scholarly journals ‘Treating a patient should be approached in a holistic manner’: collaboration of doctors and physiotherapists in the rehabilitation of people living with HIV

2018 ◽  
Vol 60 (2) ◽  
pp. 53-57
Author(s):  
Stacy Maddocks ◽  
Verusia Chetty ◽  
Arishna Maghoo ◽  
Nkuleleko Mhlongo ◽  
Nsindiso Mthembu ◽  
...  

People living with HIV facing impairments and subsequent disabilities related to the virus and its treatment require involvement of a collaborative team of healthcare professionals to ensure reintegration into daily life and community living. Healthcare teams responsible for this care include doctors and physiotherapists. This paper explores the collaboration of doctors and physiotherapists in the rehabilitation of people living with HIV in a semi-rural healthcare setting in KwaZulu-Natal, South Africa. Six doctors and two physiotherapists were interviewed using a semi-structured interview guide. The qualitative approach led to the emergence of five themes, namely a biomedical versus biopsychosocial approach; scope of practice challenge; multidisciplinary team enigma; institutional structure limitations; and recommendations from healthcare professionals. Both groups of professionals believed that a lack of understanding of the scope of practice and role of the associate profession in the multidisciplinary team led to poor referrals and lack of communication. Furthermore, shortage of personnel and resource limitations posed barriers to effective team interaction. Timely referrals, good communication and understanding of roles were suggested as endorsements to improved collaboration.

2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Gamze Senyurek ◽  
Mustafa Volkan Kavas ◽  
Yesim Isil Ulman

Abstract Background Human immunodeficiency virus (HIV) infection rates have been gradually increasing in Istanbul, Turkey. Many people living with HIV (PLWH) here encounter difficulties, for example, in adapting to the chronic disease and obtaining continuous access to healthcare services. In this study, we aimed to explore the challenges PLWH face in their daily lives and understand their perceptions of themselves, healthcare professionals and services, and their social spheres via their expressed lived experiences in the healthcare setting. Method Individual semi-structured in-depth interviews were conducted face-to-face with 20 PLWH in Istanbul. All the interviews were voice-recorded and transcribed verbatim except one, upon participant request, for which the interviewer took notes. These logs and the interviewer’s notes were analyzed thematically using the inductive content analysis method. Results The themes concerned experiences in three distinct contexts: 1) Interactions with healthcare providers; 2) Participants’ responses to their HIV diagnosis; and 3) Interactions with their social networks. Firstly, the results highlighted that the participants perceived that healthcare professionals did not inform them about the diagnosis properly, failed to protect patients’ confidentiality and exhibited discriminative behaviors towards them. Secondly, after the diagnosis the participants had difficulty in coping with their unsettled emotional state. While many ceased sexual activities and isolated themselves, some sought support. Lastly, living with HIV affected their relationships with their families and friends either positively or negatively. Moreover, they had to face the difficulties concerning spouse/partner notification issues about which many needed professional support. Conclusion Healthcare professionals’ discriminative or inappropriate attitudes and customs in healthcare institutions are perceived to impair PLWH’s utilization of healthcare services. Structural factors such as social pressure, societal ignorance about HIV, limited access to HIV prevention, and regulatory barriers might contribute to these challenges. The results suggest that it is necessary to raise healthcare professionals’ and society’s awareness about HIV and develop national policies to establish a well-functioning referral system and appropriate spouse/partner notification services.


2021 ◽  
Author(s):  
Gamze Senyurek ◽  
Mustafa Volkan Kavas ◽  
Yesim Isil Ulman

