Food For Thought: Self-Criticism and Raising the Bar of Dysphagia Practice

2009 ◽  
Vol 18 (2) ◽  
pp. 68-77 ◽  
Author(s):  
Joe Murray
Keyword(s):  
Quality Of Life ◽  
Skills Training ◽  
Swallowing Disorders ◽  
Assessment Protocol ◽  
Practice Recommendations ◽  
Speech Language Pathologist ◽  
Assessment And Treatment ◽  
Swallowing Assessment ◽  
Critical Overview

Abstract The assessment and treatment of swallowing disorders have become central to the practice of the medical speech-language pathologist. The outcomes associated with swallowing and swallowing disorders are severe with aspiration pneumonia, malnutrition and dehydration, and reduced quality of life among the most concerning. Clinicians practicing in this area possess unequal skills, training, and experience, and there is considerable variation in practice in the field. This article focuses on variation and error in swallowing assessment with attention to reliability and accuracy of the videofluoroscopic swallowing assessment. In this self-critical overview of the practice, recommendations are made for developing a standardized assessment protocol, shared lexicon, and specialty recognition in the area of swallowing and swallowing disorders.

scholarly journals Role of speech language pathologist in the speech and swallowing assessment and management of laryngectomee - presented with a case report

2020 ◽  
Vol 71 ◽  
pp. 123-126
Author(s):  
Perumal Santhanam Divya ◽  
R. Sai Sreya
Keyword(s):  
Quality Of Life ◽  
Total Laryngectomy ◽  
Speech Language Pathology ◽  
Speech Language Pathologist ◽  
Language Pathology ◽  
Swallowing Difficulty ◽  
Tracheoesophageal Puncture ◽  
Swallowing Assessment

The primary goal of a speech-language pathologist in a laryngectomee is to restore the clients’ functional speech ability, facilitate comfortable swallowing, and, thus, improve the quality of life. The client, a 65-year-old female, came to the department of speech-language pathology for evaluation. She was diagnosed with carcinoma in the glottic and supraglottic region and had undergone. Total laryngectomy with hemithyroidectomy with primary tracheoesophageal puncture and voice prosthesis inserted. The client had lost her voice completely and had swallowing difficulty and presented with the complaint of food getting stuck in the throat and increased duration of swallowing.

scholarly journals Delayed Surgery after Neoadjuvant Treatment for Rectal Cancer Does Not Lead to Impaired Quality of Life, Worry for Cancer, or Regret

Cancers ◽  
2021 ◽  
Vol 13 (4) ◽  
pp. 742
Author(s):  
Vincent Maurice Meyer ◽  
Richtje R Meuzelaar ◽  
Yvonne Schoenaker ◽  
Jan-Willem de Groot ◽  
Edwin de Boer ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Rectal Cancer ◽  
Neoadjuvant Treatment ◽  
Response Assessment ◽  
Assessment Protocol ◽  
Delayed Surgery ◽  
Surgery Group ◽  
Repeated Response ◽  
Immediate Surgery

Non operative management of complete clinical responders after neoadjuvant treatment for rectal cancer enjoys an increasing popularity because of the increased functional outcome results. Even a near complete response can evolve in a cCR, and therefore further delaying response assessment is accepted. However, up to 40% of patients will develop a regrowth and will eventually require delayed surgery. It is presently unknown if and to what extent quality of life of these patients is affected, compared to patients who undergo immediate surgery. Between January 2015-May 2020, 200 patients were treated with neoadjuvant therapy of whom 94 received TME surgery. Fifty-one (59%) of 87 alive patients returned the questionnaires: 33 patients who underwent immediate and 18 patients who underwent delayed surgery. Quality of life was measured through the QLQ-C30, QLQ-CR29, and Cancer Worry Scale questionnaires. Regret to participate in repeated response assessment protocol was assessed through the Decision Regret Scale. Exploratory factor analysis (EFA) and a ‘known groups comparison’ was performed to assess QLQ questionnaires validity in this sample. Higher mean physical function scores (89.2 vs. 77.6, p = 0.03) were observed in the immediate surgery group, which lost significance after correction for operation type (p = 0.25). Arousal for men was higher in the delayed surgery group (20.0 vs. 57.1, p = 0.02). There were no differences between surgical groups for the other questionnaire items. Worry for cancer was lower in the delayed surgery group (10.8 vs. 14.0, p = 0.21). Regret was very low (12–16%). EFA reproduced most QLQ C-30 and CR29 subscales with good internal consistency. Quality of life is not impaired in patients undergoing delayed TME surgery after neoadjuvant treatment for rectal cancer. Moreover, there is very low regret and no increase in worry for cancer. Therefore, from a quality of life perspective, this study supports a repeated response assessment strategy after CRTx for rectal carcinoma to identify all complete responders.

