scholarly journals Co-Creative Visual Poetic Inquiry for communicating lived experience of HIV self-management and self-care

2021 ◽  
pp. 1-21
Author(s):  
Caroline Claisse ◽  
Bakita Kasadha ◽  
Abigail C. Durrant
Keyword(s):  
Lived Experience ◽  
Self Care ◽  
Self Management ◽  
Poetic Inquiry

A patient-centered mobile intervention to promote self-management and improve patient outcomes in chronic heart failure: The ManageHF4Life trial (Preprint)

2020 ◽  
Author(s):  
Michael P. Dorsch ◽  
Karen B. Farris ◽  
Brigid E. Rowell ◽  
Scott L. Hummel ◽  
Todd M. Koelling
Keyword(s):  
Heart Failure ◽  
Mobile Application ◽  
Controlled Trial ◽  
Intervention Group ◽  
Self Care ◽  
Self Management ◽  
Control Group ◽  
Patient Centered ◽  
Self Monitoring ◽  
Heart Failure Questionnaire

BACKGROUND Successful management of heart failure (HF) involves guideline based medical therapy as well as self-care behavior. As a result, the management of HF is moving toward a proactive real-time technological model of assisting patients with monitoring and self-management. OBJECTIVE Evaluate the effectiveness of a mobile application intervention that enhances self-monitoring on health-related quality of life, self-management, and reduces HF readmissions. METHODS A single-center randomized controlled trial was performed. Patients greater than 45 years of age and admitted for acute decompensated HF or recently discharged in the past 4 weeks were included. The intervention group used a mobile application (App). The intervention prompted daily self-monitoring and promoted self-management. The control group (No App) received usual care. The primary outcome was the change in Minnesota Living with Heart Failure Questionnaire (MLHFQ) from baseline to 6 and 12 weeks. Secondary outcomes were the Self-Care Heart Failure Index (SCHFI) questionnaire and recurrent HF admissions. RESULTS Eighty-three patients were enrolled and completed all baseline assessments. Baseline characteristics were similar between groups with the exception of HF etiology. The App group had a reduced MLHFQ at 6 weeks (37.5 ± 3.5 vs. 48.2 ± 3.7, P=0.039) but not at 12 weeks (44.2 ± 4 vs. 45.9 ± 4, P=0.778) compared to No App. There was no effect of the App on the SCHFI at 6 or 12 weeks. The time to first HF admission was not statistically different between the App versus No App groups (HR 0.89, 95% CI 0.39-2.02, P=0.781) over 12 weeks. CONCLUSIONS The mobile application intervention improved MLHFQ at 6 weeks, but did not sustain its effects at 12 weeks. No effect was seen on HF self-care. Further research is needed to enhance engagement in the application for a longer period of time and to determine if the application can reduce HF admissions in a larger study. CLINICALTRIAL NCT03149510

scholarly journals The impact of e-Health interventions on promoting Self-Care in Chronic Patients: an Umbrella Review

2020 ◽  
Vol 30 (Supplement_5) ◽  
Author(s):  
E Renzi ◽  
G Gasperini ◽  
V Baccolini ◽  
C Marzuillo ◽  
C De Vito ◽  
...  
Keyword(s):  
Public Health ◽  
Quality Of Life ◽  
Chronic Conditions ◽  
Self Care ◽  
Health Interventions ◽  
Self Management ◽  
Improve Quality ◽  
Umbrella Review ◽  
Copd Patients

Abstract Background Promoting self-care is one of the most promising strategies to manage people with chronic conditions and to improve the Public Health System resilience. In this context, the use of e-Health could facilitate self-care promotion, assure continuity of care and save time. Methods We performed an umbrella review on Cochrane, Scopus, Medline, PsychInfo, CINAHL to analyse e-Health self-care promoting intervention in patients with Type- 2 Diabetes Mellitus (T2DM), Cardiovascular Diseases (CVD) and Chronic Obstructive Pulmonary Disease (COPD) compared to traditional intervention. AMSTAR-2 was used for quality appraisal. Results 10 systematic reviews were included for an amount of 376 RCTs and 3 quasi-experimental studies. All the e-Health interventions retrieved were categorized in 4 subgroups: Phone Reminder, Telemonitoring, Psychoeducational intervention supported by PCs/Apps and Combined Intervention. Nurses (271/379 studies) and physicians (149/379 studies) were the healthcare workers mostly involved in the administration of e-Health interventions. T2DM (5 reviews; 175 studies) and CVD (7 reviews; 164 studies) patients gained more progresses in self-management than COPD patients (3 reviews; 8 studies). E-Health appeared effective both in promoting self-management and disease awareness. Globally, all the e-Health interventions seemed to improve Quality of Life and clinical outcomes. Phone reminders were most effective to increase Medication Adherence. All Causes Mortality registered a positive effect through Telemonitoring. Hospital Admission and Cost-Efficacy were explored only by telemonitoring and it did not show differences with traditional intervention. Conclusions E-Health is an effective strategy to promote self-care in patients with chronic conditions and to improve quality of life and clinical outcomes. Further research is required to test e-Health intervention in COPD patients and to examine if there is different efficacy among e-Health subgroups. Key messages E-Health should be integrated in Primary Care strategies to improve Public Health systems resilience. Nurses, as frontline Primary Health Care workers, should be advised for e-Health administration.

