Living through the end: The phenomenon of dying at home

2013 ◽  
Vol 13 (2) ◽  
pp. 125-134 ◽  
Author(s):  
Diane N. Solomon ◽  
Lissi Hansen
Keyword(s):  
Family Relationships ◽  
Family Members ◽  
Phenomenological Approach ◽  
Family Characteristics ◽  
Healthcare Team ◽  
Care Providers ◽  
Paradigm Case ◽  
Her Family ◽  
Dying At Home ◽  
At Home

AbstractObjectives:To explore the unique lived experiences of one patient who died at home and her family members, and to interpret how dying at home influenced patterns of bereavement for this patient's family.Methods:Benner's (1985) interpretive phenomenological approach was employed to get at the embedded nature of the social phenomenon of dying at home, uncovering what may be taken for granted by participants — in this case, during and after the patient's home hospice course. The participants were a 78-year-old female diagnosed with amyotrophic lateral sclerosis six months prior to death, her husband, and three of her four children. In line with the patient's wish to die at home, she voluntarily forewent food and drink when she no longer wished to watch her body deteriorate and felt that her life had run its course. She informed her family of this plan, and all were supportive. For data collection, separate single in-depth interviews were conducted with the deceased three months prior to death, and after death with three of her four children and her spouse of 60 years. For data analysis, the interview transcripts were coded for paradigm cases, exemplars, and themes.Results:The paradigm case, “The Meaning of Being at Home,” revealed that for study participants, remaining home with hospice provided a richly familiar, quiet, and safe environment for being together over time and focusing on relationships. Exemplars included “Driving Her Own Course” and “Not Being a Burden.” Salient themes encompassed patient and family characteristics, support, emotions, the value of time, and aspects of the healthcare team.Significance of results:End-of-life care providers need to hold a patient-centered, family-focused view to facilitate patient and family wishes to remain home to die. Investigation into family relationships, from the perspectives of both patient and family members, longitudinally, may enrich understanding and ability and help patients to die at home.

scholarly journals PENGALAMAN KELUARGA DALAM MERAWAT DEKUBITUS

2017 ◽  
Vol 2 (1) ◽  
pp. 11
Author(s):  
Rita Sari
Keyword(s):  
Family Members ◽  
Deep Understanding ◽  
Phenomenological Approach ◽  
Pressure Sores ◽  
The Family ◽  
Long Time ◽  
Field Notes ◽  
Written Questions ◽  
Depth Interviews ◽  
At Home

Immobilization is a problem faced by patients with chronic illness, the patients is very weak and paralyzed patients in a long time. This study have purpose  to gain a deep understanding of the experience of families in caring for family members is immobilized with pressure sores at home. This study used qualitative methods. Participants are families who care for patients at home who are immobilized with pressure sores. Collecting data with in-depth interviews by means of instrument is the researcher's own self, written questions as an interview, used recording devices and used field notes.  Criterion sampling by taking 6 participants. Analysis of data used a phenomenological approach. The results showed that the family had a positive experience; Can be more patient, and assume that caring for a sick family member has its own challenges, being able to be with other families in caring for patients, being able to give affection and obligation as a child to parents can help take care of it. There was also an unpleasant (negative) family experience during the care of sick family members, the family felt tired, not strong and bored during patient care. The conclusion of the study is that families have positive and negative experiences in caring for family members with decubitus

Where to die? That is the question: A study of cancer patients in Israel

2014 ◽  
Vol 13 (2) ◽  
pp. 165-170 ◽  
Author(s):  
Frida Barak ◽  
Sofia Livshits ◽  
Haana Kaufer ◽  
Ruth Netanel ◽  
Nava Siegelmann-Danieli ◽  
...  
Keyword(s):  
Cancer Patients ◽  
Social Worker ◽  
Family Members ◽  
Care Patient ◽  
Community Context ◽  
Living Alone ◽  
The Family ◽  
Dying At Home ◽  
Do So ◽  
At Home

