scholarly journals Health care for people in oncological treatment

2019 ◽  
Vol 13 ◽  
Author(s):  
Sandra Cristina Fernandes Pereira ◽  
Joseneide Santos Queiroz

Objetivo: analisar a legislação em vigor e compará-la com a realidade relatada pelos usuários da saúde, que realizam tratamento oncológico em uma unidade de saúde. Método: trata-se de um estudo qualitativo, descritivo, exploratório, com dez pessoas com doença oncológica, internadas numa unidade hospitalar. Utilizaram-se, como ferramentas de coleta de dados, a entrevista semiestruturada, o diário de campo e a análise documental. Ordenaram-se os dados, seguindo a técnica de Análise de conteúdo na modalidade Análise de categorias. Resultados: elencaram-se as seguintes categorias de análise: diagnóstico precoce; modalidade cartão SUS e rede pública X rede privada na saúde. Conclusão: alerta-se que existem expressivas lacunas no que diz respeito à assistência à saúde no SUS, especificamente quanto ao diagnóstico inicial da doença e ao acesso ao tratamento. Descritores: Saúde Pública; Oncologia; Rede de Atenção à Saúde; Acesso aos Serviços de Saúde; Assistência à Saúde; Regionalização.AbstractObjective: to analyze the legislation in force and compare it with the reality reported by health users, who perform cancer treatment in a health unit. Method: this is a qualitative, descriptive, exploratory study with ten people with cancer disease, admitted to a hospital unit. The data collection tools used were semi-structured interviews, field diaries and document analysis. The data was ordered, following the technique of Content Analysis in the category Analysis mode. Results: the following categories of analysis were listed: early diagnosis; UHS card modality and public network X private network in health. Conclusion: it is warned that there are significant gaps regarding health care in UHS, specifically regarding the initial diagnosis of the disease and access to treatment. Descriptors: Public Health; Oncology; Health Care Network; Health Services Accessibility; Regional Health Planning.ResumenObjetivo: analizar la legislación vigente y compararla con la realidad reportada por los usuarios de la salud, que realizan tratamiento del cáncer en una unidad de salud. Método: se trata de un estudio cualitativo, descriptivo, exploratorio con diez personas con enfermedad de cáncer, ingresadas en una unidad hospitalaria. Las herramientas de recolección de datos utilizadas fueron entrevistas semiestructuradas, diarios de campo y análisis de documentos. Los datos se ordenaron siguiendo la técnica de Análisis de contenido en la categoría Modo de análisis. Resultados: se enumeraron las siguientes categorías de análisis: diagnóstico temprano; Modalidad de tarjeta SUS y red pública X red privada en la salud. Conclusión: se advierte que existen lagunas significativas con respecto a la atención médica en el SUS, específicamente con respecto al diagnóstico inicial de la enfermedad y el acceso al tratamiento. Descriptores: Salud Pública; Oncología; Red de Atención a la Salud; Accesibilidad a los Servicios de Salud; Prestación de Atención de Salud; Regionalización.

2019 ◽  
Vol 13 ◽  
Author(s):  
Leticia Werner Rêgo ◽  
Gisele Martins ◽  
Cristiane Feitosa Salviano

