scholarly journals An Exploratory Study among Intellectual Disability Physicians on the Care and Coercion Act and the Use of Psychotropic Drugs for Challenging Behaviour

2021 ◽  
Vol 18 (19) ◽  
pp. 10240
Author(s):  
Janouk C. bij de Weg ◽  
Aline K. Honingh ◽  
Marieke Teeuw ◽  
Paula S. Sterkenburg
Keyword(s):  
Intellectual Disability ◽  
Qualitative Study ◽  
Thematic Analysis ◽  
Psychotropic Drugs ◽  
Exploratory Study ◽  
Time Constraints ◽  
Challenging Behaviour ◽  
Appropriate Use ◽  
Depth Interviews

The new Dutch Care and Coercion Act aims to better regulate the use of psychotropic drugs for challenging behaviour in people with an intellectual disability. This study explores experiences of intellectual disability physicians (IDPs) in prescribing psychotropic drugs and investigates how the Act and the new multidisciplinary guideline on challenging behaviour affects their practice. A qualitative study was conducted, consisting of nine semi-structured in-depth interviews with IDPs, followed by a thematic analysis. It was found that IDPs experienced the new Act and guideline as supportive of their work as guardians of the appropriate use of psychotropic drugs. The multidisciplinary character of the guideline was experienced positively. However, IDPs are faced with organisational barriers and time constraints, as such, they question the feasibility of implementing the Act. Based on these findings, it can be concluded that the Care and Coercion Act may support the existing shift towards the appropriate use of psychotropic drugs if required conditions can be met.

scholarly journals COMMUNICATION IN THE CONTEXT OF FAMILY CAREGIVING: AN EXPLORATORY STUDY OF UGANDAN CHILDREN ON ANTIRETROVIRAL THERAPY

2015 ◽  
Vol 48 (5) ◽  
pp. 672-693 ◽  
Author(s):  
P. Kajubi ◽  
Anne R. Katahoire ◽  
David Kyaddondo ◽  
Susan R. Whyte
Keyword(s):  
Antiretroviral Therapy ◽  
Thematic Analysis ◽  
Emotional Support ◽  
Family Caregiving ◽  
Exploratory Study ◽  
Family Dynamics ◽  
Participant Observation ◽  
Diagnosis And Treatment ◽  
Aids Diagnosis ◽  
Depth Interviews

SummaryIt is important to consider the complexities of family dynamics when deciding when and how to communicate with HIV-infected children about their illness and treatment. Previous research has focused on providers’ and caregivers’ perspectives on whether, when and how to disclose HIV/AIDS diagnosis and treatment to HIV-infected children. From the perspective of HIV-infected children, communication does not mean just giving information about illness and treatment, but also encompasses emotional and material care. This paper places communication within the broader framework of caregiving in family situations. This exploratory study was conducted in Jinja district, Uganda, between November 2011 and December 2012. Through participant observation and in-depth interviews, communication by, and with, HIV-infected children in the context of family situations was explored from the perspectives of 29 HIV-infected children aged 8–17 years on antiretroviral therapy (ART) using content thematic analysis. Children’s communication with caregivers about their illness and treatment varied depending on whom they were living with and the nature of caregiving. Although a mother’s care was considered best, children described others who cared ‘like a mother’. For some, caregiving was distributed among several relatives and non-relatives, while others felt they had hardly anyone to care for them. Caregiving from the children’s perspective involved emotional support, expressed verbally and explicitly in messages of concern, encouragement conveyed in reminders to take medicines, attention when sick and confidential conversations about the challenges of having HIV and taking ART. Caregiving was also communicated implicitly in acts of provision of food/drinks to take with medicines, counting pills to confirm they had taken the medicines and accompanying children to treatment centres. Children’s communication about their health and medicines and the care they received was to a large extent shaped by the nature of their relatedness to their caregivers, the extent to which caregiving was dispersed among several people and who else in the household was infected with HIV and on medication.

scholarly journals Mothers’ perspectives on the lived experience of children with intellectual disability and challenging behaviour

2017 ◽  
Vol 23 (2) ◽  
pp. 175-189 ◽  
Author(s):  
Joann Kiernan ◽  
Duncan Mitchell ◽  
Jois Stansfield ◽  
Carol Taylor
Keyword(s):  
Intellectual Disability ◽  
Lived Experience ◽  
Thematic Analysis ◽  
Challenging Behaviour ◽  
Structured Interviews ◽  
Central Tenet ◽  
Experience Of Inclusion ◽  
Challenging Behaviours ◽  
Insight Into ◽  
Children With Intellectual Disability

