Patient-Centered Dysphagia Therapy -The Critical Impact of Self-Efficacy

2015 ◽  
Vol 24 (4) ◽  
pp. 146-154 ◽  
Author(s):  
Nicole Rogus-Pulia ◽  
Jacqueline Hind
Keyword(s):  
Self Efficacy ◽  
Patient Centered ◽  
Dysphagia Therapy

Association between Patient Portal Usage and Perceived Patient-Centered Communication among Adults with Cancer: Cross-Sectional Survey Study (Preprint)

2021 ◽  
Author(s):  
Maryum Zaidi ◽  
Daniel J. Amante ◽  
Ekaterina Anderson ◽  
Mayuko Ito Fukunaga ◽  
Jamie Marie Faro ◽  
...  
Keyword(s):  
Logistic Regression ◽  
Health Information ◽  
Information Seeking ◽  
Self Efficacy ◽  
Multinomial Logistic Regression ◽  
Patient Portal ◽  
Health Information Seeking ◽  
Patient Portals ◽  
Patient Centered ◽  
Cancer Management

BACKGROUND Patient-centered communication (PCC) plays a vital role in effective cancer management and care. Patient portals are increasingly available to patients and hold potential as a valuable tool to facilitate PCC. However, whether the use of patient portals may improve perceived PCC or which mechanisms might mediate this relationship has not been studied. OBJECTIVE The primary goal of this study was to investigate the association between the frequency of access to patient portals and perceived PCC in patients with cancer. A secondary goal was to explore whether this association was mediated by patients' self-efficacy in health information seeking. METHODS We used data from the Health Information National Trend Survey 5 (HINTS 5) cycle 3 (2019) and cycle 4 (2020). The present analysis includes 1,222 individuals who self-reported having a current or past diagnosis of cancer. Perceived PCC was measured with a 7-item HINTS derived scale and classified as low, medium, or high. Patient portal usage was measured by a single item assessing the frequency of use. Self-efficacy about health information seeking was assessed with a one-item measure assessing confidence in obtaining health information. We used adjusted multinomial logistic regression models to estimate relative risk ratios (RRR) of the association between patients' patient portal usage and perceived PCC. Mediation by health information self-efficacy was investigated using the Baron and Kenny and Karlson, Holm, and Breen methods. RESULTS 54.5% of the sample reported that they did not access their patient portals in the past 12 months, 12.6 % accessed it 1-2 times, 24.8% accessed it 3-9 times, and 8.2% accessed it 10 or more times. Overall, the frequency of accessing the patient portal was marginally associated (P=0.06) with perceived PCC in an adjusted multinominal logistic regression model. Patients who accessed their patient portal 10 or more times in the previous 12 months were almost 4 times more likely (RRR=3.8; 95% CI 1.6–9.0) to report high perceived PCC. In mediation analysis, the association between patient portal use and perceived PCC was attenuated adjusting for health information seeking self-efficacy, but those with the most frequent patient portal use (ten or more times in the previous 12 months) were still almost 2.5 times more likely to report high perceived PCC (RRR=2.4; 95% CI 1.1–5.6) compared to those with no portal use. CONCLUSIONS PCC is an integral part of patient-centered care. Those who reported the greatest use of patient portals were more likely to report higher perceived PCC. These findings emphasize the importance of encouraging cancer patients and providers to use patient portals to increase patient-centeredness of care and suggest that interventions to promote the adoption and use of patient portals could incorporate strategies to improve health information self-efficacy.

scholarly journals Protocol for a partially nested randomized controlled trial to evaluate the effectiveness of the Scleroderma Patient-centered Intervention Network Support Group Leader EDucation (SPIN-SSLED) Program

Trials ◽  
2019 ◽  
Vol 20 (1) ◽  
Author(s):  
Brett D. Thombs ◽  
◽  
Kylene Aguila ◽  
Laura Dyas ◽  
Marie-Eve Carrier ◽  
...  
Keyword(s):  
Training Program ◽  
Support Groups ◽  
Support Group ◽  
Self Efficacy ◽  
Controlled Trial ◽  
Group Leader ◽  
Group Leaders ◽  
Post Intervention ◽  
Patient Centered ◽  
Patient Support Group

