P031 PERCEPTIONS AMONG PATIENTS WITH ULCERATIVE COLITIS: TREATMENT AND SELF MANAGEMENT METHODS

2020 ◽  
Vol 26 (Supplement_1) ◽  
pp. S65-S65
Author(s):  
Kelli DuBois ◽  
Christine Blake ◽  
Caroline Rudisill ◽  
Sayward Harrison ◽  
James Hébert
Keyword(s):  
Ulcerative Colitis ◽  
Health Behaviors ◽  
Stress Management ◽  
Stress Reduction ◽  
Mental Health Treatment ◽  
Gastrointestinal Symptoms ◽  
Well Being ◽  
Self Management ◽  
Structured Interviews ◽  
Eligibility Criteria

Abstract Background Patients with Ulcerative Colitis (UC) experience a range of gastrointestinal and extraintestinal symptoms that generate a significant burden on daily life. For the majority of individuals with UC, pharmacotherapy is insufficient to maintain a ‘normal’ lifestyle. Many of those diagnosed with UC seek out complementary or alternative treatments and undertake socio-behavioral and lifestyle adaptations to self-manage disease symptoms, reduce dependence upon pharmaceuticals, and respond to the challenges of living with chronic illness. The purpose of this qualitative study is to describe patient perspectives and experiences with UC treatment and self-management methods. Methods Qualitative data were collected using individual semi-structured interviews to obtain in-depth data reflecting the perspectives and experiences of individuals with UC on treatment and self-management of symptoms. Patients were recruited in collaboration with the Prisma Health Gastroenterology department in Greenville, SC and the Carolina’s Crohn’s and Colitis support group. Eligibility criteria included: 1) diagnosis of UC; 2) duration of illness ≥5 years; and 3) a minimum of one disease flare during the illness trajectory. Interviews were audio recorded and transcribed. Thematic analysis was conducted using NVivo 11 software. Results All participants reported active involvement with a gastroenterologist for disease management and progressive use of medications over the course of their illness in response to disease flares. Most participants identified stress reduction as beneficial to managing their UC. All participants discussed diet as a method to manage their UC. The majority of participants spoke about foods as culprits for symptom incidents. Other participants described dietary intake as essential in managing the severity of their UC and overall well-being. Patients who expressed need for formal mental health treatment perceived little support or assistance among gastroenterologists. Patients who underwent colorectal surgery described a continuing need to self-manage gastrointestinal symptoms. Discussion Patients expressed reliance on physicians for pharmaceutical treatment, yet identified diet restrictions and stress management as a main approach for self-management of UC. Framing patient education on how diet, stress management, and other health behaviors improve immune system functioning may lead to greater long term adoption of health behaviors and improved health outcomes among individuals with UC.

scholarly journals In Their Own Words: Parents and Key Informants’ Views on Nutrition Education and Family Health Behaviors

2021 ◽  
Vol 18 (15) ◽  
pp. 8155
Author(s):  
Katherine E. McManus ◽  
Adrian Bertrand ◽  
Anastasia M. Snelling ◽  
Elizabeth W. Cotter
Keyword(s):  
African American ◽  
Health Behaviors ◽  
Nutrition Education ◽  
Stress Reduction ◽  
Family Health ◽  
High Body Mass Index ◽  
Structured Interviews ◽  
Poverty Level ◽  
Black African ◽  
Key Informants

Parents, health professionals, and communities are integral in the development of nutrition behaviors that reduce children’s risk for high body mass index (BMI) and chronic disease. The aim of this study was to conduct formative evaluations with key health informants and parents to understand the specific strategies that families use at mealtimes to promote their family’s health, along with the barriers they face in attending current nutrition education programming. Focus groups (in English and Spanish) were conducted with parents (n = 22; 63.64% Black/African American, 13.64% Black but not African American, 18.18% Hispanic/Latinx) whose household was located in a community where 50% of residents’ gross income was ≤185% of the federal poverty level. Semi-structured interviews were conducted with six key informants with expertise in family health and nutrition. Inductive thematic analysis was used to identify themes across interviews. Six general themes emerged from the interviews including perceptions of health, relationships, health behaviors, facilitators, barriers, and desired changes. Across the six themes, participants responded with suggestions for community-based health promotion programs such as incorporating a broader definition of health to better address the individual and systemic barriers that perpetuate health inequities and make healthy eating difficult. Participants identified stress reduction, health literacy, and cooking knowledge as areas of interest for future programming.