scholarly journals Evaluating the Effect of Knowledge, Attitude, and Practice on Self-Management in Type 2 Diabetic Patients on Dialysis

2016 ◽  
Vol 2016 ◽  
pp. 1-7 ◽  
Author(s):  
Shima Ghannadi ◽  
Atieh Amouzegar ◽  
Parisa Amiri ◽  
Ronak Karbalaeifar ◽  
Zhale Tahmasebinejad ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Microvascular Complications ◽  
Glycosylated Hemoglobin ◽  
Self Care ◽  
Self Management ◽  
Diabetic Patients ◽  
Attitude And Practice ◽  
Knowledge Attitude And Practice

Background.Type 2 diabetes is an increasingly common condition with several preventable microvascular complications such as kidney damage. Nephropathy is expensive to manage, especially as hospital dialysis treatment. Improving patients’ knowledge, attitude, and practice (KAP) toward their condition can achieve better control, delay complications, and improve their quality of life. This study evaluated the KAP and self-care behaviors of diabetic patients on dialysis and variables that affect it.Methods.This cross-sectional study was conducted at Shahid Beheshti academic hospitals of Tehran, Iran. Face-to-face interviews were held to fill five validated questionnaires: three evaluating KAP, one evaluating self-management, and one evaluating quality of life.Result.117 diabetic patients on hemodialysis (42 females) with mean (SD) age of68.70±9.26years were enrolled in the survey. The scores for patient’s KAP, self-care, and quality of life were59.90±11.23,44.27±8.35,45.06±12.87,46.21±10.23, and26.85±13.23, respectively. There was significant negative correlation between patients’ knowledge and attitude with their glycosylated hemoglobin level and their fasting blood sugar. There was significant correlation between patients’ knowledge and practice with their self-care activities.Conclusion.The present study suggests that patients’ KAP scores have a practical effect upon self-care behavior. This highlights the needs for effective diabetes education programs in developing countries like Iran.

Instrumente zur Messung der Selbstpflege bei Patienten mit Herzinsuffizienz. Ergebnisse einer Literaturanalyse

Pflege ◽  
2008 ◽  
Vol 21 (4) ◽  
pp. 235-251 ◽  
Author(s):  
Jörg Haasenritter ◽  
Eva-Maria Panfil
Keyword(s):  
Heart Failure ◽  
Self Care ◽  
Self Management ◽  
Reliabilität Und Validität ◽  
Failure Index

Herzinsuffizienz ist eine häufige Erkrankung, die mit großem Leid für die Betroffenen und hohen Kosten für die jeweiligen Gesundheitssysteme einhergeht. Eine Verbesserung der Selbstpflege soll zu einer Verbesserung der Ergebnisse wie höhere Lebenserwartung, bessere Lebensqualität, geringere Hospitalisationsrate und verminderten Ressourcenverbrauch führen. Um die Effektivität von Interventionen zur Verbesserung der Selbstpflege in Praxis und Forschung zu beurteilen, sind valide und reliable Instrumente zur Messung der Selbstpflege nötig. Ziel der vorliegenden Literaturanalyse ist es, eine Übersicht über die vorhandenen pflegerischen Assessmentinstrumente zur Messung der Selbstpflege bei Herzinsuffizienz zu erstellen und diese in ihrer messtheoretischen Güte zu bewerten. Hierzu wurde in Datenbanken und anschließender Handsuche nach Studien gesucht, in denen Messungen der gesundheitsbedingten Selbstpflege von Patienten mit Herzinsuffizienz durchgeführt wurden. Es konnten fünf Instrumente identifiziert werden: European Heart Failure Self-care Behaviour Scale (EHFScBS); Revised Heart Failure Self-care Behaviour Scale (rHFScBS); Heart Failure Self-Care Inventory (HFS-CI) Self-Management of Heart Failure Scale (SMHF); Self-Care of Heart Failure Index (SCHFI). Jede der besprochenen Skalen besitzt im Hinblick auf die Gütekriterien unterschiedlich ausgeprägt Stärken und Schwächen. Die EHFSCBS, der HFS-CI und der HFSCI können zumindest bedingt für den Einsatz in Forschung in Praxis empfohlen werden. Für alle Instrumente sind aber weitere Überprüfungen im Bereich der Reliabilität und Validität notwendig.

