The African Immigrant Memory Loss Project: A University-Community Partnership

Abstract The few studies on dementia prevalence in immigrant communities show that immigrants from diverse racial/ethnic backgrounds have a higher prevalence of dementia compared with their U.S.-born counterparts. However, this body of work is small, resulting in a lack of reliable estimates of dementia prevalence among African immigrants. The AIMLP is a partnership between the African Career, Education, and Resources, Inc. (ACER) and the Families and Long-Term Care Projects (FLTC) of the University of Minnesota School of Public Health. Guided by an advisory board, the goal of this project is to develop culturally informed instruments, and use these to collect data to identify dementia care needs, knowledge, and resources in the African immigrant community. Study implementation started in August 2019, five advisory board meetings have been convened and 2 pilot focus groups have occurred. Twelve individuals participated in the focus groups. The majority (90%) were from Liberia and 60% were over the age of 55. Two participants currently care for a family member with dementia. Preliminary findings reveal a great need for education on dementia, and general lack of awareness on management, and limited access to services/supports. Focus groups will be finalized in March and the study survey will be developed and administered in the summer. These survey findings will be available and presented at the conference in November 2020. This is the first project to identify the extent of dementia care needs and resources among African immigrants; which will inform interventions for this population.

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ENHANCING PERSON-CENTERED DEMENTIA CARE BY NURSING HOME STAFF USING MICROLEARNING: LITTLE MESSAGE WITH A BIG IMPACT

Innovation in Aging ◽

10.1093/geroni/igz038.008 ◽

2019 ◽

Vol 3 (Supplement_1) ◽

pp. S3-S3

Author(s):

Jenny Inker ◽

Christine J Jensen ◽

Sonya Barsness

Keyword(s):

Job Satisfaction ◽

Nursing Home ◽

Focus Groups ◽

Long Term Care ◽

Dementia Care ◽

Care Staff ◽

Training Curriculum ◽

Term Care ◽

Online Platform

Abstract Effective training is critical to providing quality care in long-term care environments, where many residents have dementia. Training has been linked to positive resident care outcomes and improved job satisfaction of staff. The aim of this study was to develop, pilot, and evaluate a Microlearning training curriculum, using short (5-10 minute) “bursts” of training available through an online platform on demand (i.e. 24/7). The expected outcomes were to improve staff knowledge, attitudes, and skills regarding person-centered dementia care and to increase job satisfaction. Researchers translated the Centers for Medicare and Medicaid Hand-in-Hand training curriculum into 52 weekly Microlearning lessons delivered via an online platform (accessible by computer, IPad or smart phone) followed by a short quiz. Using pre- and post-tests, nine focus groups, and fourteen telephone interviews, the researchers engaged with a convenience sample of staff (N = 244) working at all levels from direct care to leadership in nine nursing homes in Virginia. Pre- and post-tests comprised items from the Dementia Attitudes Scale and the Nursing Home Nurse Aide Job Satisfaction Scale. Results from a between subjects t-test demonstrated significant improvements in attitudes to people with dementia. Focus groups and interviews revealed high satisfaction with the training with a significant majority agreeing it was a helpful way to learn and that they were able to apply what they had learned to caring for residents. This pilot demonstrates a promising new practice for training long-term care staff. Further research using a control group receiving usual training is indicated.

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The African Immigrant Dementia Education Project: A Community-University Partnership

Innovation in Aging ◽

10.1093/geroni/igab046.1869 ◽

2021 ◽

Vol 5 (Supplement_1) ◽

pp. 486-486

Author(s):

Wynfred Russell ◽

Joseph Gaugler ◽

Manka Nkimbeng

Keyword(s):

Mode Of Delivery ◽

Advisory Board ◽

Immigrant Community ◽

Community Partner ◽

African Immigrant ◽

Education Project ◽

Cultural Considerations ◽

University Partnership ◽

Evidenced Based ◽

Dementia Education

Abstract The African Immigrant Dementia Education project is a community-university partnership with the goal of developing a culturally tailored dementia education program with African immigrants in Minnesota. In collaboration with our community partner (African Career, Education & Resource, Inc.), a project advisory board that features professionals and family members from the African immigrant community was assembled and its first meeting was held in February 2021. Preliminary discussions about content, mode of delivery and cultural considerations of an eventual dementia education intervention have begun. This presentation will offer details on the process of working with an advisory board and community partner to identify and culturally tailor an evidenced-based dementia education curriculum for a unique cultural group. Also, we will present challenges encountered during this process and offer suggestions and strategies to promote successful researcher-community partnerships.

