1 Development of the School-Aged Life Impact Burn Recovery Evaluation (SA-LIBRE: 5–12) Profile: A Conceptual Model Framework

2021 ◽  
Vol 42 (Supplement_1) ◽  
pp. S6-S7
Author(s):  
Camerin A Rencken ◽  
Silvanys L Rodríguez-Mercedes ◽  
Khushbu F Patel ◽  
Gabrielle G Grant ◽  
Erin M Kinney ◽  
...  

Abstract Introduction Pediatric burn injuries can alter the trajectory of the survivor’s entire life. Patient-centered outcome measures are helpful to capture and assess their unique physical and psychosocial needs and long-term recovery. This study aimed to develop a conceptual model framework to measure outcomes most important to pediatric burn survivors aged 5 to 12 years as a part of the SA-LIBRE5-12 Computer Adaptive Test (CAT) development. Methods This study used a systematic literature review guided by the WHO International Classification of Functioning – Child and Youth. Previously established domains in the American Burn Association/Shriners Hospitals for Children Burn Outcomes Questionnaire5-18 further guided framework development. Individual interviews with parents and clinicians were conducted to obtain perspectives on domains most important to assess following a burn injury in children aged 5 to 12 years. One clinician focus group was completed to identify gaps in the preliminary framework, and semi-weekly expert consensus meetings were conducted to solidify the framework. Qualitative data were analyzed by grounded theory methodology in NVivo 12 software. Results The literature review identified 82 articles. Eight parents and seven clinicians participated in individual interviews, four clinicians participated in one focus group, and three consultants were included in the expert consensus meetings. The consultants included a burn surgeon, psychiatrist, and health services researcher. Three major domains emerged from the grounded theory approach, including: 1) Physical Functioning: fine motor and upper extremity, gross motor and lower extremity, pain, skin sensitivity, sleep and fatigue, and physical resilience; 2) Psychological Functioning: cognitive, behavioral, emotional, resilience, and body image; and 3) Family and Social Functioning: school, peer relations, community participation, family relationships, and parental satisfaction. Conclusions The comprehensive literature review, clinician and parent individual interviews, clinician focus group, and expert consensus meetings resulted in a conceptual model framework for parent-reported health outcomes after a burn injury in school-aged children aged 5 to 12 years. The framework will be used to develop item banks for a CAT-based assessment of school-aged children’s health and developmental outcomes.

Dementia ◽  
2018 ◽  
Vol 19 (6) ◽  
pp. 1872-1888 ◽  
Author(s):  
Anna Brorsson ◽  
Annika Öhman ◽  
Stefan Lundberg ◽  
Malcolm P Cutchin ◽  
Louise Nygård

Background People with dementia who live in ordinary housing need to perform activities outside the home such as visiting friends, talking walks and doing grocery shopping. This article identifies and examines characteristics that may influence accessibility in the space of a grocery shop as perceived by people with dementia. Methods This is a qualitative study with a grounded theory approach. The data collection was done with two different methods. It started with photo documentation and continued with focus group interviews in combination with photo elicitation. Data from both photo documentation and focus groups were analysed according to a grounded theory approach. Results The categories “illogical arrangement”, “overload of products, information and people”, “visual illusions” and “intrusive auditory stimuli” showed characteristics in the grocery shop that influenced how accessible and usable the informants experienced a shop to be. Furthermore, personal capacities in relation to the specific characteristics of the grocery shop space had an influence on how accessible and usable the informants experienced the grocery shop to be. Capacities to find, stay focused and concentrated, meet stress, remember, interpret and discriminate sensory impressions through hearing and sight came to the fore as important. Conclusions Characteristics of both the shop and the person need to be taken into account when supporting people with dementia in grocery shopping.


2019 ◽  
Vol 32 (2) ◽  
pp. 120-126 ◽  
Author(s):  
Margie E. Burns

Assuming the role of caregiver for a life partner after critical illness can be both a rewarding and challenging experience for spouses. Using a grounded theory approach, Ågård, Egerod, Tønnesen, and Lomborg developed a theoretical model describing the experience from spouse to caregiver and back. To further develop this theoretical model, a literature review was completed and nursing interventions were identified and included in the model. Testing of this theoretical model is recommended to determine its empirical adequacy.


