Informed consent en andere ethische aspecten van onderzoek naar kwetsbare jongeren in Zuid-Afrika

KWALON ◽  
2011 ◽  
Vol 16 (3) ◽  
Author(s):  
Diana van Dijk
Keyword(s):  
South Africa ◽  
Informed Consent ◽  
Ethical Aspects ◽  
Onderzoek Naar ◽  
Methodological Problems

Informed consent and other ethical aspects of research among vulnerable youngsters in South Africa Informed consent and other ethical aspects of research among vulnerable youngsters in South Africa In this article the author will discuss ethical difficulties she encountered during her PhD-research on child-headed households in South Africa. Her idea that children are capable actors was not only different from existing principles in childhood research, but also from local ideas. The difficult environment in which the children and youngsters lived caused more ethical or methodological problems.

Exploring ethical aspects of elective surgery patients’ decision-making experiences

2012 ◽  
Vol 20 (6) ◽  
pp. 672-683 ◽  
Author(s):  
Mei-Ling Lin ◽  
Chuen-Teng Huang ◽  
Hsien-Hsien Chiang ◽  
Ching-Huey Chen
Keyword(s):  
Decision Making ◽  
Informed Consent ◽  
Healthcare Professionals ◽  
Elective Surgery ◽  
Phenomenological Approach ◽  
Healthcare Personnel ◽  
Decision Making Process ◽  
Ethical Aspects ◽  
Southern Taiwan ◽  
Colaizzi's Method

The practice of respecting patients’ autonomy is rooted in the healthcare professionals’ empathy for patients’ situations, without which appropriate supports to the patients during the informed consent process may be remarkably moderated. The purpose of this study was to explore elective surgery patients’ experiences during their decision-making process. This research was conducted using a phenomenological approach, and the data analysis was guided by Colaizzi’s method. A total of 17 participants were recruited from a hospital in southern Taiwan. Two major themes emerged from the analyses: (a) a voluntary yet necessary alternative—to undergo a surgery and (b) alternatives compelled by the unalterable decision—the surgery. It was concluded that unless healthcare professionals can empathize with the distressed situation of their patients who are facing elective surgery, the practice of informed consent may become merely a routine. Nurses can be the best advocates for patients and facilitators to enhance communication between patients and healthcare personnel.

scholarly journals Attitudes and Knowledge of Adolescents in Jordan Regarding the Ethics of Social Media Data Use for Research Purposes

2020 ◽  
Vol 15 (1-2) ◽  
pp. 87-96
Author(s):  
Hiba Wazeer Al Zou’bi ◽  
Moawiah Khatatbeh ◽  
Karem H. Alzoubi ◽  
Omar F. Khabour ◽  
Wael K. Al-Delaimy
Keyword(s):  
Social Media ◽  
Informed Consent ◽  
Online Survey ◽  
Personal Information ◽  
Data Use ◽  
Ethical Aspects ◽  
Social Media Data ◽  
Attitudes And Knowledge ◽  
Media Data ◽  
Research Studies

This study assessed the awareness and attitudes of adolescents in Jordan concerning the ethics of using their social media data for scientific studies. Using an online survey, 393 adolescents were recruited (mean age: 17.2 years ± 1.8). The results showed that 88% of participants were using their real personal information on social media sites, with males more likely to provide their information than females. More than two thirds of participants (72.5%) were aware that researchers may use their data for research purposes, with the majority believing that informed consent must be obtained from both the adolescents and their parents. However, more than three quarters of those surveyed (76%) did not trust the results of research that depended on collecting data from social media. These findings suggest that adolescents in Jordan understood most of the ethical aspects related to the utilization of their data from social media websites for research studies.

scholarly journals Ethical challenges in assessment centres in South Africa

2017 ◽  
Vol 43 (0) ◽  
Author(s):  
Vuyani R. Muleya ◽  
Linda Fourie ◽  
Sandra Schlebusch
Keyword(s):  
South Africa ◽  
Focus Group ◽  
Legal Framework ◽  
Ethical Values ◽  
Subject Matter Experts ◽  
Ethical Challenges ◽  
Ethical Aspects ◽  
Managerial Implications ◽  
Value Add ◽  
Interpretative Research

