scholarly journals Older cancer survivors living with financial hardship in China: The Influence of Confucian Family Values

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 832-832
Author(s):  
Mingzhu Su ◽  
Li Liu ◽  
Hanlin Yue ◽  
Jiajun Zhang ◽  
Nengliang Yao
Keyword(s):  
Cancer Survivors ◽  
Family Caregivers ◽  
Cancer Diagnosis ◽  
Adult Children ◽  
Filial Piety ◽  
Extended Family ◽  
Well Being ◽  
Family Values ◽  
Financial Hardship ◽  
Structured Interviews

Abstract Background Financial hardship has not been well studied among older cancer survivors, despite its debilitating effects on their health and well-being. Aim: To describe the lived experience of older Chinese cancer survivors and explore the financial impacts following a cancer diagnosis. Design: A qualitative study conducted using semi-structured interviews with patients and family caregivers. Methods We individually interviewed twenty-one cancer survivors (aged □ 60) with financial hardship and twenty family caregivers in Shandong province between August 2020 and January 2021. A content analysis was performed by multiple coders. Findings: Confucianism culture and the Chinese health system considerably impact the construct of financial hardship and its components. Four main categories were revealed:(1) healthcare providers were reluctant to discuss the diagnosis and costs of care with cancer patients; (2) financial transfer from adult children to older parents became prevalent after a cancer diagnosis;(3) cancer-related financial worries and stress spilled out into children's family; (4) coping and adjustment strategies were taken by the extended family. Conclusion Both older cancer survivors and their adult children experienced financial distress mediating through filial piety in China. Instruments are needed to screen for cancer-related financial hardship adapted to the healthcare system and Confucian family values. Key words: Cancer survivors; older; financial hardship; qualitative; China

The Importance of Religiosity to the Well-Being of African American Older Adults Living With Dementia

2018 ◽  
Vol 39 (5) ◽  
pp. 509-518 ◽  
Author(s):  
Fayron Epps ◽  
Ishan C. Williams
Keyword(s):  
Older Adults ◽  
Health Promotion ◽  
Family Caregivers ◽  
Family Involvement ◽  
Health Care Providers ◽  
Well Being ◽  
Religious Practices ◽  
Care Providers ◽  
Religious Activities ◽  
Structured Interviews

This study was a post hoc analysis of a larger qualitative descriptive study exploring family involvement in health promotion activities for African Americans living with dementia where participants identified religious practices as meaningful health promotion activities. The purpose of this study was to explore ways in which religiosity may influence the well-being of older adults living with dementia. Semi-structured interviews were conducted among a sample of 22 family caregivers and 15 older adults living with dementia ( N = 37). Three themes emerged: Engagement, Promotion of Faith and Spiritual Connectedness, and Maintenance of Religious Practices. It is imperative for family caregivers to understand the important contributions of religious activities and beliefs to the well-being of their family member. This information might be of use for faith communities, policy makers, and health care providers in the provision of optimal person-centered care and the promotion of quality of life for persons living with dementia.

scholarly journals Accuracy of Adult Children’s Perceptions of Mothers’ Caregiver Preferences

2018 ◽  
Vol 59 (3) ◽  
pp. 528-537 ◽  
Author(s):  
J Jill Suitor ◽  
Megan Gilligan ◽  
Marissa Rurka ◽  
Siyun Peng ◽  
Jordan Meyer ◽  
...  
Keyword(s):  
Adult Children ◽  
Filial Piety ◽  
Well Being ◽  
Psychological Consequences ◽  
Older Mothers ◽  
Health Events ◽  
Children's Perceptions ◽  
Children’S Perceptions ◽  
High Level ◽  
Design And Methods

