Emotional Distress and Service Utilization by Rural Versus Suburban Dementia Family Caregivers

2001 ◽  
Author(s):  
Leah Darrow ◽  
Ann Steffen
Keyword(s):  
Family Caregivers ◽  
Service Utilization ◽  
Emotional Distress

scholarly journals Family caregiver emotional distress in advanced cancer: the DME-C scale psychometric properties

2020 ◽  
pp. bmjspcare-2020-002608
Author(s):  
Joaquín T Limonero ◽  
Jorge Maté-Méndez ◽  
María José Gómez-Romero ◽  
Dolors Mateo-Ortega ◽  
Jesús González-Barboteo ◽  
...  
Keyword(s):  
Psychometric Properties ◽  
End Of Life ◽  
Family Caregivers ◽  
Advanced Cancer ◽  
Emotional Distress ◽  
Family Caregiver ◽  
Screening Tools ◽  
Anxiety And Depression ◽  
The Family ◽  
End Stage

BackgroundFamily caregivers of patients with advanced illness at end of life often report high levels of emotional distress. To address this emotional distress is necessary to have adequate and reliable screening tools.AimThis study analyses the psychometric properties and clinical utility of the Family Caregiver Emotional Detection Scale for caregivers of patients with end-stage cancer (DME-C, Spanish acronym) who are receiving palliative care (PC).DesignMulticentre, cross-sectional study.Settings/participantsFamily caregivers of patients with advanced cancer at end of life receiving palliative treatment were interviewed to explore their emotional distress through the DME-C scale and other instruments measuring anxiety and depression (Hospital Anxiety and Depression Scale (HADS)), distress thermometer (DT) and overload (B), as well as a clinical psychological assessment (CPA).Results138 family caregivers, 85 (61.6%) female and 53 (38.4%) male, with an average age of 59.69±13.3 participated in the study. The reliability of the scale, as measured by Cronbach’s alpha, was 0.76, and its stability over time was 0.734. Positive, significant correlations were found between the DME-C and the scores for anxiety and depression registered on the HADS scale, as well as with the total result of this latter scale and the results for B, the DT and the CPA. A statistical analysis of the receiver-operating characteristic curves showed that the scale has a sensitivity and specificity of 75%, and that the cut-off point for the detection of emotional distress was a score ≥11. Fifty-four per cent of the caregivers displayed emotional distress according to this scale.ConclusionsThe DME-C displays good psychometric properties. It is simple, short, reliable and easy to administer. We believe that the instrument is useful for the detection of emotional distress in the family caregivers of hospitalised patients suffering from end-stage illnesses and receiving PC.

Predictors of Emotional Distress in Family Caregivers of Persons with Traumatic Brain Injury: A Systematic Review

2013 ◽  
Vol 14 (1) ◽  
pp. 113-129 ◽  
Author(s):  
Angelle M. Sander ◽  
Kacey Little Maestas ◽  
Allison N. Clark ◽  
Whitney N. Havins
Keyword(s):  
Systematic Review ◽  
Traumatic Brain Injury ◽  
Brain Injury ◽  
Family Caregivers ◽  
Emotional Distress ◽  
Future Research ◽  
Class Iii ◽  
Class B ◽  
Assessment And Treatment ◽  
Severe Tbi

The purpose of the current paper was to conduct a systematic review of the literature on predictors of emotional distress in caregivers of persons with traumatic brain injury (TBI), and to provide evidence-based classification for prognostic variables to guide future research and clinical practice. A search was conducted using PubMed, CINAHL and PsycINFO databases. The citations of resulting articles were also reviewed. Twenty-eight articles met inclusion criteria and were retained for review. Reviews were conducted in accordance with the 2011 edition of the American Academy of Neurology (AAN) Guidelines for classifying evidence for prognostic studies. Data abstraction revealed one Class I study, four Class II studies, eight Class III studies, and 15 Class IV studies. Results of the review indicated that caregivers’ report of neurobehavioural problems in the person with injury is a probable predictor of emotional distress for caregivers of persons with complicated mild, moderate or severe TBI (Class B evidence). The level of participation in the person with injury, level of support needed by the person with injury, and family systems functioning are probably predictors of emotional distress for caregivers of persons with severe TBI (Class B evidence). Executive functioning impairment in the person with injury, pre-injury emotional distress in caregivers, caregiver age, caregivers’ use of emotion-focused coping, and social support may possibly be risk factors for caregivers’ emotional distress (Class C evidence). Recommendations for future research and implications for assessment and treatment of family caregivers are discussed.

