A qualitative study of the emotional and spiritual needs of Hispanic families in hospice

2017 ◽  
Vol 17 (2) ◽  
pp. 150-158 ◽  
Author(s):  
Alicia Nuñez ◽  
Jason M. Holland ◽  
Lisa Beckman ◽  
Abbie Kirkendall ◽  
Nora Luna
Keyword(s):  
Qualitative Study ◽  
Cultural Values ◽  
Hospice Care ◽  
Spiritual Needs ◽  
Spiritual Support ◽  
Care Providers ◽  
Hispanic Families ◽  
Hispanic Culture ◽  
Care Services ◽  
Hispanic Patients

ABSTRACTBackground:As the older U.S. population becomes more ethnically diverse, there will be an increased need for culturally sensitive hospice care services. Hispanics often experience multiple barriers to quality end-of-life care services.Objective:To address the underlying disparities in the cultural, emotional, and spiritual aspects of hospice care, the objective of the present qualitative study was to examine the emotional and spiritual needs of Hispanic patients' families while in hospice.Method:Semistructured in-person interviews were conducted with 29 Hispanic patients' families regarding their perceived experience of the hospice-based emotional and spiritual support received. Demographic information was collected on both the family member and the patient. Interviews were digitally recorded, transcribed, and analyzed using thematic content analysis.Results:Participant narratives fell into five main themes: (1) the influence of Hispanic culture in the relationship with hospice care providers; (2) types of social support received from hospice; (3) barriers to receiving support; (4) lack of health literacy regarding hospice care; and (5) cultural preferences for religious/spiritual support in hospice.Significance of Results:Our results provide insight into the specific emotional and spiritual needs of Hispanic families receiving hospice services. Our findings highlight that cultural values play an important role in the hospice care experiences of Hispanic families.

scholarly journals Treatment of female and male inpatient crack users: a qualitative study

2013 ◽  
Vol 35 (1) ◽  
pp. 36-45 ◽  
Author(s):  
Rosemeri Siqueira Pedroso ◽  
Félix Kessler ◽  
Flavio Pechansky
Keyword(s):  
Qualitative Study ◽  
Health Care Services ◽  
Spiritual Support ◽  
Structured Interviews ◽  
Criminal Involvement ◽  
Care Services ◽  
Preventive Actions ◽  
The Relationship ◽  
Purposive Sample ◽  
Crack Users

OBJECTIVE: To map treatment trajectories in a sample of male and female crack users through their narratives about the course of treatment seeking and their attempts to access health care services in Brazil. METHODS: Qualitative study of a purposive sample (five female and nine male hospitalized crack users) using semi-structured interviews. The interviews were transcribed and data explored using content analysis. RESULTS: Respondents reported difficulties getting access to hospitalization, relapse after discharge, and abandonment of treatment. There seems to be a peculiar model of behavior for women and men while dealing with craving for crack: while women got involved with prostitution and consequently became infected with HIV, every men of the sample reported criminal involvement. CONCLUSIONS: The relationship between relapse and a social environment conducive to consumption, associated with belief or disbelief in spiritual support, prostitution, and the legal complications arising from the use of crack, are relevant issues and should be taken into consideration in the development of preventive actions aimed at this specific population.

scholarly journals Hospice Care for Veterans: A Community Education Program

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 777-777
Author(s):  
Denise Kresevic ◽  
Barbara Heath ◽  
Muralidhar Pallaki
Keyword(s):  
Vietnam Veterans ◽  
Hospice Care ◽  
Community Education ◽  
Moral Injury ◽  
Telemental Health ◽  
Spiritual Support ◽  
Care Providers ◽  
Continued Education ◽  
Assessment Skills ◽  
The Impact

Abstract The impact of trauma on care at end of life and the social isolation of the COVID-19 pandemic highlighted a critical gap in care of terminally ill veterans. It is estimated that 30% of Vietnam Veterans suffer from PTSD, suicide rates are 49% higher in older veterans than nonveterans, and 41% of veterans surveyed report post traumatic guilt. A survey of non-VA hospice agencies revealed many do not screen for PTSD, but desired training in this area. The VA responded to these challenges implementing an initiative to educate community caregivers on PTSD, suicide, and moral injury with expanded tele mental health services. Several VA sites were supported to participate in training focusing on PTSD, suicide, and moral injury and Telemental health. In Northeast Ohio, from 2019-20, 11 community hospice agencies participated in training, including 283 providers,120 (42%) nurses, 100 (35%) social workers, 29 (10%) volunteers, and 34 (12%) other. A majority of participants post-training (n=160) (84%-94%) reported enhanced knowledge, skills, or attitudes related to resources, education, and communication. Participants rated changes for assessment skills lowest for moral injury (34%), PTSD (41%), and suicide (56%). An analysis of telemental health visits (N=50) revealed that, 56% addressed spiritual support, (22%) family support, (10%) resources/referrals, and (8%) confusion. The majority of telehealth visits were VA initiated (84%), and 10% were hospice initiated Continued education regarding PTSD, suicide, and moral injury assessment skills is still needed for hospice care providers of veterans. These findings support the use of telemental health for care and consultation.

