Spirituality in a Time of Crisis

2019 ◽  
pp. 84-93
Author(s):  
Ronald Cole-Turner
Keyword(s):  
High Risk ◽  
Family Members ◽  
High Risk Infant ◽  
The Gift

American mainstream Protestants are diverse, but several common religious motifs are likely to surface when caregivers and family members are faced with caring for a high-risk newborn. One of the first will be theological questions about cause or responsibility. Did I (or we) do something to cause this? Why is God letting this happen? Is God testing us? A second motif has to do with how to mark religiously the acceptance of the gift of the baby’s life. Although for Protestants there is no concern about the salvation of a baby dying without baptism, a hospital baptism can be the strongest possible affirmation of the life that is present, is soon to be gone, and yet will be fulfilled in some unspecifiable or mysterious way. A third motif draws these first two together. Caring for the high-risk infant can call out or create reserves of personal and spiritual strength.

scholarly journals Cascade screening for glaucoma in high-risk family members of African-Caribbean glaucoma patients in an urban population in London

2020 ◽  
pp. bjophthalmol-2020-317373
Author(s):  
Anindyt Nagar ◽  
Sam Myers ◽  
Diana Kozareva ◽  
Mark Simcoe ◽  
Christopher Hammond
Keyword(s):  
High Risk ◽  
Genetic Diseases ◽  
Family Doctor ◽  
Family Members ◽  
Hospital Setting ◽  
High Risk Group ◽  
Cascade Screening ◽  
Specialist Referral ◽  
High Risk Family ◽  
African Caribbean

Background/aimsCascade screening has been used successfully in relatives of patients with inherited cancers and other genetic diseases to identify presymptomatic disease. This study was designed to examine if this approach would be successful in a high-risk group: first-degree relatives (FDR) of African-Caribbean glaucoma patients resident in London.MethodsAfrican-Caribbean patients (probands) with glaucoma from an inner London hospital setting in a deprived area were asked to disseminate personalised information to their FDR over the age of 30 and to arrange a free hospital-based screening. Data collected, including optical coherence tomography imaging, were reviewed by a glaucoma specialist and if glaucoma was diagnosed or suspected, local specialist referral via family doctor was made.Results203 probands were recruited from glaucoma clinics. 248 suitable FDR were identified as potentially eligible to attend screening. 57 (23%) FDR made contact with the research team of whom 18 (7%) attended a subsequent screening visit. No patients were diagnosed with glaucoma; one participant was diagnosed as glaucoma suspect. Reasons for poor uptake included reluctance by probands to involve their family members, and retirees spending significant time abroad.ConclusionCascade screening of FDR of African-Caribbean glaucoma patients in inner city London was unsuccessful. Research confidentiality guidance prohibiting research teams directly contacting family members was a barrier. Greater community engagement, community-based screening and permission to contact FDR directly might have improved uptake.

The Gift of Solidarity: Women Navigating Jewellery Work and Patriarchal Norms in Rural West Bengal, India

2021 ◽  
pp. 097317412098457
Author(s):  
Sarasij Majumder
Keyword(s):  
Informal Sector ◽  
West Bengal ◽  
Family Members ◽  
Informal Networks ◽  
Formal Economy ◽  
Women's Participation ◽  
The Gift ◽  
Control Work ◽  
And Control ◽  
Urban Villages

In the context of declining women’s participation in the formal economy in India, this paper looks at how women’s work in the informal sector of jewellery-making emerges as gift. Gendered discourses on work turn men, who worked as labourers, into supervisors who monitor and control work situations and sort and grade final products in jewellery workshops. Following Anna Tsing, I argue that jewellery products start their lives as gifts but as they move from women (who are seen as housewives and family members) to men (who are seen as professionals/experts within the workshop) and beyond, they become commodities. This journey from gift to commodity within the workshop is made possible by a gendered discourse on work and by the dynamics within small landholding middle-caste households. Further, I underscore that women’s informal networks often help them cope with the emotional and affective tensions of work and the demands imposed on them by the men and their own households. Women facilitate the transition from gift to commodity by colluding amongst themselves to work in these informal spaces to maintain household status within peri-urban villages of West Bengal.

The High-Risk Infant

1975 ◽  
Vol 55 (10) ◽  
pp. 1092-1096 ◽  
Author(s):  
Karen Goldberg
Keyword(s):  
High Risk ◽  
High Risk Infant

Resolving driver events in MLL-r negative high-risk infant ALL.

