scholarly journals Management of a High-Performing Mental Health Recovery Research Group

2021 ◽  
Vol 18 (8) ◽  
pp. 4007
Author(s):  
Mike Slade
Keyword(s):  
Mental Health ◽  
Lived Experience ◽  
Research Group ◽  
Global Mental Health ◽  
Mental Health Recovery ◽  
Personal Perspective ◽  
Team Members ◽  
High Performing ◽  
And Performance ◽  
Recovery Narratives

A personal perspective is given on the processes involved in managing and sustaining a high-performing mental health recovery research group. The broader context of scholarship in the United Kingdom is outlined, in which academic productivity is commodified specifically in relation to peer-reviewed journal papers. Four leadership choices in developing a high-performing research group are discussed: optimal group size; sharing the workload; maintaining a programmatic focus; and performance expectations. Approaches to maximising innovation are identified, including emotional and intellectual engagement of team members, working with diverse stakeholders and convening communities of practice. We use a highly managed approach to publications from inception to acceptance, which is described in detail. The use of these approaches is illustrated in relation to the Recovery Research Team which was formed in 2009. Specific recovery-related issues covered include demonstrating the ability to develop a significant recovery research portfolio (our four current large [>UK£2 m] studies relate to recovery narratives, global mental health peer support work, digital interventions and Recovery Colleges); the positive implications of actively recruiting researchers with mental health lived experience; how performance issues are managed; our approach to involving lived experience co-authors in papers; and our decision to conduct mixed-methods rather than solely qualitative studies.

scholarly journals Not the story you want? Assessing the fit of a conceptual framework characterising mental health recovery narratives

2019 ◽  
Vol 55 (3) ◽  
pp. 295-308 ◽  
Author(s):  
Joy Llewellyn-Beardsley ◽  
Stefan Rennick-Egglestone ◽  
Simon Bradstreet ◽  
Larry Davidson ◽  
Donna Franklin ◽  
...  
Keyword(s):  
Mental Health ◽  
Conceptual Framework ◽  
Intervention Development ◽  
Mental Health Recovery ◽  
Research Use ◽  
Narrative Construction ◽  
Limited Sample ◽  
Recovery Narratives ◽  
Recovery Approach ◽  
Selection Of

Abstract Purpose Narratives of recovery have been central to the development of the recovery approach in mental health. However, there has been a lack of clarity around definitions. A recent conceptual framework characterised recovery narratives based on a systematic review and narrative synthesis of existing literature, but was based on a limited sample. The aims of this study were to assess the relevance of the framework to the narratives of more diverse populations, and to develop a refined typology intended to inform narrative-based research, practice and intervention development. Method 77 narrative interviews were conducted with respondents from four under-researched mental health sub-populations across England. Deductive and inductive analysis was used to assess the relevance of the dimensions and types of the preliminary typology to the interview narratives. Results Five or more dimensions were identifiable within 97% of narratives. The preliminary typology was refined to include new definitions and types. The typology was found not to be relevant to two narratives, whose narrators expressed a preference for non-verbal communication. These are presented as case studies to define the limits of the typology. Conclusion The refined typology, based on the largest study to date of recovery narratives, provides a defensible theoretical base for clinical and research use with a range of clinical populations. Implications for practice include ensuring a heterogeneous selection of narratives as resources to support recovery, and developing new approaches to supporting non-verbal narrative construction.

scholarly journals Loneliness, adolescence, and global mental health: Soledad and structural violence in Mexico

2019 ◽  
Vol 57 (5) ◽  
pp. 673-687
Author(s):  
Janis H. Jenkins ◽  
Giselle Sanchez ◽  
Olga Lidia Olivas-Hernández
Keyword(s):  
Mental Health ◽  
High School Students ◽  
Lived Experience ◽  
Subjective Experience ◽  
Global Mental Health ◽  
Health Claims ◽  
Screening Tools ◽  
Health Providers ◽  
School Students ◽  
Gene Effects