2012 ◽  
Vol 36 (112) ◽  
pp. 55-71
Author(s):  
Alan MacLennan

This paper describes a piece of research intended to establish user preferences for the design of virtual worlds for information retrieval, and reflects critically on the methodology adopted. Over 100 students and staff at Robert Gordon University were interviewed, in three cycles of literature review, interview, development and testing. A grounded theory approach was taken, in order to reach conclusions based on user experiences, rather than on the literature. Findings were that preferences appear to be based on affective, rather than structural, criteria, the most influential being familiarity, quality, representation, mediation, etc. The effectiveness of the grounded theory approach in this piece of research is evaluated, with particular regard to the typical criticisms to which such an approach is subject. It is concluded that there is value in the approach, but the limitations of the approach are acknowledged, and strategies to reduce the effect of these are discussed.


2021 ◽  
Vol 9 (02) ◽  
pp. 736-750
Author(s):  
Nisha Laila ◽  
◽  
Linu Sara George ◽  
Shalini G. Nayak ◽  
◽  
...  

Objective: The main objective of this study was to explore the experiences of mothers parenting children with Autism Spectrum Disorder (ASD) with a view to formulate a conceptual model of parenting experiences based on the constructs identified. Design &Methods: The study used grounded theory methodology in order to derive a conceptual model for parenting a child with ASD. The participants were mothers between the age group of 24-50 years undergoing parent child training from Autism training Centre, Northern India. The study is based on in depth interviews with twelve mothers who were meeting the eligibility criteria. The interviews were digitally recorded with a voice recorder. The anonymity and confidentiality of the participants were assured. The translated data were coded and categorised using open code software Results: The qualitative data analysis revealed thirteen major categories and forty six sub categories and a core category was derived out of the concepts and formulated a conceptual model of coping with autism, Unique and differential parenting Mothers Journey towards adaptation. Conclusion: This qualitative study provides evidence for parenting experiences of Indian mothers of children with ASD. The findings would provide identification of problems, need based care and guidance for professionals. Practice Implications: The conceptual model formulated could be used as a basis to test the hypothesis in various aspects of the concepts discussed in relation to mothers experiences of a child with ASD and thus a substantive theory of parenting a child with ASD could be developed in future after comparing and concept analysis of the existing parenting theories .


2021 ◽  
Vol 11 (4) ◽  
pp. 4931-4945
Author(s):  
Dhaval Anjaria ◽  
Mugdha Kulkarni

Adopting DevOps means increased collaboration between development and operations teams and faster release cycles through a shift to automation. Using Dev Ops brings with it several advantages in the development of software. Security, however, is often neglected in DevOps due to the fast release cycle. Therefore Dev Sec Ops has emerged as an extension to DevOps that attempts to integrate security with Dev Ops practices, which is not without its challenges. DevOps, and by extension Dev Sec Ops, represents a significant change in the culture, tooling, and processes used in software development. Therefore, when implementing DevSecOps, teams and their organizations need to be aware of the challenges it brings and how to address those challenges for a DevSecOps implementation to be effective. Literature on DevSecOps exists that outlines practices and principles to do this. This paper uses a grounded theory approach to do a systematic literature review of academic literature to find the factors that contribute to an effective DevSecOps implementation. It attempts to reconcile the challenges of DevSecOps with ways of mitigating them and the advantages that a DevSecOps implementation can bring. The paper thus outlines methods of effectively implementing DevSecOps as described in academic literature.