scholarly journals Crossed views of burden and emotional distress of cancer patients and family caregivers during palliative care

2015 ◽  
Vol 25 (11) ◽  
pp. 1278-1285 ◽  
Author(s):  
Tanguy Leroy ◽  
Emmanuelle Fournier ◽  
Nicolas Penel ◽  
Véronique Christophe
Keyword(s):  
Palliative Care ◽  
Cancer Patients ◽  
Family Caregivers ◽  
Emotional Distress

scholarly journals Caring for family caregivers: An analysis of a family-centered intervention

2014 ◽  
Vol 48 (spe) ◽  
pp. 87-94 ◽  
Author(s):  
Carme Ferré-Grau ◽  
Maria Sevilla Casado ◽  
Dolors Cid-Buera ◽  
Mar LLeixà-Fortuño ◽  
Pilar Monteso-Curto ◽  
...  
Keyword(s):  
Problem Solving ◽  
Family Caregivers ◽  
Emotional Distress ◽  
Care Service ◽  
Care Center ◽  
Intervention Group ◽  
Problem Solving Therapy ◽  
Health Care Center ◽  
Mixed Analysis ◽  
Anxiety Depression

Objective To assess the effectiveness of Problem-Solving Therapy (PST) on family caregivers through the use of scales to measure anxiety, depression and emotional distress; and to explore facilitating factors and obstacles for its use based on the narrative of nurses. Method A clinical trial and an exploratory focus group with the use of mixed analysis methodology. The study was conducted in a primary health care center in Tarragona, Spain, and the sample consisted of 122 family caregivers who were included in the home care service, and 10 nurses who participated in the intervention group. Family caregivers with evident symptoms of anxiety, depression and emotional distress received PST in the intervention group. The intervention group also consisted of a discussion with eight nurses, which was transcribed and submitted to content analysis. Conclusion Problem-Solving Therapy proved to be effective in reducing perceived anxiety, depression and emotional distress. We identified its strong points and obstacles as described by nurses.



Experiences and Attitudes of Patients With Terminal Cancer and Their Family Caregivers Toward the Disclosure of Terminal Illness

2010 ◽  
Vol 28 (11) ◽  
pp. 1950-1957 ◽  
Author(s):  
Young Ho Yun ◽  
Yong Chol Kwon ◽  
Myung Kyung Lee ◽  
Woo Jin Lee ◽  
Kyung Hae Jung ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Family Caregivers ◽  
Emotional Distress ◽  
Terminal Illness ◽  
Terminal Cancer ◽  
Related Quality ◽  
Health Related ◽  
Caregiver Group ◽  
Terminal Diagnosis

Purpose We investigated the experiences of cancer patients and their family caregivers who became aware that the cancer was terminal, how they became aware, and how they felt about disclosure of the information. Patients and Methods In this cohort study, we administered questionnaires to 619 consecutive patients determined by physicians to be terminally ill and to their family caregivers. Results A total of 481 patients and 381 family caregivers completed the questionnaire. A majority of patients (58.0%) and caregivers (83.4%) were aware of the patient's terminal status. Approximately 28% of patients and 23% of caregivers reported that they guessed it from the patient's worsening condition. The patient group was more likely than the caregiver group (78.6% v 69.6%) to prefer that patients be informed of their terminal status. Patients informed of their terminal diagnosis had a significantly better quality of life and fewer symptoms and had a lower rate of emotional distress than patients who guessed it from their worsening condition. Younger patients and patients who paid the treatment costs themselves were significantly more likely to want to be told when their illness was terminal. If the patient paid the treatment cost and was employed at the time of the cancer diagnosis, the family caregivers were more likely to prefer disclosure of terminal illness. Conclusion Most patients with terminal cancer and their family caregivers preferred disclosure, and patients who knew of their terminal diagnosis had a lower rate of emotional distress and a higher health-related quality of life.

