scholarly journals Caregiver Burden of Family Caregivers of Patients With Dementia in a Shanghai Community

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 751-751
Author(s):  
Juan Li ◽  
Zhijian Liu ◽  
You Yin
Keyword(s):  
Social Support ◽  
Cognitive Function ◽  
Family Caregivers ◽  
Community Service ◽  
Service Utilization ◽  
Caregiver Burden ◽  
Neuropsychiatric Symptoms ◽  
Demographic Information ◽  
Factors Associated ◽  
Family Caregiver Burden

Abstract This study explored the level of and factors related to Chinese dementia family caregiver burden. We recruited 109 dyads of patients with dementia and their family caregivers from communities in Shanghai, China. Caregiver burden was assessed by Caregiver Burden Inventory. We used multivariate linear regression model to investigate factors associated with caregiver burden, including patients’ socio-demographic information, cognitive function, ADL, neuropsychiatric symptoms, caregivers’ depression, coping strategy, social support and community service utilization. The level of caregiver burden was moderate (65.92±16.74). The patients’ cognitive function and social support were negatively associated with caregiver burden (β=﹣0.850, p＜0.01, β=﹣1.787, p=0.044, respectively). Caregivers’ depression and community service utilization were positively associated with caregiver burden (β=2.109, p＜0.01,β=1.215, p＜0.01, respectively). These findings suggest enhancing social support and reducing depression of caregivers may have the potential of decreasing caregiver burden.

scholarly journals The Burden and Perceived Stress on Family Caregivers of Patients With Orofacial Cleft Deformities in The Perioperative Period of Cleft Repair

2020 ◽  
Vol 7 (6) ◽  
pp. 1602-1609
Author(s):  
Olalere Omoyosola Gbolahan ◽  
Ogunmuyiwa Stella Amiede ◽  
Olowookere Anu Samuel
Keyword(s):  
Family Caregivers ◽  
Caregiver Burden ◽  
Perceived Stress ◽  
Perioperative Period ◽  
Contributing Factors ◽  
Cross Sectional ◽  
Interview Score ◽  
The Family ◽  
Cross Sectional Design ◽  
Family Caregiver Burden

Different stages along the trajectory of cleft care may present with different and peculiar challenges that may negatively impact family caregivers, leading to considerable stress and burden. This study aims to evaluate the family caregiver burden and perceived stress of caring for patients with cleft deformities. Contributing factors to family caregivers’ burden in the perioperative period of cleft repair was also identified. A cross-sectional design that included 90 adult caregiver–patient pairs was employed. Semi-structured questionnaire was used to collect necessary information. The level of caregiver’s burden was assessed using the Zarit burden interview score. The results demonstrated the levels of caregiver burden as severe (4.4%), moderate to severe (21.1%), mild to moderate (40%), and little or none (34.5%). The only significant and independent predictor of caregiver burden was earning less than US$50/month (odds ratio = 2.30, 95% CI = 0.95-5.61, P = .066). Coping strategy was mainly family support (98.9%), while the greatest need expressed was financial assistance (66.7%). Our findings suggests that efforts geared at reducing direct and indirect cost of cleft care may help in reducing caregivers’ burden.

Interventions for Women As Family Caregivers

2001 ◽  
Vol 19 (1) ◽  
pp. 125-142 ◽  
Author(s):  
MARGARET J. BULL
Keyword(s):  
Family Caregivers ◽  
Caregiver Burden ◽  
Family Caregiver ◽  
Family Caregiving ◽  
Nursing Practice ◽  
Long Term Care ◽  
Chronically Ill ◽  
Term Care ◽  
Family Caregiver Burden

Family caregivers are the mainstay of long-term care, as they enable chronically ill elders and children to remain at home. The majority of family caregivers are women and historically their caregiving role has been viewed as an extension of their roles as wife and mother. Although numerous studies report the stresses associated with family caregiving and are predictors of burden, less attention has been given to interventions for family caregivers. The objective of this review is to examine reports of interventions to reduce family caregiver burden, to consider their implications for nursing practice, and to identify directions for future nursing research.

