A systematic review of the positive outcomes for family members of people with aphasia

Abstract. Background: Crisis support services play an important role in providing free, immediate access to support people in the community experiencing a personal crisis. Recently, services have expanded from telephone to digital modalities including online chat and text message services. This raises the question of what outcomes are being achieved for increasingly diverse service users across different modalities. Aims: This systematic review aimed to determine the expectations and outcomes of users of crisis support services across three modalities (telephone, online chat, and text message/SMS). Method: Online databases (CINAHL, MEDLINE, PsycARTICLES, PsycINFO, Psychological and Behavioural Sciences Collection) and gray literature were searched for studies measuring expectations and outcomes of crisis support services. Results: A total of 31 studies were included in the review, the majority of which were telephone-based. Similar expectations were found for telephone and online chat modalities, as well as consistently positive outcomes, measured by changes in emotional state, satisfaction, and referral plans. Limitations/Conclusion: There is a paucity of consistent outcome measures across and within modalities and limited research about users of text message/SMS services.

Download Full-text

Bereaved Caregivers/Family Members' Perceived Quality of Dying and Death in Intensive Care: A Narrative Systematic Review

10.26226/morressier.5c76c8bae2ea5a7237612498 ◽

2019 ◽

Author(s):

Mei Ling Lo

Keyword(s):

Systematic Review ◽

Intensive Care ◽

Family Members ◽

Perceived Quality ◽

Quality Of Dying

Download Full-text

Effects of dignity therapy on palliative patients’ family members: A systematic review

Palliative & Supportive Care ◽

10.1017/s147895152100033x ◽

2021 ◽

pp. 1-10

Author(s):

Leonor Grijó ◽

Carolina Tojal ◽

Francisca Rego

Keyword(s):

Systematic Review ◽

Palliative Care ◽

End Of Life ◽

Meaning In Life ◽

Family Members ◽

Cochrane Library ◽

Publication Date ◽

Dignity Therapy ◽

Bibliographic Search ◽

Palliative Patients

Abstract Objective Dignity therapy (DT) is a kind of psychotherapy that identifies the main concerns of end-of-life patients that affect their perception of dignity and helps them to find a new meaning in life. Most prior studies on DT analyze outcomes for palliative care patients. The aim of this systematic review is to explore the outcomes of DT in palliative care patients’ family members. Method In June 2020, a bibliographic search was performed using the terms “Dignity Therapy” and “Palliative Care” in the following databases: Cochrane library, TRIP database, PUBMED, Scopus, and Web of Knowledge. Of the 294 articles found, 8 met the selection criteria and were considered in the present study. No articles were excluded based on their publication date. Results Family members generally believe that DT helps them to better prepare the patient's end-of-life and overcome the bereavement phase. The legacy document was considered a source of comfort, and most would recommend DT to other people in their situation. DT is generally considered as important as any other aspect of the patient's treatment. Significance of results There is evidence of the benefits of DT for palliative patients’ family members. However, there are still few studies that evaluate these outcomes. The existing evidence is poorly generalized, and thus, further studies are needed to deeply explore the benefits of this therapy both for patients and their families.

Download Full-text

Understanding the Needs of Australian Carers of Adults Receiving Palliative Care in the Home: A Systematic Review of the Literature

SAGE Open Nursing ◽

10.1177/2377960820985682 ◽

2021 ◽

Vol 7 ◽

pp. 237796082098568

Author(s):

Elizabeth M. Miller ◽

Joanne E. Porter

Keyword(s):

Systematic Review ◽

Palliative Care ◽

Information Needs ◽

Hospital Admissions ◽

Positive Outcomes ◽

Review Of The Literature ◽

Data Set ◽

Final Data ◽

Perceived Impact ◽

Meta Analyses

Introduction Caring for someone at home requiring palliative care is an ominous task. Unless the current support systems are better utilised and improved to meet the needs of those carers, the demand for acute hospital admissions will increase as the Australian population ages. The aim of this review was to examine the needs of unpaid carers who were caring for adults receiving palliative care in their home in Australia. Methods: A systematic review of the literature was conducted in accordance with the Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) Guidelines between 2008–2020. Results: Only Australian papers were selected due to the intent to understand carers’ needs in the Australian context and 17 papers made up the final data set. Four themes emerged: 1) Perceived factors influencing caregiving; 2) Perceived impact and responses to caregiving; 3) Communication and information needs; and 4) Perceptions of current palliative support services and barriers to uptake. Conclusion: Carers reported satisfaction and positive outcomes and also expressed feeling unprepared, unrecognised, stressed and exhausted.