scholarly journals THE ALZHEIMER’S ASSOCIATION NATIONAL HELPLINE: EFFECTS ON FAMILY CAREGIVERS

2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S217-S217
Author(s):  
Nancy Hodgson ◽  
Darina V Petrovsky ◽  
Beth Kallmyer ◽  
Joanne Pike ◽  
Sam Fazio
Keyword(s):  
Family Caregivers ◽  
Social Isolation ◽  
Emotional Distress ◽  
Emotional Support ◽  
Support Services ◽  
Master's Level ◽  
Limited Access ◽  
Core Content ◽  
Free Resource ◽  
The Mean

Abstract Family caregivers of persons with dementia experience high rates of social isolation and limited access to emotional support. The Alzheimer’s Association National Helpline is an accessible and free resource available 24 hours/day, 365 days/year in which master’s-level clinicians offer confidential emotional support and information on resources in the form of “action steps.” We evaluated the preliminary effectiveness of the Helpline for family caregivers of persons with dementia. Between January and October 2018, 185 non-crisis, caregiver calls to the Helpline were assessed at the time of call, one week, and 1 month post-call for effects on caregivers’ self-reported emotional distress, ability to manage anxiety, implement plan of action and access of services. The mean age of callers was 56 years; 22% were non white; 79% were women. Callers reported significantly (p <.05) improved caregiver emotional distress (27% net improvement) and ability to manage anxiety (29% net improvement). At one week, 70% of callers had put action steps in place, and by 1 month 80% of callers had put action steps into place. Over 80% of callers reported action steps were “helpful” and 65% reported that they had accessed additional dementia support services. This study suggests that support provided via the Alzheimer’s Association National Helpline is effective at reducing caregiver emotional distress and improving the ability of callers to “take action”. The results provide support for a larger study investigating caller characteristics and core content of the calls that provided sustained benefit to standardize the key elements of Helpline calls.

The Contexts of Experiencing Emotional Distress among Family Caregivers to Elderly African Americans

1999 ◽  
Vol 48 (4) ◽  
pp. 391 ◽  
Author(s):  
Peggye Dilworth-Anderson ◽  
Sharon Wallace Williams ◽  
Theresa Cooper
Keyword(s):  
African Americans ◽  
Family Caregivers ◽  
Emotional Distress

scholarly journals Caregiver Burden of Family Caregivers of Patients With Dementia in a Shanghai Community

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 751-751
Author(s):  
Juan Li ◽  
Zhijian Liu ◽  
You Yin
Keyword(s):  
Social Support ◽  
Cognitive Function ◽  
Family Caregivers ◽  
Community Service ◽  
Service Utilization ◽  
Caregiver Burden ◽  
Neuropsychiatric Symptoms ◽  
Demographic Information ◽  
Factors Associated ◽  
Family Caregiver Burden

Abstract This study explored the level of and factors related to Chinese dementia family caregiver burden. We recruited 109 dyads of patients with dementia and their family caregivers from communities in Shanghai, China. Caregiver burden was assessed by Caregiver Burden Inventory. We used multivariate linear regression model to investigate factors associated with caregiver burden, including patients’ socio-demographic information, cognitive function, ADL, neuropsychiatric symptoms, caregivers’ depression, coping strategy, social support and community service utilization. The level of caregiver burden was moderate (65.92±16.74). The patients’ cognitive function and social support were negatively associated with caregiver burden (β=﹣0.850, p＜0.01, β=﹣1.787, p=0.044, respectively). Caregivers’ depression and community service utilization were positively associated with caregiver burden (β=2.109, p＜0.01,β=1.215, p＜0.01, respectively). These findings suggest enhancing social support and reducing depression of caregivers may have the potential of decreasing caregiver burden.

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