Orientation: Assessment Centres (ACs) are used globally for the selection and development of candidates. Limited empirical evidence exists of the ethical challenges encountered in the use of ACs, especially in South Africa (SA).Research purpose: Firstly, to explore possible ethical challenges related to ACs in SA from the vantage point of the practitioner and, secondly, to search for possible solutions to these.Motivation for the study: Decisions based on AC outcomes have profound implications for participants and organisations, and it is essential to understand potential ethical challenges to minimise these, specifically in the SA context, given its socio-political history, multiculturalism, diversity and pertinent legal considerations.Research design, approach and method: A qualitative, interpretative research design was chosen. Data were collected by means of a semi-structured survey that was completed by 96 AC practitioners who attended an AC conference. Content analysis and thematic interpretation were used to make sense of the data. The preliminary findings were assessed by a focus group of purposively selected subject-matter experts (n = 16) who provided informed insights, which were incorporated into the final findings. The focus group suggested ways in which specific ethical challenges may be addressed.Main findings: The findings revealed many ethical challenges that can be better understood within a broad framework encompassing 10 themes: Universal ethical values; multicultural global contexts; the regulatory-legal framework for ACs in SA; characteristics of the assessor; psychometric properties of the AC; characteristics of the participant; bias and prejudice; governance of the AC process; ethical culture of the employer organisation and the evasive nature of ethics as a concept.Practical and managerial implications: Considerable risk exists for the unethical use of ACs. An awareness of possible areas of risk may assist AC stakeholders in their search for ethical AC use.Contribution or value-add: The study may contribute to an evidence-based understanding of the ethical aspects of ACs. The recommendations may also benefit all AC stakeholders who wish to use ACs ethically.

The Use of Human Subjects in Human Factors Research

1972 ◽  
Vol 14 (1) ◽  
pp. 35-40
Author(s):  
James M. Miller ◽  
Thomas H. Rockwell
Keyword(s):  
Informed Consent ◽  
Human Factors ◽  
Human Subject ◽  
Code Of Ethics ◽  
Human Subjects ◽  
Ethical Aspects ◽  
Professional Recognition ◽  
Potential Benefits ◽  
Key Issues ◽  
Human Factors Research

Some legal and ethical aspects of utilizing human subjects in research are discussed. Among these key issues are: (I) How does one make a fair judgment of the risks involved as opposed to the potential benefits to be gained? (2) Can one be assured of a subject's “informed consent”? (3) How can a researcher protect himself against liabilities arising from accusations of negligent behavior? As part of the answer, it is suggested that the Human Factors Society establish committees to recommend a code of ethics for its members and also review proposals for human research at the request of its members. Such provisions could be of legal and ethical value in the protection of its member researchers and would help establish and preserve a high professional recognition for the society's leadership in human factors research involving risk to the human subject.

scholarly journals The readability of informed consent forms for research studies conducted in South Africa

2021 ◽  
Vol 111 (2) ◽  
pp. 180
Author(s):  
A E Fischer ◽  
W D F Venter ◽  
S Collins ◽  
M Carman ◽  
S T Lalla-Edward
Keyword(s):  
South Africa ◽  
Informed Consent ◽  
Consent Forms ◽  
Research Studies

scholarly journals The epidemiology of musculoskeletal injuries in trail runners in the eThekwini Municipality of KwaZulu-Natal

2019 ◽  
Author(s):  
◽  
Maxine-Lee Millar
Keyword(s):  
Risk Factors ◽  
South Africa ◽  
Statistical Analysis ◽  
Informed Consent ◽  
Musculoskeletal Injuries ◽  
Informed Consent Form ◽  
Kwazulu Natal ◽  
Associated Risk Factors ◽  
The Impact ◽  
Trail Running

AIM: The aim of this study was to determine the point and period prevalence of musculoskeletal injuries, the injury profile, associated risk factors and the impact of musculoskeletal injuries on trail runners who participated in selected trail races in the eThekwini municipality of KwaZulu-Natal. SUBJECTS: Participants from various trail running races volunteered to participate in the study after the completion of a trail race. METHODOLOGY: Participants were approached individually following the completion of a minimum of a 10 kilometre trail race. Each participant read a letter of information and signed an informed consent form before completing the questionnaire. A total of 197 completed informed consent and post-pilot questionnaires were collected and placed in separate sealed ballot boxes. A code was allocated to each questionnaire before data was captured on a spreadsheet for statistical analysis. RESULTS: In total, 145 questionnaires were statistically analysed. The results revealed that only ethnicity and how often the participant's trail ran per month were significant predictors of developing an injury. White participants were five times more likely to be injured compared to African participants and those who ran more than 10 times a month were 4.65 times more likely to be injured than those who ran less than five times a month. The most common past injuries sustained by trail runners was shown to be predominantly due to trauma, and were located in the knee, ankles and ITB regions. Current injuries were shown to be equally due to trauma and overuse, with predominant location being in the same anatomical regions as past injuries. CONCLUSION: The majority of the data collected was in line with the literature on running; however, most of those studies were done on road runners. The findings of this study were unique to trail runners in KwaZulu-Natal. Further studies are required on trail runners in other regions of South Africa to determine a clearer injury profile.

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