Objetivo: compreender o impacto social da doença renal crônica em adolescentes submetidos à hemodiálise. Método: trata-se de estudo qualitativo, descritivo, com adolescentes dos 12 aos 18 anos, que realizavam hemodiálise na unidade hospitalar de Terapia Renal Substitutiva, por meio de entrevista semiestruturada. Analisaram-se os dados segundo o método de pesquisa de narrativas e figura. Resultados: identificaram-se três categorias temáticas: Modificações causadas pela hemodiálise que interferem na rotina; Sentimentos do adolescente associados à doença e à hemodiálise; Sentimentos da família associados à doença e à hemodiálise na perspectiva do adolescente. Conclusão: concluiu-se que o adolescente passa por modificações importantes em seu cotidiano, tanto pelas restrições necessárias para o controle da doença quanto pelas alterações fisiológicas. Revela-se, além disso, que sentimentos como tristeza e medo também permeiam o atendimento a este paciente. Descritores: Insuficiência Renal Crônica; Diálise Renal; Rede social; Adolescente; Família.Abstract Objective: to understand the social impact of chronic kidney disease in adolescents undergoing hemodialysis. Method: this is a qualitative, descriptive study with adolescents from 12 to 18 years old, who underwent hemodialysis in the hospital unit of Renal Replacement Therapy, through semi-structured interviews. Data was analyzed according to the narrative and figure research method. Results: three thematic categories were identified: Modifications caused by hemodialysis that interfere in the routine; Adolescent feelings associated with the disease and hemodialysis; Family feelings associated with the disease and hemodialysis from the adolescent's perspective. Conclusion: it was concluded that the adolescent undergoes important changes in their daily life, both due to the restrictions necessary to control the disease and physiological changes. Moreover, feelings such as sadness and fear also permeate the care of this patient. Descriptors: Renal Insufficiency, Chronic; Renal Dialysis; Social Networking; Adolescent; Family. Resumen Objetivo: comprender el impacto social de la enfermedad renal crónica en adolescentes sometidos a hemodiálisis. Método: se trata de un estudio cualitativo y descriptivo con adolescentes de 12 a 18 años que se sometieron a hemodiálisis en la unidad hospitalaria de Terapia de Reemplazo Renal, a través de entrevistas semiestructuradas. Los datos se analizaron de acuerdo con el método de investigación de narrativas y figura. Resultados: se identificaron tres categorías temáticas: modificaciones causadas por hemodiálisis que interfieren en la rutina; Sentimientos adolescentes asociados con la enfermedad y la hemodiálisis; Sentimientos de la familia asociados con la enfermedad y la hemodiálisis desde la perspectiva del adolescente. Conclusión: se concluyó que el adolescente sufre cambios importantes en su vida diaria, tanto por las restricciones necesarias para controlar la enfermedad como por cambios fisiológicos. También se revela que sentimientos como la tristeza y el miedo también impregnan el cuidado de este paciente. Descriptores: Insuficiencia Renal Crónica; Diálisis Renal; Red Social; Adolescente; Familia.


2017 ◽  
Vol 8 (4) ◽  
pp. e74-85 ◽  
Author(s):  
Ann Lee ◽  
Sandra Kennett ◽  
Sheny Khera ◽  
Shelley Ross

Background: The objective of this mixed-methods study was to determine interpersonal continuity (the ongoing therapeutic relationship between patient and health care provider) experiences of family medicine residents and preceptors, and explore their perceptions of interpersonal continuity.Methods: Quantitative data on resident and preceptor encounters were extracted from the electronic medical record (EMR). Opportunities for developing interpersonal continuity were determined using the Usual Provider Continuity (UPC) Index. A qualitative descriptive research method was used for the qualitative portion. Semi-structured interviews were conducted and constant comparative analysis was used to determine emerging themes.Results: Residents were found to have low UPC rates; preceptor rates were higher. Qualitative findings showed variable experiences with interpersonal continuity not apparent from UPC rates. Both preceptors and residents expressed perception of “ownership” of patients as a significant barrier to interpersonal continuity. Conclusion: This study suggests that a perceived lack of individual “ownership” of a patient panel was a significant barrier to developing interpersonal continuity. This might conflict with current changes towards team-based health care delivery. Understanding perceptions and changing them through a multi-faceted approach including resident teaching and faculty development might help improve interpersonal continuity which are core to both family medicine curricula and current models of health care delivery.