AbstractObjective:Most patients prefer to die at home, but barely 30% do so. This study examines the variables contributing to dying at home.Methods:The participants were 326 cancer patients, of both genders, with a mean age of 63.25 years, who died from 2000 to 2008 and were treated by the palliative care unit of the Barzilai Hospital. Some 65.7% died at home and 33.4% in a hospital. The data were extracted from patient files. The examined variables were demographic (e.g., age, gender, marital status, ethnic background, number of years in Israel until death), medical (e.g., age at diagnosis, diagnosis, nature of last treatment, patient received nursing care, patient given the care of a social worker, patient had care of a psychologist, family received care of a social worker, patient had a special caregiver), and sociological (e.g., having insurance, having worked in Israel, living alone or with family, living with one's children, living in self-owned or rented house, family members working).Results:The findings indicate that the chances of dying at home are higher if the patient is non-Ashkenazi, the family got social worker care, the patient lived in a self-owned house, the patient lived with his family, the family members worked, and the patient's stay in Israel since immigration was longer. Logistic regression showed that all the predictors together yielded a significant model accounting for 10.9–12.3% of the variance.Significance of results:The findings suggest that dying at home requires maintaining continued care for the patient and family in a community context.

scholarly journals Health personnel, family relationships and codependency of psychoactive substances: a phenomenological approach

2021 ◽  
Vol 74 (1) ◽  
Author(s):  
Leone Mendes Dias ◽  
Marcelo da Silva Alves ◽  
Maria Odete Pereira ◽  
Laércio Deleon de Melo ◽  
Camila Cristina Gregório de Assis ◽  
...  
Keyword(s):  
Primary Care ◽  
Family Relationships ◽  
Health Professionals ◽  
Family Members ◽  
Phenomenological Approach ◽  
Legal Aspects ◽  
Psychoactive Substances ◽  
Negative Perceptions ◽  
Depth Interviews

ABSTRACT Objectives: to reflect on the daily life of family members dependent on psychoactive substances and the role of health professionals in Primary Care. Methods: a descriptive investigation outlined in Maffesoli’s phenomenological approach, carried out at a Basic Health Unit in Minas Gerais with eight family members dependent on psychoactive substances. Sociodemographic characterization data and in-depth interviews were collected and analyzed with support of NVivo Pro11® software. All ethical and legal aspects were met. Results: physicians were the professionals most mentioned in participants’ statements, who took on a dubious role with other health professionals: welcoming (positive perceptions about care received) and neglect (negative perceptions). Final Considerations: dependence on psychoactive substances imposes a burden on persons, their family members and health professionals. The role of establishing good relationships in the triad professionals-users-family members of primary care is inseparable in favor of treatment and preservation of their mental health.

scholarly journals Social Media and Family Integration: Perception of College Students of Faisalabad

2021 ◽  
Vol VI (II) ◽  
pp. 12-19
Author(s):  
Ashraf Iqbal ◽  
Raheela Firdous ◽  
Tanveer Hussain
Keyword(s):  
College Students ◽  
Social Media ◽  
Family Relationships ◽  
Family Members ◽  
Vital Role ◽  
Dependent Variables ◽  
Family Integration ◽  
At Home

This study explores to what extent social media play's role in family relationships, Results indicate that "Social media is positively predicting communication between family members with a coefficient of .320 and the dependent variables. "People prefer spending more time on social media than with family", as (55.5%) agreed and (18.5%) are strongly agreed. This study suggests social media can prove to be a useful source of family integration. Family members who do not have enough time to communicate due to their hectic schedule or not present at home, Social media can be a medium of communication for them as (62.5%) respondents agreed and (13%) strongly agreed that Social media play a vital role for a stay in touch with each other. People post wishes on Social media; it can show good gesture and love for each other.

scholarly journals Congenital abnormalities: experiences of parents atoshakati intermediate hospital, oshana region, Namibia

