scholarly journals Improving on and assessing ethical guidelines for digital tracking and tracing systems for pandemics

Author(s):  
Björn Lundgren

Abstract So-called digital tracking and tracing systems (DTTSs) have been proposed as a means to prevent the spread of SARS-CoV-2. There are ethical guidelines and evaluations of such systems available. As part of a research project, I will build on and critically evaluate the foundations of such guidelines. The goal is to provide both incremental improvements of the specific requirements for DTTSs and to present and discuss more fundamental challenge, the risk for indirect effects and slippery slopes. The nature of slippery slopes makes ethical guidelines more difficult since it requires a more complex analysis than, for example, using a checklist allows for.

2021 ◽  
pp. 89-95
Author(s):  
Jessica Morley ◽  
Josh Cowls ◽  
Mariarosaria Taddeo ◽  
Luciano Floridi

2019 ◽  
Vol 20 (1) ◽  
pp. 22-38 ◽  
Author(s):  
James Pickles

This article provides a reflection on the ethical challenges faced when seeking ethical approval to include young people in a research project examining LGBT+ ‘hate’ experiences. I outline the ethical parameters constructed when attempting to recruit under 18’s into the project and justify the rationale for doing so. I detail how ethical approval was gained and reflect on the safeguards put in place to protect young participants. The methodological position adopted took a youth affirmative outlook, premised on enabling and championing the autonomy and agency of young people. Traditional ethical guidelines maintain that parental consent is required to include young people within sensitive research. Seeking parental consent placed young participants in a position of greater risk than what would occur during participation. Parental consent was not sought for young people to participate, nor were they informed about the involvement of their children in the project. This article provides justifications on rejecting the notion that parental consent is the only means for youth inclusion, and details how young people were empowered during participation. I argue that young people should not be instinctively excluded from sensitive research but should be actively enabled by minimising but not eradicating possible and potential risk.


Author(s):  
Julia K Riddell ◽  
Angela Salamanca ◽  
Debra J Pepler ◽  
Shelley Cardinal ◽  
Onowa McIvor

Although there are numerous ethical guidelines for research with Indigenous communities, not all research is conducted in an ethical, culturally respectful, and effective way. To address this gap, we review four ethical frameworks for research with Indigenous Peoples in Canada. Drawing upon our experiences conducting a transformative social justice research project in five Indigenous communities, we discuss the ethical tensions we have encountered and how we have attempted to address these challenges. Finally, drawing on these experiences, we make recommendations to support those planning to conduct research with Indigenous Peoples in Canada. We discuss the importance of training to highlight the intricacies and nuances of bringing the ethical guidelines to life through co-created research with Indigenous communities.


2021 ◽  
pp. 37-54
Author(s):  
Sandra Nystø Ráhka

Ethical research is more than following ethical guidelines and gaining consent for your research project. The more complex and often unpredictable ethical issues often only arise once out in the field. The purpose of this chapter is to discuss such ethical dilemmas. The point of departure is a research project where video data of various learning activities was employed to develop knowledge about teaching practice in Sámi education. This is a limited but complex research context as Sámi education can happen in different forms and with various numbers, sometimes quite small, of students from school to school. Such a small research context requires thorough ethical consideration and makes ethical dilemmas extra pertinent. From the very beginning it was clear that special consideration had to be made in terms of recruitment, consent, confidentiality and researcher positioning. The aim of this chapter is to discuss the considerations that had to be made to ensure an ethically responsible data collection. We experienced the national ethical guidelines to be a good starting point for this. In addition we benefited from central aspects of Indigenous methodologies. Indigenous methodologies are fundamentally ethical ways to do research. Knowledge about research in Indigenous contexts can lead to a more ethically responsible research, regardless of research field.


Author(s):  
Jessica Morley ◽  
Josh Cowls ◽  
Mariarosaria Taddeo ◽  
Luciano Floridi

Crisis ◽  
2012 ◽  
Vol 33 (1) ◽  
pp. 54-59 ◽  
Author(s):  
Carolyn M. Wilson ◽  
Bruce K. Christensen

Background: Our laboratory recently confronted this issue while conducting research with undergraduate students at the University of Waterloo (UW). Although our main objective was to examine cognitive and genetic features of individuals with schizotypal personality disorder (SPD), the study protocol also entailed the completion of various self-report measures to identify participants deemed at increased risk for suicide. Aims and Methods: This paper seeks to review and discuss the relevant ethical guidelines and legislation that bear upon a psychologist’s obligation to further assess and intervene when research participants reveal that they are at increased risk for suicide. Results and Conclusions: In the current paper we argue that psychologists are ethically impelled to assess and appropriately intervene in cases of suicide risk, even when such risk is revealed within a research context. We also discuss how any such obligation may potentially be modulated by the research participant’s expectations of the role of a psychologist, within such a context. Although the focus of the current paper is on the ethical obligations of psychologists, specifically those practicing within Canada, the relevance of this paper extends to all regulated health professionals conducting research in nonclinical settings.


2016 ◽  
Vol 37 (2) ◽  
pp. 128-134 ◽  
Author(s):  
Elizabeth B. Lozano ◽  
Mahzad Hojjat ◽  
Judith Sims-Knight

Abstract. The present study examined the relationship between resilience and positive outcomes in friendships of young adults. SEM and bootstrapping analyses were performed to test whether positive emotions mediate the relationship between ego-resilience and enhanced friendship outcomes. Findings revealed indirect effects for friendship closeness, maintenance behaviors, and received social support. Our findings demonstrate the importance of positive emotions and its connection with trait resilience in the realm of friendships.


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