Abstract Background: Human immunodeficiency virus (HIV) infection rates have been gradually increasing in Istanbul, Turkey. Many people living with HIV (PLWH) in Turkey encounter difficulties such as adapting to a chronic disease and maintaining continuous access to healthcare services. In this study, we explored the challenges PLWH face in their daily lives and understand their perceptions of themselves, healthcare professionals, their social spheres, and healthcare services via their expressed lived experiences in the healthcare setting.Method: Individual semi-structured in-depth interviews were conducted face-to-face with 20 people living with HIV in Istanbul. All the interviews were voice-recorded and transcribed verbatim except one, upon participant request, for which the interviewer took notes. These logs and the interviewer’s filed notes were analyzed thematically using the inductive content analysis method. Thematic pattern tables showing the relations of relevant contexts, main themes, sub-themes, and codes were then formed. Results: The results highlighted the following themes: problems with patients’ autonomy, failure to protect patients’ confidentiality and privacy of personal health data, spouse/partner notification issues, the negative effect of living with HIV on their perception of themselves, stigmatizing and discriminatory attitudes intrinsic in healthcare professionals’ approaches, and their struggle to deal with such approaches. Our participants’ experiences suggest that PLWH may face multi-dimensional challenges that directly and negatively affect their lives, identities, relationships, and social status in Turkey. Conclusion: This study showed the complex and shifting nature of stigma experiences. Healthcare professionals’ discriminative or inappropriate attitudes and customs prevailing in healthcare institutions impair PLWH’s utilization of healthcare services. Additionally, structural factors such as social pressure, societal ignorance about HIV, limited access to HIV prevention, and present barriers to HIV care and support originating from current regulations contribute to these challenges. Based on these results, we argue that it is necessary to raise healthcare professionals’ and society’s knowledge and awareness concerning HIV, to train qualified community service personnel providing assistance, care, support, and education to patients, to establish a well-functioning referral system, and to develop national policies to establish appropriate partner notification services. We believe that such interventions should begin to address the social, economic, and structural factors that drive stigma.


Author(s):  
Chia-Hui Yu ◽  
Chu-Yu Huang ◽  
Nai-Ying Ko ◽  
Heng-Hsin Tung ◽  
Hui-Man Huang ◽  
...  

People living with HIV (PLWH) face social stigma which makes disclosure of HIV status difficult. The purpose of this descriptive qualitative study was to understand the lived experiences of stigmatization in the process of disease disclosure among PLWH in Taiwan. Analysis of the semi-structured interviews from 19 PLWH in Taiwan revealed two phases and six themes. Phase one “experiences before disclosure” involved three themes: “Struggles under the pressure of concealing the HIV Status,” “Torn between fear of unemployment/isolation and desire to protect closed ones,” and “Being forced to disclose the HIV status.” Phase two “experiences after disclosure” included three themes: “Receiving special considerations and requirements from school or work,” “Receiving differential treatments in life and when seeking medical care,” and “Stress relief and restart.” Healthcare professionals need to assess stigmatization in PLWH and develop individualized approaches to assist with the disease disclosure process.


Curationis ◽  
2016 ◽  
Vol 39 (1) ◽  
Author(s):  
Esmie Mkwinda ◽  
Eucebious Lekalakala-Mokgele

Background: Infection with human immunodeficiency virus (HIV) has changed from an acute to a chronic illness in the past decade, because of highly active antiretroviral therapy (ART). Malawi’s response to the HIV challenge included provision of ART for people living with HIV or AIDS (PLWHA), which significantly reduced HIV- and AIDS-related mortality. In addition, palliative care for PLWHA was introduced as a strategy that improves the success of ART.Objective: The purpose of the study was to explore the needs of PLWHA concerning care received from primary caregivers and palliative care nurses in Malawi.Methods: A qualitative, explorative design was used and 18 participants were selected purposefully and interviewed individually using a semi-structured interview guide. Data were analysed using NVivo software package version 10.Results: Results revealed that PLWHA needed physical care from the primary caregivers due to severity of illness, integration of healthcare services, and continuity of care and proper care from nurses. They also needed knowledge from nurses in several areas which affected decision-making and needed financial and nutritional support.Conclusion: More could be done in meeting needs of PLWHA to improve their health and survival and assist them to achieve a better quality of life.Keywords: people living with HIV/AIDS, palliative care, palliative care nurse, primary caregiver, support


Author(s):  
Mayank Kumar Khede ◽  
Pragyan Paramita Parija ◽  
Manisha Ruikar Madhukar ◽  
Shiv Kumar Bhinjwar

Background: Achieving the WHO 2020 treatment goals will not only depend on access to HIV treatment, but also on good adherence. Chhattisgarh SACS under guidance of CST division NACO and community and family medicine department AIIMS, Raipur undertook this study to investigate the major factors that influence the adherence of PLHIV visiting ART centres of Chhattisgarh.Methods: From five ART centres, 415 participants were interviewed through simple random sampling method through a semi structured interview schedule. Results: We found that 346 of the 415 (83.3%) patients had ≤95% adherence to ART on the basis of pill count method. Major proportion (90.0%) of patients were on TLE regimen, among them (74.4%) were non-adherent. An association was found between health condition of patient, poor life style and adherence rate. Three-month drug dispensation was recommended by most of the participants to improve adherence.Conclusions: Multiple months drug dispension along with other innovative approaches should be tailored made to improve the adherence and compliance among PLHIV individuals.