2017 ◽  
Vol 5 (2) ◽  
pp. 228
Author(s):  
Marian Sankombo ◽  
Linda Lukolo ◽  
Charles Lukanga Kanga Kimera
Keyword(s):  
Family Relationships ◽  
Congenital Abnormalities ◽  
Family Members ◽  
Health Sector ◽  
Phenomenological Approach ◽  
Formal Services ◽  
Parenting Expectations ◽  
The Individual ◽  
Contextual Study ◽  
The Impact

Background: Congenital abnormality (CA) is one among eminent problems in the society that affects the livelihood of the individual, communities and the health sector. It creates uncertainty among family members as they strive to identify ways and means to assist one another in the upbringing of these children born with an anomaly. The ultimate purpose of this study was to describe and explore the experiences of parents of children with congenital abnormalities and to identify the source of support such as parents employs when dealing with the child born with congenital abnormalities. This study was conducted at Intermediate Hospital Oshakati (IHO) in Namibia‘s Oshana region.Methods: A qualitative, explorative and a contextual study design using a phenomenological approach was utilized throughout this study. In-depth interviews were conducted with twelve “purposefully” selected participants from the population of parents of children born with congenital abnormalities whose children were either admitted in hospital or brought for follow-up. Data analysis was done using a content analytical method.Results: Data were derived from 12 participants interviewed, comprised of parents of children with reversible and irreversible conditions, long hospitalization, more frequent follow ups and those waiting for surgery. The results were categorized in seven categories, including: 1) A child with congenital abnormalities: the impact of disability; 2) Family relationships; 3) Parenting expectations and practices; 4) Altering one’s family daily life- treading a new path; 5) Social support; 6) Formal services; 7) Societal and community acceptance.Conclusion: The expectations parents had for a normal child becomes a nightmare when the child they were expecting is born with the disability. Living with such a child can be stressful for parents and other family members. Therefore, exploring and describing the lived experiences of parents of children born with congenital abnormalities is an important in the process of finding ways to assist or support parents to provide proper care for their children.

Families as Natural Experiments

1995 ◽  
Vol 16 (5) ◽  
pp. 519-537 ◽  
Author(s):  
JAY D. TEACHMAN
Keyword(s):  
Family Relationships ◽  
Latent Variable ◽  
Structural Equation ◽  
Family Members ◽  
Family Characteristics ◽  
Natural Experiments ◽  
Omitted Variables ◽  
Random Effects Models ◽  
Fixed And Random Effects ◽  
The Impact

In this article, the author argues that data on siblings provide a way to account for the impact of unmeasured, omitted variables on relashionships of interest. This is possible because families form a sort of natural experiment. Family members are likely to have many shared experiences, as well as a common genetic heritage, but relationships between variables defined as differences between family members cannot be attributed to these shared family characteristics. Although fixed- and random-effects models are discussed as one means to make use of information on siblings from the same family, the author proposes a latent-variable structural equation approach to the problem. This model provides estimates of both within-and between-family relationships, and it accounts for the impact of measurement error.

Rural palliative care to support dying at home can be realised; experiences of family members and nurses with a new model of care

2019 ◽  
Vol 27 (4) ◽  
pp. 336-343 ◽  
Author(s):  
Evelien Spelten ◽  
Jenny Timmis ◽  
Simone Heald ◽  
Saskia F. A. Duijts
Keyword(s):  
Palliative Care ◽  
Family Members ◽  
Model Of Care ◽  
New Model ◽  
Dying At Home ◽  
At Home

scholarly journals Restoration of emotional bonds in the family system

2019 ◽  
Vol 1 (I) ◽  
pp. 210-221
Author(s):  
Наталія ВОЛОДАРСЬКА
Keyword(s):  
Family Relationships ◽  
Family System ◽  
Family Members ◽  
Phenomenological Approach ◽  
Gestalt Therapy ◽  
Emotional Bonds ◽  
Personal Boundaries ◽  
Life Problems ◽  
The Family ◽  
Meaningful Relationships