scholarly journals Quality of life in multiple sclerosis: The differential impact of motor and cognitive fatigue

2021 ◽  
Vol 7 (1) ◽  
pp. 205521732199604
Author(s):  
Sabina David Ruban ◽  
Claudia Christina Hilt ◽  
Thor Petersen
Keyword(s):  
Quality Of Life ◽  
Multiple Sclerosis ◽  
Short Form ◽  
Cross Sectional Study ◽  
University Hospital ◽  
Cognitive Fatigue ◽  
Cross Sectional ◽  
Impact Scale ◽  
Assessment And Treatment

Background Multiple sclerosis is a chronic disease leading to reduced quality of life. Objectives To investigate whether motor and cognitive fatigue impact differently on aspects of quality of life among patients with multiple sclerosis, independently from bodily disability. Methods 79 patients with multiple sclerosis from Aalborg University Hospital, Denmark were included in an observational, cross-sectional study. Each subject completed two separate questionnaires regarding fatigue (Fatigue Scale for Motor and Cognitive Functions and Modified Fatigue Impact Scale) and one regarding quality of life (Short Form 36). Disability was measured with the Expanded Disability Status Scale (EDSS)-scores obtained from patient records. Results All fatigue scores were significantly correlated to all areas of quality of life (p < 0,05). This remained significant after adjustment for age, disease duration and EDSS-score. When looking at each type of fatigue separately, cognitive fatigue correlated mainly with mental health aspects of quality of life and motor fatigue with physical health areas of quality of life. Conclusion Increased motor and cognitive fatigue lead to a differential reduction in physical and mental quality of life, independently of bodily disability. This underlines the importance of proper assessment and treatment of fatigue among patients with multiple sclerosis.

scholarly journals Problem-Solving Skills Training for Vulnerable Families of Children with Persistent Asthma: Report of a Randomized Trial on Health-Related Quality of Life Outcomes

2010 ◽  
Vol 35 (10) ◽  
pp. 1133-1143 ◽  
Author(s):  
Michael Seid ◽  
James W. Varni ◽  
Pradeep Gidwani ◽  
Leticia Reyes Gelhard ◽  
Donald J. Slymen
Keyword(s):  
Quality Of Life ◽  
Problem Solving ◽  
Persistent Asthma ◽  
Skills Training ◽  
Health Related Quality ◽  
Vulnerable Families ◽  
Related Quality ◽  
Health Related ◽  
Parent Proxy

Abstract Objectives To test the efficacy of problem-solving skill training (PST) in improving health-related quality of life (HRQOL) of children with persistent asthma from predominantly lower socioeconomic status (SES) Spanish-speaking Hispanic families. Methods Randomized controlled trial comparing standard care waitlist (SC) control, home-visiting asthma education/care coordination (CC), and combined intervention (CC + PST) at baseline, after intervention, and 6-month follow-up. The primary outcome was parent proxy-report child HRQOL (PedsQL). Results Participants (n = 252) were 83.3% Hispanic and 56.3% monolingual Spanish speakers, and 72.6% of mothers had not graduated high school. We found a significant (P = 0.05) intervention effect for parent proxy-reported child generic (but not asthma-specific) HRQOL, with CC + PST superior to SC [83.8 vs 79.8; adjusted mean difference of 4.05 points (95% confidence interval 0.63–7.4], but no difference between the CC and SC groups. Conclusions In this sample of vulnerable families of children with persistent asthma, a CC + PST intervention was efficacious in improving children’s generic HRQOL.

