Family Members Growing Up With Autism: Silent Suffering

2009 ◽  
Author(s):  
Christi L. Menister
Keyword(s):  
2020 ◽  
Vol 3 (1) ◽  
Author(s):  
Lorna Clark

The pressure of family identity and politics affected more than one generation of Burneys. Beyond Frances Burney, and her intense relationship with her father Charles Burney, were other family members who also felt the pressure to “write & read & be literary.” These tendencies can be seen most clearly in the works of juvenilia preserved in the family archive. A commonplace book bound in vellum has been discovered that preserves more than one hundred poems, mostly original compositions written by family and friends. The activity of commonplacing reflects a community in which reading and writing are valued. Collected by the youngest sister of Frances Burney, they seem to have been copied after she married. The juvenile writings of her nieces and nephews preponderate, whose talents were encouraged, as they give versified expression to their deepest feelings and fears. Literary influences of the Romantic poets can be traced, as the young authors define themselves in relation to these materials. Reflecting a kind of self-fashioning, the commonplace book helps these young writers explore their sense of family identity through literary form. This compilation represents a collective expression of authorship which can inform us about reading and writing practices of women and their families in the eighteenth century.


Author(s):  
Markus Reuber ◽  
Gregg H. Rawlings ◽  
Steven C. Schachter

This chapter describes the experience of a specialist cognitive behavioral therapist in Non-Epileptic Attack Disorder (NEAD). Offering therapy for people with NEAD can involve frustrations, difficulties, concerns, and, without a doubt, imposter syndrome. Nevertheless, knowing someone personally growing up with NEAD definitely inspired the therapist to work in this field. The therapist also had an understanding of what NEAD was as a layperson before the therapist became a professional. Moreover, the therapist had lived experience of how this condition affects the person and how it affects family members and friends, relationships, and careers. It creates worry and uncertainty in everyone around, in terms of what the problem is and how to help. Fortunately, the therapist learned quickly about the mind and body connection and how to explain this to patients, and it started to click with people and improve helpful engagement. The more the therapist became experienced, the more the therapist understood, and the less people had episodes in their assessments.


2021 ◽  
Vol 6 (3) ◽  
pp. 75-78
Author(s):  
Rayees Ahmad

Seamus Heaney is considered one of the greatest poets of the postmodern era, his name and fame travelled across the Irish borders by winning the 1995 Nobel Prize in literature. Seamus Heaney was born in Ireland; he was the only child in his family to attend the school, His family members were traditional potato farmers. Seamus Heaney broke his family tradition of farming by choosing to become a writer. While growing up to become a first graduate among his family Seamus Heaney’s mind was captured by this sense of gloom that he was unable to follow his family tradition of farming. Seamus Heaney promises himself that he will pay rich tribute and let the world know about the hardships of Irish farming life. Seamus Heaney’s main concern for writing poetry was to keep alive Irish culture and its heritage alive. Since Ireland was under the colonial rule of England and Seamus Heaney was of the view that colonization is not only a political problem, but it destroys the country's culture and identity. This was the main reason that Heaney’s poetry revolves around Irishness, its people and culture. There is an enormous reflection of Irish identity and culture in his poetry. This paper will focus on elements of Irishness in Seamus Heaney’s poem ‘Digging’. 


