scholarly journals YOUNG ADULT CAREGIVER NEEDS AND PREFERENCES: A CROSS-SECTIONAL EXPLORATION OF DEMENTIA CAREGIVERS

2018 ◽  
Vol 2 (suppl_1) ◽  
pp. 297-298
Author(s):  
N James
Keyword(s):  
Young Adult ◽  
Dementia Caregivers ◽  
Cross Sectional ◽  
Caregiver Needs ◽  
Adult Caregiver

Young Adult Caregiver Strain and Benefits

2019 ◽  
Vol 43 (4) ◽  
pp. 269-278 ◽  
Author(s):  
Jessica King McLaughlin ◽  
Jennifer C Greenfield ◽  
Leslie Hasche ◽  
Carson De Fries
Keyword(s):  
Young Adult ◽  
Multivariate Regression Analysis ◽  
Conflict Theory ◽  
Life Course Perspective ◽  
Financial Strain ◽  
Cross Sectional ◽  
Caregiver Support ◽  
Age Cohorts ◽  
Positive Feelings ◽  
Adult Caregiver

Abstract Young adult caregivers (YACs) of older adults are an often-overlooked subset of the caregiver population, though they make up more than a quarter of all caregivers. Because of their stage in life and their economic and work status, YACs (ages 21 to 40) are likely to face different caregiving challenges than other age cohorts of caregivers. Using the life course perspective and role conflict theory as foundational frameworks, this article compares the resources and strains of YACs with those of their middle-age caregiver (MAC) (ages 41 to 60) and older adult caregiver (OAC) (ages 61 and older) counterparts. Authors used data from a cross-sectional pilot study of caregivers recruited across one western state through community agencies. Through multivariate regression analysis, findings indicated that YACs reported more financial strain than MACs and OACs, despite being more likely to be employed. In contrast, YACs reported greater positive feelings toward caregiving than both MACs and OACs. These findings remained while controlling for employment status, education, and hours per week spent caregiving. Although YACs may find great value in caregiving, they may also be in more financially precarious situations. The article concludes with recommendations for caregiver support programs to reach YACs in the workplace.

scholarly journals COMMON UNMET NEEDS OF DEMENTIA CAREGIVERS AND HOW THESE DIFFER BY DISEASE STAGE AND RACE

2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S550-S550
Author(s):  
Quincy M Samus ◽  
Danetta Sloan ◽  
Jeannie-Marie Leoutsakos ◽  
Betty Black ◽  
Deirdre Johnston
Keyword(s):  
Family Caregivers ◽  
Intervention Studies ◽  
Disease Stage ◽  
Care Needs ◽  
Dementia Caregivers ◽  
Cross Sectional ◽  
Coordination Model ◽  
Caregiver Needs ◽  
The Impact ◽  
African American Caregivers

Abstract This presentation (co-presentation Samus and Sloan) will use combined cross-sectional, baseline data from two intervention studies (n=-642) conducted in Maryland evaluating the impact of dementia care coordination model (MIND at home) to provide a detailed description of common modifiable unmet care needs of family caregivers of community-living persons with dementia (PWD), explore how care needs may differ by the disease stage of the PWD, and presence of racial disparities in care needs. Unmet caregiver needs were identified based on comprehensive in-home assessments using a standardized tool (JHDCNA 2.0) with 6 care domains and 18 items covering caregiver needs. Family caregivers were 77% women; 63 years old (mean); 60% White; and 52% adult children. The most prevalent needs were for education/resources (98%), legal (74%), mental health (44%), and informal support (43%). Needs varied based on dementia severity. African American caregivers (vs. white) had significantly more unmet caregiver needs at baseline (p<.001).

scholarly journals Examining Dementia Family Caregivers’ Forgone Care for General Practitioners and Medical Specialists during a COVID-19 Lockdown

2021 ◽  
Vol 18 (7) ◽  
pp. 3688
Author(s):  
Perla Werner ◽  
Aviad Tur-Sinai ◽  
Hanan AboJabel
Keyword(s):  
Family Caregivers ◽  
Emotional Support ◽  
Online Survey ◽  
Behavioral Model ◽  
Cross Sectional Study ◽  
Enabling Factors ◽  
Dementia Caregivers ◽  
Predisposing Factor ◽  
Cross Sectional ◽  
Medical Specialists

