Young Children with Down Syndrome: Mother-Child Dyadic Relationships

2020 ◽  
Author(s):  
Penny Hauser-Cram ◽  
Ashley C. Woodman ◽  
Linda Gilmore
Keyword(s):  
Down Syndrome ◽  
Family System ◽  
Future Research ◽  
Dyadic Relationships ◽  
Sociocultural Perspective ◽  
Dyadic Relationship ◽  
Supportive Parenting ◽  
Maternal Language ◽  
The Family

This chapter is focused on the mother-child dyadic relationship in families where a young child has Down syndrome. Because mothers enter into a relationship with a child within a particular context, a sociocultural perspective on parenting a child with Down syndrome promotes a deeper understanding of interaction in the mother-child dyad. Both the role of the family system, including positive parenting, and the contributions of the child’s attributes, especially temperament, are considered. Specific literature on the mother-child dyad is discussed, including maternal language input, the role of maternal directives during structured and unstructured tasks, and studies on autonomy-supportive parenting. Suggestions for future research include developing studies that focus on maternal strengths as well as conducting investigations that recognize the importance of the sociocultural context in which mother-child dyadic relationships are developed.

scholarly journals The Role of Resilience in the Sibling Experience of Pediatric Palliative Care: What Is the Theory and Evidence?

Children ◽  
2018 ◽  
Vol 5 (7) ◽  
pp. 97 ◽  
Author(s):  
Wei Chin ◽  
Tiina Jaaniste ◽  
Susan Trethewie
Keyword(s):  
Palliative Care ◽  
Family System ◽  
Pediatric Palliative Care ◽  
Future Research ◽  
Medical Conditions ◽  
Disease Trajectory ◽  
Care Services ◽  
The Family ◽  
Palliative Care Services

Siblings of children with life limiting conditions (LLC) are an important part of the broader family system and require consideration in the holistic care of the family. There can be considerable variation in the functioning and adjustment of these siblings. The current paper explores the resilience paradigm, particularly in the context of siblings of children with LLC and serious medical conditions. The potential impact of children living with a seriously ill brother or sister will be overviewed, and a range of functional outcomes considered. Factors contributing to sibling resilience are detailed, including individual, family, and broader external and social factors. Given the limited research with siblings of children with LLC, literature has also been drawn from the siblings of children with serious and/or chronic medical conditions. Implications for clinical practice and future research are considered. Pediatric palliative care services may be well placed to contribute to this body of research as they have commonly extended relationships with the families of children with LLC, which span across the child’s disease trajectory.

The Role of the Family in Genetic Testing: Theoretical Perspectives, Current Knowledge, and Future Directions

2005 ◽  
Vol 32 (5) ◽  
pp. 627-639 ◽  
Author(s):  
Susan K. Peterson
Keyword(s):  
Genetic Testing ◽  
Family Communication ◽  
Family Relationships ◽  
Family System ◽  
Current Knowledge ◽  
Future Research ◽  
Theoretical Approaches ◽  
The Family ◽  
Family Based

This article addresses conceptual challenges and theoretical approaches for examining the role of the family in responding and adapting to genetic testing for inherited conditions. Using a family systems perspective, family-based constructs that are relevant to genetic testing may be organized into three domains: family communication, organization and structure of family relationships, and health-related cognitions and beliefs shared within families. Empirical findings are presented from key content areas in family-based genetics research, including family communication, how genetic testing affects family relationships, psychological responses to genetic testing in the family context, and family-based influences on health decisions. Future research should explore decision making about genetic testing or behavior change specifically within the context of the family system and should identify family-based determinants of genetic testing outcomes.

Parenting, Religion, and Moral Development

2019 ◽  
pp. 178-196
Author(s):  
Sam A. Hardy ◽  
David C. Dollahite ◽  
Chayce R. Baldwin
Keyword(s):  
Moral Development ◽  
Parenting Styles ◽  
Family Relationships ◽  
Future Research ◽  
Adolescent Religiosity ◽  
Faith Traditions ◽  
The Family ◽  
Role Of Religion

The purpose of this chapter is to review research on the role of religion in moral development within the family. We first present a model of the processes involved. Parent or family religiosity is the most distal predictor and affects moral development through its influence on parenting as well as child or adolescent religiosity. Additionally, parenting affects moral development directly, but also through its influence on child or adolescent religiosity. In other words, parent or family religiosity dynamically interconnects with parenting styles and practices, and with family relationships, and these in turn influence moral development directly as well as through child or adolescent religiosity. We also discuss how these processes might vary across faith traditions and cultures, and point to directions for future research.