2018 ◽  
Vol 60 (6) ◽  
pp. 39
Author(s):  
S. Orrie ◽  
T. Motsohi

Background: There has been little research on the experiences of healthcare workers (HCWs) with deaf/hearing impaired (HI) clients. Anecdotal evidence suggests that HCWs experience challenges, but little is reported on how they manage these challenges. Interactions with and care of deaf/Deaf and HI patients by clinicians has yielded several questions around communication and assessment strategies, as well as comparative quality of health care for deaf/Deaf and HI clients. This research was intended to further the understanding and knowledge of these aspects of health care of deaf/Deaf and HI clients.Methods: The study design is a qualitative, descriptive case study. Data were collected using semi-structured interviews with individual HCWs and focus-group discussions with groups of participants. Participants were invited staff members at Retreat Community Health Centre (RCHC) in Cape Town. Convenience sampling was used to select participants, and interviews were conducted until saturation was reached. Data were studied and analysed using the phenomenological method.Results: HCWs reported that they serve very few Deaf or HI clients. However, themes of language barriers, resilience, preconceptions, improvisation and innovation, interpreters and recommendations emerged. Difficulties in communication were acknowledged, but HCWs insisted that these barriers are not insurmountable.Discussion and conclusion: A few preconceptions and gaps in knowledge and awareness were revealed. HCWs also tended to rely on escorts and other interpreters. The dominant recommendations are that HCWs should receive training in sign language (SL) and/or that SL interpreters be available at facilities. Despite using words and phrases such as ‘frustrating’ and ‘more effort’, participants’ concluding remarks reiterate that their experiences are positive, suggesting a notable resilience.


2022 ◽  
Vol 75 (1) ◽  
Author(s):  
Iria Barbara de Oliveira ◽  
Aida Maris Peres ◽  
Maria Manuela Martins ◽  
Elisabeth Bernardino ◽  
Maria do Carmo Fernandez Lourenço Haddad ◽  
...  

ABSTRACT Objectives: to understand the work process dimensions related to innovative actions developed by nurses in Primary Health Care. Methods: qualitative, descriptive study, developed in Primary Health Care in a city in the Southern Region of Brazil. Seventy-six nurses, who worked in management and assistance, participated in this study through semi-structured interviews. After data processing by IRAMUTEQ software, the textual analysis occurred by descending hierarchical classification. Results: forty-two innovative actions, considered by the participants as new ways of working, were identified. There was a predominance of innovative actions related to the Management and Assist dimensions; we noticed the fragility of the actions to contemplate all the nurse’s work process dimensions. Final Considerations: the predominance of innovative actions was related to users’ assistance and better conditions in the teamwork process, besides highlighting the role of nurses in the perspective of a new way of working in health services.


2014 ◽  
Vol 23 (4) ◽  
pp. 898-906 ◽  
Author(s):  
Ana Maria Fernandes Borges Marques ◽  
Mara Ambrosina de Oliveira Vargas ◽  
Soraia Dornelles Schoeller ◽  
Erika Yuriko Kinoshita ◽  
Flávia Regina Souza Ramos ◽  
...  

A qualitative, descriptive and exploratory study was conducted through semi-structured interviews with 18 people undergoing amputation in the period 2008-2010, in public hospitals in Florianópolis. The objectives were to analyze the care provided by health professionals throughout the amputation process in the perspective of the amputee patient; and discuss the process of health care to the person with amputation in the bioethical analysis perspective. Data were analyzed according to content analysis. Three thematic categories emerged: the process of amputation; team performance and rehabilitation. Bioethics permits reflection on the care provided to amputees and problematizes the relationship of the health care process with support available through public health policies. The professional involved in this process has to take responsibility for putting the process in practice and interdisciplinary is essential for the recovery of the amputated patient.


2017 ◽  
Vol 73 (1) ◽  
Author(s):  
Ilse S. Meyer ◽  
Alwyn Louw ◽  
Dawn Ernstzen

