Congenital cytomegalovirus and its consequences for families

2015 ◽  
Vol 36 (4) ◽  
pp. 165
Author(s):  
Kate Daly ◽  
Janelle Greenlee

Congenital cytomegalovirus (cCMV) is the most common viral and infectious cause of disabilities to newborn babies. It can cause sensorineural hearing loss and deafness, cerebral palsy, verbal, oral and motor dyspraxia, global developmental delay, microcephaly, feeding issues requiring a gastrostomy tube, intellectual disabilities, epilepsy, blindness and death. There are also children with cCMV who are on the autism spectrum however studies have yet to be carried out in this area. For the rest of the family the consequences of cCMV are life changing. Additional pressure on families, separation and divorces between parents, financial hardship, health issues such as anxiety, depression and chronic back problems are just a few examples. Siblings can often find themselves in carer roles, they will often have less time with their parents and are also at risk of having their own health issues such as anxiety.

2018 ◽  
Vol 3 (3) ◽  
pp. 85-89
Author(s):  
Sima Noohi ◽  
Mohammad Ghalamfarsa ◽  
Esmat Davoudi Monfared

Background: The birth of a child with a hearing disability is a stressful event in the family. Since consanguineous marriages are associated with the incidence of congenital hearing loss, it is expected that such parents will experience greater psychological problems. Objective: The current study investigated and compared anxiety, depression, and stress in parents of children with severe hearing loss who have undergone cochlear implantation with a focus on the relation between parents (consanguineous vs. non-consanguineous). Methods: This cross-sectional study was conducted on all 180 couples (360 individuals) who had become parents and attended Baqiyatallah hospital’s Cochlear Implant Center from 2007 to 2009. The participants included two groups of consanguineous (125 couples) and non-consanguineous (55 couples) parents. After providing consent to participate in this study, the participants completed the short form of the Depression and Anxiety and Stress Scale questionnaire (DASS-21). Data analysis was done using SPSS 17 and t test. Results: The participating parents had high levels of depression, anxiety, and stress. Depression and anxiety were significantly higher among the consanguineous parents (P=0.001 and P=0.005, respectively). However, stress levels were not significantly different between the 2 groups. Moreover, compared to the fathers, the mothers had higher levels of depression, anxiety, and stress (P<0.05). Conclusion: Based on these findings, it may be concluded that the birth of a child with hearing loss can be the source of psychological problems in parents, particularly in consanguineous parents. Furthermore, mothers are more psychologically vulnerable than fathers.


Author(s):  
Aili Hanim Hashim ◽  
Manveen Kaur ◽  
Norharlina Bahar ◽  
Wan Salwina Wan Ismail

Parenting children with intellectual disabilities is challenging. Many of these children are misunderstood, while parents are often blamed for the difficulties. The reality is that parents of such children are themselves unable to understand the nature of their child's difficulties, what more to cope with the child. The child's difficulties poses challenge for the parents and siblings, and many parents struggle. The chapter will discuss types of problems faced by the children with mental disability, their parents and siblings, including the possible impact on mental health of the family. The chapter will as well discuss the impact of mental health difficulties in parents and its impact on their parenting. The chapter hopes to highlight the need to recognize parents who are struggling, what should professionals looked for in their assessment of families with children with intellectual disabilities. Identifying families who are struggling is important as the family environment has an impact on functioning and, consequently, service needs of the child.


Author(s):  
Aili Hanim Hashim ◽  
Manveen Kaur ◽  
Norharlina Bahar ◽  
Wan Salwina Wan Ismail

Parenting children with intellectual disabilities is challenging. Many of these children are misunderstood, while parents are often blamed for the difficulties. The reality is that parents of such children are themselves unable to understand the nature of their child's difficulties, what more to cope with the child. The child's difficulties pose challenge for the parents and siblings, and many parents struggle. The chapter will discuss types of problems faced by the children with mental disability, their parents and siblings, including the possible impact on mental health of the family. The chapter will as well discuss the impact of mental health difficulties in parents and its impact on their parenting. The chapter hopes to highlight the need to recognize parents who are struggling, what should professionals looked for in their assessment of families with children with intellectual disabilities. Identifying families who are struggling is important as the family environment has an impact on functioning and, consequently, service needs of the child.


PLoS ONE ◽  
2015 ◽  
Vol 10 (4) ◽  
pp. e0124120 ◽  
Author(s):  
Kim Van Naarden Braun ◽  
Deborah Christensen ◽  
Nancy Doernberg ◽  
Laura Schieve ◽  
Catherine Rice ◽  
...  

2020 ◽  
Vol 34 (4) ◽  
pp. 753-772
Author(s):  
Ammar Ahmed ◽  
Muhammad Aqeel ◽  
Tanvir Akhtar ◽  
Sammeen Salim ◽  
Bashir Ahmed

Adaptation level theory of tinnitus and neuropsychological theory of tinnitus are extensively used frameworks for understanding emotional and psychological distress among tinnitus sufferers. Objective of the present study was to investigate potential associations between hearing loss, tinnitus, anxiety, depression, and stress. The Tinnitus Handicap Inventory (Newman, Jacobson, & Spitzer, 1996) and the Depression, Anxiety, Stress Scale (Lovibond & Lovibond, 1995)scales were administered to a sample of 110 tinnitus outpatients recruited from Audiology departments of Lahore and Rawalpindi hospitals. Results revealed tinnitus was positively linked with psychological problems. Additionally, it was established that tinnitus is a positive significant predictor for anxiety, stress and depression. The moderation models related to the interactions between psychological problems and hearing loss were negative significant predictors for tinnitus symptoms. Moreover, the comparative analysis between gender differences revealed a significant diversity in the levels of stress, anxiety, and depression. Results also elucidated that patients at initial stages of hearing loss were more prone towards reporting tinnitus symptoms along with emerging psychological problems.


2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 619-619
Author(s):  
Yeji Hwang ◽  
Nancy Hodgson

Abstract Anxiety and depression are one of the most distressing symptoms for the family caregivers. Little is known about the relationship between sleep impairments and anxiety/depression in this population and how objective and subjective sleep measures differ in relation to anxiety. This study was designed to examine the relationship between sleep impairments and anxiety/depression in people with dementia, using both subjective and objective sleep measures. Among the 170 study participants, 50% (n=85) reported to have anxiety/depression. In univariate logistic regression analyses on anxiety/depression, adjusting for dementia stage, people with more subjective sleep impairment had higher odds of having anxiety/depression (OR=1.111; 95% CI: 1.020-1.211, p=0.016) and people with poorer subjective sleep quality had higher odds of having anxiety/depression (OR=1.702; 95% CI: 1.046-2.769, p=0.032). Objective sleep measures from actigraphy did not show any significant relationships to anxiety/depression. The results suggest that subjective sleep measures are closely related to anxiety/depression in this population.


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