Families and pain

2013 ◽  
pp. 111-118
Author(s):  
Kathryn A. Birnie ◽  
Katelynn E. Boerner ◽  
Christine T. Chambers
Keyword(s):  
Critical Role ◽  
Theoretical Models ◽  
Future Research ◽  
Illustrative Case ◽  
Comprehensive Review ◽  
Case Examples ◽  
Research Themes ◽  
The Family ◽  
Pain Experiences

The family has long been acknowledged as an important social context where children learn about and receive support for their pain. When a child is in pain, it is the family who is responsible for the initial pain assessment and seeking appropriate evaluation and care. Families may inadvertently encourage the expression of pain and play a critical role in influencing their children’s ability to cope with pain, both positively and negatively. Having a child in pain can also pose significant personal, familial, and economic strains. Therefore, consideration of the family is absolutely critical in the understanding of factors involved in children’s acute and chronic pain experiences (McGrath, 2008). A concentration of research has continued since the last comprehensive review on the topic was published (Chambers, 2003). This chapter considers relevant theoretical models and summarizes current major research themes regarding the role of the family in both acute and chronic paediatric pain. Two illustrative case examples are provided and key areas for future research are identified.

The Formation of Postsecondary Expectations Among Parents of Youth With Autism Spectrum Disorder

2019 ◽  
Vol 35 (2) ◽  
pp. 118-128 ◽  
Author(s):  
Anne V. Kirby ◽  
Nancy Bagatell ◽  
Grace T. Baranek
Keyword(s):  
Autism Spectrum Disorder ◽  
Transition To Adulthood ◽  
Autism Spectrum ◽  
Parent Expectations ◽  
Spectrum Disorder ◽  
Future Research ◽  
Structured Interviews ◽  
The Family ◽  
Postsecondary Expectations

Research suggests higher parent expectations can predict more independent outcomes of youth with autism spectrum disorder (ASD), yet little is known about how parents’ expectations are formed. To gain an understanding of their formation, we conducted semi-structured interviews with seven parents of adolescents with ASD. Three main types of influences on parent expectations were identified: factors related to the youth, to the parent, and to social and societal forces external to the family. Although not directly probed, all of the participants also discussed their approaches to planning for the future, suggesting a connection with their expectations. These findings contribute to a growing body of literature on the role of parent expectations during the transition to adulthood. Future research and clinical practice implications include designing interventions aimed at expanding parent expectations in addition to approaches directly preparing youth with ASD for adulthood as a means to improve outcomes.

Direct and indirect effect of entrepreneurial orientation, family involvement and gender on family business performance

2020 ◽  
Vol ahead-of-print (ahead-of-print) ◽  
Author(s):  
Erny Rachmawati ◽  
Suliyanto ◽  
Agus Suroso
Keyword(s):  
Family Involvement ◽  
Family Business ◽  
Entrepreneurial Orientation ◽  
Business Performance ◽  
Family Businesses ◽  
Future Research ◽  
Content Type ◽  
The Family ◽  
The Relationship

PurposeThis study aims to determine the direct effect of entrepreneurial orientation on family business performance. This study also discusses the role of family involvement as a mediating variable and the role of gender as a moderating variable in the relationship between entrepreneurial orientation and family business performance.Design/methodology/approachA total of 328 hotels in Yogyakarta, Indonesia, were selected as samples by the convenience sampling method. Primary data is collected through structured questionnaires that are delivered by themselves to key people in the hotel such as owners, directors and key staff (HRD, financial, relationship). Hypotheses are tested by structural equation modeling procedures using AMOS 22.0. Sobel test is used to determine the indirect effect of the mediation variable.FindingsThe results showed that entrepreneurial orientation had no significant effect on family business performance. Family involvement acts as a full mediation in the relationship between entrepreneurial orientation and family business performance. Gender acts as a moderating variable that can strengthen the relationship between entrepreneurial orientation and family business performance. The results showed support for previous research.Research limitations/implicationsThe results of the study cannot conclude the national family business because it adopts convenience sampling and the sampling area is limited in Yogyakarta. Future research can use a larger sample. This study only researches hotels managed by family businesses, so it is not feasible to conclude for family businesses in general. Future research may choose to use several types of family businesses so that more varied results can be obtained. Future research could also compare hotels managed by family businesses with non-family businesses. The results also found that in addition to gender roles, respondent heterogeneity was an important component in the study of social identity. Therefore, research examining the influence of different cultures on the relationship between entrepreneurial orientation and family business performance should be an extraordinary topic for future study. Other results from this study also indicate that there is a role for religion in improving hotel performance. Future research is needed to further explore Islamic business modeling for family businesses.Practical implicationsThis finding has significant implications that can help family businesses in developing strategies that are suitable for business management. Entrepreneurial orientation occupies a strategic position in developing sustainable competitive advantage in the family business of the tourism sector especially the hotel business in Yogyakarta for the better. Besides, the results of the study also showed that entrepreneurial orientation had no significant effect on performance. This relationship becomes significant when combined with active family involvement. This finding also shows that entrepreneurial orientation has the potential to have a more beneficial effect because of the active involvement of the family in helping with business management, alleviating business-related problems, and having a significant influence when the family also acts as management.Social implicationsResearch findings indicate the role of gender in strengthening the relationship between entrepreneurial orientation and family business performance. This provides a good position for women in the social environment to show achievement. To place women on the side of gender equality and justice in the family business in Indonesia. By opening wider access for Indonesian women in the realm of business management, expanding women's participation in a family business, increasing the role of control for women, and increasing women's knowledge and skills to increase the benefits in managing family businesses so that they have sustainable resilience in the face of global competition.Originality/valueThe results of this study provide a new model in providing an overview of the direct and indirect roles (mediating and moderating) in the assessment of family business performance. This study uses three variables which are important in performance appraisal, namely entrepreneurial orientation (independent variable), family involvement (mediating variable) and gender (moderating variable). Where research that combines these four variables, directly and indirectly, has never been done before.