Download Full-text

Effectiveness of pretend medical play in improving children’s health outcomes and well-being: a systematic review

BMJ Open ◽

10.1136/bmjopen-2020-041506 ◽

2021 ◽

Vol 11 (1) ◽

pp. e041506

Author(s):

Aneesa Abdul Rashid ◽

Ai Theng Cheong ◽

Ranita Hisham ◽

Nurainul Hana Shamsuddin ◽

Dalila Roslan

Keyword(s):

Systematic Review ◽

Health Outcomes ◽

Healthcare Setting ◽

Well Being ◽

Role Playing ◽

Children's Health ◽

Children’S Health ◽

Positive Outcomes ◽

Case Control Studies ◽

Anxiety Levels

BackgroundThe healthcare setting is stressful for many people, especially children. Efforts are needed to mitigate children’s healthcare-related anxiety. Medical play using the Teddy Bear Hospital (TBH) concept can expose children to healthcare settings and help them develop positive experiences in these settings. In this role-playing game, children bring their soft toys and act as parents to the ‘sick’ teddies in a pretend hospital or clinic play setting. The objective of this systematic review is to evaluate the effectiveness of the TBH in improving children’s health outcomes and well-being.MethodsWe searched the reference lists of included studies from four electronic databases (PubMed, CINAHL, Scopus and Google Scholar) from inception until November 2020. We included pre-post, quasiexperimental and case–control studies, as well as randomised controlled trials (RCTs) that discussed medical play using the TBH concept as an intervention. Studies that involved sick patients and used interventions unlike the TBH were excluded. We assessed the quality of the included studies using the Cochrane Collaboration’s ‘Risk of bias’ tool.ResultsTen studies were included in this systematic review. Five specifically investigated the TBH method, while the others involved the same concept of medical play. Only three studies were RCTs. All of the studies report more than one outcome—mostly positive outcomes. Two report lower anxiety levels after intervention. Two found better healthcare knowledge, with one reporting increased feelings of happiness regarding visiting a doctor. Two studies found no change in anxiety or feelings, while another two found increased levels of fear and lowered mood after the medical play (which involved real medical equipment).ConclusionsThe practice of TBH has mostly positive outcomes, with lower anxiety levels and improved healthcare knowledge. Its effectiveness should be verified in future studies using a more robust methodology.PROSPERO registration numberCRD42019106355.

Download Full-text

The effectiveness of family interventions on psychological distress and expressed emotion in family members of individuals diagnosed with first-episode psychosis: a systematic review protocol

The JBI Database of Systematic Reviews and Implementation Reports ◽

10.11124/jbisrir-2014-662 ◽

2014 ◽

Vol 12 (4) ◽

pp. 3-16 ◽

Cited By ~ 1

Author(s):

Wilai Napa ◽

Patraporn Tungpunkom ◽

Terence V McCann

Keyword(s):

Systematic Review ◽

Psychological Distress ◽

Expressed Emotion ◽

Family Members ◽

First Episode Psychosis ◽

First Episode ◽

Systematic Review Protocol ◽

Family Interventions ◽

Episode Psychosis ◽

Review Protocol

Download Full-text

How Involved Should They Be? Students with ASD in Postsecondary Settings and Their Family Members

The Qualitative Report ◽

10.46743/2160-3715/2018.3149 ◽

2018 ◽

Author(s):

Bryan Dallas ◽

Julie Ramisch ◽

Alyssa Ashmore

Keyword(s):

Family Member ◽

Family Members ◽

Autism Spectrum ◽

Postsecondary Students ◽

Positive Outcomes ◽

Mixed Methods Approach ◽

Disability Support ◽

Students With Autism ◽

Family Member Involvement ◽

Member Involvement

We investigated the need for family member involvement for students with Autism Spectrum Disorder (ASD) in postsecondary settings. We also looked at the perceived needed and fulfilled roles of family members and if family member involvement resulted in positive outcomes for postsecondary students with ASD. We surveyed 211 postsecondary Disability Support Professionals (DSPs) through the AHEAD organization. Using a mixed methods approach including inductive content analysis, results primarily indicated that there is a need for family members to be involved non-academically with students with ASD. We discuss roles that DSPs think family members should fulfill versus roles that DSPs think that family members are actually fulfilling. It is apparent that DSPs think family member involvement is important but must be balanced with increasing the independence of students with ASD while enrolled in school.

