scholarly journals Integrating Palliative Care Into Heart Failure Management

2021 ◽  
Vol 41 (3) ◽  
pp. e9-e18
Author(s):  
Rebecca (Schuetz) Bierle ◽  
Karen M. Vuckovic ◽  
Catherine J. Ryan

Background The World Health Organization defines palliative care as an approach that improves the quality of life of patients and their families through the prevention and relief of suffering by assessment and treatment of physical, psychosocial, and spiritual problems. Any patient with chronic debilitating disease, including heart failure, is a candidate for interdisciplinary palliative care to manage their complex physical and psychosocial needs. Clinical Relevance The philosophy of palliative care has evolved to include a vision of holistic care extended to all individuals with serious illness and their families or caregivers that should be integrated throughout the continuum of care, including the acute phase. The critical care nurse will likely encounter patients with heart failure who are receiving or are eligible to receive palliative care at various time points during their illness. Critical care nurses therefore play a pivotal role in symptom palliation affecting the heart failure patient’s quality of life. Purpose To review the models of palliative care and the role that the critical care nurse plays in symptom palliation and preparation of the patient and their family for transition to other levels and settings of care. Content Covered This review addresses the principles and models of palliative care along with how to integrate these principles into all phases of the heart failure disease continuum. Also included are recommendations for palliation of symptoms specific to heart failure patients as well as a discussion of the role of the critical care nurse and the importance of shared decision-making.

2018 ◽  
Vol 15 (2) ◽  
pp. 1348
Author(s):  
Gülşah Çamcı ◽  
Sıdıka Oğuz

Millions of people have heart failure around world. Despite the advances in the care, heart failure has a poor prognosis. Palliative care offers patients a care which achieves symptom control with good quality of life. Palliative care is usually identified with cancer patients but individuals with heart failure also need palliative care. According to the World Health Organization, palliative care is needed mostly by patients with cardiovascular conditions followed by cancer patients. Patients with heart failure suffer from several symptoms, they have poor quality of life and it is difficult to estimate the course of their disease. Patients with heart failure, however, do not receive enough palliative care. Patients with heart failure should have palliative care integrated to their care to ensure that they receive palliative care services. The present study investigated palliative care models offered to patients with heart failures, and examined their outcomes. Several studies have found that heart failure patients who receive palliative care had better symptom management and quality of life and reduced hospitalizations.


Author(s):  
Lauren Russo ◽  
Karen Willis ◽  
Natasha Smallwood

Objectives: Interstitial lung disease (ILD) is a debilitating and life-limiting condition, requiring multi-disciplinary care. While guidelines recommend early specialist palliative care referral to improve symptoms and quality of life, few patients access such care towards the end-of-life. This study aimed to explore clinicians’ perspectives regarding specialist palliative care and opioids to understand barriers to optimal care and guide clinical practice improvement initiatives. Methods: A cross-sectional, exploratory, qualitative study was undertaken with Australian respiratory clinicians caring for people with ILD (n = 17). In-depth, semi-structured interviews were audio-recorded, transcribed verbatim and coded. Thematic analysis was undertaken to extrapolate recurring ideas from the data. Results: Four themes were identified: 1) understanding how to improve patient care and support, 2) the need to dispel stigmatized beliefs and misconceptions, 3) the importance of trusted relationships and good communication and 4) the challenges of navigating the health-care system. Participants discussed the need to implement early specialist palliative care and symptom palliation to alleviate symptoms, provide emotional support and augment quality of life. Participants described challenges accessing palliative care and opioids due to stigmatized beliefs amongst patients and clinicians and difficulties navigating the health-care system. Trusted therapeutic relationships with patients and strong inter-disciplinary partnerships with collaborative education and communication were perceived to improve patients’ access to symptom palliation. Conclusion: Specialist palliative care and opioids were believed to improve patients’ quality of life, however, many barriers can make accessing such care challenging. To address these issues, multi-disciplinary collaboration, high-quality communication and trusted therapeutic relationships are crucial throughout the ILD illness journey.


2020 ◽  
Vol 40 (2) ◽  
pp. 55-63
Author(s):  
Karen M. Vuckovic ◽  
Rebecca (Schuetz) Bierle ◽  
Catherine J. Ryan

High-acuity, progressive care, and critical care nurses often provide care for patients with heart failure during an exacerbation of acute disease or at the end of life. Identifying and managing heart failure symptoms is complex and requires early recognition and early intervention. Because symptoms of heart failure are not disease specific, patients may not respond to them appropriately, resulting in treatment delays. This article reviews the complexities and issues surrounding the patient’s ability to recognize heart failure symptoms and the critical care nurse’s role in facilitating early intervention. It outlines the many barriers to symptom recognition and response, including multimorbidities, age, symptom intensity, symptom escalation, and health literacy. The influence of self-care on heart failure management is also described. The critical care nurse plays a crucial role in teaching heart failure patients to identify and respond appropriately to their symptoms, thus promoting early intervention.