Orca ◽  
2018 ◽  
Author(s):  
Jason M. Colby

By early 1968 , Cecil Reid Jr. had given some thought to orcas. A gill net fisherman based in Pender Harbour, the thirty-one-year-old Reid—“Sonny” to his friends—had seen many killer whales over the years. As a boy growing up in the 1940s, he heard locals grumble about blackfish, and he watched family members take shots at the animals as they passed by. “My grandfather lived out around the corner from Irvine’s Landing,” he recalled, “and when the whales showed up, they would get the guns out and start shooting them.” Yet Reid knew live killer whales had become lucrative commodities, and when his father suggested catching one, he decided to give it a try. It was winter, however, and there weren’t many orcas around. Then, to his surprise, they came to him. In the late afternoon of Wednesday, February 21, a pod wandered into Pender Harbour, passing Reid’s waterfront home on Garden Bay. Momentarily stunned, Reid raced down to his boat, Instigator One. “I just happened to have my San Juan net still on the drum—which is a lot deeper and touched bottom,” he later recounted. “So when they came into Garden Bay the first time, I just set my net across.” The whales eluded his first attempt, but they lingered in the harbor, and the following morning Reid convinced other fishermen to help him, including several of his brothers and members of the local Cameron and Gooldrup families. In all, nine fishermen worked to seal off Garden Bay, and as the sun set over Irvine’s Landing, Reid felt certain they had trapped at least three orcas. But that night, one of the nets tore loose, and in the morning only one whale remained. Disappointed, Reid and his partners secured the animal—a fifteen-footer they believed to be male. Like those caught previously, the trapped orca hesitated to challenge the frail net surrounding him, much to the fishermen’s relief. Within minutes, the animal was swimming placidly in its makeshift enclosure. “Maybe it likes it here,” mused Reid.


Author(s):  
Howard Pollack

This chapter discusses Latouche’s background growing up in Richmond, Virginia. It includes brief discussion of such leading local artistic figures of the time as James Branch Cabell, Ellen Glasgow, and John Powell, all of whom played some role, even if indirectly, in his life. This chapter also explores Latouche’s deception regarding basic facts about his life and background, including his age and his Jewish roots on his mother’s side. This chapter also covers his parents’ marriage and divorce, and his relationship with his mother, brother, and other family members. Some consideration is given to Richmond’s Jewish community, and Latouche’s religious affiliation and spiritual interests.


2021 ◽  
Vol 7 (1) ◽  
pp. 69-81
Author(s):  
Tiiu Tammemäe ◽  
Lii Lilleoja ◽  
Mari-Liis Valma

There are many children with special needs whose siblings play an important role in their lives for a longer time than other family members. Longer life expectancy and the deepening of disabilities bring along a higher need of being taken care of. When the parents grow older it is often the siblings who become the caretakers. Meyer & Vadasy (2007) found that if siblings of children with SEN get proper support and information while growing up, the well-being of siblings with special needs also increases. Relationship with a sibling with special needs influences development of adaptability and self-esteem, this influence can be positive or negative (Burke, 2008). The parents of the children with SEN have many ways to receive information or help from the family – doctors, therapists, consultants, teachers, books, etc. The siblings in their turn usually get their information from the parents. (Conway & Meyer, 2008) Family members of different ages need different information. Therefore, there should be research on what kind of experiences do the siblings of the disabled child need, how their needs and well-being are guaranteed, and what kind of support they need. The aim of this study is to describe the experiences of brothers and sisters with siblings with special needs, try to understand their need for support, and find out the need for support groups and camps.


Author(s):  
David Meek

Conversations at the dinner table typically involve reciprocal and contingent turn-taking. This context typically includes multiple exchanges between family members, providing opportunities for rich conversations and opportunities for incidental learning. Deaf individuals who live in hearing non-signing homes often miss out on these exchanges, as typically hearing individuals use turn-taking rules that differ from those commonly used by deaf individuals. Hearing individuals’ turn-taking rules include use of auditory cues to get a turn and to cue others when a new speaker is beginning a turn. Given these mechanisms, hearing individuals frequently interrupt each other—even if they are signing. When deaf individuals attempt to obtain a turn, they are frequently lost in the ongoing dialogue. This experience, wherein deaf individuals are excluded from the flow of conversations at mealtime, is known as the dinner table syndrome. This study documents deaf adults’ retrospective experiences with dinner table syndrome growing up. Personal interviews and a focus group were used to explore how deaf adults experienced conversations during family dinner gatherings. A phenomenological approach was used for analysis. Developed themes include: Missing out on Communication and Language with Hearing Family Members, Access to Current News and Events, Conversational Belonging and Sense of Exclusion within the Family, and the Realization of Missing Out on Conversations. These themes revealed the essence of Loved, yet Disconnected. Results of this qualitative research study can help identify what happens when participants miss cues during dinner table conversations, leaving them out of the conversation.