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Using a checklist to facilitate management of long-term care needs after stroke: insights from focus groups and a feasibility study

BMC Family Practice ◽

10.1186/s12875-018-0894-3 ◽

2019 ◽

Vol 20 (1) ◽

Cited By ~ 4

Author(s):

Grace M. Turner ◽

Ricky Mullis ◽

Lisa Lim ◽

Lizzie Kreit ◽

Jonathan Mant

Keyword(s):

Focus Groups ◽

Feasibility Study ◽

Long Term Care ◽

Care Needs ◽

Term Care

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Protocol for conducting scoping reviews to map implementation strategies in different care settings: focusing on evidence-based interventions for preselected phenomena in people with dementia

BMJ Open ◽

10.1136/bmjopen-2021-051611 ◽

2021 ◽

Vol 11 (9) ◽

pp. e051611

Author(s):

Christina Manietta ◽

Tina Quasdorf ◽

Mike Rommerskirch-Manietta ◽

Jana Isabelle Braunwarth ◽

Daniel Purwins ◽

...

Keyword(s):

Complex Interventions ◽

Implementation Strategies ◽

Routine Care ◽

Dementia Care ◽

Evidence Based ◽

Care Needs ◽

Term Care ◽

People With Dementia ◽

Scoping Reviews ◽

Analytical Approaches

IntroductionVarious evidence-based interventions are available to improve the care of people with dementia in different care settings, many of which are not or are only partially implemented in routine care. Different implementation strategies have been developed to support the implementation of interventions in routine care; however, the implementation of complex interventions remains challenging. The aim of our reviews is to identify promising strategies for, significant facilitators of and barriers to the implementation of evidence-based interventions for very common dementia care phenomena: (A) behaviour that challenges supporting a person with dementia in long-term care, (B) delirium in acute care and (C) the postacute care needs of people with dementia.Methods and analysisWe will conduct one scoping review for each preselected dementia care phenomenon (A, B and C). For this, three literature searches will be carried out in the following electronic databases: MEDLINE (via PubMed), CINAHL (via EBSCO) and PsycINFO (via EBSCO). Additionally, we will perform backward and forward citation tracking via reference lists and Google Scholar. Identified records will be independently screened by two reviewers (title/abstract and full text) using the defined inclusion criteria. We will include all study designs and publications in the German or English language. For the data analyses, we will conduct a deductive content analysis using two different analytical approaches: Expert Recommendations for Implementation Change and the Consolidated Framework for Implementation Research.Ethics and disseminationDue to the nature of a review, ethical clearing is not required. We will disseminate our results in peer-reviewed journals, workshops with stakeholders, and (inter)national conferences.

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I Didn’t Really Fully Understand Until I Came Into the States: African Immigrants’ ADRD Introduction and Awareness

Innovation in Aging ◽

10.1093/geroni/igab046.1784 ◽

2021 ◽

Vol 5 (Supplement_1) ◽

pp. 463-464

Author(s):

Kwame Akosah ◽

Tetyana Shippee ◽

Christina Rosebush ◽

Wynfred Russell ◽

Joseph Gaugler ◽

...

Keyword(s):

Mental Illness ◽

Memory Loss ◽

African Immigrants ◽

The United States ◽

Advisory Board ◽

Bad News ◽

Health Issues ◽

African Languages ◽

Mental Health Issues ◽

Dementia Education

Abstract Most African immigrants report that they had never heard about dementia until their arrival in the United States. Conversations and insights from project advisory board meetings of the African Immigrant Memory Loss and Dementia Education projects (5 conversations and 8 meetings in the Minneapolis area) reveal unique cultural and immigrant characteristics surrounding dementia terminology and awareness. Dementia is often lumped together with mental illness which is associated with stigma. In addition to the fear of bad news and death, mental health issues are often considered a result of witchcraft, spiritual attack or punishment. Additionally, there are no traditional or cultural words for dementia in many African languages and current terms used are related to mental illness and all have negative connotations. There is a need to identify appropriate words for dementia in many tribal and immigrant dialects that can facilitate dementia awareness and education programs in African communities.