In this article, we call into question recent public health claims that loneliness is a problem of epidemic proportions. Current research on this topic is hindered by an overreliance on limited survey data and by paradigmatic imbalance that delineates the study of loneliness to psychological, cognitive, neuroendocrinological and immunological effects, social functioning, physical health, mortality, and gene effects. The article emphasizes that scientific approaches to the phenomena of loneliness are more appropriately conceived and investigated as inherently matters for social, relational, cultural, and contextual analysis of subjective experience. Studies of loneliness and possible relationships to mental health status require investigations of social, environmental, and institutional structures as well as families, peers, friends, counselors, and health providers. This article takes a step in this direction through examining the lived experience of 35 high school students and their families living under conditions of social adversity in Tijuana, B.C., Mexico, with attention to anxiety and depression. Utilizing ethnographic interviews, observations, and psychological screening tools, we provide an overview for the group and illustrate the interrelations of subjective experience and social environment through a case study. These data reveal the vital role of understandings of loneliness, depression, and anxiety from the perspectives of adolescents themselves. We conclude that future studies of loneliness are best informed by in-depth data on subjective experience in relation to social features to advance understandings within the field of global mental health and allied fields.

scholarly journals Advancing Health Equity in Digital Mental Health: Lessons From Medical Anthropology for Global Mental Health

10.2196/28555 ◽  
2021 ◽  
Vol 8 (8) ◽  
pp. e28555
Author(s):  
Ellen Elizabeth Kozelka ◽  
Janis H Jenkins ◽  
Elizabeth Carpenter-Song
Keyword(s):  
Mental Health ◽  
Lived Experience ◽  
Medical Anthropology ◽  
Global Mental Health ◽  
Digital Health ◽  
Health Needs ◽  
Mental Health Needs ◽  
Health Care Models ◽  
Care Models ◽  
Experience Of Illness

Digital health engenders the opportunity to create new effective mental health care models—from substance use recovery to suicide prevention. Anthropological methodologies offer a unique opportunity for the field of global mental health to examine and incorporate contextual mental health needs through attention to the lived experience of illness; engagement with communities; and knowledge of context, structures, and systems. Attending to these diverse mental health needs and conditions as well as the limitations of digital health will allow global mental health researchers, practitioners, and patients to collaboratively create new models for care in the service of equitable, accessible recovery.

scholarly journals Mental Health Recovery Narratives and Their Impact on Recipients: Systematic Review and Narrative Synthesis

2019 ◽  
pp. 070674371984610 ◽  
Author(s):  
Stefan Rennick-Egglestone ◽  
Kate Morgan ◽  
Joy Llewellyn-Beardsley ◽  
Amy Ramsay ◽  
Rose McGranahan ◽  
...  
Keyword(s):  
Mental Health ◽  
Systematic Review ◽  
Mental Health Recovery ◽  
Narrative Synthesis ◽  
Recovery Narratives

Ultimate Performance in a Highly Functioning Team

2011 ◽  
pp. 531-545
Author(s):  
Steven Jeddeloh
Keyword(s):  
Lived Experience ◽  
Team Performance ◽  
Structured Interview ◽  
Subjective Experiences ◽  
Team Members ◽  
High Performing ◽  
Self And Other ◽  
Interview Method ◽  
Common Purpose ◽  
Working Together

This essay explores ultimate team performance as experienced by veteran airline pilots working together with a common purpose. The research ellicited the subjective experiences of five individual team members, employing a structured interview method to gather data for phenomenological analysis. Results offer a better understanding of what makes a high-performing team, the team experience itself, the context, and the meaning of ultimate team performance as lived experience. The research offers subjective descriptions of social interaction between self and other in a virtual/nonvirtual team context, offering a window into the collaborative experience; the self-other relationship; how individuals navigate their lifeworld within a team setting; and the applicability of the pilots’ experience processes across other organizational domains.

Making use of elephants: lived experience and organisations

2015 ◽  
Vol 19 (3) ◽  
pp. 148-154
Author(s):  
Sarah Paynter ◽  
Christine Rivers
Keyword(s):  
Mental Health ◽  
Lived Experience ◽  
Design Methodology ◽  
Added Value ◽  
Personal Perspective ◽  
Workplace Environment ◽  
Content Type