2020 ◽  
Vol 1 ◽  
pp. 23-33
Author(s):  
Maja Verdonik ◽  
Josipa Kovač

With an insight into the theoretical determinants of the children’s novel and the theme of the family in the Croatian children’s novel, the paper presents the importance and role of the family in the literary trilogy Golden Days (Zlatni danci), written by one of the founders of Croatian children’s realistic prose, Jagoda Truhelka. The aim of the paper is through analysis of the available scientific sources and literary texts to present the literary motifs present in describing the image of the family in the literary trilogy Golden Days (Zlatni danci). Jagoda Truhelka introduces readers to her idyllic childhood, which is characterized by family harmony, the Christian spirit in raising children, patriotism and the interdependence of children and parents. These are the values on which, as constituent components, the analysis of the image of the family in Truhelka’s children’s novels, presented in the paper, is based. The literary trilogy Golden Days (Zlatni danci) depicts a tightly structured, homogeneous family in which the father-teacher played a major role. Religious principles were a guide in the upbringing of children, based on Christian principles also present in the descriptions of religious holidays and customs. Nurturing patriotism is evident in everyday storytelling and children’s games, with the father once again being the one who played the most important role in it. Child and parental interdependence are present in the constant care of family members for each other, especially in moments of children getting into trouble in situations where parents were not present. Growing up in Jagoda Truhelka’s family was happy because it gave the children what every child deserves: love, attention, feelings of security, belonging, tenderness and respect. The image of such a family, presented in the literary trilogy Golden Days (Zlatni danci), certainly still contributes to the upbringing of today’s children.


2016 ◽  
Vol 33 (3) ◽  
pp. 363-390 ◽  
Author(s):  
Elena Jerves ◽  
Lucia De Haene ◽  
Paul Enzlin ◽  
Peter Rober

Although transnational migration and its impact on families and society has received considerable attention from scholars, still little is known about its effects on the family members who stay in their home country. The aim of this qualitative study was to explore adolescents’ experiences of close relationships in the context of transnational migration. The study was based on in-depth interviews with male and female adolescents whose parents had migrated. For administration of these interviews, a tool consisting of 15 pieces of wood was developed in order to invite participants to represent family members in an expressive modality that could facilitate discussion and decrease tension provoked by parental migration. Thematic analysis showed that adolescents experienced growing up within tri-generational families whose structure and dynamics allow for a sense of stability. In these families, adolescents experience meaningful relationships that are important sources of support to cope with the delicate emotional situation inherent in transnational families. However, the present study also revealed that adolescents experience the relationship with their migrant parents as a recurrent source of distress and emotional ambivalence, leading to a potential perspective on the parent-child separation in the context of transnational migration as an experience of an ambiguous loss.


2013 ◽  
Vol 53 (3-4) ◽  
pp. 353-387 ◽  
Author(s):  
Thomas Hegghammer

ʿAbdallāh ʿAzzām (1941–1989) helped make jihadism more transnational by spearheading the effort to bring Muslim foreign fighters to Afghanistan in the 1980s. But why would a West Bank native devote himself to a war in Central Asia and not to the Palestinian struggle? In order to understand ʿAzzām’s unusual ideological trajectory, this article examines his relationship with Palestine, notably his experiences growing up in the territories, the extent of his involvement in the armed Palestinian struggle, and his views on the conflict with Israel. The article draws on previously underexploited primary sources, including ʿAzzām’s own writings, rare Arabic-language biographies, and interviews with family members. I argue that ʿAzzām’s Palestinian background predisposed him to transnational militancy. His exile in 1967 made him an aggrieved and rootless citizen of the Islamic world. His time fighting the Israel Defense Forces with the Fedayeen in 1969–70 gave him a taste of combat and a glimpse of pan-Islamic solidarity in practice. The inaccessibility of the battlefield after 1970 combined with ʿAzzām’s distaste for the leftist PLO led him to pursue the more accessible jihad in Afghanistan instead. There, he hoped to build an Islamist army that could reconquer Palestine. When Ḥamās rose as a military organization in the late 1980s, ʿAzzām embraced and supported it. Thus ʿAzzām was, to some extent, a byproduct of the Israeli-Palestinian conflict.



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