2021 ◽  
Vol 27 (7) ◽  
pp. 334-350
Author(s):  
Sue Griffith ◽  
Leslie Gelling

Background: Literature for preparing hospice nurses to deliver end-of-life care is sparse. Aim: To investigate how nurses in one UK hospice prepared to deliver end-of-life care in their role. Methods: A classic grounded theory approach was used to investigate the experiences of 22 registered nurses in one UK hospice, to discover how they prepared for their role. A total of 17 individual interviews and one focus group were conducted. Constant comparison of data and member checking were performed to establish validity. Findings: Findings were synthesised into five categories: the ‘shared ideal’, feeling good at the job, making a difference, experience/exposure to hospice work and the importance of role models. The shared ideal formed the core category, which explained how hospice nurses feel a sense of ‘fit’ with their work. Conclusion: The feeling of a nurse feeling well-suited to the work and that there the work was a good ‘fit’ for them was identified as a core element to nurses' feelings of preparedness to provide end-of-life care.


Author(s):  
Neeta Baporikar

Growing importance of CSR is making the industry, governments, policy makers and international associations seriously view the issue of corporate social responsibility (CSR) with an aim to link sustainability for the organizations, sector and economy. Hence, more and more of them are entering the arena of setting guidelines on reporting CSR initiatives. Banking is no exception. Through in-depth literature review and grounded theory approach, this article delves into the CSR initiatives by Bank Windhoek, and the multi-pronged approach adopted in developing sustainable strategy in its pursuit and endurance to be a frontrunner in the Namibian banking sector.


Author(s):  
Stanley K.K. Lam ◽  
Enid W.Y. Kwong ◽  
Maria S.Y. Hung ◽  
Wai-tong Chien

Emergency nurses frequently encounter uncertainty and changes during the management of emerging infectious diseases, which challenge their capability to perform their duties in a well-planned and systematic manner. To date, little is known about the coping strategies adopted by emergency nurses in addressing uncertainty and changes during an epidemic event. The present study explored emergency nurses’ behaviours and strategies in handling uncertainty and practice changes during an epidemic event. A qualitative study based on the Straussian grounded theory approach was established. Semi-structured, face-to-face, individual interviews were conducted with 26 emergency nurses for data collection. Adapting protocol to the evolving context of practice was revealed as the core category. Four interplaying subcategories were identified: (1) Completing a comprehensive assessment, (2) continuing education for emerging infectious disease management, (3) incorporating guideline updates and (4) navigating new duties and competencies. The nurses demonstrated the prudence to orientate themselves to an ambiguous work situation and displayed the ability to adapt and embrace changes in their practice and duties. These findings offer insights into the need for education and training schemes that allow emergency nurses to acquire and develop the necessary decision-making and problem-solving skills to handle a public health emergency.


2021 ◽  
Vol 42 (Supplement_1) ◽  
pp. S7-S8
Author(s):  
Silvanys L Rodríguez-Mercedes ◽  
Camerin A Rencken ◽  
Khushbu F Patel ◽  
Gabrielle G Grant ◽  
Erin M Kinney ◽  
...  

Abstract Introduction The transition from early childhood to teen years (5–12) is a critical time of development, which can be made particularly challenging by a burn injury. Currently, few validated standardized measures exist for this age group. This study aimed to generate item pools to create a computer adaptive test (CAT) assessing post-burn recovery in school-aged children. Methods Item pool development was based on the School-Aged Life Impact Burn Recovery Evaluation (SA-LIBRE5-12) Conceptual Model and the World Health Organization’s International Classification of Functioning, Disability, and Health for Children and Youth. Additional elements included a literature review, expert consensus meetings, and parent cognitive interviews. Candidate items assessing health outcomes were extracted from existing legacy measures during the literature review. Details of expert consensus meetings and parent cognitive interviews are in Table 1. Results Items assessing health outcomes (n=3,732) were extracted during the literature review. Experts binned items across three domains: 1) Physical Functioning (55 items), 2) Psychological Functioning (80 items), and 3) Family and Social Functioning (57 items). Six cognitive interviews were conducted. Qualitative data resulted in further review of 86 items. The results of the cognitive interviews indicated that item stems and response choices were interpretable by respondents. Conclusions This study developed an item pool (n=192) to assess post-burn recovery of school-aged children. The next step in the SA-LIBRE5-12 CAT Profile development will be field-testing for the calibration and item response theory-based validation of the assessment.


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