AbstractBackground and ObjectivesMost older mothers have strong preferences regarding which offspring will serve as their future caregivers, and violation of these preferences has been found to have consequences for mothers’ psychological well-being. However, no study has examined the accuracy of adult children’s perceptions of their mothers’ caregiver preferences. In this article, we compare mothers’ stated preferences for particular caregivers with their adult children’s perceptions of their mothers’ preferences.Research Design and MethodsData were collected from 675 adult children and their mothers nested within 285 families as part of the Within-Family Differences Study.ResultsOnly 44.6% of adult children accurately reported their mothers’ preferences for particular offspring as caregivers. Consistent with our hypotheses, accuracy was higher when mothers and children shared values regarding filial piety, and lower when children were parents, had poor health, and lived further away. Surprisingly, primary caregivers were substantially less likely to accurately report mothers’ caregiver preferences than were noncaregivers. This counterintuitive pattern can be explained by the finding that most mothers were cared for by children whom they did not prefer and may have therefore been reluctant to share their preferences with those caregivers.Discussion and ImplicationsGiven the negative psychological consequences for mothers whose caregiver preferences are violated, the high level of inaccuracy found among adult children has important implications when mothers face serious health events. These findings underscore the need for intervention efforts to encourage practitioners and clinicians to collect information directly from mothers regarding preferences for particular offspring as caregivers.

The well-being of adult children while caring for a parent in home hospice: Evaluation of an automated remote monitoring and coaching system.

2015 ◽  
Vol 33 (29_suppl) ◽  
pp. 222-222
Author(s):  
Kathi Mooney ◽  
Patricia Berry ◽  
Jacquee Blaz ◽  
Gary Donaldson
Keyword(s):  
Family Caregivers ◽  
Adult Children ◽  
Remote Monitoring ◽  
Negative Binomial ◽  
Hospice Care ◽  
Adult Child ◽  
Well Being ◽  
Poor Sleep ◽  
Significant Finding ◽  
At Home

222 Background: Health and well-being often deteriorates for family caregivers providing home hospice care. This includes adult children managing multiple demands while supporting their parent to remain at home. Automated remote monitoring of patient symptoms has shown promise in home cancer care and could be extended for monitoring and supporting the wellbeing of adult child caregivers (ACC) providing care to their parent at home. Methods: In a RCT, 97 ACCs were monitored using a telephone based automated reporting and coaching system, and randomly assigned to the ACC care intervention (Rx) (N = 51) or usual care (UC) (N = 46). All ACCs were asked to call the system daily reporting presence and severity (0-10 scale) of their own fatigue, poor sleep, depressed mood, anxiety and interference with normal activities. The Rx ACCs received automated tailored coaching based on reported patterns of moderate to severe symptom levels and alert reports were also sent to their hospice nurse. Results: ACCs were females (78%) with a mean age of 51. There were no differences between groups on any demographic or baseline measures. Utilizing negative binomial modeling, Rx ACCs had significantly fewer days/week of moderate-severe symptoms overall (.6 vs 2.4, p < .001) and for each individual symptom (all p < .001). Among those attempting to maintain work, Rx ACCs were able to work 80% of work days and UC ACCs worked 68% of work days. Six weeks after their parent’s death, there was a statistical trend (p = .07) for Rx ACCs to be less depressed than UC ACCs (11.94 vs 18.04). This is a clinically significant finding as UC ACCs’ CESD scores were at the clinically actionable level ( > 16) for referral for evaluation of depression. Rx ACCs’ CESD scores had dropped an average of 1.37 points below their baseline whereas UC ACCs’ scores had increased an average of 3.86 points from baseline at 6 weeks post death. Conclusions: Automated remote monitoring and coaching for adult child family caregivers offers impressive benefit in reducing the physical burden and psychosocial distress of caregiving during and after parental hospice care. Clinical trial information: NCT02112461.