The article reveals the problems of emotional bonds restoration in the family system. Possibilities are analyzed of the systematic approach in the family psychotherapy. The example is given of work with the family system whose members have an addictive behavior. Symptoms of dysfunctions of family relationships are summarized. The goals of psychotherapy are indicated with the family and with each family member. The possibilities are analyzed of these problems solving. Meaningful relationships are specified in resolving the problem of restoration of emotional bonds between family members. The use of art therapy methods is illustrated in the strategy of restoration of the personal boundaries of family members. Changes are analyzed in family functions in the process of psychotherapeutic sessions. Methods of work in the gestalt therapy and the dialogue-phenomenological approach are proposed. The method of own life history description allows its reviewing in different ways. The narrative method activates changes in the awareness of context of life problems.

scholarly journals Experiences of family members of patients with colostomies and expectations about professional intervention

2014 ◽  
Vol 22 (2) ◽  
pp. 241-247 ◽  
Author(s):  
Augusto Ferreira-Umpiérrez ◽  
Zoraida Fort-Fort
Keyword(s):  
Family Relationships ◽  
Nuclear Family ◽  
Family Members ◽  
Phenomenological Approach ◽  
Health Care Team ◽  
Way Of Life ◽  
Family Ties ◽  
New Family ◽  
The Social ◽  
Professional Intervention

OBJECTIVE: the objective was to understand the experience of a group of family members of patients with colostomies, revealing their expectations regarding the intervention of health professionals.METHOD: qualitative research, with the social phenomenological approach of Alfred Schütz, conducted in Montevideo in 2012; twelve family members of patients with colostomies participated, from an ostomy service of a health institution.RESULTS: the following categories were identified: family ties, trust in the health care team, the nurse as the articulator of the process, the desire to humanize care, and adaptation to new family life.CONCLUSIONS: knowing the experience and expectations of the families of colostomy patients was achieved, emphasizing the previous family relationships to build upon them, and the trust in the health team, emphasizing the nurse as articulator of the process. Expectations focused on the desire for humanized care, enhancing adaptation of the nuclear family to the new way of life, restoring and enhancing its strengths, and collaborating in overcoming its weaknesses.

Barriers to the Detection and Management of Depression by Palliative Care Professional Carers Among Their Patients: Perspectives From Professional Carers and Patients' Family Members

2012 ◽  
Vol 30 (1) ◽  
pp. 12-20 ◽  
Author(s):  
David Mellor ◽  
Marita P. McCabe ◽  
Tanya E. Davison ◽  
Denisa L. Goldhammer ◽  
David J. Hallford
Keyword(s):  
Palliative Care ◽  
Self Efficacy ◽  
Family Members ◽  
Family Characteristics ◽  
Care Providers ◽  
Individual Interviews ◽  
Care Services ◽  
Care Recipients ◽  
Palliative Care Services ◽  
Managerial Positions

Introduction: Clinical depression is highly prevalent yet underdetected and poorly managed within palliative care settings. Objectives: This qualitative study explored the identification, monitoring, and management of symptoms of depression in patients receiving palliative care from 2 juxtaposed perspectives that are of care providers and care recipients' family members. Examining the barriers that restrict professional carers detecting and managing depression in their patients was a central focus of the study. Methods: Focus groups were held with 18 professional carers, including 8 holding managerial positions, across 2 palliative care services, 1 regional and 1 metropolitan, which provided both inpatient and community-based care. Individual interviews were conducted with 10 family members of patients who had received or were receiving palliative care through these services. Results: Thematic analysis of these data identified that both professional carers and family members perceived that depression is a wide-spread concern for patients receiving palliative care; however, numerous barriers were identified that affect professional carers’ ability to identify depression. These included knowledge and training deficits, low self-efficacy, prioritization of physical concerns and time constraints, patient/family characteristics, and system/process issues. These themes (and related subthemes) are discussed in this article. Conclusions: Specialized training in depression is recommended for professional carers in order to improve their depression-related knowledge, detection skills, and self-efficacy. The ultimate goal of such training is to increase the rate of recognition of depression that in turn will lead to appropriate treatment for depressed patients.

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