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The Relative Effects of Normative and Instrumental Models of Policing on Police Empowerment: Evidence From a Sample of Sub-Saharan African Immigrants

Criminal Justice Policy Review ◽

10.1177/0887403416675019 ◽

2016 ◽

Vol 30 (3) ◽

pp. 428-450 ◽

Cited By ~ 7

Author(s):

Daniel K. Pryce

Keyword(s):

United States ◽

Procedural Justice ◽

African Immigrants ◽

The United States ◽

Immigrant Community ◽

African Immigrant ◽

Ghanaian Immigrants ◽

Sub Saharan ◽

And Gender ◽

Using Data

This study examines the relative impacts of normative and instrumental models of policing on willingness to empower the police in a sample of sub-Saharan African immigrants in the United States. Using data from a survey of 304 Ghanaian immigrants, obligation to obey, procedural justice, effectiveness, and gender predicted police empowerment; legitimacy of Ghana police and risk of sanctioning did not. The results also show that obligation to obey may be distinct from legitimacy. The findings from the current study point to the importance of the process-based model of policing in different geopolitical contexts, including the sub-Saharan African immigrant community in the United States. Specifically, obligation to obey and procedural justice play pivotal roles in engendering willingness to empower the police in the sub-Saharan African immigrant community. The implications of these findings are discussed.

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Mehdi Charef and theInvention of Beur Writing

Branding the 'Beur' Author ◽

10.5949/liverpool/9781781381960.003.0002 ◽

2016 ◽

pp. 35-79

Author(s):

Kathryn A. Kleppinger

Keyword(s):

Case Studies ◽

African Immigrants ◽

Political Activism ◽

Immigrant Community ◽

Middle Ground ◽

North African ◽

African Immigrant ◽

Unique Information ◽

Political Intervention ◽

News Programs

After a brief discussion of political activism in the early 1980s by the descendants of North African immigrants to France, this chapter explores the reception and promotion of Mehdi Charef’s début novel, Le thé au harem d’Archi Ahmed (1983). Charef appeared on several top literary, society, and news programs, and successfully established himself as an insider providing new perspectives on France’s North African immigrant community. To better understand the contours of Charef’s media appearances, the chapter also explores the lack of attention accorded to Nacer Kettane’s Le sourire de Brahim and Leïla Sebbar’s Shérazade, 17 ans, brune, frisée, les yeux verts. Kettane promoted his work dogmatically as a political intervention, while Sebbar focused artistic and feminist aspects of her writing. These case studies reveal how Charef successfully positioned himself in a middle ground, as an author who accepted social and political readings of his work but also provided new and unique information on a population that had come to be heavily discussed by journalists and politicians.

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Health Literacy and Long-Term Care Needs among Thai Elderly in Rural Communities

Journal of the Medical Association of Thailand ◽

10.35755/jmedassocthai.2020.12.11213 ◽

2020 ◽

Vol 103 (12) ◽

pp. 1315-1324

Keyword(s):

Depressive Symptom ◽

Health Literacy ◽

Rural Communities ◽

Long Term Care ◽

Health Knowledge ◽

Elderly Persons ◽

Care Needs ◽

Term Care ◽

Study Results

Background: Factors related to long-term care needs have been studied widely, but there is limited research about the influence of health literacy on long-term care needs among the elderly in rural communities where the social context and care environment are uniquely different. Objective: To examine factors influencing long-term care needs among Thai elderly in rural communities. Materials and Methods: The present study used the cross-sectional design. The study sample included 477 elderly persons, who were members of the communities in Nakhon Ratchasima Province. Multi-stage random sampling was used to select participants. They were interviewed using the demographic and health information questionnaire, the Thai Geriatric Depression Scale (TGDS), the health literacy scale of Thai adults and long-term care needs questionnaire. The selected factors examined as independent variables included some demographic factors, depressive symptom, and health literacy. Results: The present study results revealed significant positive relationships existing between long-term care needs with age and depressive symptom, while negative relationships between income and health literacy were reported. A hierarchical multiple regression analysis indicated that four of nine determinants of long-term care needs: age, depressive symptom, health knowledge and understanding, and ability managing their health condition significantly predicted long-term care needs at a level of 18% (R² adjusted=0.18, p<0.001). Conclusion: The present study results showed associations between personal and health literacy factors with long-term care needs. These findings prove that it is vitally important for healthcare professionals to consider the rural elderly’s mental health status and health literacy when providing care and planning treatment. Keywords: Health literacy, Long-term care needs, Rural community

