Psychometric Characteristics of the Caregiver Contribution to Self-care of Heart Failure Index in a South American Population

2020 ◽  
Vol 35 (5) ◽  
pp. 435-444 ◽  
Author(s):  
Christiane Wahast Ávila ◽  
Maddalena De Maria ◽  
Ercole Vellone ◽  
Barbara Riegel ◽  
Daniela Bernardes ◽  
...  
BMJ Open ◽  
2021 ◽  
Vol 11 (7) ◽  
pp. e052208
Author(s):  
Gabrielle Cécile Santos ◽  
Maria Liljeroos ◽  
Roger Hullin ◽  
Kris Denhaerynck ◽  
Justine Wicht ◽  
...  

IntroductionSymptom perception in heart failure (HF) has been identified as crucial for effective self-care, and is related to patient and health system outcomes. There is uncertainty regarding the feasibility and acceptability of symptom perception support and doubts regarding how to include informal caregivers. This study aims to test the feasibility, acceptability and outcome responsiveness of an intervention supporting symptom perception in persons with HF and their informal caregiver.Methods and analysisA feasibility study with a quasi-experimental pretest and post-test single group design is conducted. The convenience sample consists of 30 persons with HF, their informal caregivers and six nurses. SYMPERHEART is an evidence-informed intervention that targets symptom perception by educational and support components. Feasibility is measured by time-to-recruit; time-to-deliver; eligibility rate; intervention delivery fidelity rate. Acceptability is measured by rate of consent, retention rate, treatment acceptability and the engagement in the intervention components. Outcome responsiveness includes: HF self-care (via the Self-care of Heart Failure Index V.7.2); perception of HF symptom burden (via the Heart Failure Somatic Perception Scale V.3); health status (via the Kansas City Cardiomyopathy Questionnaire-12); caregivers’ contribution to HF self-care (via the Caregiver Contribution to Self-Care of Heart Failure Index 2); caregivers’ burden (via the Zarit Burden Interview). Clinical outcomes include HF events, hospitalisation reason and length of hospital stay. Descriptive statistics will be used to report feasibility, acceptability, patient-reported outcomes (PRO) and clinical outcomes. PRO and caregiver-reported outcome responsiveness will be reported with mean absolute change and effect sizes.Ethics and disseminationThe study is conducted according to the Declaration of Helsinki. The Human Research Ethics Committee of the Canton of Vaud, Switzerland, has approved the study. Written informed consent from persons with HF and informal caregivers are obtained. Results will be published via peer reviewed and professional journals, and further disseminated via congresses.Trial registration numberISRCTN18151041.


2015 ◽  
Vol 23 (4) ◽  
pp. 578-586 ◽  
Author(s):  
Ana Paula da Conceição ◽  
Mariana Alvina dos Santos ◽  
Bernardo dos Santos ◽  
Diná de Almeida Lopes Monteiro da Cruz

AbstractObjective: to describe self-care behavior and its associated factors in a sample of heart failure Brazilian patients.Method: descriptive cross-sectional study with non-probabilistic sample of 116 ambulatory patients undergoing heart failure treatment. Self-care was evaluated using the Self-Care of Heart Failure Index, (scores ≥70 points=appropriate self-care). Association tests were applied, considering a descriptive level of 0.05.Results: the mean age of participants was 57.7 (SD =11.3) years; 54.3% were male; the mean schooling was 5.5 (SD = 4.0) years; and 74.1% had functional class II-III. The mean scores on the subscales of the Self-Care of Heart Failure Index indicated inappropriate self-care (self-care maintenance: 53.2 (SD =14.3), selfcare management: 50.0 (SD = 20.3) and self-care confidence: 52.6 (SD=22.7)) and it was found low frequencies of participants with appropriate self-care (self-care maintenance, 6.9%), self-care management (14.7%) and self-care confidence (19%). Higher scores of the Self-Care of Heart Failure Index were associated with: reduced left ventricular ejection fraction (p=0.001), longer time of experience with the disease (p=0.05) and joint monitoring by physician and nurse (p=0.007).Conclusion: investments are needed to improve the self-care behavior and the nursing can play a relevant role in this improvement.


Author(s):  
Raúl Juárez-Vela ◽  
Angela Durante ◽  
Rosa Antonio-Oriola ◽  
Vicente Gea-Caballero ◽  
Michał Czapla ◽  
...  

