scholarly journals Caring for Dying Parents in the Shadow of Childhood Maltreatment: Gendered Agency, Constraint, and Health

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 511-512
Author(s):  
Robin Tarter ◽  
Dena Hassouneh ◽  
Susan Rosenkranz
Keyword(s):  
End Of Life ◽  
Older Adult ◽  
Narrative Analysis ◽  
Childhood Maltreatment ◽  
Life Histories ◽  
Health Impact ◽  
Relational Agency ◽  
Unpaid Care ◽  
Feminist Poststructuralist ◽  
Growing Population

Abstract Adult daughters represent the largest and fastest growing population of providers of unpaid care labor (UCL) to older adults with life limiting illness. Providing UCL to parents at the end of life is associated with significant and lasting risks of morbidity and mortality, especially for women with negative relationships with care recipients, and those who provide UCL based on constraining gendered expectations rather than agentic choice. While nearly one quarter of US women experience some form of maltreatment from parents during childhood, few studies have examined, or even acknowledged, the effect of trauma on the experience and health impact of family UCL. We used feminist poststructuralist informed dialogic narrative analysis to explore discursive constructions of agency and constraint in co-constructed life histories from 21 women who provided end of life UCL to older adult parents who maltreated them in childhood. For these women, parental childhood maltreatment influenced identity construction, social position, intersubjectivity, and vulnerability to victimization. For some, providing end-of-life UCL to the parents who maltreated them facilitated the mobilization of relational agency and identity validation. For others, providing UCL potentiated lifelong constraint, reinforcing their positions as non-agents and leading to significant psychical and emotional harm. End of life UCL for older adult parents represents a crucible out of which either healing or re-traumatization can arise. Our findings will be leveraged to inform clinical practice and policy to support the growing population women trauma survivors providing UCL to older adult parents, reducing negative outcomes for those at the greatest risk.

Storie di violenza in infanzia e adolescenza e prostituzione in etŕ adulta: quali legami?

2009 ◽  
pp. 93-112
Author(s):  
Emanuela Confalonieri ◽  
Cristina Giuliani ◽  
Alessandra Bongiana ◽  
Paola Pavesi
Keyword(s):  
Childhood Maltreatment ◽  
Life Histories ◽  
Descriptive Analysis ◽  
Sexual Exploitation ◽  
Sexual Revictimization ◽  
East Europe ◽  
The Social ◽  
Forced Prostitution ◽  
The One ◽  
The Relationship

- The present study, related to the one published some years ago (Confalonieri et al., 2004), is an investigation on forced prostitution and the related violence's types in immigrant women involved in streetwalking prostitution. Using the social records available by the Ufficio Stranieri (Comune di Milano), the purpose is to identify the presence of 1) childhood maltreatments or violence before the entry in sex exploitation market and 2) subsequent adult sexual revictimization from partners, pimps and clients. Data were analysed using phenomenological descriptive analysis. The relationship between childhood maltreatment and abuse and subsequent involvement in sex work is discussed comparing data and life histories of immigrant prostitutes coming from Nigeria and East Europe. The role played by social and contexual variables in sexual exploitation story are also considered.Key words: immigration, violence, prostitution, infancy, adulthood.Parole chiave: immigrazione, violenza, prostituzione, infanzia, etŕ adulta.

scholarly journals Practice of Expert Critical Care Nurses in Situations of Prognostic Conflict at the End of Life

2006 ◽  
Vol 15 (5) ◽  
pp. 480-491 ◽  
Author(s):  
Catherine McBride Robichaux ◽  
Angela P. Clark
Keyword(s):  
Intensive Care Unit ◽  
Critical Care ◽  
Intensive Care ◽  
End Of Life ◽  
Narrative Analysis ◽  
Critical Care Nurses ◽  
Realistic Picture ◽  
Inappropriate Treatment ◽  
Expert Nurses ◽  
End Of Life Decision