scholarly journals What Do the Hospital Pharmacists Think about the Quality of Pharmaceutical Care Services in a Pakistani Province? A Mixed Methodology Study

2015 ◽  
Vol 2015 ◽  
pp. 1-6 ◽  
Author(s):  
Ghulam Murtaza ◽  
Rozina Kousar ◽  
Saira Azhar ◽  
Shujaat Ali Khan ◽  
Qaisar Mahmood
Keyword(s):  
Qualitative Study ◽  
Pharmaceutical Care ◽  
Public Hospitals ◽  
Care Providers ◽  
Patient Counseling ◽  
Health Awareness ◽  
Hospital Pharmacists ◽  
Care Services ◽  
Awareness Programs

The objective of this study was to evaluate the perception of hospital pharmacists regarding quality of pharmaceutical care services in Khyber Pakhtunkhwa (KPK) Province, Pakistan, through qualitative as well as quantitative approach. For qualitative study, snow ball sampling technique was used. In quantitative part, a cross-sectional study was conducted in 112 hospital pharmacists (out of 128 accessed ones) from both private and public hospitals in six major divisions (divisions are the third tier of government in Pakistan, between the provinces and districts) of KPK. The qualitative study yielded five major themes during thematic analysis: (a) patients reporting, (b) lack of patient counseling, (c) lack of participation in health awareness programs, (d) pharmacists reducing the prescribing errors, and (e) insufficient number of pharmacists. A great proportion (67.9%) of the pharmacists was unsatisfied with their participation in health awareness programs. Findings of both phases revealed that hospital pharmacists in Pakistan are not actively participating in the provision of pharmaceutical care services. They are facing various hurdles for their active participation in patient care; major obstacles include the unavailability of sufficient number of pharmacists, lack of appropriate time for patient counseling, and poor relationship between pharmacists and other health care providers.

Spiritual needs and communicating about death in nonreligious theistic families in pediatric palliative care: A qualitative study

2020 ◽  
Vol 34 (4) ◽  
pp. 533-540
Author(s):  
Siyu Cai ◽  
Qiaohong Guo ◽  
Yanhui Luo ◽  
Yuchen Zhou ◽  
Ali Abbas ◽  
...  
Keyword(s):  
Qualitative Study ◽  
Support Groups ◽  
Mainland China ◽  
Terminally Ill ◽  
Spiritual Needs ◽  
Religious Support ◽  
Spiritual Support ◽  
Personal Belief ◽  
The Face ◽  
Life Threatening

Background: Spiritual support should be offered to all patients and their families regardless of their affiliated status with an organized religion. Aim: To understand nonreligious theistic parents’ spirituality and to explore how parents discuss death with their terminally ill children in mainland China. Design: Qualitative study. Setting/participants: This study was conducted in the hematology oncology center at Beijing Children’s Hospital. Participants in this study included 16 bereaved parents. Results: Participants described themselves as nonreligious but showed a tendency toward a particular religion. Parents sought religious support in the face of the life-threatening conditions that affected their child and regarded the religious belief as an important way to get psychological and spiritual comfort after experiencing the death of their child. Religious support could partially address parents’ spiritual needs. Parents’ spiritual needs still require other supports such as bereavement services, death education, and family support groups. Some parents stated that it was difficult to find a way to discuss death with their children. For patients who come from nonreligious theistic families, their understanding of death was more complex and may be related to atheism. Conclusion: Religious support could be an element of spiritual support for nonreligious theistic parents of terminally ill children. Multiple strategies including religious supports and nonreligious supports should be rationally integrated into spiritual support of nonreligious theistic family. Patient’s personal belief in death should be assessed before discussing death with them.