The present study aimed to assess dementia caregivers’ reports of the prevalence and correlates of forgone care regarding visits to a general practitioner (GP) and to a specialist during the COVID-19 lockdown in Israel, using Andersen’s Behavioral Model of Healthcare Utilization. A cross-sectional study using an online survey was conducted with 73 Israeli family caregivers of persons with dementia residing in the community (81% Jews, 86% female, mean age = 54). Overall, one out of two participants reported having to delay seeking needed help from a GP or a specialist for themselves, as well as for their relatives with dementia, during the COVID-19 lockdown period. Among the predisposing factor, education was associated with caregivers’ reports regarding forgone care for themselves as well as for their loved ones. Living with the care-receiver and income level were the enabling factors associated with forgone care for caregivers. Finally, feelings of burden were associated with caregivers’ forgone care and feelings of loneliness and perceptions of the care-receiver’s cognitive functioning were associated with care-receivers’ forgone care. Our findings show that it is essential that this population receive appropriate practical and emotional support at times of distress and crisis to enable them to continue with their caregiving role.

scholarly journals Plant Foods Rich in Antioxidants and Human Cognition: A Systematic Review

Antioxidants ◽  
2021 ◽  
Vol 10 (5) ◽  
pp. 714
Author(s):  
Luciana Baroni ◽  
Anna Rita Sarni ◽  
Cristina Zuliani
Keyword(s):  
Young Adult ◽  
Human Cognition ◽  
Cognitive Assessments ◽  
Cross Sectional ◽  
Cognitive Domains ◽  
Plant Foods ◽  
Beneficial Effects ◽  
System Integrity ◽  
Plant Antioxidants ◽  
The Impact

Oxidative stress can compromise central nervous system integrity, thereby affecting cognitive ability. Consumption of plant foods rich in antioxidants could thereby protect cognition. We systematically reviewed the literature exploring the effects of antioxidant-rich plant foods on cognition. Thirty-one studies were included: 21 intervention, 4 cross-sectional (one with a cohort in prospective observation as well), and 6 prospective studies. Subjects belonged to various age classes (young, adult, and elderly). Some subjects examined were healthy, some had mild cognitive impairment (MCI), and some others were demented. Despite the different plant foods and the cognitive assessments used, the results can be summarized as follows: 7 studies reported a significant improvement in all cognitive domains examined; 19 found significant improvements only in some cognitive areas, or only for some food subsets; and 5 showed no significant improvement or no effectiveness. The impact of dietary plant antioxidants on cognition appears promising: most of the examined studies showed associations with significant beneficial effects on cognitive functions—in some cases global or only in some specific domains. There was typically an acute, preventive, or therapeutic effect in young, adult, and elderly people, whether they were healthy, demented, or affected by MCI. Their effects, however, are not attributable only to anti-oxidation.

Predictors of Desire to Institutionalization in Dementia Caregivers From a Developing Country

2017 ◽  
Vol 32 (5) ◽  
pp. 245-251 ◽  
Author(s):  
Preeti Sinha ◽  
Sherin Yohannan ◽  
A. Thirumoorthy ◽  
Palanimuthu Thangaraju Sivakumar
Keyword(s):  
Developing Country ◽  
Caregiver Burden ◽  
Clinical Care ◽  
Cross Sectional Study ◽  
Dementia Caregivers ◽  
Cross Sectional ◽  
Developed Country ◽  
Caregiver Education ◽  
Sociocultural Differences ◽  
Personal Strain

Older adults with dementia have higher rates of institutionalization than those without dementia. Desire to institutionalization (DTI) is an important factor influencing the actual institutionalization but is less well studied. This cross-sectional study examines the DTI with the scale of same name developed by Morycz, in 1985, in a sample of 50 caregivers of patients with dementia in a tertiary clinical care setting in a developing country. Caregiver burden associated with personal strain (by factor analyzed Zarit Burden Interview scale), and stress perceived out of caregiving (by Perceived Stress Scale) predicted higher DTI. Besides, those who were married had lower DTI scores. The factors which didn’t affect DTI were total caregiver burden, family and social support, age of patient and caregiver, education of caregiver, severity and duration of dementia, and treatment duration. These results were different from those of developed country-based DTI studies and may indicate sociocultural differences.

Prevalence of fertility discussions between young adult colorectal cancer survivors and their providers.