IKESMA ◽  
2017 ◽  
Vol 13 (2) ◽  
Author(s):  
Ni�mal Baroya

Globally, the HIV and AIDS epidemic shows stable conditions, but statistically there is still an increase in new infections in some areas including Jember District. The main barriers to HIV prevention are stigma and discrimination against people living with HIV. This study aims to analyze the predictors of stigma and discrimination attitude toward PLHIV in Jember District. This was an observational study used cross sectional design. Research subjects were people aged 15-24 years amounted to 247 respondents. Determination of the sample using a multistage sampling technique, ie the determination of simple random cluster of villages and then determine the respondents of each cluster randomly systematic. Data were collected using structured interview technique with questionnaire then analyzed using chi-square test and logistic regression with 5% significance level. The results showed the majority of respondents (81.4%) stated not willing to buy food if the seller knew HIV +. Fifty percent more they disagree if female teachers who are HIV + keep teaching. Similarly, children with HIV + cannot be admitted to school with HIV negative children. The distribution of stigma and discrimination attitudes toward people living with HIV significantly differed by age, sex, education level, marital status and occupational status. The level of knowledge and residence does not differ significantly. A significant factor to be a predictor of stigma and discrimination against people living with HIV is age and gender. Younger age (15-19 years) and women have a greater likelihood of being stigmatized and discriminating against people living with HIV. Dissemination of information about HIV and AIDS in adolescents aged 15-19 years is still needed to increase knowledge and accelerate the acceptance of PLHIV so that stigma and discrimination attitude toward PLWHA can be reduced. Keywords: attitude, stigma, discrimination people suffering with HIV and AIDS.


BMJ Open ◽  
2019 ◽  
Vol 9 (5) ◽  
pp. e026827 ◽  
Author(s):  
Heather deBoer ◽  
Stephanie Cudd ◽  
Matthew Andrews ◽  
Ellie Leung ◽  
Alana Petrie ◽  
...  

ObjectivesTo identify factors to consider when integrating physiotherapy (PT) into an interprofessional outpatient HIV care setting from the perspective of healthcare professionals and adults living with HIV.DesignWe conducted a qualitative descriptive study using semi-structured interviews (healthcare professionals) and focus groups (adults living with HIV). We asked participants their perspectives on barriers, facilitators and strategies to accessing and participating in outpatient PT, important characteristics physiotherapists should possess working in outpatient HIV care, content and structure of PT delivery, and programme evaluation.Recruitment and settingWe purposively sampled healthcare professionals based on their experiences working in interprofessional HIV care and recruited adults with HIV via word of mouth and in collaboration with an HIV-specialty hospital in Toronto, Canada. Interviews were conducted via Skype or in-person and focus groups were conducted in-person at the HIV-specialty hospital.Participants12 healthcare professionals with a median of 12 years experience in HIV care, and 13 adults living with HIV (11 men and 2 women) with a median age of 50 years and living with a median of 6 concurrent health conditions in addition to HIV.ResultsOverall impressions of PT in outpatient HIV care and factors to consider when implementing PT into an interprofessional care setting include: promoting the role of, and evidence for, PT in outpatient HIV care, structuring PT delivery to accommodate the unique needs and priorities of adults living with HIV, working collaboratively with a physiotherapist on the healthcare team and evaluating rehabilitation as a component of interprofessional care.ConclusionsMultiple factors exist for consideration when implementing PT into an interprofessional outpatient HIV care setting. Results provide insight for integrating timely and appropriate access to evidence-informed rehabilitation for people living with chronic and episodic illness, such as HIV.