scholarly journals Attitudes of university students towards classroom physical activity breaks in the Netherlands

2020 ◽  
Vol 30 (Supplement_5) ◽  
Author(s):  
C De Bot ◽  
M Brands ◽  
E Kremers ◽  
E van Ewijk ◽  
J Dierx
Keyword(s):  
Physical Activity ◽  
University Students ◽  
Stress Reduction ◽  
Online Survey ◽  
Well Being ◽  
Positive Influence ◽  
Structured Interviews ◽  
Physical Activity Guidelines ◽  
Active Breaks ◽  
Climbing Stairs

Abstract Background Regular physical activity has multiple benefits for physical, mental, and psychosocial, however many students do not meet the national physical activity guidelines. Classroom physical activity can help students be more physically active. This study investigated the attitude of university students towards classroom physical activity breaks in a university of applied science setting Methods Within this research a mixed methods design have been applied. A online survey was completed by 2016 students an semi-structured interviews were conducted among 19 students. Results A total of 2016 students successfully completed the questionnaire with a mean of 18-21 year (67%) and 52 % female. No classroom physical activity breaks were used during the lessons. In addition, almost half of the students are not able to concentrate well during the classes. Students (39%) noticed that physical activity during classes had a positive influence on their concentration. The majority of the students are open to activating forms of teaching at universities of applied sciences (69%). Students have a clear preference for active breaks, curriculum-focused active breaks. Physical activities such as climbing stairs, sports exercises are not students preferred activities. Conclusions Implementing classroom physical activity breaks can improve student physical activity and concentration during school and behavior in the classroom. Activities such as climbing stairs, intense aerobic exercise were perceived as inconvenient. Active breaks, curriculum-focused active breaks were acknowledged by students. Key messages Keep physical activity breaks short and manageable. Physical activity breaks can help in stress reduction and improving psychological well-being.

scholarly journals Adapting to ulcerative colitis to try to live a ‘normal’ life: a qualitative study of patients’ experiences in the Midlands region of England

BMJ Open ◽  
2017 ◽  
Vol 7 (8) ◽  
pp. e017544 ◽  
Author(s):  
Christel McMullan ◽  
Thomas D Pinkney ◽  
Laura L Jones ◽  
Laura Magill ◽  
Dmitri Nepogodiev ◽  
...  
Keyword(s):  
Ulcerative Colitis ◽  
Well Being ◽  
Adaptation Strategies ◽  
Structured Interviews ◽  
Qualitative Research Study ◽  
Normal Life ◽  
East Midlands ◽  
Registration Number ◽  
Patients Experience

ObjectiveTo provide a framework that is able to categorise whether patients are able to adapt to and lead a ‘normal’ life with ulcerative colitis (UC) and to detail the factors that influence this.DesignQualitative research study using in-depth semi-structured interviews.SettingFour clinical sites in the West and East Midlands regions of England.Participants28 adult patients diagnosed with UC for years between 1 and 22.ResultsMedication was rarely sufficient for patients to adapt to UC and live as ‘normal’ a life as possible. Virtually all patients tested and adopted non-medical adaptation methods to improve physical and psychological well-being, to help them carry on working and to prevent embarrassment. In addition, some patients benefited from outside support providing them with practical, emotional and/or financial help. In conjunction with adaptation strategies and the time to adapt, this meant that some patients with severe clinical disease were able to maintain a sense of normality in life. Patients reported that clinicians were not always receptive to discussion of the broader context of life with UC.ConclusionsPatients’ experience of UC and their ability to adapt in order to maintain a sense of normality in life is a complex interplay of symptoms, adaptation strategies and outside support. Over time patients test out a variety of non-medical adaptation strategies. Awareness of this may help clinicians and researchers to understand patients’ views on the role of medical and other therapies. Further research around the utility of this framework in clinical practice and research is now required.Trial registration numberISRCTN56523019, results.

scholarly journals How to Relax in Stressful Situations: A Smart Stress Reduction System

Healthcare ◽  
2020 ◽  
Vol 8 (2) ◽  
pp. 100 ◽  
Author(s):  
Yekta Said Can ◽  
Heather Iles-Smith ◽  
Niaz Chalabianloo ◽  
Deniz Ekiz ◽  
Javier Fernández-Álvarez ◽  
...  
Keyword(s):  
Physical Activity ◽  
Stress Management ◽  
Stress Level ◽  
Stress Reduction ◽  
Detection System ◽  
High Stress ◽  
Well Being ◽  
Smart Devices ◽  
Relaxation Methods ◽  
Stress Levels