scholarly journals Education for type 2 diabetes mellitus self-care: from compliance to empowerment

2009 ◽  
Vol 13 (30) ◽  
pp. 93-106 ◽  
Author(s):  
Antonio Pithon Cyrino ◽  
Lilia Blima Schraiber ◽  
Ricardo Rodrigues Teixeira
Keyword(s):  
Social Sciences ◽  
Chronic Conditions ◽  
Self Care ◽  
Self Management ◽  
Degenerative Diseases ◽  
Cognitive Autonomy ◽  
The Social ◽  
Transmission Of Information ◽  
Traditional Approaches

Through a critical review of the literature on education for diabetes self-care and self-management, it was sought to point out the inappropriateness of traditional approaches towards compliance with treatment and transmission of information, considering the complexity of self-care under chronic conditions. The influence of the social sciences on the field of studies on chronic degenerative diseases in general, and diabetes in particular, was explored. From this perspective, it can be recognized that the fields of anthropology and sociology have been incorporated into research focusing more on individuals as patients, and on the experience gained through this process. Recently, there has been a slight change within the field of health education research relating to diabetes, with the introduction of strategies that seek to value the experience and autonomy of patients as self-care agents. This paper discusses the strategy for empowerment in education for diabetes self-care and self-management, as a dialogue-focused practice that respects patients' moral and cognitive autonomy.

scholarly journals Diabetic Peripheral Neuropathy and its Association with Diabetes Self-care: A Clinic-based Study in an Urban Health Centre, Kolkata

2021 ◽  
Author(s):  
Mukesh Kumar ◽  
Bobby Paul ◽  
Aparajita Dasgupta ◽  
Lina Bandyopadhyay ◽  
Soumit Roy ◽  
...  
Keyword(s):  
Diabetes Mellitus ◽  
Peripheral Neuropathy ◽  
Scale Score ◽  
Urban Health ◽  
Diabetic Peripheral Neuropathy ◽  
West Bengal ◽  
Self Care ◽  
Self Management ◽  
Health Clinic ◽  
Training Centre

Introduction: Diabetes mellitus is considered as silent epidemic worldwide including India. Peripheral neuropathy is one of the most common complications of diabetes mellitus. Diabetes Self-Management (DSM) is crucial in mitigating the afflictions of diabetes and it’s after effects. There was dearth of studies in view of Diabetic Peripheral Neuropathy (DPN) and diabetes self-management in Kolkata, West Bengal. Aim: To assess the associations between diabetes self-management and DPN in Type 2 Diabetes Mellitus (T2DM) patients attending an urban health clinic in Kolkata. Materials and Methods: This study was conducted from December 2018 to March 2019 among known case of T2DM patients aged 30 years and above attending the Non-Communicable Disease (NCD) clinic at Chetla, under the purview of field practice areas of Urban Health Unit and Training centre (UHU and TC) of All India Institute of Hygiene and Public Health (AIIH and PH) Kolkata, West Bengal. A pre-designed and pre-tested schedule was used to collect data which were analysed using International Business Machines Statistical Product and Service Solutions (IBM SPSS) version 16.0 and represented using various tables. Results: The mean (SD) age of the participants was 54.89 (8.98) years. About 32.4% of the patients had DPN which was significantly associated with increased duration of T2DM {AOR (95% CI)}={1.52 (1.22-1.91)}, lower glucose management sub-scale score {AOR (95% CI)}={2.84 (1.42-5.67)} and lower healthcare use sub-scale score {AOR (95% CI)}={1.86 (1.05-3.31)}. Conclusion: Early screening and education regarding diabetes self-care would be helpful in glycaemic control and in prevention of DPN.