2021 ◽  
Vol 39 (15_suppl) ◽  
pp. 10030-10030
Author(s):  
Jennifer Seelisch ◽  
Matthew Zatzman ◽  
Federico Comitani ◽  
Fabio Fuligni ◽  
Ledia Brunga ◽  
...  
Keyword(s):  
Gene Expression ◽  
T Cell ◽  
High Risk ◽  
B Cell ◽  
Gene Expression Profiling ◽  
Rna Sequencing ◽  
Clinical Features ◽  
Expression Profiling ◽  
High Risk Infant ◽  
Childhood All

10030 Background: Infant acute lymphoblastic leukemia (ALL) is the only subtype of childhood ALL whose outcome has not improved over the past two decades. The most important prognosticator is the presence of rearrangements in the Mixed Lineage Leukemia gene (MLL-r), however, many patients present with high-risk clinical features but without MLL-r. We recently identified two cases of infant ALL with high-risk clinical features resembling MLL-r, but were negative for MLL-r by conventional diagnostics. RNA sequencing revealed a partial tandem duplication in MLL (MLL-PTD). We thus aimed to determine if MLL-PTD, other MLL abnormalities, or other genetic or transcriptomic features were driving this subset of high-risk infant ALL without MLL-r. Methods: We obtained 19 banked patient samples from the Children’s Oncology Group (COG) infant ALL trial (AALL0631) from MLL wildtype patients as determined by FISH and cytogenetics. Utilizing deep RNA-sequencing, we manually inspected the MLL gene for MLL-PTD, while also performing automated fusion detection and gene expression profiling in search of defining features of these tumors. Results: 3 additional MLL-PTDs were identified, all in patients with infant T-cell ALL, whereas both index cases were in patients with infant B-cell ALL. Gene expression profiling analysis revealed that all five MLL-PTD infants clustered together. Eight infants (7 with B-cell ALL) were found to have Ph-like expression. Five of these 8 infants were also found to have an IKZF1/JAK2 expression profile; one of these five had a PAX5-JAK2 fusion detected. Two infants (including the one noted above) had novel PAX5 fusions, known drivers of B-cell leukemia. Additional detected fusions included TCF3-PBX1 and TCF4-ZNF384. Conclusions: MLL-PTDs were found in both B- and T-cell infant ALL. Though Ph-like ALL has been described in adolescents and young adults, we found a substantial frequency of Ph-like expression among MLL-WT infants. Further characterization of these infants is ongoing. If replicated in other infant cohorts, these two findings may help explain the poor prognosis of MLL-WT ALL when compared to children with standard risk ALL, and offer the possibility of targeted therapy for select infants.

Ethical Issues Surrounding High-Risk Kidney Recipients: Implications for the Living Donor

2007 ◽  
Vol 17 (3) ◽  
pp. 180-182 ◽  
Author(s):  
Jerome F. O'Hara ◽  
Katrina Bramstedt ◽  
Stewart Flechner ◽  
David Goldfarb
Keyword(s):  
Informed Consent ◽  
High Risk ◽  
Ethical Issues ◽  
Family Members ◽  
Transplant Recipients ◽  
Kidney Donor ◽  
Living Kidney Donor ◽  
Kidney Recipients ◽  
Medical Issues ◽  
Donor Transplant

Evaulating patients for living kidney donor transplantation involving a recipient with significant medical issues can create an ethical debate about whether to proceed with surgery. Donors must be informed of the surgical risk to proceed with donating a kidney and their decision must be a voluntary one. A detailed informed consent should be obtained from high-risk living kidney donor transplant recipients as well as donors and family members after the high perioperative risk potential has been explained to them. In addition, family members need to be informed of and acknowledge that a living kidney donor transplant recipient with pretransplant extrarenal morbidity has a higher risk of a serious adverse outcome event such as graft failure or recipient death. We review 2 cases involving living kidney donor transplant recipients with significant comorbidity and discuss ethical considerations, donor risk, and the need for an extended informed consent.

Infant Intervention and Parent Education: The Necessity for an Interdisciplinary Approach

1981 ◽  
Vol 163 (3) ◽  
pp. 275-281 ◽  
Author(s):  
Jeffrey L. Derevensky
Keyword(s):  
High Risk ◽  
Parent Education ◽  
Interdisciplinary Approach ◽  
Intervention Programs ◽  
Team Approach ◽  
High Risk Infant ◽  
Early Infant ◽  
Parent Education Programs ◽  
High Risk Children ◽  
Parent Program

Considerable attention has been given to a growing literature concerning early infant stimulation and parent education programs for the ‘high risk’ infant. While specific innovative intervention programs have been implemented for these ‘high risk’ children, little work has been done toward the implementation of preventative psychotherapeutic models for the normal child. This paper describes the Ready-Set-Go Infant-Child-Parent Program and its implementation stressing the necessity for an interdisciplinary team approach in establishing a viable and effective infant stimulation-parent education program.