Stress is an inescapable element of the modern age. Instances of untreated stress may lead to a reduction in the individual’s health, well-being and socio-economic situation. Stress management application development for wearable smart devices is a growing market. The use of wearable smart devices and biofeedback for individualized real-life stress reduction interventions has received less attention. By using our unobtrusive automatic stress detection system for use with consumer-grade smart bands, we first detected stress levels. When a high stress level is detected, our system suggests the most appropriate relaxation method by analyzing the physical activity-based contextual information. In more restricted contexts, physical activity is lower and mobile relaxation methods might be more appropriate, whereas in free contexts traditional methods might be useful. We further compared traditional and mobile relaxation methods by using our stress level detection system during an eight day EU project training event involving 15 early stage researchers (mean age 28; gender 9 Male, 6 Female). Participants’ daily stress levels were monitored and a range of traditional and mobile stress management techniques was applied. On day eight, participants were exposed to a ‘stressful’ event by being required to give an oral presentation. Insights about the success of both traditional and mobile relaxation methods by using the physiological signals and collected self-reports were provided.

scholarly journals Effectiveness of Mind–Body Intervention for Inflammatory Conditions: Results from a 26-Week Randomized, Non-Blinded, Parallel-Group Trial

2021 ◽  
Vol 10 (14) ◽  
pp. 3107
Author(s):  
Thao Thi Nguyen ◽  
Christian G. Jensen ◽  
Lina Khoury ◽  
Bent Deleuran ◽  
Esther S. Blom ◽  
...  
Keyword(s):  
Stress Reduction ◽  
Repeated Measures ◽  
Intervention Program ◽  
Well Being ◽  
Eligibility Criteria ◽  
Treatment As Usual ◽  
Mean Values ◽  
Intention To Treat ◽  
Significant Difference ◽  
Biopsychosocial Intervention

Biopsychosocial intervention has been suggested as a complementary treatment strategy for patients with chronic conditions. We compared the effect of a mind–body intervention (MBI), relative to treatment-as-usual (TAU) on WHO-5 Well-being Index during an intensive period of 12 weeks and follow-up at week 26 among patients with either psoriasis (PsO) or rheumatoid arthritis (RA). The MBI was based on the ‘Relaxation Response Resiliency Program’ and the ‘Open and Calm Program’, as well as ‘Mindfulness Based Stress Reduction’ (MBSR). The trial was randomized, management-as-usual, and controlled. Statistical analyses were based on the intention-to-treat population using repeated measures and mixed effects models (NCT03888261). We screened 39 potential participants, 35 of which (PsO, n = 20; RA, n = 15) met the eligibility criteria and were randomized: 17 in the MBI group and 18 in the TAU group. Attrition from the intervention program was 19%, with 65% of MBI patients and 71% of TAU patients completing the outcome assessments. After 12 weeks, a statistically significant difference in WHO-5 was observed between the groups (p = 0.019). However, according to the protocol, during the entire trial period, the average (least squares mean values) WHO-5 score was higher although not statistically significant in the MBI group (65.3) compared with the TAU group (59.1), corresponding to a between-group difference over 26 weeks of 6.15 (95% CI: −0.26 to 12.56; p = 0.060). All things considered, adding biopsychosocial intervention to clinical practice to patients with conditions, such as PsO and RA, could potentially improve health-related quality of life.

scholarly journals A collaborative approach to exercise provision for people with Parkinson’s – a feasibility and acceptability study of the PDConnect programme

2020 ◽  
Vol 2 ◽  
pp. 29
Author(s):  
Julie Jones ◽  
Lyndsay Alexander ◽  
Elizabeth Hancock ◽  
Kay Cooper
Keyword(s):  
Neuroprotective Effect ◽  
Well Being ◽  
Self Management ◽  
Care Group ◽  
Mixed Methods Design ◽  
Structured Interviews ◽  
Exercise Participation ◽  
Rate Of Decline ◽  
Non Motor Symptoms