Children with intellectual disability and behavioural needs (challenging behaviour) are vulnerable to exclusion from services and communities. The situation is exacerbated by difficulties in accessing appropriate support and services to effectively meet the needs of children and carers. Family perspectives on the ‘lived experience’ of children can provide insight into how behavioural needs can affect their ability to access everyday experiences. Semi-structured interviews were conducted with mothers of children with intellectual disabilities and challenging behaviours. Phenomenological thematic analysis provided four key themes: finding our way; square services, round needs; behaviour touches everything and belonging. Experience of inclusion and exclusion was a central tenet of the lived experience. Recommendations call for timely proactive and bespoke interventions to identify and support children at risk of exclusion from communities. Early intervention and effective local provision will avoid increased burdens placed on families and services, in supporting children whose needs are currently unmet within child-centred provision.

scholarly journals The Challenges, Coping Mechanisms, and the Needs of the Inhospital Parents Caring for Children with Life-limiting Neurological Disorders: A Qualitative Study

2021 ◽  
Vol 0 ◽  
pp. 1-7
Author(s):  
Fahisham Taib ◽  
Khoo Teik Beng ◽  
Lee Chee Chan
Keyword(s):  
Palliative Care ◽  
Qualitative Study ◽  
Coping Strategies ◽  
Thematic Analysis ◽  
Neurological Disorders ◽  
English Language ◽  
Kuala Lumpur ◽  
Neurological Conditions ◽  
Depth Interviews

Objective: Parents who have children with complex lifelong and life-limiting neurological conditions experienced many stresses and anxieties throughout their lives as caregivers. However, this information is still very limited. The study aimed to explore the challenges faced by parents with children who have complex neurological conditions, their coping strategies, needs, and expectations. Materials and Methods: A semi-structured, in-depth interviews were conducted in the either Malay or English language among the parents of children with complex lifelong neurological conditions and have been on long-term in-patient hospital care. The interviews were audio-recorded and transcribed for thematic analysis. The qualitative study was conducted from October to November 2016 at the Paediatric Institute of Hospital Kuala Lumpur. Grounded theory was used to examine the qualitative data with inductive and deductive types of coding. The transcripts were read repeatedly to allow familiarity to the themes presented by the participants. Further discussions were conducted among the researchers to triangulate the information. Results: A total of 11 parents were interviewed for this study. The thematic analysis resulted in 8 challenges: Physical wellbeing, Environment, Relationship, Financial, Occupational, Rational, Mental, and Spiritual. Coping strategies comprised problem focused issues related to the key challenges in the caregivers’ context. Similar to the needs and expectations, the key themes were derived from the key understandings of the challenges and looking at the palliative care impacts for these children. Conclusion: There are various challenges faced by parents of children with life-limiting neurological disorders. Physical, Environment, Relationship, Financial, Occupational, Rational, Mental, and Spiritual Wellbeing can be a platform for the assessment of the caregivers’ needs and the planning for palliative care support.

An exploratory study of Behavioural Specialist experiences of involving service users in the development of their positive behavioural support plans

2017 ◽  
Vol 23 (2) ◽  
pp. 160-174 ◽  
Author(s):  
Bethany Kruger ◽  
Ruth Northway
Keyword(s):  
Learning Disabilities ◽  
Learning Disability ◽  
Thematic Analysis ◽  
Exploratory Study ◽  
Research Study ◽  
Service Users ◽  
Exploratory Research ◽  
Challenging Behaviour ◽  
Structured Interviews ◽  
Behavioural Support

There is limited research that explores the experiences of how behavioural specialists actively involve people with a learning disability and challenging behaviour in the development of their positive behavioural support (PBS) plan. Accordingly, this exploratory research study aimed to explore this little understood area of practice. Methods: The study included semi-structured interviews comprised of nine Behavioural Specialists in three focus groups across two health boards. A descriptive thematic analysis study. Findings: Three major themes and 11 minor themes were identified illustrating how people with learning disabilities and behaviours that challenge were involved in developing their PBS plan. Significantly, the themes illustrated the complexity of truly involving service users in the process. Conclusion: Inclusion of people with a learning disability and behaviours that challenge in their PBS plan poses significant challenges. Person-centred care struggles to be truly embedded in the PBS model.