Background: Heart failure (HF) is a major and growing public health problem worldwide. Across the world, heart failure is associated with high mortality, high hospitalization rates, and poor quality of life. Self-care is defined as a naturalistic decision-making process involving the choice of behaviors that maintain physiologic stability, the response to symptoms when they occur, and the ability to follow the treatment regimen and control symptoms. One instrument used to measure self-care is the Self Care of Heart Failure Index. Aim: The purpose of this study was to test the psychometric properties of the Spanish version of the Self Care of Heart Failure Index v.6.2 (SCHFI v.6.2). Methodology: Before testing its psychometric properties, the SCHFI v.6.2 was translated and adapted from its original English version into Spanish. Subsequently, we tested the instrument’s psychometric properties on a sample of 203 participants with HF. Descriptive statistics were used to analyze the sociodemographic and clinical variables, and to describe item responses. We tested the factorial validity of the SCHFI v.6.2 using confirmatory and exploratory factor analysis. Results: Confirmatory factor analysis (CFA) was performed using the our pre-existing models which resulted with poor fit indices. Thus, we performed exploratory factor analysis (EFA) on each of the SCHFI v.6.2 scales. Conclusion: The Spanish version of the SCHFI v.6.2. has good characteristics of factorial validity and can be used in clinical practice and research to measure self-care in patients with HF.


2018 ◽  
Vol 101 ◽  
pp. 294-302 ◽  
Author(s):  
Anaque de Oliveira Pires ◽  
Gerson de Almeida Queiroz ◽  
Milca de Jesus Silva ◽  
Raimon Rios da Silva ◽  
Hugo Bernardino Ferreira da Silva ◽  
...  

Pflege ◽  
2008 ◽  
Vol 21 (4) ◽  
pp. 235-251 ◽  
Author(s):  
Jörg Haasenritter ◽  
Eva-Maria Panfil

Herzinsuffizienz ist eine häufige Erkrankung, die mit großem Leid für die Betroffenen und hohen Kosten für die jeweiligen Gesundheitssysteme einhergeht. Eine Verbesserung der Selbstpflege soll zu einer Verbesserung der Ergebnisse wie höhere Lebenserwartung, bessere Lebensqualität, geringere Hospitalisationsrate und verminderten Ressourcenverbrauch führen. Um die Effektivität von Interventionen zur Verbesserung der Selbstpflege in Praxis und Forschung zu beurteilen, sind valide und reliable Instrumente zur Messung der Selbstpflege nötig. Ziel der vorliegenden Literaturanalyse ist es, eine Übersicht über die vorhandenen pflegerischen Assessmentinstrumente zur Messung der Selbstpflege bei Herzinsuffizienz zu erstellen und diese in ihrer messtheoretischen Güte zu bewerten. Hierzu wurde in Datenbanken und anschließender Handsuche nach Studien gesucht, in denen Messungen der gesundheitsbedingten Selbstpflege von Patienten mit Herzinsuffizienz durchgeführt wurden. Es konnten fünf Instrumente identifiziert werden: European Heart Failure Self-care Behaviour Scale (EHFScBS); Revised Heart Failure Self-care Behaviour Scale (rHFScBS); Heart Failure Self-Care Inventory (HFS-CI) Self-Management of Heart Failure Scale (SMHF); Self-Care of Heart Failure Index (SCHFI). Jede der besprochenen Skalen besitzt im Hinblick auf die Gütekriterien unterschiedlich ausgeprägt Stärken und Schwächen. Die EHFSCBS, der HFS-CI und der HFSCI können zumindest bedingt für den Einsatz in Forschung in Praxis empfohlen werden. Für alle Instrumente sind aber weitere Überprüfungen im Bereich der Reliabilität und Validität notwendig.