• Background Prolonging the living-dying process with inappropriate treatment is a profoundly disturbing ethical issue for nurses in many practice areas, including the intensive care unit. Despite the frequent occurrence of such distressing events, research suggests that critical care nurses assume a limited role in end-of-life decision making and care planning. • Objectives To explore the practice of expert critical care nurses in end-of-life conflicts and to describe actions taken when the nurses thought continued aggressive medical interventions were not warranted. • Methods A qualitative design was used with narrative analysis of interview data that had a temporal ordering of events. Interviews were conducted with 21 critical care nurses from 7 facilities in the southwestern United States who were nominated as experts by their colleagues. • Results Three recurrent narrative plots were derived: protecting or speaking for the patient, presenting a realistic picture, and experiencing frustration and resignation. Narratives of protecting or speaking for the patient concerned preventing further technological intrusion and thus permitting a dignified death. Presenting a realistic picture involved helping patients’ family members reframe the members’ sense of the potential for recovery. Inability to affect a patient’s situation was expressed in narratives of frustration and resignation. • Conclusions The transition from curative to end-of-life care in the intensive care unit is often fraught with ambiguity and anguish. The expert nurses demonstrated the ability and willingness to actively protect and advocate for their vulnerable patients even in situations in which the nurses’ actions did not influence the outcomes.

scholarly journals End-of-Life Caregiving: Challenges Faced by Older Adult Women

2013 ◽  
Vol 39 (6) ◽  
pp. 45-54 ◽  
Author(s):  
Gwen McGhan ◽  
Susan J. Loeb ◽  
Brenda Baney ◽  
Janice Penrod
Keyword(s):  
End Of Life ◽  
Older Adult ◽  
Adult Women

A narrative analysis of behaviourally troubled adolescents' life stories

2005 ◽  
Vol 15 (1) ◽  
pp. 127-160 ◽  
Author(s):  
Alex Sanderson ◽  
Anne McKeough
Keyword(s):  
Narrative Analysis ◽  
Life Histories ◽  
Life Stories ◽  
Life Experiences ◽  
Negative Experiences ◽  
Behavioural Difficulties ◽  
Street Youths ◽  
Violent Acts ◽  
Gender Groups ◽  
Emotional And Behavioural Difficulties

The purpose of this study was to explore street youths' life histories to assess how early negative experiences (e.g., maltreatment) contributed to alternative developmental paths marked by emotional and behavioural difficulties. Ten male and female participants responded to an attachment questionnaire and told their life stories. The data were analyzed using qualitative and quantitative techniques. The results showed that both groups experienced difficulties in attaining educational, employment and relational successes. However, differences were found between gender groups in views of self, with females often describing themselves as victims whereas males' views were often characterized by self-efficacy stemming from successful completion of criminal or violent acts – in other words, as victimizers. Finally, it was found that males were more able to apply developmental advanced interpretations to their life experiences.

Distress in older adult cancer patients approaching end of life.

2015 ◽  
Vol 33 (15_suppl) ◽  
pp. 9548-9548
Author(s):  
Elizabeth Ann Kvale ◽  
Gabrielle Betty Rocque ◽  
Kerri S. Bevis ◽  
Aras Acemgil ◽  
Richard A. Taylor ◽  
...  
Keyword(s):  
End Of Life ◽  
Cancer Patients ◽  
Older Adult

Older Adult Population

2021 ◽  
pp. 320-343
Author(s):  
Harry S. Strothers ◽  
Dipenkumar Patel
Keyword(s):  
Palliative Care ◽  
End Of Life ◽  
Older Adult ◽  
Symptom Management ◽  
Older Patients ◽  
Adult Population ◽  
Geriatric Medicine ◽  
Physician Assistants ◽  
Syndrome Symptom ◽  
Older Adult Population

Geriatric medicine is a specialty of medicine concerned with physical, mental, functional, and social conditions in acute, chronic, rehabilitative, preventive, and end-of-life care in older patients. Geriatric palliative care integrates the complementary specialties of geriatrics and palliative care to provide comprehensive care for older patients entering the later stage of their lives and their families. This chapter provides physician assistants with an overview of palliative care in older adults, the differences between palliative care and hospice, the understanding and managing of geriatrics syndrome, symptom management in older patients and the complexities of end of life, discussion of goals of care, and communicating with geriatric patients and families.

