Investigating quality of life and coping resources after laryngectomy

Background: Health-related quality of life (HRQoL) in cancer has been related to several protective and risk factors such as perceived social support (PSS) and coping. However, their effects on HRQoL once patients are in survivorship have not been fully described in pediatric samples.Objective: To describe and explore the relationship between HRQoL in survivorship and some factors (PSS, coping) present while active treatment.Methods: Cross-sectional study. Forty-one pediatric cancer survivors answered HRQoL measures referred to survivorship, as well as PSS and coping measures referred to treatment period.Results: The discriminant function obtained succeeds to correctly classify 78% of the sample. Survivors who showed high HRQoL were those who, in the hardest moment while hospitalization, perceived satisfactory emotional support (from nurses) and did not deploy a wide range of active coping resources to cope with stressful events (only social action coping strategy showed a significant relationship with HRQoL).Conclusions and implications: Considering these outcomes, educational and counseling interventions to strengthen patients’ social networks and supportive relationships are recommended, specially, among health providers (nurses). These results highlight the importance of not overlooking opportunities to address the emotional needs of patients while hospitalization, since a positive and endurable effect has been observed at survivorship.

Download Full-text

The role of coping resources and coping style in quality of life of patients with asthma or COPD

Quality of Life Research ◽

10.1023/b:qure.0000018474.14094.2f ◽

2004 ◽

Vol 13 (2) ◽

pp. 509-518 ◽

Cited By ~ 60

Author(s):

A.E. Hesselink ◽

B.W.J.H. Penninx ◽

M.A.G. Schlösser ◽

H.A.H. Wijnhoven ◽

D.A.W.M. van der Windt ◽

...

Keyword(s):

Quality Of Life ◽

Coping Style ◽

Coping Resources ◽

And Coping

Download Full-text

Diplomats’ quality of life: The role of risk factors and coping resources

International Journal of Intercultural Relations ◽

10.1016/j.ijintrel.2016.01.001 ◽

2016 ◽

Vol 51 ◽

pp. 14-28 ◽

Cited By ~ 7

Author(s):

Herbert Fliege ◽

Stine Waibel ◽

Heiko Rüger ◽

Julika Hillmann ◽

Silvia Ruppenthal ◽

...

Keyword(s):

Quality Of Life ◽

Risk Factors ◽

Coping Resources ◽

And Coping

Download Full-text

Psychosomatic Features, Compliance and Complementary Therapies in Rheumatoid Arthritis

Current Rheumatology Reviews ◽

10.2174/1573397115666191212114758 ◽

2020 ◽

Vol 16 (3) ◽

pp. 215-223

Author(s):

Rostislav A. Grekhov ◽

Galina P. Suleimanova ◽

Andrei S. Trofimenko ◽

Liudmila N. Shilova

Keyword(s):

Quality Of Life ◽

Rheumatoid Arthritis ◽

Interpersonal Relationships ◽

Behavioral Therapy ◽

Current Data ◽

Psychotherapeutic Interventions ◽

And Coping ◽

Regulation Of Emotion ◽

The Impact

This review highlights the issue of psychosomatic conditions in rheumatoid arthritis, paying special attention to new researches and trends in this field. Emerging concepts in all the major parts of the problem are covered consecutively, from the impact of chronic musculoskeletal pain on the emotional state to disease influence over quality of life, socio-psychological, and interpersonal relationships. Chronic pain is closely related to emotional responses and coping ability, with a pronounced positive effect of psychotherapeutic interventions, family and social support on it. Psychosexual disorders, anxiety, depression also commonly coexist with rheumatoid arthritis, leading to further decrease in quality of life, low compliance, and high suicide risk. Influence of psychosomatic conditions on the overall treatment effect is usually underestimated by rheumatologists and general practitioners. Psychosomatic considerations are of great importance for up-to-date management of rheumatoid arthritis, as they strongly influence the quality of life, compliance, and thereby disease outcomes. Two major approaches of psychological rehabilitation exist, both coping with pain through the regulation of emotion and psychotherapeutic intervention, which not only helps patients in coping with the disease, but also aimed at improving the overall adaptation of the patient. It includes techniques of relaxation, cognitive-behavioral therapy, and biofeedback therapy. Current data about the efficacy of the additional correcting therapies for patients with rheumatoid arthritis, both emerging and common ones, are discussed in the review.