2021 ◽  
Vol 39 (15_suppl) ◽  
pp. 3518-3518
Author(s):  
Julia Stal ◽  
Serena Yi ◽  
Sally Cohen-Cutler ◽  
Phuong Gallagher ◽  
Afsaneh Barzi ◽  
...  
Keyword(s):  
Colorectal Cancer ◽  
Young Adult ◽  
Cancer Therapy ◽  
Cancer Survivors ◽  
Reproductive Potential ◽  
Tumor Location ◽  
Care Providers ◽  
Cross Sectional Survey ◽  
Cross Sectional ◽  
Delivery Of Care

3518 Background: Clinical guidelines indicate that oncologists should discuss potential treatment-induced infertility with patients with reproductive potential. Due to tumor location and use of multimodal therapies, young adults with colorectal cancer (CRC) are at heightened risk for treatment-related infertility. Methods: An online, cross-sectional survey was administered in collaboration with a national patient advocacy organization for young adult CRC survivors (currently under age 50). Survivors were asked to indicate if a doctor had ever talked to them about potential problems with their ability to have children after treatment and if they banked eggs/embryos (females) or sperm (males) prior to their cancer therapy. Those who reported that they did not preserve fertility were asked to indicate why ( not sure; I chose not to; I did not know this was an option; I wanted to, but could not afford it; and I wanted to, but my treatment would not allow it). Results: A total of 234 colon (N=86) or rectal (N=148) cancer survivors were included in the study (male [61.9%] and White [77.9%; table]). Most respondents were diagnosed with stage 2 cancer (55.8% colon, 61.6% rectal). Over half of male and female survivors reported that their doctor did not talk to them about problems with their ability to have children after treatment, and 75% did not bank eggs/embryos or sperm prior to their cancer therapy. Of those, over 20% endorsed ‘I wanted to, but could not afford it’ and over 20% endorsed ‘I did not know this was an option’. Conclusions: Most CRC survivors in this study reported never having a fertility discussion with their provider, suggesting that survivors are not receiving, or cannot recall, comprehensive and guideline-concordant cancer care. In addition, one-fifth were not aware of preservation options, suggesting potential healthcare and/or provider-level barriers to appropriate fertility counseling. Fertility preservation cost is another barrier to the appropriate delivery of care. Providers must ensure that patients receive timely fertility discussions covering options to preserve fertility to mitigate this late effect of cancer treatment to ensure optimal quality of life for CRC patients with reproductive potential.[Table: see text]

scholarly journals Intergenerational transmission of maltreatment: A multilevel examination

2015 ◽  
Vol 27 (4pt2) ◽  
pp. 1429-1442 ◽  
Author(s):  
Leslie D. Leve ◽  
Atika Khurana ◽  
Emily B. Reich
Keyword(s):  
Child Welfare ◽  
Young Adult ◽  
Intergenerational Transmission ◽  
Young Adulthood ◽  
Controlled Trial ◽  
Self Report ◽  
Adolescent Delinquency ◽  
Cross Sectional ◽  
Intergenerational Continuity ◽  
Measurement Approach

AbstractDespite the commonly held belief that there is a high degree of intergenerational continuity in maltreatment, studies to date suggest a mixed pattern of findings. One reason for the variance in findings may be related to the measurement approach used, which includes a range of self-report and official indicators of maltreatment and both cross-sectional and longitudinal designs. This study attempted to shed light on the phenomenon of intergenerational continuity of maltreatment by examining multiple indicators of perpetration of maltreatment in young adults and multiple risk factors across different levels within an individual's social ecology. The sample included 166 women who had been placed in out-of-home care as adolescents (>85% had a substantiated maltreatment incident) and followed into young adulthood, and included three waves of adolescent data and six waves of young adult data collected across 10 years. The participants were originally recruited during adolescence as part of a randomized controlled trial examining the efficacy of the Treatment Foster Care Oregon intervention. Analyses revealed weak to modest associations among the three indicators of perpetration of maltreatment in young adulthood, that is, official child welfare records, self-reported child welfare system involvement, and self-reported maltreatment (r = .03–.51). Further, different patterns of prediction emerged as a function of the measurement approach. Adolescent delinquency was a significant predictor of subsequent self-reported child welfare contact, and young adult partner risk was a significant predictor of perpetration of maltreatment as indexed by both official child welfare records and self-reported child welfare contact. In addition, women who were originally assigned to the intervention condition reported perpetrating less maltreatment during young adulthood. Implications for measurement and interventions related to reducing the risk for intergenerational transmission of risk are discussed.

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