Background: Clinical education is widely considered to be the cornerstone of health care professionals’ education. Clinical educators (CEs) fulfil many roles and act as both mentors and assessors in the learning process of students’ undergraduate health care professions education. However, changing from being a mentor to being an assessor may present particular challenges for both the CE and the students.Objective: To explore students’ perceptions of how the dual role of a CE as mentor and assessor influenced the teaching–learning (T-L) relationship.Method: A qualitative descriptive study, involving seven individual semi-structured interviews and two focus group discussions, was conducted with students in the Division of Physiotherapy, Stellenbosch University. A contextualised interpretive content analysis was used to analyse the data. By following an iterative process, themes were identified and categories were reviewed and refined.Results: Challenges were experienced when CEs had to act and change as both mentors and assessors to the needs of the students. This influenced the T-L relationship and consequently impacted the learning of students. The expectations of students and CEs were often not fulfilled. Contradictions were disclosed regarding the dual role of CEs.Conclusion: The findings of the study, grounded in the perceptions and experiences of students on the dual role of the CE, are highlighted. It is important to consider the challenges that the students face in order to minimise any negative effects these challenges could have on students’ learning processes.


2018 ◽  
Vol 12 (2) ◽  
pp. 407
Author(s):  
Dionasson Altivo Marques ◽  
Graziela Lonardoni De Paula ◽  
Carolina Lambert De Souza ◽  
Cristina Arreguy-Sena ◽  
Marcelo Da Silva Alves ◽  
...  

RESUMOObjetivo: compreender como as equipes multiprofissionais de uma Unidade de Atenção Primária à Saúde de um município da Zona da Mata Mineira percebem as suas contribuições na assistência aos indivíduos que sofrem psiquicamente e quais concepções as alicerçam. Método: estudo qualitativo, descritivo e exploratório, com seis profissionais, em que os dados foram produzidos por meio de entrevistas semiestruturadas e analisados seguindo-se o referencial de Peplau e de rede de apoio. Utilizou-se o software NVivo®Pro, versão 11, para a compilação dos dados, com a Análise de Conteúdo Temática. Resultados: os significados das narrativas resultaram em duas categorias temáticas <<Processo de ressocialização e <<Indivíduos em sofrimento psíquico>>. Conclusão: constataram-se a presença de traços de discriminação e as potentes normas sociais as quais os indivíduos com transtornos mentais estão permanentemente submetidos, demonstrando a necessidade de reflexão e reordenação das ações profissionais nesse contexto assistencial. Descritores: Saúde Mental; Estresse Psicológico; Atenção Primária à Saúde; Socialização; Padrão de Cuidado; Avaliação em Saúde.    ABSTRACT Objective: to understand how the multiprofessional teams of a Primary Health Care Unit of a municipality in the Zona da Mata Mineira perceive their contributions in assisting individuals who suffer psychically and which conceptions support them. Method: a qualitative, descriptive and exploratory study with six professionals, in which the data was produced through semi-structured interviews and analyzed according to the Peplau reference and support network. The software NVivo®Pro, version 11, was used to compile the data with thematic content analysis. Results: the meanings of the narratives resulted in two thematic categories << Process of resocialization and << Individuals in psychic suffering >>. Conclusion: the presence of traits of discrimination and the powerful social norms to which the individuals with mental disorders are permanently submitted, demonstrated the necessity of reflection and reordering of the professional actions in this assistance context. Descriptors: Mental Health; Psychological Stress; Primary Health Care; Socialization; Standard of Care; Health Evaluation.RESUMEN Objetivo: comprender cómo los equipos multiprofesionales de una Unidad de Atención Primaria a la Salud de un municipio de la Zona de Mata Minera perciben sus contribuciones en la asistencia a los individuos que sufren psíquicamente y cuáles concepciones las cimientan. Método: estudio cualitativo, descriptivo y exploratorio, con seis profesionales, en que los datos fueron producidos por medio de entrevistas semiestructuradas y analizadas siguiendo el referencial de Peplau y de red de apoyo. Se utilizó el software NVivo®Pro, versión 11, para la compilación de los datos, con la Análisis de Contenido Temático. Resultados: los significados de las narrativas resultaron en dos categorías temáticas << Proceso de resocialización y << Individuos en sufrimiento psíquico >>. Conclusión: se constataron la presencia de rasgos de discriminación y las potentes normas sociales a las cuales los individuos con trastornos mentales están permanentemente sometidos, demostrando la necesidad de reflexión y reordenación de las acciones profesionales en ese contexto asistencial. Descriptores: Salud Mental; Estrés Psicológico; Atención Primaria a la Salud; Socialización; Padrón de Cuidado; Avaliación en Salud.1,2,3Mestres, Universidade Federal de Juiz de Fora/UFJF. Juiz de Fora