Abstract Background Some people with rare diseases rely on peer-led support groups for disease-specific education and emotional and practical support. Systemic sclerosis (SSc), or scleroderma, is a rare autoimmune connective tissue disease. Many people with SSc cannot access support groups, and, when support groups exist, they may not be sustained due to challenges that could be addressed via leader training. The Scleroderma Patient-centered Intervention Network (SPIN), along with SSc patient organization partners, developed a training program for SSc patient support group leaders, the Scleroderma Support group Leader EDucation (SPIN-SSLED) Program. We recently completed a feasibility trial in which we successfully delivered the program to two groups of support group leaders who reported a high level of satisfaction with the program and its delivery. The primary objective of the full-scale SPIN-SSLED trial is to evaluate the effect of the program on support group leaders’ self-efficacy for carrying out their leadership role. Secondary objectives include evaluating effects on leader burnout, leader satisfaction (participation efficacy), and emotional distress. Methods/design The SPIN-SSLED trial is a pragmatic randomized controlled trial (RCT) in which 180 support group leaders will be randomly allocated to training groups of 6 participants each or to a waitlist control. We will use a partially nested RCT design to reflect dependence between individuals in training groups, but not in the waitlist control. Participants allocated to the training program will receive the 13-module SPIN-SSLED Program, delivered via webinar over the course of 3 months in weekly 60–90-min sessions. The primary outcome is leader self-efficacy, measured by the Scleroderma Support Group Leader Self-efficacy Scale post-intervention. Secondary outcomes are leader self-efficacy at 3 months post-intervention, and leader burnout, volunteer job satisfaction (participation efficacy), and emotional distress post-intervention and at 3 months post-intervention. Discussion The SPIN-SSLED trial will test whether a training program for SSc patient support group leaders increases the self-efficacy of group leaders to carry out leadership tasks. The program has the potential to significantly improve the effectiveness and sustainability of existing SSc support groups, to increase the number of available support groups, and to be adapted for other chronic diseases. Trial registration ClinicalTrials.gov, NCT03965780. Registered on 29 May 2019.

scholarly journals The self-efficacy in patient-centeredness questionnaire – a new measure of medical student and physician confidence in exhibiting patient-centered behaviors

2015 ◽  
Vol 15 (1) ◽  
Author(s):  
Robert Zachariae ◽  
Maja O’Connor ◽  
Berit Lassesen ◽  
Martin Olesen ◽  
Louise Binow Kjær ◽  
...  
Keyword(s):  
Medical Student ◽  
Self Efficacy ◽  
The Self ◽  
Patient Centeredness ◽  
Patient Centered

scholarly journals Training patients to review scientific reports for the Patient-Centered Outcomes Research Institute: an observational study

BMJ Open ◽  
2019 ◽  
Vol 9 (9) ◽  
pp. e028732
Author(s):  
Ilya Ivlev ◽  
Kelly J Vander Ley ◽  
Jack Wiedrick ◽  
Kira Lesley ◽  
Amy Forester ◽  
...  
Keyword(s):  
Observational Study ◽  
Peer Review ◽  
Outcomes Research ◽  
Self Efficacy ◽  
Online Training ◽  
Median Number ◽  
Patient Centered ◽  
Quality Improvement Effort ◽  
Patient Advocates ◽  
Research Institute

ObjectiveThe peer review of completed Patient-Centered Outcomes Research Institute (PCORI) funded research includes reviews from patient reviewers (patients, caregivers, and patient advocates). Very little is known about how best to support these reviewers in writing helpful comments from a patient-centred perspective. This study aimed to evaluate the effect of a new training in peer review for patient reviewers.DesignObservational study.SettingOnline.ParticipantsAdults registered in the PCORI Reviewer Database as a patient stakeholder.InterventionA new online training in peer review.Main outcome measuresChanges in reviewers’ knowledge and skills; change in self-efficacy and attitudes, satisfaction with the training and perceived benefits and relevance of the training.ResultsBefore-after training survey data were analysed for 37 (29.4% of 126) patient reviewers invited to participate in an online training as part of a quality improvement effort or as part of a PCORI peer review. The reviewers improved their answers to the knowledge questions (p<0.001, median number of answers improved 4 (95% CI 3 to 5), large effect size (ES) Cohen’sw=0.94) after the training, particularly in the questions targeting the specifics of PCORI peer review. Reviewers improved their skills in recognising helpful review comments, but those without peer-review background improved proportionally more (p=0.008, median number of answers improved 2 (95% CI 1 to 3), medium ESw=0.60). The use of training modestly increased reviewers’ confidence in completing a high-quality peer review (p=0.005, mean increase in 5-point Likert rating 0.51 (95% CI 0.17 to 0.86), small-to-medium ES Cliff’sdelta=0.32) and their excitement about providing a review slightly increased (p=0.019, mean increase in 5-point Likert rating 0.35 (95% CI 0.03 to 0.68), small ESdelta=0.19). All reviewers were satisfied with the training and would recommend it to other reviewers.ConclusionsTraining improved knowledge, skills and self-efficacy and slightly increased enthusiasm for completing a PCORI peer review.

