scholarly journals Nothing about us, without us: A case study of a consumer-run organization by and for people on the autism spectrum in the Netherlands

2018 ◽  
Vol 25 (04) ◽  
pp. 464-480 ◽  
Author(s):  
Karin E. van den Bosch ◽  
Anna Krzeminska ◽  
Eun Young Song ◽  
Lineke B. E. van Hal ◽  
Mitzi M. Waltz ◽  
...  

AbstractIn this exploratory case study based on qualitative research, we explore the perspectives and experiences of autistic self-advocates in the Netherlands regarding autism, (self-)advocacy, and consumer-run organizations. The focus of our study is a consumer-run organization by and for adult Persons on the Autism Spectrum in the Netherlands: PAS-Nederland or PAS for short. Our analysis reveals four themes relevant to the acceptance and integration of adults with autism into society and work: (1) invisibility of autistic adults; (2) diversity of the autism spectrum; (3) autistic leadership; and (4) collaboration between people with and without autism. We discuss the practical implications of our findings for the inclusion of people with autism in work and society. Our study underscores the importance of putting autistic people at the center of decision-making processes and solutions aimed at improving their outcomes in society, in general, and in the workplace specifically.

2015 ◽  
Vol 22 (1) ◽  
pp. 13-21 ◽  
Author(s):  
Erinn Finke ◽  
Kathryn Drager ◽  
Elizabeth C. Serpentine

Purpose The purpose of this investigation was to understand the decision-making processes used by parents of children with autism spectrum disorder (ASD) related to communication-based interventions. Method Qualitative interview methodology was used. Data were gathered through interviews. Each parent had a child with ASD who was at least four-years-old; lived with their child with ASD; had a child with ASD without functional speech for communication; and used at least two different communication interventions. Results Parents considered several sources of information for learning about interventions and provided various reasons to initiate and discontinue a communication intervention. Parents also discussed challenges introduced once opinions of the school individualized education program (IEP) team had to be considered. Conclusions Parents of children with ASD primarily use individual decision-making processes to select interventions. This discrepancy speaks to the need for parents and professionals to share a common “language” about interventions and the decision-making process.


2021 ◽  
Vol 13 (1) ◽  
Author(s):  
Martijn van den Hurk ◽  
Peter Pelzer ◽  
Rianne Riemens

Abstract Background Merwede is an envisioned neighbourhood in Utrecht (the Netherlands) that provides an instructive case to learn about the governance challenges of digital mobility platforms. Unique about Merwede is how the development of a mobility platform is envisioned to be integrated into the development of a new neighbourhood. Methodology This article discusses the case of Merwede and provides insights into its proposed mobility platform and how it is made. It illuminates governance challenges relevant to the design and operation of an unconventional mobility concept by disentangling outstanding practical issues concerning three key governance dimensions—organizational structures, decision-making processes, and instruments. Results The research provides an empirical illustration of governance questions that come up when mobility becomes a service and is integrated into the urban fabric from the very beginning of a development process. Already in the plan development stage, Merwede illustrates that difficult decisions are to be made and competing interests come to the fore.


Author(s):  
Eliza Maciejewska

Abstract This case study identifies and examines interactional practices of non-directive play therapists during their therapeutic sessions with autistic adolescents. The study involved two therapists and two adolescents (siblings) on the autism spectrum. The video-recorded sessions took place at participants’ home and were conducted in Polish. Employing insights and tools from discourse-analytic approaches, in particular conversation analysis (CA), the findings show how clients and therapists are both involved in co-constructing therapeutic interactions by orienting to each other’s utterances. CA is presented in this article as a useful tool for recognizing and describing the therapists’ interactional contributions and their local functions. The therapeutic practices identified in the analysis (talk-in-practice) – e.g. mirroring, meaning expansion, recast and scaffolding – are further juxtaposed with theories concerning interactional practices in non-directive therapies (talk-in-theory) in order to provide a more detailed picture of these practices as well as complete them. The findings from this study expand the current state of knowledge of non-directive play therapies of autism spectrum disorder (ASD) and carry practical implications for specialists involved in ASD treatment.