2019 ◽  
Vol 29 (13) ◽  
pp. 1839-1849 ◽  
Author(s):  
Natalie Ramsay ◽  
Rahat Hossain ◽  
Mo Moore ◽  
Michael Milo ◽  
Allison Brown

Persons struggling with housing remain significantly disadvantaged when considering access to health care. Effective advocacy for their needs will require understanding the factors which impact their health care, and which of those most concern patients themselves. A qualitative descriptive study through the lens of a transformative framework was used to identify barriers and facilitators to accessing health care as perceived by people experiencing homelessness in the regional municipality of Niagara, Canada. In-person, semi-structured interviews with 16 participants were completed, and inductive thematic analysis identified nine barriers and eight facilitators. Barriers included affordability, challenges finding primary care, inadequacy of the psychiatric model, inappropriate management, lack of trust in health care providers, poor therapeutic relationships, systemic issues, and transportation and accessibility. Facilitators included accessibility of services, community health care outreach, positive relationships, and shelters coordinating health care. Knowledge of the direct experiences of marginalized individuals can help create new health policies and enhance the provision of clinical care.


2019 ◽  
Vol 72 (2) ◽  
pp. 442-449
Author(s):  
Andressa da Silveira ◽  
Eliane Tatsch Neves

ABSTRACT Objective: To describe the social network of adolescents who need special health care. Method: A qualitative, descriptive and exploratory study conducted between 2016 and 2017 in the pediatric outpatient clinic of a teaching hospital in southern Brazil. Thirty-five semi-structured interviews were conducted with adolescents between 12 and 18 years of age, followed by the construction of genograms and ecomaps. After transcription, the enunciations were subjected to Pêcheux’s method of discourse analysis. Results: The institutional network consists of health services, schools and religious entities, as well as adolescents’ families and friends. In the family network, women family members—such as mothers, grandmothers and aunts—have a special role. Final Consideration: The adolescents’ social network is composed of institutional and family circles. In the view of adolescents, the tertiary service is more capable of solving their problems, and for this reason used the most. In order to ensure these adolescents access to and continuity of care, the articulation between health policies and health services is suggested.


2019 ◽  
Vol 26 (4) ◽  
Author(s):  
J. E. Squires ◽  
S. N. Simard ◽  
S. Asad ◽  
D. Stacey ◽  
I. D. Graham ◽  
...  

Background Contralateral prophylactic mastectomy (cpm) in women with known unilateral breast cancer (bca) has been increasing despite the lack of supportive evidence. The purpose of the present study was to identify the determinants of cpm in women with unilateral bca.Methods This qualitative descriptive study used semi-structured interviews informed by the Theoretical Domains Framework. We interviewed 74 key informants (surgical oncologists, plastic surgeons, medical oncologists, radiation oncologists, nurses, women with bca) across Canada. Interviews were analyzed using thematic analysis and an analysis for shared and discipline-specific beliefs.Results In total, 58 factors influencing the use of cpm were identified: 26 factors shared by various health care professional groups, 15 discipline-specific factors (identified by a single health care professional group), and 17 factors shared by women with unilateral bca. Health care professionals identified more factors discouraging the use of cpm (n = 26) than encouraging its use (n = 15); women with bca identified more factors encouraging use of cpm (n = 12) than discouraging its use (n = 5). The factor most commonly identified by health care professionals that encouraged cpm was lack of awareness of existing evidence or guidelines for the appropriate use of cpm (n = 44, 75%). For women with bca, the factor most likely influencing their decision for cpm was wanting a better esthetic outcome (n = 14, 93%).Conclusions Multiple factors discouraging and encouraging the use of cpm in unilateral bca were identified. Those factors identify potential individual, team, organization, and system targets for behaviour change interventions to reduce cpm.


Sign in / Sign up

Export Citation Format

Share Document