Modernisation and filial piety among traditional family care-givers: a study of Arab-Israelis in cultural transition

2011 ◽  
Vol 32 (5) ◽  
pp. 769-789 ◽  
Author(s):  
RABIA KHALAILA ◽  
HOWARD LITWIN
Keyword(s):  
Adult Children ◽  
Filial Piety ◽  
Culturally Relevant ◽  
Family Care ◽  
Hierarchical Regression ◽  
Cultural Transition ◽  
Structured Interviews ◽  
Cross Sectional ◽  
Care Givers

ABSTRACTThe purpose of this paper was to examine the association of modernisation and filial piety among adult children care-givers of elderly Arab parents in Israel, and to identify factors that mediate the association. Cross-sectional data were collected in 2006–07 through structured interviews with 250 randomly sampled Arab-Israeli adult children care-givers. Hierarchical regression was then applied to the study variables in the respondents’ scores on a culturally relevant filial piety scale. The results revealed a negative correlation between modernisation, as measured by individualistic lifestyle and level of urbanisation, and filial piety scores. The association between individualistic lifestyle and filial piety was partially mediated by perceived care-giver burden. Given the observed trends, programme and policy planners should establish more services that are uniquely suited to the needs of a changing Arab society, in order to provide culturally relevant long-term support for the family network in a period of accelerated modernisation.

scholarly journals Caregiver burden: An increasing problem related to an aging cancer population

2019 ◽  
pp. 135910531989301 ◽  
Author(s):  
Leontien Jansen ◽  
Stephanie Dauphin ◽  
Tine De Burghgraeve ◽  
Birgitte Schoenmakers ◽  
Frank Buntinx ◽  
...  
Keyword(s):  
Risk Factors ◽  
Cohort Study ◽  
Cancer Survivors ◽  
Caregiver Burden ◽  
Prospective Cohort Study ◽  
Cancer Diagnosis ◽  
Physical Condition ◽  
Prospective Cohort ◽  
Older Patients ◽  
Well Being

This prospective cohort study identified risk factors for the development of caregiver burden and included older cancer survivors, middle-aged cancer survivors, older patients without cancer and their caregivers. Overall, more than 16 per cent of caregivers experienced high-to-severe burden at baseline. This proportion remained stable after 1 and 3 years. Caregivers who experienced increased caregiver burden at baseline were at higher risk maintaining their caregiver burden over the following years. Caregiver burden was not related to the cancer diagnosis but rather to the baseline psychosocial well-being of both the caregiver and patient and the physical condition of the patient.

scholarly journals Adapting ENABLE for patients with advanced cancer and their family caregivers in Singapore: a qualitative formative evaluation

2021 ◽  
Vol 20 (1) ◽  
Author(s):  
Grace Meijuan Yang ◽  
J. Nicholas Dionne-Odom ◽  
Yi Han Foo ◽  
Ariel Hui Mei Chung ◽  
Nur Haidah Ahmad Kamal ◽  
...  
Keyword(s):  
Decision Making ◽  
Family Caregivers ◽  
Advanced Cancer ◽  
Cancer Diagnosis ◽  
Formative Evaluation ◽  
Complementary Therapy ◽  
Healthcare Decision ◽  
Structured Interviews ◽  
Face To Face ◽  
Healthcare Decision Making

Abstract Background ENABLE (Educate, Nurture, Advise, Before Life Ends) is a nurse coach-led, early palliative care model for patients with advanced cancer and their family caregivers. Content covered includes problem-solving, advance care planning, symptom management and self-care. The aim was to evaluate the cultural acceptability of ENABLE among patients with advanced cancer and their caregivers in Singapore and identify modifications for an adapted ENABLE-SG model. Methods Qualitative formative evaluation with a thematic analysis approach in two hospitals in Singapore, involving patients (n = 10), family caregivers (n = 11) and healthcare professionals (n = 10) who care for patients with advanced cancer. Semi-structured interviews were conducted to explore (i) the main needs and challenges facing individuals with advanced cancer and their family caregivers; (ii) patient involvement in healthcare decision making; and (iii) content and delivery of ENABLE. Results While physical needs were largely well met, participants expressed that psychosocial care was delivered too late in the illness trajectory. Healthcare decision making approaches varied from a patient-centred shared decision-making model to a family-centred model where patients may not know their cancer diagnosis and prognosis. The content was considered to be relevant, comprehensive and practical; financial assistance, adjustment to body image, and evaluation of complementary therapy were also recommended. Face-to-face rather than telephone sessions were preferred to facilitate rapport building. Conclusions ENABLE was broadly acceptable with some modifications, including adjusting the content to ensure it can be delivered even if the patient is not fully aware of cancer diagnosis and delivering the first session face-to-face with flexibility for subsequent sessions.