2012 ◽  
Vol 11 (1) ◽  
pp. 94-118 ◽  
Author(s):  
Rodrigo Salcedo ◽  
Alejandra Rasse

This paper addresses the scholarly debate on cultural homogeneity or heterogeneity of urban poor families. While authors such as Lewis (1959) or Wacquant (2000 ; 2001) claim that structural disadvantages are linked to a particular type of identity or culture, others such as Hannerz (1969) , Anderson (1999 ; 2002) , or Portes ( Portes and Manning, 1986 ; Portes and Jensen, 1989 ) believe that it is possible to find different behaviors, expectations, decision–making processes, and outcomes among people living in seemingly identical structural conditions ( Small et al., 2010 ). Using Santiago, Chile, as a case study, we differentiate five different cultures or identities among the poor. Those identities seem to be the product of different historical and political circumstances, as well as of different types of public policies. The paper ends with a discussion of the need for poverty reduction policies to consider these differences among the poor.


Author(s):  
Alvaro López-Cabrales ◽  
Mar Bornay-Barrachina

Decisions are choices. Decision making is the essence of management. Managers make decisions every day and the practical implications of such decisions are key to the success of the company. After reading this chapter, managers, or those who are preparing to be managers, should be better able to do the following: (1) understand the extent to which such organizational characteristics as structure or technology affect decision making, (2) see why the complexity of task environments determines the decisions being made by managers, (3) define and manage certain strategic organizational capabilities such as learning or absorptive capacity, (4) think about cognitive and non-cognitive human capital characteristics that play a role in decision making, and (5) be aware of the impact of culture on decision-making processes. Understanding these aspects will help you develop a deeper understanding of the role and importance of decision making, not only in the domestic market but also internationally.


Author(s):  
Robin Blom

Whereas some news outlets fully identify crime suspects with name, age, address, and other personal details, other news outlets refuse to fully identify any crime suspect—or even people who have been convicted for a crime. News media from a variety of countries have accused and fully identified people of being responsible for crimes, although those persons turned out to be innocent. Yet, when someone types the names of those people in online search engines, for many, stories containing the accusations will turn up at the top of the search results. This chapter examines the positive and negative aspects from those practices by examining journalistic routines in a variety of countries, such as the United States, Nigeria, and The Netherlands. This analysis demonstrates that important ethical imperatives—often represented in ethics codes of professional journalism organizations—can be contradictory in these decision-making processes. Journalists need to weigh whether they would like to “seek truth and report it” or “minimize harm” when describing crime suspects.


Author(s):  
Yangji Doma Sherpa ◽  
A. John Sinclair ◽  
Thomas Henley

The Himalayan region of India is experiencing rapid development in tourism, agriculture, highway construction and hydroelectric dam construction. This research considered the role of the public both within and outside of development decision-making processes in these high mountain environments using the proposed Himalayan Ski Village (HSV) in Manali as a case study. The qualitative data revealed that there has been an extensive array of public participation activity related to the HSV project over approximately 10 years. Very little of this activity has evolved, however, through the formal decision-making process. Rather, most participation activities, such as general house meetings, objection letters, public rallies, court cases against the proposed project, and a religious congregation were instigated by the public to protest the proposed development. The findings also show that involvement in the participatory activities undertaken by the public and project proponent fostered instrumental and communicative learning outcomes.


Author(s):  
Danita Catherine Burke

Abstract The Arctic Council is frequently called a unique forum but, as this article argues, clubs are common in international politics and in many respects the Arctic Council is a club. This article explores the questions: Why are the Arctic states acting like a club in Arctic politics, and how do internal hierarchies influence how clubs make decisions? As the article illustrates, clubs are the stage for club diplomacy and, in club diplomacy, hierarchies play an important role. Using the Arctic Council as an illustrative case study, this article argues that clubs have internal hierarchies that inform their decision-making processes and their responses to challenges to their status. When clubs try to deal with subjects that extend beyond the boundaries of the sovereignty of club members and the parameters of club membership, club members may suffer from a lack of status and legitimacy to unilaterally deal with the subject.


Author(s):  
Frédéric Adam ◽  
Jean-Charles Pomerol ◽  
Patrick Brézillon

In this article, a newspaper company which has implemented a computerised editorial system is studied in an attempt to understand the impact that groupware systems can have on the decision making processes of an organisation. First, the case study protocol is presented, and the findings of the case are described in detail. Conclusions are then presented which pertain both to this case and to the implementation of decision support systems that have a groupware dimension.


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