Use and Disclosure of Health Information in Genetic Research: Weighing the Impact of the New Federal Medical Privacy Rule

2002 ◽  
Vol 28 (2-3) ◽  
pp. 309-324
Author(s):  
Jennifer Kulynych ◽  
David Korn
Keyword(s):  
Health Policy ◽  
England Journal ◽  
New England ◽  
Medical Records ◽  
Medical Information ◽  
Genetic Research ◽  
Policy Issues ◽  
The Impact ◽  
Medical Privacy ◽  
Intense Emotion

Perceived threats to medical privacy arouse intense emotion, even among those who might otherwise approach complex health policy issues with academic dispassion. The author of an August 2001 editorial in the New England Journal of Medicine describes medical records as “sacred secrets,” and decries the use of medical information for purposes unrelated to patient care as “an abridgement of individual rights” and “an unfolding American tragedy.

scholarly journals A review of medical terminology standards and structured reporting

2017 ◽  
Vol 30 (1) ◽  
pp. 17-25 ◽  
Author(s):  
Abdullah Awaysheh ◽  
Jeffrey Wilcke ◽  
François Elvinger ◽  
Loren Rees ◽  
Weiguo Fan ◽  
...  
Keyword(s):  
Electronic Medical Records ◽  
Medical Records ◽  
Medical Information ◽  
Medical Knowledge ◽  
Structured Reporting ◽  
Evidence Based ◽  
Medical Terminology ◽  
Wide Range ◽  
The Impact ◽  
Evidence Based Decision Making

Much effort has been invested in standardizing medical terminology for representation of medical knowledge, storage in electronic medical records, retrieval, reuse for evidence-based decision making, and for efficient messaging between users. We only focus on those efforts related to the representation of clinical medical knowledge required for capturing diagnoses and findings from a wide range of general to specialty clinical perspectives (e.g., internists to pathologists). Standardized medical terminology and the usage of structured reporting have been shown to improve the usage of medical information in secondary activities, such as research, public health, and case studies. The impact of standardization and structured reporting is not limited to secondary activities; standardization has been shown to have a direct impact on patient healthcare.

Science Writers as Characterized in Medical Journals: What Are Physicians Saying about Us?

1998 ◽  
Vol 28 (1) ◽  
pp. 63-75 ◽  
Author(s):  
Cheryl A. Koski
Keyword(s):  
England Journal ◽  
New England ◽  
News Media ◽  
Medical Information ◽  
Letters To The Editor ◽  
The Public ◽  
Medical News ◽  
The Press ◽  
Public Record ◽  
Medical Fact

One method of assessing the opinions that physicians hold about science writers is to examine the public record, represented by two periodicals: the Journal of the American Medical Association and the New England Journal of Medicine. The citations to the news media that appear in the indexes of the two journals during the last fifteen years yield thirty-four opinion pieces, consisting of editorials and letters to the editor. The timing and content of medical news are of particular concern to physicians. Specifically, they watch for violations of the Ingelfinger Rule and the press embargo system—policies designed to ensure that physicians have access to medical information before it becomes widely disseminated to the general public—as well as errors of medical fact.

If I Am Only for Myself, What Am I? A Communitarian Look at the Privacy Stalemate

1999 ◽  
Vol 25 (2-3) ◽  
pp. 203-231
Author(s):  
Helena Gail Rubinstein
Keyword(s):  
Black Hole ◽  
Health Policy ◽  
Medical Treatment ◽  
Medical Record ◽  
Medical Records ◽  
Medical Information ◽  
Claims Data ◽  
Regulatory Regime ◽  
Video Rental

There is little quarrel that access by medical and health policy researchers to medical records and claims data has spurred advances in quality and access to medical treatment. Nevertheless, dissatisfaction lingers with the regime used to regulate access to that information. The American regulatory regime on medical record access has politely been characterized as “fragmented” and less politely as a “black hole.” U.S. Senator Edward M. Kennedy asserts, “[t]oday, video rental records have greater protection than sensitive medical information.” At the center of this dissatisfaction is the question of how much say an individual should have in letting others—even those with legitimate need—look at and use an individual's records.

Two Years Experience with a Medical Computer File in Insurance Medicine

1975 ◽  
Vol 14 (04) ◽  
pp. 199-201
Author(s):  
D. Lahaye ◽  
D. Roosels ◽  
J. Viaene
Keyword(s):  
Medical Records ◽  
Medical Information ◽  
Medical Data ◽  
Computer File ◽  
Medical Computer ◽  
Stored Information ◽  
Medical Examinations ◽  
The Impact ◽  
Work Method ◽  
Selection Of

The drafting of a medical computer file for pneumoconiosis at the Fund of Occupational Diseases was essentially based on an intuitive choice of medical information processing from a large experience. For statistical purposes, however, a more scientific selection of stored information is needed. Therefore, we checked out the medical data on 25,830 complete medical records. The frequency of all answer possib-ilities was tested question by question. A minority of questions had to be reexamined because the yled to insufficient answers. It will be possible in the future to improve the storage of medical information with this work method. A further investigation in which the results achieved by several physicians will be compared opens the possibility of rating the impact of subjective judgments in medical examinations.