Background: Exercise has been shown to be beneficial for people with Parkinson’s (PwP), limiting the rate of decline of motor and non-motor symptoms, with emerging evidence associating exercise with a neuroprotective effect. Current exercise provision is time-limited, and delivered in the absence of strategies to support long-term adherence to exercise. With a growing Parkinson’s population, there is a need to develop long-term sustainable approaches to exercise delivery. The primary aim of this study is to assess the feasibility and acceptability of a multicomponent intervention (PDConnect) aimed at promoting physical activity, and self-management for PwP. Methods: A convergent fixed parallel mixed methods design study will be undertaken. The study aims to recruit 30 PwP, who will be randomly allocated into two groups: (i) the usual care group will receive physiotherapy once a week for six weeks delivered via Microsoft Teams. (ii) The PDConnect group will receive physiotherapy once a week for six weeks which combines exercise, education and behaviour change interventions delivered by NHS Parkinson’s specialist physiotherapists via Microsoft Teams. This will be followed by 12 weekly sessions of group exercise delivered on Microsoft Teams by fitness instructors specially trained in Parkinson’s. Participants will be then contacted by the fitness instructors once per month for three months by video conferencing to support exercise engagement. Primary feasibility data will be collected during the study, with acceptability assessed via semi-structured interviews at the end. Secondary outcomes encompassing motor, non-motor and health and well-being measures will be assessed at baseline, at six, 18, and 30 weeks. Discussion: This pilot study will establish whether PDConnect is feasible and acceptable to PwP. This will provide a platform for a larger evaluation to assess the effectiveness of PDConnect at increasing exercise participation and self-management within the Parkinson’s Community. Trial registration: Registered on ISRCTN (ISRCTN11672329, 4th June 2020).

scholarly journals Report on Self-Management of Mental Wellbeing Using Bonsai as an Ecotherapeutic Art Tool

2020 ◽  
Author(s):  
Caroll Hermann
Keyword(s):  
Mental Health ◽  
Life Events ◽  
Stressful Life Events ◽  
Well Being ◽  
Mental Wellbeing ◽  
Self Management ◽  
Structured Interviews ◽  
Self Help ◽  
Emotional Value ◽  
Mental Well Being

Objective: The study investigated the benefit of practicing the art of bonsai and the well-being of practitioners. The art promotes relaxation, focus and art therapy that can have personal and emotional value in a self-help setting. When the bonsai tree is used as a healing object, it may improve the ability of the bonsai practitioner to adapt to adverse and stressful life events, such as the present global COVID-19 pandemic. Method: International bonsai artists (n = 255) participated in a study that examined the effect their bonsai had on their mental well-being. Semi-structured interviews were conducted with bonsai artists answering the question: “How has bonsai helped you?”. Results: Most participants acknowledged that being able to take care of their bonsais affected their mood in a positive manner. Discussion: Although the participants did not report overall improved mental health, participants expressed an improvement in their mood when being able to work on a bonsai tree. Conclusion: These findings are significant in that it can be useful in as a preventative and restorative manner in the mental well-being of people who practice the art.

scholarly journals A collaborative approach to exercise provision for people with Parkinson’s – a feasibility and acceptability study of the PDConnect programme

2021 ◽  
Vol 2 ◽  
pp. 29
Author(s):  
Julie Jones ◽  
Lyndsay Alexander ◽  
Elizabeth Hancock ◽  
Kay Cooper
Keyword(s):  
Neuroprotective Effect ◽  
Well Being ◽  
Self Management ◽  
Care Group ◽  
Mixed Methods Design ◽  
Structured Interviews ◽  
Exercise Participation ◽  
Rate Of Decline ◽  
Non Motor Symptoms

Background: Exercise has been shown to be beneficial for people with Parkinson’s (PwP), slowing the rate of decline of motor and non-motor symptoms, with emerging evidence associating exercise with a neuroprotective effect. Current exercise provision is time-limited, and delivered in the absence of strategies to support long-term adherence to exercise. With a growing Parkinson’s population, there is a need to develop long-term sustainable approaches to exercise delivery. The primary aim of this study is to assess the feasibility and acceptability of a multicomponent intervention (PDConnect) aimed at promoting physical activity, and self-management for PwP. Methods: A convergent fixed parallel mixed methods design study will be undertaken. The study aims to recruit 30 PwP, who will be randomly allocated into two groups: (i) the usual care group will receive physiotherapy once a week for six weeks delivered via Microsoft Teams. (ii) The PDConnect group will receive physiotherapy once a week for six weeks which combines exercise, education and behaviour change interventions delivered by NHS Parkinson’s specialist physiotherapists via Microsoft Teams. This will be followed by 12 weekly sessions of group exercise delivered on Microsoft Teams by fitness instructors specially trained in Parkinson’s. Participants will be then contacted by the fitness instructors once per month for three months by video conferencing to support exercise engagement. Primary feasibility data will be collected during the study, with acceptability assessed via semi-structured interviews at the end. Secondary outcomes encompassing motor, non-motor and health and well-being measures will be assessed at baseline, at six, 18, and 30 weeks. Discussion: This pilot study will establish whether PDConnect is feasible and acceptable to PwP. This will provide a platform for a larger evaluation to assess the effectiveness of PDConnect at increasing exercise participation and self-management within the Parkinson’s Community. Trial registration: Registered on ISRCTN (ISRCTN11672329, 4th June 2020).