Download Full-text

What Is the Experience of Practitioners in Health, Education or Social Care Roles Following a Death by Suicide? A Qualitative Research Synthesis

International Journal of Environmental Research and Public Health ◽

10.3390/ijerph16183293 ◽

2019 ◽

Vol 16 (18) ◽

pp. 3293

Author(s):

Hilary Causer ◽

Kate Muse ◽

Jo Smith ◽

Eleanor Bradley

Keyword(s):

Systematic Review ◽

Qualitative Research ◽

Health Education ◽

Service User ◽

Social Care ◽

Family Members ◽

Research Synthesis ◽

Safe Practice ◽

Cultural Contexts ◽

Close Family

Recent research has highlighted that the number of people impacted by a death by suicide is far greater than previously estimated and includes wider networks beyond close family members. It is important to understand the ways in which suicide impacts different groups within these wider networks so that safe and appropriate postvention support can be developed and delivered. A systematic review in the form of a qualitative research synthesis was undertaken with the aim of addressing the question ‘what are the features of the experiences of workers in health, education or social care roles following the death by suicide of a client, patient, student or service user?’ The analysis developed three categories of themes, ‘Horror, shock and trauma’, ‘Scrutiny, judgement and blame’, and ‘Support, learning and living with’. The mechanisms of absolution and incrimination were perceived to impact upon practitioners’ experiences within social and cultural contexts. Practitioners need to feel prepared for the potential impacts of a suicide and should be offered targeted postvention support to help them in processing their responses and in developing narratives that enable continued safe practice. Postvention responses need to be contextualised socially, culturally and organisationally so that they are sensitive to individual need.

Download Full-text

Palliative care for older South Asian migrants: A systematic review

Palliative & Supportive Care ◽

10.1017/s1478951519000397 ◽

2019 ◽

Vol 18 (3) ◽

pp. 346-358 ◽

Cited By ~ 1

Author(s):

Jahan Shabnam ◽

Helle Timm ◽

Dorthe S. Nielsen ◽

Mette Raunkiaer

Keyword(s):

Systematic Review ◽

Decision Making ◽

Palliative Care ◽

South Asian ◽

Family Members ◽

Care Practice ◽

Care Needs ◽

International Evidence ◽

Migrant Families ◽

Care Decision

AbstractObjectiveSouth Asian migrants have a higher burden of life-threatening diseases and chronic diseases compared to other ethnic groups. Yet, knowledge gaps remain around their palliative care needs in the host countries. The aim of the review was to present results from a systematic literature review of available international evidence on experiences with and perspectives on palliative care among older South Asian migrants, relatives, and healthcare providers.MethodsA systematic review in accordance with PRISMA guidelines was conducted in February 2018, searching PubMed, CINAHL, PsychINFO, and EMBASE databases. PROSPERO #CRD42018093464. Studies included empirical research, providing international evidence on experiences and perspectives on palliative care of South Asian migrants and were published between 2000 and 2018. Thematic synthesis was used to analyze data.ResultsA total of 30 articles were included: qualitative (24), quantitative (5), and mixed methods (1). Three main themes were discovered: 1) palliative care practice within the family, 2) trust as a precondition of palliative care, and 3) the importance of knowledge and cultural competency. All the themes, to a greater or lesser extent, are related to access to and use of palliative care services by South Asian migrant families.Significance of resultsInvolvement of family members in palliative care decision making could improve the satisfaction of South Asian migrant families toward the service. For example, Advanced Care Planning involving family members could be a possible way to engage family members in palliative care decision making. Supportive interventions, e.g. providing knowledge, aimed at patients and their family members might improve knowledge and increase awareness among South Asian migrant families of palliative care. Knowledge gained from this review could be implemented with other ethnic minority groups.

Download Full-text