Television and Children

PEDIATRICS ◽  
1977 ◽  
Vol 60 (5) ◽  
pp. 773-773
Author(s):  
Herman M. Frankel
Keyword(s):  
England Journal ◽  
American Medical Association ◽  
Medical Association ◽  
New England ◽  
American Medical ◽  
Television Viewing ◽  
Young Patients ◽  
Daily Lives ◽  
Color Television ◽  
The Impact

Pediatricians at The Permanente Clinic are becoming increasingly concerned about the effects of television on the health of our patients, including the children hospitalized in the 32-bed pediatric unit of Bess Kaiser Hospital. Prompted in part by the appearance of our new color television sets, and in part by articles and accompanying editorials in Pediatrics, The New England Journal of Medicine, and The Journal of the American Medical Association, we have been discussing both our responsibility to our young patients and our responsibility to help their parents examine the impact of television viewing on children's health and daily lives.

Current Status of a Medical Information System

1970 ◽  
Vol 09 (03) ◽  
pp. 149-160 ◽  
Author(s):  
E. Van Brunt ◽  
L. S. Davis ◽  
J. F. Terdiman ◽  
S. Singer ◽  
E. Besag ◽  
...  
Keyword(s):  
Information System ◽  
Medical Records ◽  
Medical Information ◽  
Clinical Laboratory ◽  
Development Program ◽  
Medical Data ◽  
Direct Access ◽  
Medical Information System ◽  
Current Status ◽  
Central System

A pilot medical information system is being implemented and currently is providing services for limited categories of patient data. In one year, physicians’ diagnoses for 500,000 office visits, 300,000 drug prescriptions for outpatients, one million clinical laboratory tests, and 60,000 multiphasic screening examinations are being stored in and retrieved from integrated, direct access, patient computer medical records.This medical information system is a part of a long-term research and development program. Its major objective is the development of a multifacility computer-based system which will support eventually the medical data requirements of a population of one million persons and one thousand physicians. The strategy employed provides for modular development. The central system, the computer-stored medical records which are therein maintained, and a satellite pilot medical data system in one medical facility are described.

J 5 — A Data Processing System for Medical Information

1967 ◽  
Vol 06 (01) ◽  
pp. 1-6
Author(s):  
P. Hall ◽  
Ch. Mellner ◽  
T. Danielsson
Keyword(s):  
Medical Records ◽  
Medical Information ◽  
Health Care Systems ◽  
Processing System ◽  
Linear Pattern ◽  
Flexible Form ◽  
Care Systems ◽  
Pattern Recognition Analysis ◽  
Numeric Information

A system for medical information has been developed. The system is a general and flexible one which without reprogramming or new programs can accept any alphabetic and/or numeric information. Coded concepts and natural language can be read, stored, decoded and written out. Medical records or parts of records (diagnosis, operations, therapy, laboratory tests, symptoms etc.) can be retrieved and selected. The system can process simple statistics but even make linear pattern recognition analysis.The system described has been used for in-patients, outpatients and individuals in health examinations.The use of computers in hospitals, health examinations or health care systems is a problem of storing information in a general and flexible form. This problem has been solved, and now it is possible to add new routines like booking and follow-up-systems.

Molekularbiologie

2018 ◽  
Vol 09 (05) ◽  
pp. 242-243
Author(s):  
Dr. Susanne Krome
Keyword(s):  
England Journal ◽  
Medical School ◽  
New England ◽  
Harvard Medical School

Zehntausende nichtproteinkodierende RNAs haben die Kenntnisse über die normale Physiologie sowie die Entstehung und Behandlung von Krankheiten auf den Kopf gestellt, schreibt Prof. Frank Slack, Harvard Medical School, Boston/USA, im New England Journal of Medicine über den überwiegenden Teil unseres Genoms. Diese RNA-Sub typen regulieren Wachstum, Entwicklung und Organfunktion. Ihre Gewebespezifität eröffnet neue, unerwartete Möglichkeiten in der Onkologie. Der größte Teil ihrer Funktionen ist allerdings noch nicht erforscht.

Islam, Economic Rationalism, and Accounting

2001 ◽  
Vol 18 (2) ◽  
pp. 61-93
Author(s):  
Roger Willett ◽  
Maliah Sulaiman
Keyword(s):  
Historical Context ◽  
The West ◽  
Accounting Standard ◽  
Policy Issues ◽  
Belief Structure ◽  
Belief Structures ◽  
Western Values ◽  
Islamic Faith ◽  
The Impact

This paper discusses the impact of western accounting technologies on belief structures such as those of the Islamic faith. It assesses a theory of accounting reporting originally proposed by Baydoun and Willett (1994). It goes on to consider the nature and origins of western materialist philosophy and contrasts the belief structure of Islam with the West. The paper also ex.amines the historical context in which western values became adopted in Muslim societies and discusses the policy issues that confront Islamic accounting standard setters.

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