Barriers to Addressing the Spiritual and Religious Needs of Patients and Families in the Intensive Care Unit: A Qualitative Study of Critical Care Physicians

2020 ◽  
pp. 104990912097090
Author(s):  
Christian K. Alch ◽  
Christina L. Wright ◽  
Kristin M. Collier ◽  
Philip J. Choi
Keyword(s):  
Intensive Care Unit ◽  
Critical Care ◽  
Intensive Care ◽  
Spiritual Care ◽  
Spiritual Needs ◽  
Care Providers ◽  
Structured Interviews ◽  
Care Services ◽  
Qualitative Research Design ◽  
Data Saturation

Objectives: Though critical care physicians feel responsible to address spiritual and religious needs with patients and families, and feel comfortable in doing so, they rarely address these needs in practice. We seek to explore this discrepancy through a qualitative interview process among physicians in the intensive care unit (ICU). Methods: A qualitative research design was constructed using semi-structured interviews among 11 volunteer critical care physicians at a single institution in the Midwest. The physicians discussed barriers to addressing spiritual and religious needs in the ICU. A code book of themes was created and developed through a regular and iterative process involving 4 investigators. Data saturation was reached as no new themes emerged. Results: Physicians reported feeling uncomfortable in addressing the spiritual needs of patients with different religious views. Physicians reported time limitations, and prioritized biomedical needs over spiritual needs. Many physicians delegate these conversations to more experienced spiritual care providers. Physicians cited uncertainty into how to access spiritual care services when they were desired. Additionally, physicians reported a lack of reminders to meet these needs, mentioning frequently the ICU bundle as one example. Conclusions: Barriers were identified among critical care physicians as to why spiritual and religious needs are rarely addressed. This may help inform institutions on how to better meet these needs in practice.

scholarly journals DETERMINANTS OF MOTHER’S CHOICE OF PLACE DELIVERY IN COMMUNITY OF BAJO, MUNA DISTRICT: A QUALITATIVE STUDY

2016 ◽  
Vol 2 (3) ◽  
pp. 155-159 ◽  
Author(s):  
La Ode Ali Imran ◽  
Pitrah Asfian ◽  
Rahma Tia
Keyword(s):  
Qualitative Study ◽  
Health Care Providers ◽  
Health Concern ◽  
Care Providers ◽  
Analysis Model ◽  
Care Services ◽  
Lack Of Information ◽  
The Government ◽  
Colaizzi's Method ◽  
Financial Concern

Background: Muna is the area where Bajo community prefer to choose shaman for giving birth Objectives: This study aims to determine the reasons why mothers choose shamans or midwives to give birth in Renda Village, Towea Subdistrict, Muna District.Methods: This was a descriptive qualitative study to investigate determinants of mother’s choice of place delivery in Renda Towea village of Muna, Indonesia. In-depth interview was performed to three mothers who gave birth with Shaman, and two mothers with Midwives. This study was conducted on July, 2016 in the village of Renda Towea, Muna district. Data were analyzed by content analysis model using Colaizzi’s method of data analysis.Results: Results were grouped into: Reasons to choose midwives to give birth (Health concern, Family support, and Complete facilities), and Reasons to select shaman to give birth (Tradition, Financial concern, Short distance, Lack of information)Conclusions: Various reasons of mothers in choosing maternal care services. The findings of this study suggest that the government and health care providers should create the collaboration between midwives and shaman, increase financial support, and increase and evaluate health visitations to this community.

scholarly journals Pain Talk in Hospice Care: A Conversation Analysis

2020 ◽  
Author(s):  
Yijin Wu
Keyword(s):  
Palliative Care ◽  
Conversation Analysis ◽  
Care Provider ◽  
Hospice Care ◽  
Terminally Ill ◽  
Care Providers ◽  
Care Services ◽  
Hospice Patients ◽  
Pain Care ◽  
Provider Participation

Abstract Background A large number of the hospice patients have been reported to be with symptoms of pain. Thus, managing the patient’s pain is one aspect of hospice care provision. The delivery of pain care services could be facilitated through effective communication. However, little has been done to explore the interactional details of the delivery of pain care services in palliative care. Methods Conversation analysis is a useful method to explore the interactional details of interaction by hospice care providers and terminally ill patients. Using the method of Conversation Analysis (CA), this study aims to demonstrate how the hospice care provider employs different types of interactional practices to address the patient’s pain concerns. The data showed in this study are collected from the Alexander St website http://ctiv.alexanderstreet.com, an educational resource presenting a large collection of psycho-therapeutic videos. Results In this study, an illustrative analysis is demonstrated to show the potential of conversation analysis for research on pain talk in palliative care. It has been shown that conversation analysis could contribute to unfolding the interactional details regarding “pain talk” in hospice care settings. Specifically, conversation analysis could provide a detailed description and interpretation of the conversational practices, which are used to construct hospice care provider participation in delivering pain talk. In addition, conversation analysis could also demonstrate the interactional resources by which patients disclose their experiences of physical or spiritual pain to the hospice care provider and the way how the hospice care provider responds to the patient’s troubles talk or feelings talk. Conclusions This study identifies five types of interactional resources which are used to deal with the patient’s pain concerns in hospice care setting. A conversation analytical study of pain talk in hospice care could provide a turn-by-turn description of how the hospice care provider communicates with the terminally ill patient in terms of the patient’s pain concerns. The findings in this study could inform how the hospice care provider initiates, delivers and develops a pain talk with the terminally ill patient effectively.