scholarly journals mHealth Technology and Nurse Health Coaching to Improve Health in Diabetes: Protocol for a Randomized Controlled Trial (Preprint)

2017 ◽  
Author(s):  
Sheridan Miyamoto ◽  
Madan Dharmar ◽  
Sarina Fazio ◽  
Yajarayma Tang-Feldman ◽  
Heather M Young
Keyword(s):  
Diabetes Mellitus ◽  
Type 2 Diabetes ◽  
Randomized Controlled Trial ◽  
Self Efficacy ◽  
Daily Activity ◽  
Controlled Trial ◽  
Health Coaching ◽  
Patient Centered ◽  
Randomized Controlled

BACKGROUND Chronic diseases, including diabetes mellitus, are the leading cause of mortality and disability in the United States. Current solutions focus primarily on diagnosis and pharmacological treatment, yet there is increasing evidence that patient-centered models of care are more successful in improving and addressing chronic disease outcomes. OBJECTIVE The objective of this clinical trial is to evaluate the impact of a mobile health (mHealth) enabled nurse health coaching intervention on self-efficacy among adults with type-2 diabetes mellitus. METHODS A randomized controlled trial was conducted at an academic health system in Northern California. A total of 300 participants with type-2 diabetes were scheduled to be enrolled through three primary care clinics. Participants were randomized to either usual care or intervention. All participants received training on use of the health system patient portal. Participants in the intervention arm received six scheduled health-coaching telephone calls with a registered nurse and were provided with an activity tracker and mobile application that integrated data into the electronic health record (EHR) to track their daily activity and health behavior decisions. All participants completed a baseline survey and follow-up surveys at 3 and 9 months. Primary and secondary outcomes include diabetes self-efficacy, hemoglobin A1c (HbA1c), and quality of life measures. RESULTS Data collection for this trial, funded by the Patient-Centered Outcomes Research Institute, will be completed by December 2017. Results from the trial will be available mid-2018. CONCLUSIONS This protocol details a patient-centered intervention using nurse health coaching, mHealth technologies, and integration of patient-generated data into the EHR. The aim of the intervention is to enhance self-efficacy and health outcomes by providing participants with a mechanism to track daily activity by offering coaching support to set reasonable and attainable health goals, and by creating a complete feedback loop by bringing patient-generated data into the EHR. CLINICALTRIAL ClinicalTrials.gov NCT02672176; https://clinicaltrials.gov/ct2/show/NCT02672176 (Archived by WebCite at http://www.webcitation.org/6xEQXe1M5)

Beliefs, Benefits and Barriers Associated with Physical Activity: Impact of These Factors on Physical Activity in Patients With Type II Diabetes Mellitus

2020 ◽  
pp. 105477382096769
Author(s):  
Hsiang-Ju Hsu ◽  
Ding-Tien Chung ◽  
Li-Yun Lee ◽  
I-Pei Lin ◽  
Shu-Ching Chen
Keyword(s):  
Physical Activity ◽  
Diabetes Mellitus ◽  
Self Efficacy ◽  
Type Ii Diabetes ◽  
Tai Chi ◽  
Type Ii Diabetes Mellitus ◽  
Type Ii ◽  
Patient Centered ◽  
Cross Sectional ◽  
Activity Performance

This study aimed to assess patients’ levels of belief, benefits and barriers toward physical activity, and to identify factors associated with physical activity performance in patients with type II diabetes mellitus (T2DM). The study was carried out using cross-sectional correlation design. Subjects from the endocrinology and metabolism outpatient departments of a teaching hospital in northern Taiwan were recruited by consecutive sampling. A total of 149 patients with type II DM were recruited. More physical activity was associated with stronger physical activity beliefs, including recovery self-efficacy, action and coping planning, and maintenance self-efficacy, which explained 40.9% of variance in physical activity performance. Patient-centered physical activity programs (resistance exercise, daily walking, or Tai Chi exercise) can reduce patients’ barriers toward performing physical activity.

scholarly journals CANCER, COGNITION, AND COMMUNICATION: A 2-DAY INTERPROFESSIONAL GERIATRIC PSYCHO-ONCOLOGY SYMPOSIUM

2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S640-S640
Author(s):  
Natalie Gangai ◽  
Ruth Manna ◽  
Smita Banerjee ◽  
Rosario Costas Muniz ◽  
Christian Nelson ◽  
...  
Keyword(s):  
Older Adults ◽  
Decision Making ◽  
Communication Skills ◽  
Cognitive Deficits ◽  
Self Efficacy ◽  
Geriatric Medicine ◽  
Skills Training ◽  
Complex Case ◽  
Patient Centered ◽  
Cognitive Changes