Download Full-text

Virtual reality-based relaxation for enhancement of perioperative well-being and quality of life: protocol for a randomised pilot trial

BMJ Open ◽

10.1136/bmjopen-2020-044193 ◽

2021 ◽

Vol 11 (4) ◽

pp. e044193

Author(s):

Matthias Christian Schrempf ◽

Julian Quirin Petzold ◽

Hugo Vachon ◽

Morten Aagaard Petersen ◽

Johanna Gutschon ◽

...

Keyword(s):

Quality Of Life ◽

Virtual Reality ◽

Sample Size ◽

Stress Reduction ◽

Pilot Trial ◽

Well Being ◽

Coping Resources ◽

Patients With Cancer ◽

Sample Size Calculations

IntroductionPatients with cancer undergoing surgery often suffer from reduced quality of life and various forms of distress. Untreated distress can negatively affect coping resources as well as surgical and oncological outcomes. A virtual reality-based stress reduction intervention may increase quality of life and well-being and reduce distress in the perioperative phase for patients with cancer. This pilot trial aims to explore the feasibility of the proposed intervention, assess patient acceptability and obtain estimates of effect to provide data for sample size calculations.Methods and analysisPatients with colorectal cancer and liver metastasis undergoing elective surgery will be recruited for this single-centre, randomised pilot trial with a three-arm design. A total of 54 participants will be randomised at 1:1:1 ratio to one of two intervention groups or a control receiving standard treatment. Those randomised to an intervention group will either receive perioperative virtual reality-based stress reduction exercises twice daily or listen to classical music twice daily. Primary feasibility outcomes are number and proportions of participants recruited, screened, consented and randomised. Furthermore, adherence to the intervention, compliance with the completion of the quality of life questionnaires and feasibility of implementing the trial procedures will be assessed. Secondary clinical outcomes are measurements of the effectiveness of the interventions to inform sample size calculations.Ethics and disseminationThe study protocol, the patient information and the informed consent form have been approved by the ethics committee of the Ludwigs-Maximilians-University, Munich, Germany (Reference Number: 19–915). Study findings will be submitted for publication in peer-reviewed journals.Trial registration numberDRKS00020909.

Download Full-text

The effect of treatment and coping on the quality of life in breast cancer patients: a moderated mediation model

Quality of Life Research ◽

10.1007/s11136-021-02885-3 ◽

2021 ◽

Author(s):

Lorena Gutiérrez-Hermoso ◽

Lilian Velasco-Furlong ◽

Sofía Sánchez-Román ◽

Elisabeth Berzal-Pérez ◽

Natasha Alcocer-Castillejos ◽

...

Keyword(s):

Breast Cancer ◽

Quality Of Life ◽

Cancer Patients ◽

Moderated Mediation ◽

Mediation Model ◽

Breast Cancer Patients ◽

Moderated Mediation Model ◽

Effect Of Treatment ◽

And Coping

Download Full-text

104 - Awareness of Dementia and Coping to Preserve Quality of Life: A Five-Year Longitudinal Narrative Study

International Psychogeriatrics ◽

10.1017/s1041610220001829 ◽

2020 ◽

Vol 32 (S1) ◽

pp. 8-8

Author(s):

K. Thorsen ◽

M. C. N. Dourado ◽

A. Johannessen

Keyword(s):