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Perspectives of Survivorship Care Plans Among Older Breast Cancer Survivors: A Pilot Study

Cancer Control ◽

10.1177/1073274820917208 ◽

2020 ◽

Vol 27 (1) ◽

pp. 107327482091720

Author(s):

Jessica L. Krok-Schoen ◽

Michelle J. Naughton ◽

Anne M. Noonan ◽

Janell Pisegna ◽

Jennifer DeSalvo ◽

...

Keyword(s):

Breast Cancer ◽

Health Care ◽

Pilot Study ◽

Focus Groups ◽

Cancer Survivors ◽

Breast Cancer Survivors ◽

Survivorship Care Plan ◽

Survivorship Care ◽

Care Providers ◽

Term Care

The Commission on Cancer’s standard 3.3 represents a paradigm shift in the care of cancer survivors, recommending that survivors receive a treatment summary and survivorship care plan (SCPs). A focus on older breast cancer survivors is needed, as they are the majority of the breast cancer population and their experiences and perspectives of SCPs is limited in the literature. This pilot study utilized a mixed methods approach (focus groups and self-report questionnaire data) to gather information on older (≥65 years) breast cancer survivors’ perspectives of their SCPs, cancer survivorship, and communication with their health-care providers. The questionnaire was completed individually by the participants prior to the focus group and contained items on basic demographics and their health status following cancer treatment. The focus groups indicated that only a minority of women actually developed a SCP. Those who developed a SCP in collaboration with their providers valued the personal care and attention received. However, some participants reported poor communication with their providers and within their health-care team, resulting in frustration and confusion. Participants’ suggestions for ideal SCPs included better education and personalization, particularly in appropriate nutrition and exercise, and managing side effects and comorbidities. Lastly, the women believed that additional long-term care resources, such as health coaches, were important in improving their survivorship. These findings provide insight into enhancing the content, communication, and application of SCPs to improve the survivorship experience of older breast cancer survivors.

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What makes palliative care needs “complex”? A multisite sequential explanatory mixed methods study of patients referred for specialist palliative care

BMC Palliative Care ◽

10.1186/s12904-020-00700-3 ◽

2021 ◽

Vol 20 (1) ◽

Cited By ~ 1

Author(s):

Anne M. Finucane ◽

Connie Swenson ◽

John I. MacArtney ◽

Rachel Perry ◽

Hazel Lamberton ◽

...

Keyword(s):

Palliative Care ◽

Focus Groups ◽

Healthcare Professionals ◽

Psychological Needs ◽

Care Providers ◽

Specialist Palliative Care ◽

Care Needs ◽

Complex Needs ◽

Sequential Explanatory ◽

Palliative Care Needs

Abstract Background Specialist palliative care (SPC) providers tend to use the term ‘complex’ to refer to the needs of patients who require SPC. However, little is known about complex needs on first referral to a SPC service. We examined which needs are present and sought the perspectives of healthcare professionals on the complexity of need on referral to a hospice service. Methods Multi-site sequential explanatory mixed method study consisting of a case-note review and focus groups with healthcare professionals in four UK hospices. Results Documentation relating to 239 new patient referrals to hospice was reviewed; and focus groups involving 22 healthcare professionals conducted. Most patients had two or more needs documented on referral (96%); and needs were recorded across two or more domains for 62%. Physical needs were recorded for 91% of patients; psychological needs were recorded for 59%. Spiritual needs were rarely documented. Referral forms were considered limited for capturing complex needs. Referrals were perceived to be influenced by the experience and confidence of the referrer and the local resource available to meet palliative care needs directly. Conclusions Complexity was hard to detail or to objectively define on referral documentation alone. It appeared to be a term used to describe patients whom primary or secondary care providers felt needed SPC knowledge or support to meet their needs. Hospices need to provide greater clarity regarding who should be referred, when and for what purpose. Education and training in palliative care for primary care nurses and doctors and hospital clinicians could reduce the need for referral and help ensure that hospices are available to those most in need of SPC input.

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