Abstract Background: Most cancer deaths are in patients older than 65 years. Healthcare professionals (HCPs) caring for older adults with cancer must be equipped with skills to manage cognitive related changes and the nuances of communication with patients and caregivers. Methods: A two-day interprofessional symposium was developed to increase knowledge regarding 1) chemotherapy-related cognitive changes; 2) distress, delirium, dementia and depression in older cancer patients; 3) communication with patients with cognitive deficits and their caregivers; 4) decision making capacity. Presenters include geriatric medicine, geriatric psychiatry, occupational therapy and legal, ethics and communication experts. Day one centered on didactics with a complex case interprofessional discussion. Day two comprised of a communication skills training consisting of three modules: Geriatrics 101, Communication and Cognitive Deficits and Shared Decision Making. Participants role-played with simulated older adult patients and caregivers. Knowledge, self-efficacy and satisfaction were assessed. Results: A total of 75 people attended day one and 33 people attended day two. Most attendees were white (74.4%) and female (85.4%). Nurses (36.6%), social workers (29.3%), physicians (14.6%), others (19.5%) were represented. Mean knowledge increased (t=-3.23, df (13), p&lt;0.05) from pre (M=0.83) to post (M=0.96). Mean self-efficacy in communication skills increased significantly across the three modules from 3.33 to 4.51 on a 5-point Likert scale (t=-6.40, df=23, p&lt;0.001). Discussion: This two-day symposium shows an increase of knowledge and self-efficacy among HCPs caring for older adults. Skills related to cognitive changes and communication are essential to providing patient-centered care and making shared decisions with older adults and their caregivers.

Impact of a Personal Health Record Intervention upon Surveillance Among Colorectal Cancer Survivors: Feasibility Study (Preprint)

2021 ◽  
Author(s):  
Eric Vachon ◽  
Bruce W. Robb ◽  
David A. Haggstrom
Keyword(s):  
Colorectal Cancer ◽  
Feasibility Study ◽  
Self Efficacy ◽  
Personal Health Record ◽  
Personal Health ◽  
Health Record ◽  
Post Intervention ◽  
Patient Centered ◽  
Patient Beliefs

BACKGROUND There are currently an estimated 1.5 million individuals living in the United States (US) with colorectal cancer (CRC), and although the five-year survival rate has increased, survivors are at risk for recurrence, particularly within the first 2-3 post-treatment. National guidelines recommend continued surveillance post-resection, in order to identify recurrence early on. Adherence among survivors ranges from 49%-94%. Novel interventions are needed to increase CRC survivors’ knowledge and confidence in managing their cancer and thus increase adherence to follow-up surveillance. OBJECTIVE The objective of this study was to develop and test the feasibility and efficacy of a web-based personal health record (PHR) to increase surveillance adherence among CRC survivors, with patient beliefs about surveillance as secondary outcomes. METHODS A pre- and post-intervention feasibility trial was conducted testing the efficacy of the Colorectal Cancer Survivor (CRCS)-PHR, which had been previously developed using an iterative, user-centered design approach. The CRCS-PHR includes surveillance guidelines, treatment tracking, potential treatment toxicities, as well as a journaling tab and communities to interact with other CRC survivors. A total of 28 stage I-III CRC survivors (9 colon, 18 rectal, 1 unknown) were recruited from an academic medical center in the Midwest US. At enrollment, patient demographics and cancer characteristics were gathered via medical record audit. Following enrollment, patients completed surveys at baseline and 6 months post-intervention asking about adherence to colonoscopy, computed tomography (CT) scan, and carcinoembryonic antigen (CEA) and beliefs about surveillance (barriers, benefits, self-efficacy, and knowledge). Paired t-test analyses were used to compare pre- and post-intervention ratings for each of the four patient beliefs categories and surveillance adherence. RESULTS The average age of the sample was 58 years old, with 57% males and the majority being married and employed full time. We observed a significant increase in adherence to colonoscopy (pre: 52% vs. post: 86%, p<.01) and CEA (67% vs. 95%, p=.01), as well as a slight increase in CT scans (67% vs. 84%, p=.1). The only significant impact on secondary outcome (patient beliefs) was benefits of CEA test (p=.04), as most of the beliefs were high at baseline. CONCLUSIONS This feasibility study lays the groundwork for continued development of the CRCS-PHR to increase CRC surveillance. Patient-centered technologies, such as the CRCS-PHR, represent an important potential approach to improving the receipt of guideline-concordant care and follow-up surveillance, not just for CRC survivors. Researchers should continue to develop patient-centered health technologies with clinician implementation in mind to increase patient self-efficacy and surveillance adherence.

Sign in / Sign up

Export Citation Format

Share Document