scholarly journals Developmental Implications of Children’s Early Religious and Spiritual Experiences in Context: A Sociocultural Perspective

Religions ◽  
2019 ◽  
Vol 10 (11) ◽  
pp. 631 ◽  
Author(s):  
Mona M. Abo-Zena ◽  
Allegra Midgette
Keyword(s):  
Future Research ◽  
Religion And Spirituality ◽  
Spiritual Experiences ◽  
Sociocultural Perspective ◽  
Religious Development ◽  
Social Psychological ◽  
Conceptual Paper ◽  
Role Of Religion ◽  
Selection Of

Religious and spiritual experiences have implications for many aspects of development across the lifespan, including during early childhood. A focus on religion and spirituality expands beyond a discrete domain of social science (e.g., cognitive development) and involves developmental, social-psychological, affective and emotional phenomena, and personality. This conceptual paper contributes to the literature regarding the understudied role of religion and spirituality in the lives of young children and their families in order to contribute to a comprehensive study of human development. After a concise review of the literature on religious development, this paper draws from the sociocultural perspective and illustrative examples of lived experiences to frame young children’s religious participation and gives particular consideration to religious minorities. While the sociocultural perspective captures the range of children’s experiences, this manuscript introduces the understudied role of emotion as a motivator for children’s selection of experiences. The paper concludes with implications for practitioners and suggestions for future research, practice, and policy.

Family communication and decision making at the end of life: A literature review

2014 ◽  
Vol 13 (3) ◽  
pp. 815-825 ◽  
Author(s):  
Cara L. Wallace
Keyword(s):  
Decision Making ◽  
End Of Life ◽  
Family Communication ◽  
End Of Life Care ◽  
Family Members ◽  
Empirical Literature ◽  
Future Research ◽  
Life Care ◽  
The Family

AbstractObjective:Patients and families coping with a terminal illness are faced with a number of decisions over the course of their disease. The role that family communication plays in the process of decision making is an important one. The objectives for this review are to examine the current state of empirical literature on the relationship between family communication and decision making about end-of-life care, to identify gaps, and to discuss implications for policy, practice, and future research.Method:Articles were identified using systematic keyword searches within the following relevant databases: Academic Search Complete, CINAHL Plus, Communications and Mass Media Complete, ERIC, PsychINFO, MEDLINE, SocINDEX, and ProQuest.Results:The three bodies of relevant literature that emerged during this review include: (1) the importance of family communication at the end of life (EoL); (2) family decision making at the EoL; and (3) the interrelationship of communication (both within the family and with healthcare professionals) and decision making at the EoL. While the literature highlights the role of communication between medical professionals and the patient or family members, there is very little focus on the process of how family communication among the family members themselves contributes to decision making at the end of life.Significance of results:Barriers to end-of-life care are important considerations for helping patients to access timely and appropriate services. Understanding the pertinent role of family communication as it relates to the decision for EoL care is the first step in working to provide another avenue for overcoming these barriers.

Television's Role in Family Interaction

1983 ◽  
Vol 4 (2) ◽  
pp. 405-424 ◽  
Author(s):  
IRENE F. GOODMAN
Keyword(s):  
Family Systems ◽  
Measurement Techniques ◽  
Theoretical Models ◽  
Future Research ◽  
New Approach ◽  
Systems Model ◽  
Television Use ◽  
The Family ◽  
Shed Light

The purpose of this article is to argue that exploring the role of television in family life is not solely a matter of studying its effects on family members; it also involves looking at TV as a phenomenon that serves a whole range of social purposes the study of which can shed light on general family functioning. In this review, existing theoretical models and research are discussed in order to show why a new model—family systems—is being proposed. The application of the family systems model to the arena of television use in the family is one that has not been previously explored. Emphasis will be placed on two family systems principles that are important in the study of the family's use of and interaction around television. Current measurement techniques will be examined to illustrate that a new approach, reflecting interaction and process, is needed. Components of a family systems model—structure, development, and adaptation—are adapted in order to discuss TV's function in the family. Suggestions for future research and implications for therapy are offered.

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