Purpose – The purpose of this paper is to examine the surrounding attitudes, culture and workplace environment in which Oxleas NHS Foundation trust developed a network for staff with lived experience of mental ill health. Design/methodology/approach – Sarah Paynter completed an interview talking about her experiences with a peer, which was recorded, then the authors picked out relevant themes from this which are grounded in lived experience. The paper examines the theme of lived experience in the workplace in more depth, from a personal perspective (Sarah) and from an organisational perspective (Christine). Findings – There is a lack of dialogue about staff lived experience of mental ill health within the workplace. There are compelling reasons from both the perspective of the organisation and staff with lived experience for setting up a lived experience staff network. The authors note that increased dialogue and visibility has added value on both sides. Originality/value – This is a relatively new initiative in the NHS, and particularly in mental health trusts. The authors speak from their experiences in Oxleas NHS Foundation Trust. This is of value to organisations looking to start dialogue and therefore improve the experiences of staff and the quality of the organisation.

scholarly journals Personal recovery and socio-structural disadvantage: A critical conceptual review

2021 ◽  
pp. 136345932110142
Author(s):  
Dimitar Karadzhov
Keyword(s):  
Mental Health ◽  
Lived Experience ◽  
Recovery Process ◽  
Mental Health Recovery ◽  
Empirical Literature ◽  
Structural Constraints ◽  
Personal Recovery ◽  
Structural Disadvantage ◽  
Mental Health Difficulties ◽  
The Impact

Despite its seeming breadth and diversity, the bulk of the personal (mental health) recovery literature has remained strangely ‘silent’ about the impact of various socio-structural inequalities on the recovery process. Such an inadequacy of the empirical literature is not without consequences since the systematic omission or downplaying, at best, of the socio-structural conditions of living for persons with lived experience of mental health difficulties may inadvertently reinforce a reductionist view of recovery as an atomised, individualised phenomenon. Motivated by those limitations in extant scholarship, a critical literature review was conducted to identify and critique relevant research to problematise the notion of personal recovery in the context of socio-structural disadvantage such as poverty, homelessness, discrimination and inequalities. The review illuminates the scarcity of empirical research and the paucity of sociologically-informed theorisation regarding how recovery is shaped by the socio-structural conditions of living. Those inadequacies are especially pertinent to homelessness research, whereby empirical investigations of personal recovery have remained few and undertheorised. The gaps in the research and theorising about the relational, contextual and socio-structural embeddedness of recovery are distilled. The critical review concludes that personal recovery has remained underresearched, underproblematised and undertheorised, especially in the context of homelessness and other forms of socio-structural disadvantage. Understanding how exclusionary social arrangements affect individuals’ recovery, and the coping strategies that they deploy to negotiate those, is likely to inform anti-oppressive interventions that could eventually remove the structural constraints to human emancipation and flourishing.

scholarly journals Recorded Mental Health Recovery Narratives as a Resource for People Affected by Mental Health Problems: Development of the Narrative Experiences Online (NEON) Intervention

10.2196/24417 ◽  
2021 ◽  
Vol 5 (5) ◽  
pp. e24417
Author(s):  
Mike Slade ◽  
Stefan Rennick-Egglestone ◽  
Joy Llewellyn-Beardsley ◽  
Caroline Yeo ◽  
James Roe ◽  
...  
Keyword(s):  
Mental Health ◽  
Lived Experience ◽  
Digital Health ◽  
Health Interventions ◽  
Advisory Panel ◽  
Service Users ◽  
Impact Model ◽  
Harm Minimization ◽  
Web Based ◽  
Recovery Narratives

