scholarly journals 4382 All IN for Health: Promoting good health and engaging a health research volunteer community in the Hoosier state

2020 ◽  
Vol 4 (s1) ◽  
pp. 53-53
Author(s):  
Jessica Hall ◽  
Christine Drury ◽  
Carmel Egan

OBJECTIVES/GOALS: To improve and expand health and research literacy throughout Indiana by sharing health-focused resources and research outcomes.To encourage and increase health research participation throughout Indiana by promoting health research opportunities, including clinical studies.METHODS/STUDY POPULATION: Discover and understand community concerns and barriers to good health and clinical research participation by providing a platform for individuals and communities to share their voices.Educate Indiana residents on the importance of participating in health research.Engage with the community to meet them where they are (online) and continue to build relationships throughout the state.Promote healthy living for Indiana residents by sharing health education and resources from existing state health organizations and initiatives.Develop and maintain the largest statewide database of research volunteers.RESULTS/ANTICIPATED RESULTS: The anticipated results from this program include engagement of all populations and all communities throughout the state in conversation and education around good health and health research, as well as participation in health research across the CTSI’s partner organizations. Large-scale growth is expected in both the online community and consented volunteer registry is expected to include and engage racially and ethnically diverse populations, as well as special health populations, such as representatives of rural communities, aged, rare disease survivors, and transgender individuals.DISCUSSION/SIGNIFICANCE OF IMPACT: Thorough this work, the Indiana CTSI has developed a unique program, educating the public about health research and opportunities to participate, while simultaneously supporting research departments with marketing promotion of their efforts, and a ready statewide volunteer community.

PLoS ONE ◽  
2021 ◽  
Vol 16 (4) ◽  
pp. e0249141
Author(s):  
Caroline Brall ◽  
Claudia Berlin ◽  
Marcel Zwahlen ◽  
Kelly E. Ormond ◽  
Matthias Egger ◽  
...  

This paper reports survey findings on the Swiss public’s willingness, attitudes, and concerns regarding personalized health research participation by providing health information and biological material. The survey reached a sample of 15,106 Swiss residents, from which we received 5,156 responses (34.1% response rate). The majority of respondents were aware of research using human biological samples (71.0%) and held a positive opinion towards this type of research (62.4%). Of all respondents, 53.6% indicated that they would be willing to participate in a personalized health research project. Willingness to participate was higher in younger, higher educated, non-religious respondents with a background in the health sector. Respondents were more willing to provide ‘traditional’ types of health data, such as health questionnaires, blood or biological samples, as opposed to social media or app-related data. All respondents valued the return of individual research results, including risk for diseases for which no treatment is available. Our findings highlight that alongside general positive attitudes towards personalized health research using data and samples, respondents have concerns about data privacy and re-use. Concerns included potential discrimination, confidentiality breaches, and misuse of data for commercial or marketing purposes. The findings of this large-scale survey can inform Swiss research institutions and assist policymakers with adjusting practices and developing policies to better meet the needs and preferences of the public. Efforts in this direction could focus on research initiatives engaging in transparent communication, education, and engagement activities, to increase public understanding and insight into data sharing activities, and ultimately strengthen personalized health research efforts.


2018 ◽  
Vol 11 (5) ◽  
pp. 487-497 ◽  
Author(s):  
Pearl A. McElfish ◽  
Christopher R. Long ◽  
James P. Selig ◽  
Brett Rowland ◽  
Rachel S. Purvis ◽  
...  

1967 ◽  
Vol 06 (01) ◽  
pp. 8-14 ◽  
Author(s):  
M. F. Collen

The utilization of an automated multitest laboratory as a data acquisition center and of a computer for trie data processing and analysis permits large scale preventive medical research previously not feasible. Normal test values are easily generated for the particular population studied. Long-term epidemiological research on large numbers of persons becomes practical. It is our belief that the advent of automation and computers has introduced a new era of preventive medicine.


2019 ◽  
pp. 91-106 ◽  
Author(s):  
Rostislav I. Kapeliushnikov

Using published estimates of inequality for two countries (Russia and USA) the paper demonstrates that inequality measuring still remains in the state of “statistical cacophony”. Under this condition, it seems at least untimely to pass categorical normative judgments and offer radical political advice for governments. Moreover, the mere practice to draw normative conclusions from quantitative data is ethically invalid since ordinary people (non-intellectuals) tend to evaluate wealth and incomes as admissible or inadmissible not on the basis of their size but basing on whether they were obtained under observance or violations of the rules of “fair play”. The paper concludes that a current large-scale ideological campaign of “struggle against inequality” has been unleashed by left-wing intellectuals in order to strengthen even more their discursive power over the public.


Author(s):  
Angela Dranishnikova

In the article, the author reflects the existing problems of the fight against corruption in the Russian Federation. He focuses on the opacity of the work of state bodies, leading to an increase in bribery and corruption. The topic we have chosen is socially exciting in our days, since its significance is growing on a large scale at all levels of the investigated aspect of our modern life. Democratic institutions are being jeopardized, the difference in the position of social strata of society in society’s access to material goods is growing, and the state of society is suffering from the moral point of view, citizens are losing confidence in the government, and in the top officials of the state.