scholarly journals Influencing Followership: Understanding the Perspective of Those Leading Active Discussions on Quora

2021 ◽  
Vol 3 ◽  
Author(s):  
Martin C. Nwadiugwu ◽  
Cynthia C. Nwadiugwu
Keyword(s):  
Social Media ◽  
Qualitative Study ◽  
Thematic Analysis ◽  
Media Influence ◽  
New Information ◽  
Coding Method ◽  
Open Coding ◽  
The Right ◽  
Depth Interviews

As social media influence become increasingly popular, understanding why some posts are highly followed than others, especially from the perspective of those leading the discussion allows us to gain insight on how followership is being influenced. A qualitative study of eight participants leading active discussions on Quora was conducted using semi-structured in-depth interviews, followed by thematic analysis. The open coding method was used to iteratively code related answers to develop themes. Results suggest that copyright tactics, controversial answers and sharing new information are some of the mechanisms for influencing followership. These mechanisms are built overtime through conscious strong engagement and by writing a consistently well-thought-out answer. The motivation for leading and writing answers on Quora were more intrinsic than extrinsic, and most participants believed influencing followership should not be a concern if one has the right message.

scholarly journals How do Key Populations Cope their Behaviour Related Stigma? A Qualitative Study in a Province in Sri Lanka

2021 ◽  
pp. 11-15
Author(s):  
T.S.M. Fernando ◽  
H.M.J.P. Vidanapathirana
Keyword(s):  
Sri Lanka ◽  
Qualitative Study ◽  
Coping Strategies ◽  
Thematic Analysis ◽  
Key Populations ◽  
Analysis Method ◽  
Human Immuno Deficiency Virus ◽  
Global Target ◽  
Related Stigma ◽  
Depth Interviews

Key populations are at the highest risk of acquiring and transmitting the Human Immuno-deficiency Virus (HIV). Due to the stigma vested upon them, they have become least accessible for preventive and curative services for HIV. Therefore, coping strategies are essential to minimize stigma to end AIDS by 2025, five years ahead of the global target of ending AIDS in 2030. The objective was to describe the coping strategies adopted by key-populations to overcome behavior-related stigma. Data from thirty-two in-depth interviews were analyzed using the thematic analysis method.

scholarly journals The use of psychotropic medications and non-pharmacological approaches in everyday life: a qualitative study of the lived experience

2019 ◽  
Vol 22 (4) ◽  
pp. 859-883 ◽  
Author(s):  
Agnes Fonseca Ribeiro Filardi ◽  
Simone de Araújo Medina Mendonça ◽  
Djenane Ramalho-de-Oliveira
Keyword(s):  
Qualitative Study ◽  
Everyday Life ◽  
Lived Experience ◽  
Psychotropic Drugs ◽  
Daily Life ◽  
Hermeneutic Phenomenology ◽  
Psychotropic Medications ◽  
Western Countries ◽  
High Degree ◽  
Depth Interviews

Increased consumption of psychotropic drugs has been noted in Brazil and other Western countries in the last few decades for different reasons. The objective of this study was to understand the lived experience of individuals who used psychotropic drugs to cope with the problems faced in daily life. A qualitative study guided by hermeneutic phenomenology was carried out. In-depth interviews were conducted. The experience was grouped into two themes: experience of using psychotropic and the search for non-pharmacological approaches. Psychotropics were considered necessary for regaining a point of equilibrium when the problems faced were recognized as having a high degree of difficulty. In some cases, the drugs were perceived as insufficient for solving the problem, leading or not to the search for alternatives to deal with the difficulty.

scholarly journals “. . . The Forgotten Heroes”: A Qualitative Study Exploring How Friends and Family Members of DV Survivors Use Domestic Violence Helplines

2019 ◽  
pp. 088626051988819
Author(s):  
Alison Gregory ◽  
Anna Kathryn Taylor ◽  
Katherine Pitt ◽  
Gene Feder ◽  
Emma Williamson
Keyword(s):  
Domestic Violence ◽  
Qualitative Study ◽  
Focus Groups ◽  
Thematic Analysis ◽  
Exploratory Study ◽  
Help Seeking ◽  
Family Members ◽  
Topic Guide ◽  
Feeling Overwhelmed

