was a positive experience.” Family caregivers further identified two additional themes: “The exercise program led to improved attitude in older adults with AD” and “The exercise program reduced caregiver stress.” Discussion: Aerobic exercise is a feasible and well-perceived intervention for older adults with AD and their family caregivers.


2014 ◽  
Vol 5 ◽  
pp. S63
Author(s):  
A. Tchalla ◽  
F. Lachal ◽  
N. Cardinaud ◽  
I. Saulnier ◽  
V. Rialle ◽  
...  

2021 ◽  
Vol 2021 (1) ◽  
Author(s):  
Shuxin Dong ◽  
Danielle Braun ◽  
Xiao Wu ◽  
Maayan Yitshak Sade ◽  
Deborah Blacker ◽  
...  

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