2000 ◽  
Vol 151 (3) ◽  
pp. 80-83
Author(s):  
Pascal Schneider ◽  
Jean-Pierre Sorg

In and around the state-owned forest of Farako in the region of Sikasso, Mali, a large-scale study focused on finding a compromise allowing the existential and legitimate needs of the population to be met and at the same time conserving the forest resources in the long term. The first step in research was to sketch out the rural socio-economic context and determine the needs for natural resources for autoconsumption and commercial use as well as the demand for non-material forest services. Simultaneously, the environmental context of the forest and the resources available were evaluated by means of inventories with regard to quality and quantity. According to an in-depth comparison between demand and potential, there is a differentiated view of the suitability of the forest to meet the needs of the people living nearby. Propositions for a multipurpose management of the forest were drawn up. This contribution deals with some basic elements of research methodology as well as with results of the study.


2020 ◽  
Vol 3 (7) ◽  
pp. 114-119
Author(s):  
V. F. UKOLOV ◽  
◽  
E. N. OZHIGANOV ◽  
Yu. V. RAGULINA ◽  
V. V. ARKHIPOV ◽  
...  

After the research, the authors came to the conclusion: it is necessary to get a new, interstate platform-type structure for the development, production and large-scale implementation of civil hydrogen technologies for various fields of activity and the state.


2020 ◽  
Vol 22 (5) ◽  
pp. 12-18
Author(s):  
YURI V. BEREZUTSKIY ◽  
◽  
NIKOLAY M. BAYKOV ◽  

The article presents the analysis of the state youth policy as an instrument of influence on the state and social development of youth, its social activity. The contradictions that exist between the performance indicators declared by the state policy and the real problems of youth, determined by the living conditions, are indicated. Based on the results of all-Russian and regional sociological studies and statistics, the motives of migratory movements of youth from their territories of residence to the centers of gravity of the country and foreign countries that have more attractive living and employment conditions for youth are justified. Using the example of the Russian Far East, the dysfunctional consequences of the clerical-bureaucratic approach laid down in the state youth policy to quantify the state of youth ignoring its large-scale migration outflow from the territories of residence are substantiated. Scientific and practical recommendations on improvement of indicators of the state youth policy promoting strengthening of its role in providing the basic needs of youth in various spheres of activity, especially in development of youth business are offered.


Energies ◽  
2021 ◽  
Vol 14 (8) ◽  
pp. 2301
Author(s):  
Yun-Sung Cho ◽  
Yun-Hyuk Choi

This paper describes a methodology for implementing the state estimation and enhancing the accuracy in large-scale power systems that partially depend on variable renewable energy resources. To determine the actual states of electricity grids, including those of wind and solar power systems, the proposed state estimation method adopts a fast-decoupled weighted least square approach based on the architecture of application common database. Renewable energy modeling is considered on the basis of the point of data acquisition, the type of renewable energy, and the voltage level of the bus-connected renewable energy. Moreover, the proposed algorithm performs accurate bad data processing using inner and outer functions. The inner function is applied to the largest normalized residue method to process the bad data detection, identification and adjustment. While the outer function is analyzed whether the identified bad measurements exceed the condition of Kirchhoff’s current law. In addition, to decrease the topology and measurement errors associated with transformers, a connectivity model is proposed for transformers that use switching devices, and a transformer error processing technique is proposed using a simple heuristic method. To verify the performance of the proposed methodology, we performed comprehensive tests based on a modified IEEE 18-bus test system and a large-scale power system that utilizes renewable energy.


2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Eva S. van den Ende ◽  
◽  
Bo Schouten ◽  
Marjolein N. T. Kremers ◽  
Tim Cooksley ◽  
...  

Abstract Background Truly patient-centred care needs to be aligned with what patients consider important, and is highly desirable in the first 24 h of an acute admission, as many decisions are made during this period. However, there is limited knowledge on what matters most to patients in this phase of their hospital stay. The objective of this study was to identify what mattered most to patients in acute care and to assess the patient perspective as to whether their treating doctors were aware of this. Methods This was a large-scale, qualitative, flash mob study, conducted simultaneously in sixty-six hospitals in seven countries, starting November 14th 2018, ending 50 h later. One thousand eight hundred fifty adults in the first 24 h of an acute medical admission were interviewed on what mattered most to them, why this mattered and whether they felt the treating doctor was aware of this. Results The most reported answers to “what matters most (and why)?” were ‘getting better or being in good health’ (why: to be with family/friends or pick-up life again), ‘getting home’ (why: more comfortable at home or to take care of someone) and ‘having a diagnosis’ (why: to feel less anxious or insecure). Of all patients, 51.9% felt the treating doctor did not know what mattered most to them. Conclusions The priorities for acutely admitted patients were ostensibly disease- and care-oriented and thus in line with the hospitals’ own priorities. However, answers to why these were important were diverse, more personal, and often related to psychological well-being and relations. A large group of patients felt their treating doctor did not know what mattered most to them. Explicitly asking patients what is important and why, could help healthcare professionals to get to know the person behind the patient, which is essential in delivering patient-centred care. Trial registration NTR (Netherlands Trial Register) NTR7538.


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