Diabetes self-management: what role does the family play?

2020 ◽  
Vol ahead-of-print (ahead-of-print) ◽  
Author(s):  
Titan Ligita ◽  
Nichole Harvey ◽  
Kristin Wicking ◽  
Karen Francis ◽  
Intansari Nurjannah
Keyword(s):  
Health Education ◽  
Early Recognition ◽  
Social Process ◽  
Healthcare Providers ◽  
Well Being ◽  
Self Management ◽  
Structured Interviews ◽  
Content Type ◽  
The One ◽  
Constant Comparative Analysis

PurposeThis paper aims to explicate one of the major findings of a research study seeking to understand how Indonesian people with diabetes learn about their disease. The one key finding discussed in this paper is how families influence the learning and self-management processes adopted by Indonesian people with diabetes.Design/methodology/approachA grounded theory methodology was adopted to investigate how Indonesian people with diabetes learn about their disease. Twenty-eight semi-structured interviews were undertaken with Indonesian people living with diabetes, families of people living with diabetes, healthcare professionals and other healthcare providers. Data was analysed by using constant comparative analysis during three coding stages.FindingsThe study explicated the basic social process of how people with diabetes in Indonesia learn about their disease through a generated theory “Learning, choosing, and acting: self-management of diabetes in Indonesia”. This study found family engagement was integral to Indonesian people living with diabetes who were self-managing their disease. Families assisted with seeking information, providing recommendations, selecting and implementing actions, appraising implemented actions, and informing others about their experiences. By acknowledging that family is involved in this process, the healthcare professional can adequately provide health education to both the person with diabetes and their families. Involving families in health education is crucial as family can influence decision making made by people with diabetes in a proper or improper way. Thus, clinicians need to also skilfully recognise difficulties these people encounter by monitoring their self-management progress and by working closely with them and their family members.Originality/valueThis is the first study conducted in Indonesia that specifically investigates the process of how people with diabetes learn about their disease. The involvement of families in this process is a central finding of the study. Families can enhance the overall health and well-being of the person with diabetes, aid in early recognition of aberration to health status and trigger the initiation of interventions to re-establish homeostasis if they are actively engaged and supported by health professionals.

scholarly journals Experiences of self-management support in patients with diabetes and multimorbidity: a qualitative study in Norwegian general practice

2020 ◽  
Vol 21 ◽  
Author(s):  
Monica Sørensen ◽  
Karen Synne Groven ◽  
Bjørn Gjelsvik ◽  
Kari Almendingen ◽  
Lisa Garnweidner-Holme
Keyword(s):  
Diabetes Mellitus ◽  
General Practice ◽  
Well Being ◽  
Self Management ◽  
Management Support ◽  
Structured Interviews ◽  
Long Term Conditions ◽  
Patients With Diabetes ◽  
Emotional Aspects

Abstract Aim: The purpose of this study was to explore how patients with diabetes and multimorbidity experience self-management support by general practitioners (GPs), nurses and medical secretaries in Norwegian general practice. Background: Self-management support is recognised as an important strategy to improve the autonomy and well-being of patients with long-term conditions. Collaborating healthcare professionals (cHCPs), such as nurses and medical secretaries, may have an important role in the provision of self-management support. No previous study has explored how patients with diabetes and multimorbidity experience self-management support provided by cHCPs in general practice in Norway. Methods: Semi-structured interviews with 11 patients with type 1 diabetes mellitus (T1DM) or type 2 diabetes mellitus (T2DM) with one or more additional long-term condition were performed during February–May 2017. Findings: Patients experienced cHCPs as particularly attentive towards the psychological and emotional aspects of living with diabetes. Compared to GPs, whose appointments were experienced as stressful, patients found cHCPs more approachable and more likely to address patients’ questions and worries. In this sense, cHCPs complemented GP-led diabetes care. However, neither cHCPs nor GPs were perceived to involve patients’ in clinical decisions or goal setting during consultations.

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