2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 868-869
Author(s):  
Lena Makaroun ◽  
Gloria Klima ◽  
Michele Nichols ◽  
Keri Rodriguez ◽  
Ann O’Hare ◽  
...  

Abstract Elder abuse (EA) is common and has devastating health consequences, yet is rarely detected by healthcare professionals. Veterans are at high risk for EA, and the VA has unique resources (e.g., comprehensive social work services) that can help address EA in the healthcare setting. This qualitative study aimed to assess perceived barriers and facilitators to detecting, reporting, intervening on and monitoring EA for VA providers. Providers from two VA facilities were recruited to participate in a one-on-one semi-structured interview. Transcripts of audio-recorded interviews were analyzed using thematic content analysis. Participants (n=22) were 82% female, age 33-64 years, had 4-25 years practicing in VA, and varied in discipline (e.g., nurse, physician, social worker) and practice setting (e.g., emergency department, geriatrics, primary care). For detecting EA, patient and caregiver cognitive impairment were frequently cited barriers, while an interdisciplinary team approach and ability to do home visits were noted facilitators. Common challenges with reporting EA to adult protective services (APS) were perceived lack of APS follow up and discrepancies in VA provider and APS investigator findings. While removing a patient from an unsafe living situation was a frequently cited successful intervention, providers also expressed feeling conflicted when infringing on patient autonomy. Poor communication with APS, patient loss to follow up, and caregiver interference made monitoring EA cases more difficult; intensive case management and in-home services facilitated monitoring. In conclusion, healthcare professionals see interdisciplinary care, in-home care, and better coordination with APS as key facilitators to managing suspected EA in the healthcare setting.


Author(s):  
A. Y. Orfin ◽  
M.A. Mazepa

Introduction. People living with HIV (PLWH) have a great need in physical therapy (PT), but there are many barriers to accessing it. Specific recommendations on how to integrate PT into multidisciplinary teams and outpatient care programs PLWH is currently in short supply. The aim of the study. Identify factors to consider when integrating PT into the work of a multidisciplinary team in providing assistance to PLWH. Materials and methods. A descriptive sociological study consisting of interviews with health workers (n=12) and with adults living with HIV (n=13). Research results and their discussion. Guided by the principles of biopsychosocial models in the study of barriers and factors to be considered when integrating PT in multidisciplinary team for the management of PLWH, identified 8 contextual factors that may affect the integration of PT in the care of PLWH. Conclusion. The role of PT in the care of PLWH is multifactorial and patient-oriented, a special role belongs to the contextual factors. Prospects for further research. Structuring the PT mode with orientation on a specific patient; development of methods for assessing PT as an interprofessional component assistance.


Author(s):  
Priyanka Rajmohan ◽  
Joe Thomas ◽  
Jubina Bency Anthoora Thodi ◽  
Unnikrishnan Uttumadathil Gopinathan

Background: In India, an estimated 20,88,638 people are living with HIV/AIDS (prevalence 0.27%). The people living with HIV/AIDS (PLHA) are facing double burden of physical and psychosocial impact of infection. This study is conducted to determine prevalence of HIV related stigma among PLHA and to find the association between stigma and adherence to Anti-Retroviral Therapy (ART) among HIV patients in central Kerala.Methods: A cross-sectional study was done from July to December 2018 among 105 adult HIV positive patients who have enrolled in Thrissur Network of People living with HIV/AIDS (TNP PLUS). After obtaining informed consent, the participants were interviewed using a structured interview schedule consisting of questions on socio-demographic details, stigma and ART adherence.Results: The prevalence of high stigma was found to be 21% and moderate stigma 61%.Out of 105 study subjects,68 (64.8%) were found to have a high adherence to ART (≥95%) and 37 (35.2%) were found to have a low adherence (<95%). Patients who had a moderate/high internalized stigma tend to have a low adherence to ART as compared to patients who had low stigma (OR=3.4 (1.2-12.8) p=0.04). On analyzing the association between the different forms of stigma and adherence to ART, isolation by family members, abandoned by friends and verbal stigma were significantly associated with low ART adherence.Conclusions: HIV related internalized stigma was pervasive among the study subjects. These patients also experience other forms of enacted stigma. The presence of internalized stigma was found to be significantly associated with low adherence to ART.


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