scholarly journals Malaysian Northern Region Cancer Support Effort: Education and Empowerment - Building Hope, Strengthening Lives

2018 ◽  
Vol 4 (Supplement 2) ◽  
pp. 229s-229s
Author(s):  
C.E. Oon ◽  
G. Kaur ◽  
H. Zulyardain ◽  
A. Hassan ◽  
A. Abdullah
Keyword(s):  
Alternative Medicine ◽  
Cancer Survivors ◽  
Cancer Diagnosis ◽  
Public Awareness ◽  
Cultural Beliefs ◽  
Well Being ◽  
Diagnosis And Treatment ◽  
Awareness Campaigns ◽  
Cancer Support ◽  
The Impact

Background: The agenda of the United Nations Sustainable Development Goals (SDGs) calls for unanimous actions to end poverty, battle against inequalities, protect the earth and to promote inclusive well-being. Today, the impact of cancer on societies threatens the ambitions of the SDGs. In developing nations, public awareness campaigns often focus on controlling the spread of communicable diseases, overlooking the rise of cancer afflictions. As a nation of multiethnic populations with different cultural and educational backgrounds, the views pertaining cancer treatment in Malaysia are often hampered by cultural beliefs. Cancer is often linked to bad luck or black magic, particularly among rural communities. The lack of knowledge in diagnostics and cancer therapeutics, in addition to many firm believers in alternative medicine may contribute to late detection and treatment only at the advanced stages of cancer. Aim: This project aims to tap into the pool of skills and expertise of the staff at the Universiti Sains Malaysia (USM) to help educate and raise public awareness on cancer causes, diagnosis and treatment among cancer survivors and the general public. Methods: My role as a scientist is to ensure that my research addresses the key problems faced in cancer therapies and that this information trickles down to the less informed traditional societies who have very different perceptions toward modern medicine. Workshops on cancer awareness highlighting cancer causes and treatment options, cancer diagnosis and holistic approaches while living with cancer were organized in partnership with MAKNA National Cancer Council Malaysia between the years 2015-2017. Support groups led by MAKNA, were also organized in a bid to educate cancer survivors who may lack important knowledge which could impinge on daily informed decisions concerning cancer diagnosis and treatment. Results: Through working hand in hand with MAKNA, a nonprofit organization with a duty 'to pool and use every effort, expertise and welfare from every faction of society to fight cancer', this project has successfully drawn knowledge and expertise from USM staff to come together as one to raise awareness and support cancer survivors. Members have also traveled to remote regions of Malaysia for home visits and cancer group meetings to support the cancer survivors and to raise awareness. Cancer survivors have been able to obtain personal advice from the university's cancer pathologist on their diagnosis, and have their queries answered pertaining to western medicine vs alternative medicine from academic research point of view. Conclusion: Working together with MAKNA has enabled cancer researchers and university staff to relate to real-life adversities so that we can continue to translate our research and knowledge to benefit the society.

scholarly journals The Role of Physical Activity in Cancer Survivors’ Quality of Life

2020 ◽  
Author(s):  
Tayah M. Liska ◽  
Angie Kolen
Keyword(s):  
Quality Of Life ◽  
Physical Activity ◽  
Cancer Survivors ◽  
Cancer Diagnosis ◽  
Social Engagement ◽  
Healthcare Providers ◽  
Structured Interviews ◽  
Emotional Symptoms