Quality of Life and Psychosocial Functioning in OCD

2017 ◽  
Author(s):  
Christina L. Boisseau ◽  
Carly M. Schwartzman ◽  
Steven A. Rasmussen
Keyword(s):  
Quality Of Life ◽  
Family Relationships ◽  
Psychosocial Functioning ◽  
Chronic Medical Conditions ◽  
Physical And Mental Health ◽  
Obsessive Compulsive ◽  
Adequate Treatment ◽  
Compulsive Disorder ◽  
Assessment And Treatment

This chapter examines quality of life (QoL) and psychosocial functioning in obsessive-compulsive disorder (OCD). More specifically, it summarizes recent investigations demonstrating that: (1) OCD negatively impacts multiple areas of life, such as social and family relationships, functioning at work and in the household, and aspects of physical and mental health; (2) the negative relation between OCD and QoL is as great as (or greater than) that observed in other psychiatric disorders and chronic medical conditions; (3) the degree of the QoL impairment is generally proportional to the severity of OCD symptoms; (4) specific OCD symptoms differentially impact aspects of psychosocial functioning; and (5) adequate treatment of OCD is associated with significant improvements in QoL. Finally, the chapter discusses future perspectives involved in the evaluation of QoL in OCD populations and the critical need to address these issues in assessment and treatment of individuals with OCD.

Feeding and Swallowing Strategies for the Individual With Dementia

2010 ◽  
Vol 15 (2) ◽  
pp. 48-53
Author(s):  
George A. Voyzey
Keyword(s):  
Quality Of Life ◽  
Daily Basis ◽  
Speech Language Pathologist ◽  
The Individual ◽  
Person With Dementia ◽  
Restrictive Diet

As the 24 million individuals living with some form of dementia follow the course of the disease, they experience deterioration in cognitive and swallowing capabilities. The speech-language pathologist can guide the individual and his/her caregivers and family to support a safe intake and the least restrictive diet. This article will familiarize clinicians with feeding and swallowing techniques, as well environmental and physical recommendations to facilitate assessment and management of individuals with dysphagia and dementia. The goal is to ensure the individual with dementia can experience quality of life on a daily basis by focusing on one of the last remaining skills a person with dementia possesses: The ability to eat and enjoy food with both safety and dignity.

scholarly journals Dysarthria and Quality of Life in neurologically healthy elderly and patients with Parkinson's disease

CoDAS ◽  
2015 ◽  
Vol 27 (3) ◽  
pp. 248-254 ◽  
Author(s):  
Camila Lirani-Silva ◽  
Lúcia Figueiredo Mourão ◽  
Lilian Teresa Bucken Gobbi
Keyword(s):  
Quality Of Life ◽  
Parkinson’S Disease ◽  
Parkinson's Disease ◽  
Aging Process ◽  
Negative Impact ◽  
Normal Aging ◽  
Assessment Protocol ◽  
Healthy Elderly ◽  
The Impact

PURPOSE: To compare the speech and voice of Parkinson's disease (PD) patients and neurologically healthy elderly adults (control group, CG), to find out whether these features are related to the disease or the normal aging process, and investigate the impact that dysarthria has on the Quality of Life (QoL) of these individuals. METHODS: This is a cross-sectional study involving 25 individuals, 13 patients with PD and 12 CG. All the participants underwent vocal assessment, perceptual and acoustic analysis, based on "Dysarthria Assessment Protocol" and analysis of QoL using a questionnaire, "Living with Dysarthria". The data underwent statistical analysis to compare the groups in each parameter. RESULTS: In the assessment of dysarthria, patients with PD showed differences in prosody parameter (p=0.012), at the habitual frequency for females (p=0.025) and males (p=0.028), and the extent of intensity (p=0.039) when compared to CG. In QoL questionnaire, it was observed that patients with PD showed more negative impact on the QoL compared to CG, as indicated by the total score (p=0.005) with various aspects influencing this result. CONCLUSION: The degree of modification of speech and voice of patients with PD resembles those seen in normal aging process, with the exception of prosody and the habitual frequency, which are related to the greatest negative impact on the QoL of patients with PD.

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