Living with Multiple Sclerosis: A Phenomenological Study of Worries, Concern and Psychological Problems in Iranian Patients with MS

Multiple sclerosis (MS), as a progressive and degenerative illness, has an impact on different aspects of individual lives and may lead to difficulties, concerns, and worries in patients. The aim of the present study was to investigate concerns, worries and problems in patients with MS. We used a descriptive phenomenological qualitative approach. Participants were volunteers purposively selected based on their availability. We carried out deep interviews with 15 MS patients and analyzed the detailed information obtained from these interviews by using Colaizzi’s method. We extracted six essential themes and thirty-four sub-themes associated with MS from the content of the interviews. The main themes were labelled “Confronting existential concerns,” “Crisis of facing up with the illness,” “Suffering from the illness,” “Relationship,” “Confrontation with spirituality and religion,” “Searching for tranquility.” Results of the present study also reiterated the following: Patients with MS seem to lose meaning of life and this together with problems in dealing with existential concerns, may lead to the “disintegration of self,” hence resulting in considerable psychological disturbance and distress. It is concluded that the illness evokes psychological injury such as existential anxiety, relationship disturbance and hopelessness, and these psychological injuries can lead to relapsing of MS.

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The Lived Experiences of Parents of Iranian Young Women with Multiple Sclerosis

10.21203/rs.2.19039/v1 ◽

2019 ◽

Author(s):

Marzieh Panahi ◽

Zahra Tazakori ◽

Mansoureh Karimollahi

Keyword(s):

Multiple Sclerosis ◽

Young Women ◽

Lived Experiences ◽

Phenomenological Study ◽

Positive Impact ◽

Structured Interviews ◽

The Family ◽

Data Saturation ◽

Open Coding ◽

Colaizzi's Method

Abstract Background: Chronic illness in children causes more mental health risks for parents than other members of the family. Therefore, exploring the experiences of parents living with young women who have multiple sclerosis and presenting them to healthcare planners and managers can have a positive impact on community health. This study aimed to explore the experiences of parents of young women with multiple sclerosis in Iran. Methods: This research was a phenomenological study, and sampling was continued until data saturation, and 12 participants were chosen. The data were gathered using semi-structured interviews and analyzed using Colaizzi's method. Results: Open coding resulted in 450 codes, and after several stages of analysis and integration of similar codes, five main concepts, and 21 sub-concepts was produced. The main concepts included distress, trapping, adaptation barriers, response to illness, and reconciliation with the disease. Conclusion: This study showed the disease affects all dimensions of the parents' life and can lead to the experiences that are new to them and may lead to confusion. These findings can lead to more effective parental care for their daughters. It can also reduce the burden of disease on the family, the health system, and the community.

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Reliability and validity of the activities-specific Balance Confidence scale and Fall Efficacy Scale-International in Iranian patients with multiple sclerosis

10.26226/morressier.5b719e455aff74008ae4cdcb ◽

2018 ◽

Author(s):

Saeideh Monjezi ◽

Shirin Tajali ◽

Farshad Molhemi

Keyword(s):

Multiple Sclerosis ◽

Reliability And Validity ◽

Balance Confidence ◽

Fall Efficacy Scale ◽

Iranian Patients ◽

Confidence Scale

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The Effectiveness of De-Escalation Techniques as Compared to Physical Restraint/Seclusion on Inpatient Psychiatric Units: A Quantitative Systematic Review

CNS Spectrums ◽

10.1017/s1092852920002874 ◽

2021 ◽

Vol 26 (2) ◽

pp. 175-176

Author(s):

Shavar Chase

Keyword(s):

Systematic Review ◽

Best Practices ◽

Physical Restraint ◽

Psychological Injury ◽

Inherent Risk ◽

Physical Injuries ◽

Psychological Injuries ◽

Overwhelming Evidence ◽

Psychiatric Units ◽

Quantitative Systematic Review

AbstractBackgroundRestraint and seclusion were considered a form of treatment but consistently has led to physical and mental injuries to staff and patients. De-escalation has been viewed as a safer option. Understanding which intervention yields decreased injuries, aggression and violence will guide policy and inform practice.ObjectivesTo identify which intervention leads to decreased physical and psychological injury to patients and staff.MethodsThe frequency of physical injuries to patients and staff from aggressive patients; frequency of psychological injuries to patients and staff from violent, aggressive incidents; frequency of violence, agitation and aggression; competence of staff at managing aggression and violence were evaluated.ResultsFourteen studies were included in this review. There are many forms of de-escalation. Studies where techniques were taught to staff, the intervention was effective in decreasing injury in approximately half the studies. De-escalation techniques taught to patients decreased injury in 100% of the studies included in this review.ConclusionConsensus on which intervention works best could not be reached, nor is there overwhelming evidence for a particular type of de-escalation better suited for decreasing aggression and violence. Caution should be exercised when choosing a de-escalation technique for implementation in institutions due to lack of regulating agencies that inform practice and standards. In addition, the literature lacks best practices for de-escalation techniques backed by evidence. Restraint and seclusion should be used as a last resort due to inherent risk associated with the intervention.

