The Psychological Impact of the COVID-19 Lockdown: A Comparison between Caregivers of Autistic and Non-Autistic Individuals in Italy

The COVID-19 outbreak has disrupted the daily routine of the population worldwide, including autistic people and their caregivers, with severe consequences on mental health. On one hand, the reduced social contacts and the interruption of outpatient and daycare services during the lockdown have represented a real challenge for autistic people and their caregivers. On the other hand, confinement has allowed individuals to spend more time pursuing their interests and stay home with their family members without feeling the pressure of social expectations. The present study aimed to compare the levels of personal wellbeing, family distress, insomnia, and resilience between caregivers of autistic people and caregivers of people with other neurodevelopmental, psychiatric, or relational disabilities. A web survey was completed by 383 participants, of which 141 were primary caregivers of autistic people. We did not find any significant difference between caregivers of autistic and non-autistic people in any of the considered psychological variables. Lower age of the autistic family member and lower resilience levels were significantly associated with higher individual distress in the group of caregivers of autistic people. Our findings do not corroborate the hypothesis that caregivers of autistic individuals have had more severe consequences than other caregivers during the lockdown. However, they confirm the importance of promoting resilient coping strategies in autistic people and their caregivers.

Architectural style spreads its wings: New Zealand Architecture in the 1880s

The 1880s was a period in New Zealand of economic depression. It caused "unemployment, family distress, ragged children and exploited women workers, general business collapse, a crash in the property market, a ten-year banking crisis, bankruptcies and unstable ministries." But despite this Hodgson identifies this period in New Zealand's architectural history as one when: "Architectural style ... started to spread its wings and this period contains some fine examples of building design which was definitely out of the mainstream."

Young people’s views on how to encourage family discussion about organ donation

Context: Discussing organ donation wishes with family prior to receiving a request for donation is essential to increase family consent. For young people who have already decided to be a donor (‘young donors’), notifying family is particularly critical. However, many young donors are unaware of the need for this discussion, have low motivation to discuss, and have not notified family of their wishes. Objectives: To explore young donors’ views on, experience with, and suggestions to encourage family discussion, and opinions about advertising/social marketing campaign materials.Participants: Young donors, who were Australian residents (N = 13; 10 females) aged 18-28 years (M = 23.00; SD = 2.74), participated in one of four focus groups. Results: Motivations for family discussion were having their wishes respected by family and reducing family distress. Barriers to discussing were not thinking about it and forgetting unless an immediate opportunity for discussion was provided. Young donors had different approaches to initiating family discussion depending on anticipated family reactions and confidence in discussing; straightforward (‘just say it’) and casual (‘no big deal’) or involving preparation and in-depth discussion. Campaign materials including information and personal stories about transplant recipients were perceived as effective in capturing attention and encouraging family discussion. Conclusions: Gaining the perspective of young donors to encourage family discussion is crucial. Key findings highlighted the need to consider young donors’ approaches to initiating family discussion and incorporating prompts and opportunities to facilitate family discussion in the development of future message appeals.

The Burden of Adverse Childhood Experiences in Children and Those of Their Parents in a Burn Population

The aim of this study was to determine the prevalence, type, and associations of parental and child adverse childhood experiences (ACEs) in children presenting with burn injuries. Parents of burned children completed an ACE-18 survey, including questions on parent and child ACEs, needs, and resiliency. Demographics, burn injury, hospital course, and follow-up data were collected. Family needs and burn outcomes of children with and without ACEs’ exposure (no ACE vs one to two ACEs vs three or more ACEs) were analyzed. P <.05 was considered significant. Seventy-five children were enrolled—58.7% were male, 69.3% white. The average age was 6.0 ± 5.2 years. The average total burn surface area was 4.4 ± 5.7% (0.1–27%). Parent ACE exposure correlated with child ACE exposure (r = .57; P = .001) and this intensified by increasing child age (P = .004). Child ACE exposure showed a graded response to family needs, including food and housing insecurity and childcare needs. Stress and psychosocial distress of the parents was significantly associated with their children’s ACE burden. The ACE burden of parents of burned children can affect the ACE load of their children. Burned children with more ACEs tend to have significantly more needs and more family distress. Awareness of past trauma can help identify a vulnerable population to ensure successful burn recovery.

Brief Report: Impact of COVID-19 on Individuals with ASD and Their Caregivers: A Perspective from the SPARK Cohort

The impact of the 2019 coronavirus pandemic (COVID-19) in the United States is unprecedented, with unknown implications for the autism community. We surveyed 3502 parents/caregivers of individuals with an autism spectrum disorder (ASD) enrolled in Simons Powering Autism Research for Knowledge (SPARK) and found that most individuals with ASD experienced significant, ongoing disruptions to therapies. While some services were adapted to telehealth format, most participants were not receiving such services at follow-up, and those who were reported minimal benefit. Children under age five had the most severely disrupted services and lowest reported benefit of telehealth adaptation. Caregivers also reported worsening ASD symptoms and moderate family distress. Strategies to support the ASD community should be immediately developed and implemented.

Marital Distress in Missionaries as Measured by the MMPI-2-RF Interpersonal Scales

The Minnesota Multiphasic Personality Inventory-2 Restructured Form (MMPI-2-RF) is a briefer revision of the MMPI-2. The archived MMPI-2 profiles of 214 evangelical missionaries were analyzed to explore the relationship among the MMPI-2-RF newly constructed interpersonal scales, the RC scales, and missionary distress. Missionary husbands and wives were placed into two groups based on marital types (conflicted and non-conflicted) and again into three groups based on presenting issues (marital, family, and non-family distress). The results lend support to the use of the MMPI-2-RF Family Problems ( FML), Interpersonal Passivity ( IPP), and Shyness ( SHY) interpersonal scales along with the RC4 scale as a basic screening instrument for post-selection, pre-deployment missionaries with marital distress. Consequently, the MMPI-2-RF may be able to inform us in new ways. Recommendations for counselors and missionary boards are discussed.