Asphyxia in the High-Risk Infant

1987 ◽  
pp. 121-135
Author(s):  
Alberto Lacoius-Petruccelli
Keyword(s):  
High Risk ◽  
High Risk Infant

scholarly journals A Qualitative Study on Emergency Healthcare Worker (EHCW) Perception towards COVID-ACLS Simulation Training in Resuscitating Suspected COVID-19 Patients

2021 ◽  
Vol 50 (9) ◽  
pp. 2847-2858
Author(s):  
Jebby Yii ◽  
Alias Mahmud ◽  
Azlan Helmy Abd Samat ◽  
Dazlin Masdiana Sabardin ◽  
Mohd Hisham Mohd Isa ◽  
...  
Keyword(s):  
High Risk ◽  
Group Discussion ◽  
Family Members ◽  
Safety Issues ◽  
High Risk Patients ◽  
Resuscitation Training ◽  
New Knowledge ◽  
Risk Patients ◽  
Protective Methods ◽  
Regular Training

The emergence of COVID-19 pandemic has caused difficulty to emergency-HCW (EHCW) in resuscitating high-risk patients. We set out to explore EHCW’s perception after undergoing COVID-ACLS resuscitation training and address their anxiety of working in this pandemic. A qualitative case study using focused group discussion was conducted among EHCW who have undergone COVID-ACLS training. Five semi-structured questions exploring respondent’s confidence level, anxiety factors, areas of improvement for COVID-ACLS and if this COVID-ACLS training is sufficient. Inductive and deductive thematic analysis approach was done to analyse the result. 20 EHCW participated in this study. Out of 4 themes, 11 subthemes were identified based on the respondents. They were acquired new knowledge, self-precaution, method of delivery, concerns of self and family members, stigmatisation, insufficient protective methods, underappreciation, regular training sessions, other modalities for learning, course duration; and unsatisfactory reading material. New knowledge and self-precaution were noted to be an important aspect that boosts confidence among EHCW. The main factor that increased anxiety was safety issues and disease spreading to family members, colleagues, and society. In conclusion, COVID-ACLS training is able to boost EHCW confidence in resuscitating high-risk patients. Factors leading to anxiety among EHCW should also be addressed during this pandemic to ensure psychological welfare and mental health are not affected. Regular training and utilisation of other teaching modalities such as video are perceived as a helpful adjunct in boosting their confidence. The utilisation of new training approach should be explored in enhancing EHCW’s knowledge and confidence.

Social Support and Nonsuicidal Self-injury among Adolescent Psychiatric Inpatients

2021 ◽  
Author(s):  
John K. Kellerman ◽  
Alexander Millner ◽  
Victoria W. Joyce ◽  
Carol C. Nash ◽  
Ralph Buonopane ◽  
...  
Keyword(s):  
Social Support ◽  
High Risk ◽  
Clinical Sample ◽  
Family Members ◽  
Protective Effects ◽  
Multiple Sources ◽  
Cross Sectional ◽  
Self Injury ◽  
Sources Of Support ◽  
Nonsuicidal Self Injury

Objective: Cross-sectional studies and prospective studies with long follow-up periods (e.g., years) have shown that lower levels of social support are associated with nonsuicidal self-injury (NSSI) among adolescents. This study examined how short-term changes in social support may contribute to NSSI behavior and whether different sources of support (e.g., friends, family members) provide differential protective effects against NSSI. Methods: We examined fluctuations in NSSI and social support perceived from multiple sources among a sample of 118 high-risk adolescents hospitalized for serious self-harm risk. Participants provided daily reports of social support and any self-injurious behavior for the duration of their inpatient treatment (721 total observations, average observations per participant = 6.11). Multi-level models were used to assess variability in social support and how these fluctuations relate to whether or not an individual engages in NSSI. Results: Over one-third of participants reported engaging in NSSI at least once during inpatient hospitalization and self-reported social support varied considerably within-person across sources of support. Support perceived from family members and inpatient unit staff was inversely associated with NSSI, but no relationship was found between NSSI and support from other patients on the unit or friends outside of the unit. Conclusions: These findings suggest that the protective effects of social support for NSSI vary over short periods of time and that support perceived from adults is particularly relevant among this high-risk clinical sample. This study represents an important step in identifying risk factors to improve the detection and prevention of NSSI among adolescent inpatients.

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