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The association of −330 interleukin-2 gene polymorphism and HLA-DR15 allele in Iranian patients with multiple sclerosis

International Journal of Immunogenetics ◽

10.1111/iji.12132 ◽

2014 ◽

Vol 41 (4) ◽

pp. 330-334 ◽

Cited By ~ 10

Author(s):

A. Sayad

Keyword(s):

Multiple Sclerosis ◽

Gene Polymorphism ◽

Interleukin 2 ◽

Iranian Patients

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Correlation between retinal nerve fiber layer thickness and expanded disability status scale in Iranian patients with relapsing–/INS;remitting multiple sclerosis

Journal of the Neurological Sciences ◽

10.1016/j.jns.2013.07.1342 ◽

2013 ◽

Vol 333 ◽

pp. e367

Author(s):

N. Mohebi ◽

M. Moghaddasi ◽

H. Karimi

Keyword(s):

Multiple Sclerosis ◽

Nerve Fiber ◽

Layer Thickness ◽

Retinal Nerve Fiber Layer ◽

Expanded Disability Status Scale ◽

Fiber Layer ◽

Nerve Fiber Layer ◽

Nerve Fiber Layer Thickness ◽

Disability Status ◽

Iranian Patients

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PANDANGAN WARTAWAN TELEVISI PADA PELIPUTAN KERUSUHAN AKSI 22 MEI

MEDIUM ◽

10.25299/medium.2020.vol8(1).4811 ◽

2020 ◽

Vol 8 (1) ◽

pp. 61-65

Author(s):

Lisna Nurpadillah ◽

Ujang Saepullah ◽

Khoiruddin Muchtar

Keyword(s):

Phenomenological Study ◽

Qualitative Approach ◽

Alfred Schutz ◽

Study Methods ◽

Alfred Schütz ◽

Definition Of ◽

Television Journalists

Penelitian ini bertujuan untuk mengetahui pemahaman, pemaknaan serta pengalaman wartawan televisi pada saat peliputan kerusuhan Aksi 22 Mei. Teori yang digunakan adalah teori fenomenologi Alfred Schutz. Penelitian ini menggunakan pendekatan kualitatif dan menggunakan paradigma konstuktivis dengan metode studi fenomenologi. Informan dalam penelitian ini merupakan wartawan televisi INews TV, Net TV, Kompas TV, RTV, Jawa Pos TV, TVOne, dan CNN Indonesia. Hasil penelitian menunjukan,bahwa wartawan televisi memahami peliputan kerusuhan Aksi 22 Mei yaitu definisi peliputan kerusuhan Aksi 22 Mei, etika peliputan kerusuhan dan posisi peliputan wartawan. Wartawan televisi juga memaknai peliputan kerusuhan Aksi 22 Mei yaitu pentingnya peran wartawan televisi dan mendahulukan humanisme. Berdasarkan pengalamannya yaitu adanya hambatan peliputan, intimidasi dan diskriminasi serta keselamatan peliputan. This study aims to determine the understanding, interpretation, and experience of television reporters during the rioting of the May 22 Action. The theory used is Alfred Schutz's phenomenology theory. This research uses a qualitative approach and uses a constructivist paradigm with phenomenological study methods. The informants in this study were television reporters from INews TV, Net TV, Kompas TV, RTV, Jawa Pos TV, TVOne, and CNN Indonesia. This study concludes that television journalists understand the May 22 riots coverage, namely the definition of May 22 riots coverage, the ethics of riot reporting, and the position of journalists covering. Television reporters also interpreted the reporting of the May 22 riots, namely the importance of the role of television journalists and prioritizing humanism. Based on his experience, there are barriers to coverage, intimidation, and discrimination, as well as safety of coverage.

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Service Learning: Experiences and Perceptions Towards Students in UTM, Malaysia

Sains Humanika ◽

10.11113/sh.v9n1-3.1138 ◽

2017 ◽

Vol 9 (1-3) ◽

Author(s):

Mohd Syafiq Md Salleh ◽

Mahani Mokhtar

Keyword(s):

Service Learning ◽

Phenomenological Study ◽

Soft Skills ◽

Learning Experiences ◽

Qualitative Approach ◽

Perceptions Of Students ◽

Pedagogical Aspect ◽

Service Learning Projects ◽

Career Benefits ◽

Learning Projects

The purpose of this phenomenological study was to explore the experiences and perceptions of students who successfully completed their service learning projects in UTM. The qualitative approach was using and four main themes are emerged from the students interview, such as pedagogical aspect, personal benefits, challenges and problems. The findings showed that service learning has great implication and beneficial for students and community and develop soft skills for their career benefits.

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