Many women who experience domestic violence (DV) seek support from friends, relatives, colleagues, and neighbors. There are substantial knock-on effects for informal supporters, and they may seek help themselves. Tailored services for this group are rare, but DV helplines can provide listening and signposting support. The aim of this exploratory study was to understand which informal supporters contact DV helplines and what form these calls take. Three focus groups, following a topic guide, were conducted with staff and volunteers for DV helplines during autumn 2015. Discussions were digitally recorded, transcribed verbatim, and imported into NVivo10 software. Transcripts were coded line-by-line, and a thematic analysis carried out. All participants were female, aged between 22 and 54 years, with between 2 months’ and 8 years’ experience of taking helpline calls. Findings indicate that people with broad ranging connections to a survivor call a helpline. Calls can be triggered by disclosures, abuse escalation, witnessing incidents, feeling overwhelmed, and media highlighting of DV. Informal supporters respond to survivors, and experience impacts, in differing ways, often associated with their gender and their relationship with the survivor. Frequently, they feel a sense of responsibility and a desire to rescue the survivor, often calling a helpline to reduce feelings of helplessness and to seek a “magic” solution. Many people are concerned about the legitimacy of their involvement and seek reassurance about the validity of their own help-seeking. Helpline workers feel that informal supporters would benefit from opportunities to reduce isolation, have their predicament acknowledged, and learn from peers. DV helplines have an important role in helping informal supporters of survivors. The help requested is predominantly to equip and empower the informal supporter, so that they feel more adept at coping themselves and, are thus, better able to offer support to the survivor.

A Qualitative Study of Iranian Parents’ Experiences of Interacting With Their Adolescent Children

2019 ◽  
Vol 30 (6) ◽  
pp. 569-575
Author(s):  
Mahni Rahkar Farshi ◽  
Leila Valizadeh ◽  
Vahid Zamanzadeh ◽  
Maryam Rassouli ◽  
David Lees ◽  
...  
Keyword(s):  
Qualitative Study ◽  
Adolescent Development ◽  
Parenting Style ◽  
Thematic Analysis ◽  
Parenting Strategies ◽  
Effective Parenting ◽  
Descriptive Research ◽  
Qualitative Descriptive ◽  
Depth Interviews ◽  
Parents Experiences

Introduction: Transition from childhood to adulthood is an important and challenging period for both adolescents and their parents, particularly in societies undergoing development and change. In Iran, cultural and social change is inextricably linked to, and strongly impacts on, family units. Aim: To explore the experiences of parents and the strategies they use in interacting with their adolescent children. Method: Qualitative descriptive research using in-depth interviews was conducted with 23 parents of adolescents in Iran. Transcribed data were subjected to thematic analysis. Results: Parents used two key approaches to effectively interact with their adolescent children. The first, “transformed parenting” involved the parents changing their parenting style and practices. The second approach, “child orientation” involved the parents trying to control, educate, and guide their child. Implication for transcultural practice: Understanding how parents experience interactions with adolescents in the context of Iranian culture and increasing modernity will guide nurses to foster effective parenting strategies for optimal adolescent development.

Poor Man's Smack: A Qualitative Study of Buprenorphine Injecting in Melbourne, Australia

2007 ◽  
Vol 34 (3) ◽  
pp. 525-548 ◽  
Author(s):  
Danielle Horyniak ◽  
Stuart Armstrong ◽  
Peter Higgs ◽  
David Wain ◽  
Campbell Aitken
Keyword(s):  
Drug Use ◽  
Qualitative Study ◽  
Thematic Analysis ◽  
Drug Users ◽  
Illicit Drug ◽  
Cross Sectional ◽  
Drug Seeking ◽  
Cross Sectional Studies ◽  
Study Participants ◽  
Depth Interviews

Cross-sectional studies indicate that diversion and injection of buprenorphine intended for oral use is an emerging health issue for Victorian injecting drug users (IDUs). Between June and September 2006 we conducted in-depth interviews with 23 IDUs from Melbourne, Australia, exploring their motivations for engaging in this behavior. Thematic analysis of the data suggests that convenience was a key motivation for buprenorphine injection in Melbourne as buprenorphine is cheap and readily available. “Needle fixation” was also a commonly cited motivation. Participants highlighted a variety of benefits associated with buprenorphine injecting, including reductions in illicit drug use and time spent engaging in drug-seeking behaviors, leading to greater stability in their lives. Interviewees were not well-informed about the risks of injecting drugs designed for sublingual use and vein damage was widespread and occasionally severe. The views expressed by study participants indicate a need to explore more appropriate opiate treatment solutions, including the option of injectable opiate pharmacotherapies.

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