scholarly journals The Effect of Cognitive Behavioral Therapy on Self-Management and Self-Care Behaviors of Type 2 Diabetes Mellitus Patients

2021 ◽  
Vol 16 (1) ◽  
Author(s):  
Jenny Marlindawani Purba ◽  
Hanna Ester Empraninta
Keyword(s):  
Diabetes Mellitus ◽  
Cognitive Behavioral Therapy ◽  
Behavior Therapy ◽  
Cognitive Behavior Therapy ◽  
Behavioral Therapy ◽  
Self Care ◽  
Self Management ◽  
Cognitive Behavior ◽  
Type 2 Dm

<p><em>Diabetes mellitus (DM) is the condition of metabolism affected by chronic hyperglycemia (the increase of glucose levels in the blood) caused by insulin secretion defect. One of the non-pharmacological therapies used to decrease the type 2 DM is cognitive behavioral therapy. The objective of the research was to identify the effect of Cognitive Behavior Therapy (CBT) on self management and self-care behaviors of type 2 DM patients. The research used a quasi-experimental method with a two</em><em>-</em><em>group pretest-posttest design. The samples were 70 respondents with 35 of them were in the intervention group and the other 35 were in the control group, taken by using a consecutive sampling technique. The data were gathered using the Diabetes Self-Management Questionnaires (DSMQ) and the Summary of Diabetes Self-Care Activities (SDSCA) questionnaires. The gathered data were analyzed by using paired t-test, and independent t-test. The results of the study showed that there were significantly differences of mean scores of self management and self care behaviors between intervention and control groups </em>(<em>t</em>=13.24; <em>p</em>=0.00) and<em>(t=14.63,</em><em></em><em>p=0.00), respectively. It is recommended that cognitive behavior therapy can be used as one of the non-pharmacological therapies</em><em></em><em>to change self-care behaviors in type 2 DM patients.</em></p>

Abstract P76: Effect of Patient Activation on Self-Management Behaviors in Heart Failure

2011 ◽  
Vol 4 (suppl_1) ◽  
Author(s):  
Martha Shively ◽  
Nancy Gardetto ◽  
Mary Kodiath ◽  
Ann Kelly ◽  
Tom Smith
Keyword(s):  
Heart Failure ◽  
Usual Care ◽  
Repeated Measures ◽  
Intervention Group ◽  
Patient Activation ◽  
Self Care ◽  
Self Report ◽  
Self Management ◽  
Significant Group ◽  
Repeated Measures Design

Background Disease management and chronic care models have evidenced success with heart failure (HF) patients but have not fully explored patients' engagement/activation in self- care. Objective Determine efficacy of a patient activation intervention (Heart PACT Program) compared to usual care on activation and self-care management in HF. Methods This study was a 4-year, randomized, 2-group, repeated-measures design (baseline, 3 months, and 6 months). Following consent, 84 patients were stratified by activation level and randomly assigned to usual care (n = 41), or usual care plus the activation intervention (n = 43). The primary outcome variables were patient activation using the Patient Activation Measure (PAM) (Hibbard et al., 2005), and self-care using the Self-Care for Heart Failure Index (SCHFI) (Riegel et al., 2004) and the Medical Outcomes Study (MOS) Specific Adherence Scale. The intervention consisted of individual meetings and phone call follow-up over 6 months based on the patient's level of activation: stage 1 or 2 (low activation), stage 3 (medium), or stage 4 (high) as assessed by the patient's self-report PAM score and brief interview. The leaders collaborated with patients to improve activation and self-management of HF: adhering to medications; monitoring weight, blood pressure, and symptoms; and implementing health behavior goals. Findings Participants were primarily male (99%), Caucasian (77%), and classified as NYHA III (52%). The mean age was 66 years (SD 11). The majority (71%) of participants reported 3 or more comorbid conditions. The intervention group compared to the usual care group showed a significant increase in activation/PAM scores from baseline to 6 months (significant group by time interaction linear contrast, F=16.90, p=.02). Although the baseline MOS mean was lower in the intervention group, results revealed a significant group by time effect (F=9.16, p = .001) with the intervention group improving more over time. There were no significant group by time interactions for the SCHFI. Conclusion Patient activation can be improved through targeted intervention. The patient activation model has the potential to change approaches to tailored patient education for self-management in heart failure.

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