Abstract Purpose As a result of a cancer diagnosis and treatment, many cancer survivors experience persistent physical, mental, and emotional symptoms that affect their quality of life. Physical activity has been identified as an intervention that may help to manage the side effects of a cancer diagnosis and its treatment. The purpose of this study was to investigate the role of physical activity on overall quality of life in adult cancer survivors.Methods One-on-one semi structured interviews were conducted in person or via telephone with 13 adult (≥18 yrs) cancer survivors who had completed cancer treatment.Results These cancer survivors described their physical activity as improving their physical functioning and mental health, as a means of positive social engagement, and adding positivity to their daily life.Conclusion These results support the role of physical activity to enhance cancer survivors’ quality of life regardless of the treatment(s) type, duration, or time since the end of active cancer treatment. Further research is warranted to (a) expand this research with a larger sample, (b) examine healthcare providers’ knowledge and application of exercise guidelines to cancer survivors in cancer care, and (c) explore implementation strategies for greater advocacy for healthcare providers to share the exercise recommendations with cancer survivors.

scholarly journals The Person I Used To Be: Employment Experiences of Young Adults with Cancer

2020 ◽  
Author(s):  
Melissa C. Scardaville ◽  
Kathleen M. Murphy ◽  
Marla Clayman ◽  
Rhonda Robert ◽  
Sandra Medina-George ◽  
...  
Keyword(s):  
Young Adults ◽  
Cancer Survivors ◽  
Cancer Diagnosis ◽  
Structured Interviews ◽  
Career Trajectory ◽  
Short Term ◽  
Young Adult Cancer Survivors ◽  
Adult Cancer Survivors ◽  
Young Adult Cancer ◽  
The Impact

Abstract Purpose: Adults can experience employment-related hardships after a cancer diagnosis but young adults at the beginning of their careers may face unique challenges. This study explored the impact of cancer on young adults’ employment experiences. Methods: The authors conducted 27 qualitative semi-structured interviews with young adults who had received a cancer diagnosis. Results: Participants encountered mixed workplace support. Many reported that they did not have the benefits, such as time off or short-term disability insurance, that would have ameliorated some challenges encountered during treatment. They also shared that many workplaces do not do an adequate job of informing people with cancer about federal laws that protect people with disabilities. Most participants reported that the cancer diagnosis and treatment caused them to rethink their career trajectory.Conclusions: Cancer affects young adults in ways that present distinct struggles attributable to less access to resources. Career choices and the consequent opportunities for on-the-job training can have lifelong import.Implications for Cancer Survivors: Disability and discrimination laws do not protect all employees. Young adult cancer survivors may need to conduct their own research into these protections so they can receive entitled benefits. They and employers may also benefit from workplace interventions or trainings to lessen the employment consequences of cancer.

Dilemmas of an Aging Society: Family and State Responsibilities for Intergenerational Care in Taiwan

2019 ◽  
Vol 40 (14) ◽  
pp. 1912-1936
Author(s):  
Ju-Ping Lin ◽  
Chin-Chun Yi
Keyword(s):  
Child Care ◽  
Welfare State ◽  
Adult Children ◽  
Filial Piety ◽  
Latent Class ◽  
Extended Family ◽  
The Elderly ◽  
Family Interactions ◽  
Aging Society ◽  
Intergenerational Care

In an aging society with a declining birthrate, there are more and more elderly to care for and fewer adult children to provide them care; these adult children, and the state, are forced to weigh the costs of eldercare against the cost of child care. In Taiwan, these dilemmas may be particularly acute, given the persistence of Confucian norms of filial piety and the extended family structures. In this study, we examine the attitudes of Taiwanese people toward the relative responsibilities of both adult children and the welfare state for eldercare and child care. Data were taken from the Taiwan Social Change Survey in 2011. Using latent class analysis to develop a typology of attitudes toward intergenerational care responsibilities, we found four types: (a) Family cares for elders and children, (b) family cares mainly for children, (c) cooperation between family and government, (d) government cares for the elderly. Findings show that an individual’s attitudes toward welfare state policies are significantly related to both self-interest and sociocultural norms as well as intergenerational family interactions. In Taiwan, filial norms and the quality of family interaction significantly influence attitudes toward the division of intergenerational care responsibilities.

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