scholarly journals Pengalaman Pasien yang Pernah Terpasang Ventilator

1970 ◽  
Vol 4 (1) ◽  
Author(s):  
Yani AF Bastian ◽  
Suryani Suryani ◽  
Etika Emaliyawati
Keyword(s):  
Health Care ◽  
Mechanical Ventilation ◽  
Qualitative Study ◽  
Health Care Providers ◽  
Life Experience ◽  
Phenomenological Approach ◽  
Spiritual Needs ◽  
Care Providers ◽  
Self Image ◽  
Skilled Health

Jumlah pasien kritis yang terpasang ventilator menempati dua per tiga dari seluruh pasien ICU di Indonesia. Kondisi kritis dengan terpasang ventilator akan menimbulkan masalah fisik, psikososial dan spiritual. Tenaga kesehatan terutama perawat perlu memberikan asuhan keperawatan terhadap pasien ICU yang terpasang ventilator secara menyeluruh. Penelitian kualitatif terhadap pasien yang terpasang ventilator sangat diperlukan sebagai upaya untuk menggali secara mendalam pengalaman hidup pasien selama terpasang ventilator dan menemukan new insight (pemahaman baru) tentang pengalaman mereka. Penelitian ini menggunakan metode kualitatif dengan pendekatan fenomenologi. Data didapatkan dengan wawancara mendalam terhadap 6 partisipan yang terdiri dari 2 laki-laki dan 4 perempuan, usia antara 27–54 tahun, yang terpasang ventilator antara 4 sampai 27 hari dan mendapatkan sedasi yang minimal. Analisis data menggunakan metode Colaizzi. Ada 8 tema yang didapatkan dari pengalaman hidup pasien selama terpasang ventilator yaitu (1) hilangnya harapan dalam menjalani hidup, (2) merasa telah diambang kematian, (3) prosedur suction yang dilematis –antara nyaman dan tidaknyaman, (4) kehadiran orang terkasih sebagai spirit dalam melanjutkan hidup, (5) memandang penyakit sebagai rencana dari Tuhan, (6) memandang rendah citra diri, (7) pentingnya fasilitator dalam menjalani ritual keagamaan dan (8) keinginan untuk dirawat oleh tenaga kesehatan yang terampil. Individu yang hidup selama terpasang ventilator mengalami dilemma dengan prosedur suction, memiliki citra diri yang rendah, membutuhkan fasilitator dalam pemenuhan kebutuhan spiritual serta keinginan untuk dirawat oleh tenaga kesehatan yang terampil. Berkaitan dengan hal tersebut, pasien yang terpasang ventilator membutuhkan dukungan, pendampingan dan kemampuan yang terampil dari petugas kesehatan terutama dari perawat.Kata kunci: Pasien kritis, pengalaman hidup, ventilator. The Experience of Patients after using VentilatorAbstractThe number of critically ill patients with mechanical ventilation occupies almost two-thirds of all ICU patients in Indonesia. The critical condition with mechanical ventilation will be followed by many human responses such as physical, psychosocial and spiritual problems. Health care providers, especially nurses are demanded to provide holistic care to the patients with mechanical ventilation. Qualitative study can be used to explore the life experience of the patients with mechanical ventilation to gain new insights of their experience. This study is a qualitative study using phenomenological approach. The data was obtained by in-depth interviews to six participants consisting of two men and four women with age range from 27 to 54 years. The length of time with mechanical ventilation was between 4 to 27 days and they received a minimal sedation. The data was analyzed by Colaizzi method of analysis. There were eight themes found from this study: hopelessness in life, feel closer to dying, the suction procedure dilemma between comfortable and uncomfortable, the presence of loved ones as a spirit for continuing live, the assumption of disease as God planning, perceived low self-image, the importance of the facilitator in religious rituals as well as the desire to be treated by skilled health care personnel. Patients with mechanical ventilation who experienced suction procedure dilemma have low self-image. They need a facilitator for meeting their spiritual needs, and caring from skilled health care provider especially from nurses.Keywords: Life experience, mechanical ventilation, the critical Ill patient.

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