Healthcare Across the Lifespan

2020 ◽  
pp. 157-184
Author(s):  
Nancy S. Jecker
Keyword(s):  
End Of Life ◽  
Narrative Analysis ◽  
Family Caregiving ◽  
Population Aging ◽  
Elderly Care ◽  
Life Stage ◽  
Human Beings ◽  
Term Care ◽  
Care Recipients ◽  
Philosophical Framework

Part II draws on the philosophical framework set forth in Part I to tackle practical and policy concerns. Chapter 6 demonstrates the tendency toward midlife bias in both geriatric and pediatric bioethics and counters it with techniques that use life stage sensitive values. The chapter puts forth a 3-step dignity-guided method for addressing paradigmatic geriatric cases, such as dementia, where central capabilities are at-risk. The chapter also interrogates Joel Feinberg’s influential view that stresses children’s future autonomy. It argues that this approach overlooks children’s life stage–related capabilities and the value of nurturing care during early childhood. Chapters 7 and 8 turn to long-term care and assess 3 options for meeting the needs of care-dependent older adults: family caregiving, migrant caregiving, and robotic caregiving. It highlights the dignity of family and migrant caregivers as well as their elderly care recipients. It cautions against midlife bias in designing and deploying robotic caregivers and underscores the importance of sociable robots that offer companionship for older end users. Chapter 9 turns to ageism and its appearance in polices ranging from selecting subjects for clinical research to allocating scarce healthcare resources and mandating retirement. Chapter 10 applies a dignity analysis to the end of life, exploring respect for dignity of dying, newly dead, and long-gone human beings. Using narrative analysis, the chapter invites thinking about the end of life and the period following as the winding down of a story, which does not necessarily occur in a linear fashion or simultaneous with human biological death. The closing chapters spotlight the future of population aging (Chapter 11) and make a pitch for life stage sensitive moral theory (Chapter 12).

Entrepreneurial learning among practices: aesthetic and sensible knowledge in the life trajectory of entrepreneurs

2021 ◽  
Vol ahead-of-print (ahead-of-print) ◽  
Author(s):  
Sérgio Vogt ◽  
Yara Lucia Mazziotti Bulgacov ◽  
Sara R.S.T.A. Elias
Keyword(s):  
Narrative Analysis ◽  
Life Histories ◽  
Structured Interviews ◽  
Organization Studies ◽  
Entrepreneurial Learning ◽  
Content Type ◽  
Life Trajectory ◽  
Entrepreneurial Action ◽  
The Aesthetic ◽  
Sensory Processes

PurposeUsing the concept of knowing-in-practice (KinP), and drawing from current understandings of aesthetic and sensible knowledge within organization studies, this study explores how the entrepreneurial learning (EL) process unfolds over time, throughout the lives of startup founders, well before entrepreneurial action takes place.Design/methodology/approachUsing a life histories approach, 25 interviews were conducted with the founders of 18 startups. Additional 14 semi-structured interviews were conducted with other startups' founders, focusing on thematic stories. Data were analyzed using abduction and narrative analysis.FindingsAlthough each entrepreneur's history is unique, the authors show that entrepreneurs' lives are generally a texture of practices, resulting in aesthetic–sensible knowledge that is developed as entrepreneurs participate in various social practices. This includes KinP episodes where perceptive-sensorial faculties are fundamental for entrepreneurs to perceive the world, recognize/create opportunities and launch a business.Research limitations/implicationsThe historical approach did not allow the authors to witness firsthand the practices and KinP episodes that participants verbalized. Regardless, the results show that aesthetic and sensible knowledge provide a fruitful lens for investigating EL while highlighting the indissoluble relationship between practice and learning.Originality/valueAlthough the senses have been recognized as fundamental for learning in organizations, entrepreneurship scholars have yet to explore the aesthetic and sensory processes involved in EL. The primary contribution of this paper is to develop a new understanding of the situated nature of EL as a process that starts well before entrepreneurial action occurs, stemming from entrepreneurs' experiencing of certain practices and the aesthetic and sensible knowledge they build over their life trajectory.

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