2019 ◽  
Vol 28 (01) ◽  
pp. 044-049
Author(s):  
Sidhi Purwowiyoto ◽  
Budhi Purwowiyoto ◽  
Amiliana Soesanto ◽  
Anwar Santoso

Exercise improves morbidity, fatality rate, and quality of life in heart failure with low ejection fraction, but fewer data available in heart failure with preserved ejection fraction (HFPEF).The purpose of this study is to test the hypothesis that exercise training might improve the longitudinal intrinsic left ventricular (LV) function in HFPEF patients.This quasi-experimental study had recruited 30 patients with HFPEF. Exercise training program had been performed for a month with a total of 20 times exercise sessions and evaluated every 2 weeks. Echocardiography was performed before sessions, second week and fourth week of exercise training. Six-minute walk tests (6MWTs) and quality-of-life variables using Minnesota living with HF scoring and the 5-item World Health Organization Well-Being Index scoring were measured before and after exercise as well.Left ventricular filling pressure, represented by the ratio of early diastolic mitral flow velocity/early diastolic annular velocity and left atrial volume index, improved during exercise. The longitudinal intrinsic LV function, represented by four-chamber longitudinal strain, augmented during exercise (p < 0.001). Aerobic capacity, measured by 6MWT, increased significantly (p = 0.001). Quality of life improved significantly during exercise (p < 0.001).Exercise training was suggested to improve the longitudinal intrinsic LV function and quality of life in HFPEF. Clinical Trial Registration: ACTRN12614001042639.


2014 ◽  
Vol 8 (3) ◽  
pp. 26-29
Author(s):  
Marta Gawlik ◽  
Donata Kurpas

In Poland, the statistics on the number of people diagnosed with cancer reveal an increase in the enormity of the problem. In consequence, these include an increase in the number of people taking care of cancer patients at homes. There are currently no available Polish version questionnaire, which allows the assessment of the quality of life for home caregivers. English-language questionnaire examining the quality of life of cancer patients’ caregivers has been developed by the team supervised by M.A.Weitzner and has been widely used since 1999. It contains 35 questions, which are aimed at assessing the level of functioning on four levels: mental, emotional, spiritual and financial. The validation of this questionnaire fulfils the guidelines of translation and validation for the questionnaires, which are deterrmined in a document about the process of translation and adaptation of the instruments of the World Health Organization. Cultural adaptation was an indispensable element for validation, which has met four criteria: allegiance to the translation of the questionnaire into Polish language, the criterion of functional equivalence, the principle of the facade equivalence and the criterion of accuracy reconstruction. The main goal of therapeutic teams in the palliative care is continuous enhancement of their patients and families life quality, including home environments. Both the Polish validation and the application of the questionnaire assessing the life quality of the cancer patients’ caregivers will make it possible to focus on the issues and needs of that population better. The scale may become a useful research tool for evaluation and prevention of the burnout syndrome experienced among family members providing care for cancer patients. Polish version of the CQOL-C questionnaire has met all the validation criteria and can be applied by the therapeutic teams in the palliative care.


2019 ◽  
Vol 25 (8) ◽  
pp. S154-S155
Author(s):  
Luxi Wan ◽  
Christopher O'Connor ◽  
Amanda Stebbins ◽  
Brooke Alhanti ◽  
Marc D. Samsky ◽  
...  

2019 ◽  
Vol 36 (10) ◽  
pp. 932-933
Author(s):  
Abbas Heydari ◽  
Hassan Sharifi ◽  
Ahmad Bagheri Moghaddam

According to the World Health Organization, the main mission of palliative care is to optimize the quality of life of patients with serious chronic disease, as well as their caregivers, by providing biopsychosociospiritual care. However, historically, the primary focus of palliative care is on providing care only for cancer diseases. Based on the current literature, it is assumed that palliative care is not provided for many chronic diseases on a regular basis and in many cases, a clinical guideline does not exist for providing palliative care.


2001 ◽  
Vol 11 (2) ◽  
pp. 149-157 ◽  
Author(s):  
Raymond SK Lo ◽  
Jean Woo

What is palliative medicine?In 1987, the Royal College of Physicians recognized palliative medicine as a specialty, defining it as ‘the study and management of patients with far-advanced disease for whom the prognosis is limited and the focus of care is quality of life’. In 1990, the World Health Organization added its definition, ‘the active and total care of a person whose condition is not responsive to curative therapy’. The aim of palliative medicine is to control pain and other physical symptoms, together with integration of psychological, social, spiritual care and support. The ultimate goal is to help patients to achieve their best quality of life. Palliative medicine places emphasis on a holistic approach, offering care and support not just for patients but also for their families. Palliative medicine hence requires an interdisciplinary team approach. With the co-ordinated efforts of all disciplines (such as doctors, nurses, therapists, social workers, clinical psychologists, dieticians, pastoral care workers and volunteers), patients can be supported in living their remaining lives as actively as possible, and families can be assisted in coping with illness, death and bereavement. Palliative care neither intends to postpone death nor does so, but affirms life and regards dying as a normal process. When a patient faces an incurable illness, it is incumbent on the palliative care team to provide the best treatment and care, adding life to days when days cannot be added to life.


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