Background The internet enables sharing of narratives about health concerns on a substantial scale, and some digital health narratives have been integrated into digital health interventions. Narratives describing recovery from health problems are a focus of research, including those presented in recorded (eg, invariant) form. No clinical trial has been conducted on a web-based intervention providing access to a collection of Recorded Recovery Narratives (RRNs). Objective This study presents knowledge produced through the development of the Narrative Experiences Online (NEON) Intervention, a web-based intervention incorporating the algorithmic recommendation of RRNs. Methods Knowledge was gathered through knowledge integration (KI) activities. KI1 synthesized previous studies to produce the NEON Impact Model describing how accessing RRNs produces health-related outcomes. KI2 developed curation principles for the NEON Collection of RRNs through consultation with the NEON Lived Experience Advisory Panel and the curation of a preliminary collection. KI3 identified harm minimization strategies for the NEON Intervention through consultation with the NEON International Advisory Board and Lived Experience Advisory Panel. The NEON Intervention was finalized through 2 research studies (RS). In RS1, mental health service users (N=40) rated the immediate impact of randomly presented narratives to validate narrative feedback questions used to inform the recommendation algorithm. In RS2, mental health service users (n=25) were interviewed about their immediate response to a prototype of the NEON Intervention and trial procedures and then were interviewed again after 1 month of use. The usability and acceptability of the prototype and trial procedures were evaluated and refinements were made. Results KI1 produced the NEON Impact Model, which identifies moderators (recipient and context), mechanisms of connection (reflection, comparison, learning, and empathy), processes (identification of change from narrative structure or content and internalization of observed change), and outcomes (helpful and unhelpful). KI2 identified 22 curation principles, including a mission to build a large, heterogeneous collection to maximize opportunities for connection. KI3 identified seven harm minimization strategies, including content warnings, proactive and reactive blocking of narratives, and providing resources for the self-management of emotional distress. RS1 found variation in the impact of narratives on different participants, indicating that participant-level feedback on individual narratives is needed to inform a recommender system. The order of presentation did not predict narrative feedback. RS2 identified amendments to web-based trial procedures and the NEON Intervention. Participants accessed some narratives multiple times, use reduced over the 4-week period, and narrative feedback was provided for 31.8% (105/330) of narrative accesses. Conclusions RRNs can be integrated into web-based interventions. Evaluating the NEON Intervention in a clinical trial is feasible. The mixed methods design for developing the NEON Intervention can guide its extension to other clinical populations, the design of other web-based mental health interventions, and the development of narrative-based interventions in mental health.

scholarly journals Curation of Mental Health Recovery Narrative Collections: Systematic Review and Qualitative Synthesis

10.2196/14233 ◽  
2019 ◽  
Vol 6 (10) ◽  
pp. e14233 ◽  
Author(s):  
Rose McGranahan ◽  
Stefan Rennick-Egglestone ◽  
Amy Ramsay ◽  
Joy Llewellyn-Beardsley ◽  
Simon Bradstreet ◽  
...  
Keyword(s):  
Mental Health ◽  
Systematic Review ◽  
Conceptual Framework ◽  
Mental Health Problems ◽  
Evidence Synthesis ◽  
Mental Health Recovery ◽  
Qualitative Evidence Synthesis ◽  
Web Based ◽  
Mental Health Interventions ◽  
Recovery Narratives

Background Mental health recovery narratives are first-person lived experience accounts of recovery from mental health problems, which refer to events or actions over a period. They are readily available either individually or in collections of recovery narratives published in books, health service booklets, or on the Web. Collections of recovery narratives have been used in a range of mental health interventions, and organizations or individuals who curate collections can therefore influence how mental health problems are seen and understood. No systematic review has been conducted of research into curatorial decision making. Objective This study aimed to produce a conceptual framework identifying and categorizing decisions made in the curation of mental health recovery narrative collections. Methods A conceptual framework was produced through a systematic review and qualitative evidence synthesis. Research articles were identified through searching bibliographic databases (n=13), indexes of specific journals (n=3), and gray literature repositories (n=4). Informal documents presenting knowledge about curation were identified from editorial chapters of electronically available books (n=50), public documents provided by Web-based collections (n=50), and prefaces of health service booklets identified through expert consultation (n=3). Narrative summaries of included research articles were produced. A qualitative evidence synthesis was conducted on all included documents through an inductive thematic analysis. Subgroup analyses were conducted to identify differences in curatorial concerns between Web-based and printed collections. Results A total of 5410 documents were screened, and 23 documents were included. These comprised 1 research publication and 22 informal documents. Moreover, 9 higher level themes were identified, which considered: the intended purpose and audience of the collection; how to support safety of narrators, recipients, and third parties; the processes of collecting, selecting, organizing, and presenting recovery narratives; ethical and legal issues around collections; and the societal positioning of the collection. Web-based collections placed more emphasis on providing benefits for narrators and providing safety for recipients. Printed collections placed more emphasis on the ordering of narrative within printed material and the political context. Conclusions Only 1 research article was identified despite extensive searches, and hence this review has revealed a lack of peer-reviewed empirical research regarding the curation of recovery narrative collections. The conceptual framework can be used as a preliminary version of reporting guidelines for use when reporting on health care interventions that make use of narrative collections. It provides a theory base to inform the development of new narrative collections for use in complex mental health interventions. Collections can serve as a mechanism for supporting collective rather than individual discourses around mental health.

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