Modifiable factors associated with caregiver burden among family caregivers of terminally ill Korean cancer patients

2014 ◽  
Vol 22 (5) ◽  
pp. 1243-1250 ◽  
Author(s):  
Seok-Joon Yoon ◽  
Jong-Sung Kim ◽  
Jin-Gyu Jung ◽  
Sung-Soo Kim ◽  
Samyong Kim
Keyword(s):  
Cancer Patients ◽  
Family Caregivers ◽  
Caregiver Burden ◽  
Terminally Ill ◽  
Factors Associated ◽  
Modifiable Factors

scholarly journals Societal perceptions of caregivers linked to culture across 20 countries: Evidence from a 10-billion-word database

PLoS ONE ◽  
2021 ◽  
Vol 16 (7) ◽  
pp. e0251161
Author(s):  
Reuben Ng ◽  
Nicole Indran
Keyword(s):  
Social Support ◽  
Family Caregivers ◽  
Caregiver Burden ◽  
Economic Value ◽  
The United States ◽  
Online Media ◽  
Aging Parents ◽  
Culturally Sensitive Interventions ◽  
Negative Perceptions ◽  
Care Deficit

Caregivers play an indispensable role in society. In 2017, 41 million family caregivers in the United States provided approximately 34 billion hours of care to their aging parents, spouses, partners and friends. The estimated economic value of their unpaid contributions amounted to $470 billion. Despite their invaluable contributions, caregivers often operate in a reality of inadequate social support. Little is known about the factors linked to the societal perceptions of caregivers, and our study seeks to contribute by filling this gap. Importantly, whether society honors or stigmatizes caregivers is critical as it could impact caregiving decisions and either exacerbate or ameliorate caregiver burden. We leveraged an online media database of 10 billion words collated from over 28 million articles, across 20 countries, to analyze societal perceptions of caregivers. Of the 20 countries, 18 evidenced neutral to positive perceptions of caregivers. Bangladesh and Ghana had the most positive perceptions, while Sri Lanka and Tanzania had the most negative perceptions. Aging demographics and culture (individualism, masculinity and uncertainty avoidance) were significantly associated with perceptions of caregivers. Findings suggest that positive perceptions of caregivers can be better cultivated when caring is lauded as a virtuous act that aids in reducing the care deficit. This study is among the first to analyze the societal perceptions of caregivers globally, and lays the groundwork to design culturally sensitive interventions that increase society’s appreciation for caregivers.

scholarly journals Factors Related to the Burden of Family Caregivers of Elderly Patients with Spinal Tumours in Northwest China

2020 ◽  
Author(s):  
Jing Luo ◽  
yongchun Zhou ◽  
Haiping Liu ◽  
Jing Hu
Keyword(s):  
Social Support ◽  
Elderly Patients ◽  
Family Caregivers ◽  
Caregiver Burden ◽  
Self Efficacy ◽  
Rating Scale ◽  
Care Process ◽  
Cancer Site ◽  
Spinal Tumours ◽  
Cross Sectional

Abstract Background: Family caregivers of elderly patients with spinal tumours experience considerable pain and burden during the care process. This study aims to investigate the factors associated with caregiver burden in family caregivers of elderly patients with spinal tumours. Methods: A total of 220 elderly patients with spinal tumours (age ≥ 65 years) hospitalized at the spine centre of our hospital from January 2015 to December 2017 and their family caregivers were recruited for this cross-sectional study. All participants completed a sociodemographic questionnaire. Caregiver burden, social support and self-efficacy were assessed by the Chinese version of the Zarit Burden Interview (ZBI), the Social Support Rating Scale (SSRS) and the General Self-Efficacy Scale (GSE), respectively. The factors related to caregiver burden were analysed by multivariate analysis. P < 0.05 was considered statistically significant. Results: The 216 elderly patients with spinal tumours were 71.59 ± 8.49 years old, and their caregivers were 70.46 ± 9.13 years old. A total of 170 patients were cared for by their spouses, who accounted for 78.7% of all caregivers. The ZBI score for the family caregivers was 35.5 ± 7.5, and most caregivers (84.5%) reported a moderate or heavy burden. The factors related to caregiver burden included patient paralysis, the primary cancer site, chemotherapy and/or radiation, cognitive dysfunction, functional status, monthly income, pain score, caregivers’ SSRS score, and GSE score. Conclusions: Most family caregivers of elderly patients with spinal tumours have a considerable caregiver burden. Interventions based on social support and self-efficacy can help reduce caregiver burden.

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