Quality Of Life ◽

Coping Styles ◽

Adaptive Function ◽

Narrative Study ◽

People With Dementia ◽

The Moment ◽

And Coping ◽

Scientific Fields ◽

Multidimensional Concept

AbstractBackground:Awareness of dementia is examined in different scientific fields as significant for assessment of diagnosis, and for treatment and adaptation to the disease. There are very few longitudinal studies of individual experiences of awareness among people with dementia, related to quality of life.Aim:To examine how younger people (< 65 years) with dementia (YOD) express awareness of the dementia and how, over time, they seem to handle awareness as a strategy to preserve quality of life.Method:A longitudinal qualitative study with individuals with YOD was performed with interviews every six months over five years for a maximum of ten interviews. The interviews were analysed by modified grounded theory.Findings:Awareness is a complex, multidimensional concept. Awareness of dementia is predisposed by personality, life history and established coping styles. The main coping styles – live in the moment, ignore the dementia, and make the best of it – seem to be rather consistent throughout the progression of the disease. Transitions in life situation, such as moving to a nursing home, may change the individual’s awareness of dementia.Conclusion:Unawareness of dementia may have an important adaptive function to preserve quality of life. To increase awareness must be approached with reflexivity and the utmost sensitivity.

Download Full-text

QOLP-04. PILOT STUDY OF A VIDEOCONFERENCE-BASED PSYCHOLOGICAL INTERVENTION FOR FAMILY CAREGIVERS OF PATIENTS WITH MALIGNANT GLIOMAS

Neuro-Oncology ◽

10.1093/neuonc/noaa215.729 ◽

2020 ◽

Vol 22 (Supplement_2) ◽

pp. ii175-ii175

Author(s):

Deborah Forst ◽

Michelle Mesa ◽

Emilia Kaslow-Zieve ◽

Areej El-Jawahri ◽

Joseph Greer ◽

...

Keyword(s):

Quality Of Life ◽

Self Efficacy ◽

Coping Skills ◽

Malignant Gliomas ◽

Anxiety Symptoms ◽

Structured Interviews ◽

Post Intervention ◽

Clinically Significant ◽

And Coping

Abstract BACKGROUND Caregivers of patients with malignant gliomas experience substantial anxiety symptoms while caring for someone with progressive neurological decline. Yet, interventions to reduce psychological distress and improve quality of life (QoL) in this caregiver population are lacking. METHODS We conducted an open pilot study evaluating feasibility and acceptability of a cognitive behavioral therapy-based intervention for caregivers of patients with malignant gliomas with clinically significant anxiety (Generalized Anxiety Disorder [GAD-7] score ≥ 5). Caregivers participated in six videoconference sessions with a mental health provider. We defined the intervention as feasible if ≥ 70% of eligible caregivers enrolled and ≥ 70% of those enrolled completed ≥ 50% of sessions. We evaluated intervention acceptability in semi-structured interviews. Caregivers completed baseline and post-intervention surveys assessing anxiety and depression symptoms (Hospital Anxiety and Depression Scale), QoL (Caregiver Oncology Quality of Life Questionnaire), caregiving burden (Caregiver Reaction Assessment), self-efficacy (Lewis Cancer Self-Efficacy Scale), and perceived coping skills (Measure of Current Status-Part A). We explored post-intervention changes using paired t-tests. RESULTS We obtained consent from 70.0% (21/30) of caregivers approached, of which 66.7% (14/21) had clinically significant anxiety and thus were eligible to participate (mean age=55.7 years, 64.3% female). Among enrolled caregivers, 71.4% (10/14) completed ≥ 50% of sessions. In semi-structured interviews, all participants found the intervention helpful and valued the ability to participate remotely via videoconference. Among caregivers who completed at least one session, 80.0% (8/10) completed all assessments and were included in analyses. Post-intervention, caregivers reported reduced anxiety symptoms (P=.02) and improved QoL (P=.03) and coping skills (P=.001). We found no significant change in depression, caregiving burden, or self-efficacy. CONCLUSION Our videoconference-based intervention is feasible and acceptable to caregivers. Participants reported significant improvements in anxiety symptoms, quality of life, and coping skills post-intervention, supporting further investigation of the intervention in a randomized controlled trial.

Download Full-text