2018 ◽  
Vol 4 (2) ◽  
Author(s):  
Dwi Prihatiningsih ◽  
Tiwi Sudyasih

ABSTRAKGagal jantung merupakan salah satu penyakit kardiovaskuler yang paling sering terjadi di seluruh dunia yang mengakibatkan tingginya angka mortalitas, morbiditas dan juga berdampak secara finansial terutama bagi lanjut usia. Rehospitalisasi merupakan masalah umum yang sering terjadi pada pasien gagal jantung yang sebagain besar disebabkan oleh keterlambatan dalam pengenalan gejala, pengobatan dan ketidakpatuhan diet serta kurangnya pengetahuan dan keterampilan dalam melakukan perawatan diri. Panduan penanganan gagal jantung menekankan pentingnya perilaku perawatan diri untuk menurunkan kekambuhan dan rehospitalisasi pada pasien gagal jantung. Penelitian ini bertujuan untuk menggambarkan perilaku perawatan diri pada pasien gagal jantung yang mengunjungi poliklinik jantung di RSUD Panembahan Senopati Bantul. Penelitian ini merupakan penelitian deskriptif quantitatif dengan menggunakan pendekatan cross sectional. Sampel berjumlah 74 responden yang merupakan pasien rawat jalan di poliklinik jantung pada bulan Juni hingga Juli 2018. Alat ukur yang digunakan adalah Self-Care of Heart Failure Index (SCHFI), (skor ≥70 poin=adekuat). Uji statistik chi-square digunakan untuk mengetahui hubungan antara factor sosiodemografi dengan perilaku perawatan diri pada pasien gagal jantung. Hasil penelitian ini menunjukkan bahwa perilaku perawatan diri pada sebagian besar responden masih belum adekuat dengan frekuensi perilaku perawatan diri adekuat yang masih rendah (pemeliharaan: 45±13.1 (7.7%), pengelolaan: 46±20.4 (13.0%) dan kepercayaan: 69±16.5 (38.5%)). Hanya satu faktor yaitu penyakit penyerta yang berhubungan dengan perilaku perawatan diri pada pasien gagal jantung pada dimensi kepercayaan diri. Hasil penelitian ini menunjukkan bahwa sebagian besar responden memiliki perilaku perawatan diri yang tidak adekuat seperti juga pada negara-negara lainnya sehingga diperlukan upaya untuk meningkatkan perilaku perawatan diri pada pasien gagal jantung. ABSTRACTHeart failure (HF) is one of the most prevalent cardiovascular diseases in the world which associated with significant mortality, morbidity, and huge financial burden, particularly among aging population. Rehospitalization remain a concern in the care of the heart failure patient which largerly associated with delay in symptoms recognition, treatment, diet non-compliance and also lack of knowledge and skills in heart failure self-care. Guideline on HF emphasize the important of self care in preventing symptoms and hospital readmission. This study aims to describe self-care behavior in a sample of heart failure patients. This is a descriptive cross-sectional study with non-probabilistic sample of 74 in an out-patient heart clinic from June-July 2018. Self-care was measured using the Self-Care of Heart Failure Index (SCHFI), (scores ≥70 points=adequate self-care). Chi-square test was conducted to test whether participant’s characteristics associated with self-care behavior among heart failure patients in three scales. The result shows that self-care was inadequate in most scales (self-care maintenance: 43.4±11.8, self-care management: 49.4±18.5 and self-care confidence: 68,6±14.5. Low frequencies of participants with adequate self-care also observed in the study (self-care maintenance: 5.4%, self-care management: 15.4%) and self-care confidence: 36.5%)). In self-care confidence subscale, higher scores of the SCHFI were associated with no comorbid conditions (p=0.01). None of the sociodemographic and clinical characteristics of the sample were associated with increased self-care in other 2 sub-scales. In conclusion, study shows that self-care in HF is inadequate, interventions aimed at improving self-care espescially in self-care maintenance sub-scale are greatly needed. Additional studies are needed to determine the best approach for this. 


Author(s):  
Reza Negarandeh ◽  
Elham Ghasemi ◽  
Leila Janani

Background & Aim: Self-care in patients with heart failure can improve multiple outcomes and reduce mortality. Measuring self-care requires valid and reliable tools. This study aimed to determine the psychometric properties of the 9-items European Heart Failure Self-Care Behavior Scale. Methods & Materials: The present study is a psychometric evaluation. The original version of the tool was translated from English to Persian using the standard Backward-Forward method. The questionnaire's validity was assessed using face, content, criterion (the Self-Care of Heart Failure Index v.6 as a criterion), and construct validity.  An exploratory factor analysis approach was used to construct validity with a sample of 216 patients with chronic heart failure referred to Dr. Shariati and Imam Khomeini Hospital's heart clinics in Tehran; and Ayatollah Mousavi Hospital in Zanjan. The reliability of the questionnaire was evaluated by internal consistency and stability methods. Results: After the validation process (validity and reliability), all 9 items of the questionnaire were approved and remained. The content validity index of the total content of the questionnaire was calculated to be 0.96. Based on factor analysis, only one factor was confirmed for the questionnaire. The correlation between the present questionnaire and the Self-Care of Heart Failure Index v.6 was positive and significant (p<0.001, r=0.753). Internal consistency (α=0.728) and stability (0.897) of the questionnaire were also confirmed. Conclusion: The European Heart Failure Self-Care Behavior Scale is valid and reliable for measuring Iranian patients' self-care behaviors with heart failure.


2017 ◽  
Vol 16 (8) ◽  
pp. 753-761 ◽  
Author(s):  
Lyne Chamberlain

Background: Rehospitalization of heart failure patients is often considered the result of inadequate self-care yet only one study documents superior outcomes with better self-care. Aims: If inadequate self-care is related to hospitalizations, then hospitalized heart failure patients should have lower self-care skills than non-hospitalized patients. The purpose of this study was to evaluate perceived social support and self-care characteristics of patients hospitalized with an exacerbation of heart failure. The self-care of heart failure index (SCHFI) and medical outcomes study of social support (MOS-SS) were the key instruments used in the research. Methods and results: This descriptive study used t tests and multiple regression to analyze the data. Results were compared with non-hospitalized heart failure patients in another study. Perceived social support ( t=−4.007, df=211, P<0.001) and self-care maintenance ( t=−3.343, df=220, P<0.002) scores were lower in the hospitalized participants than the comparison group. Self-care confidence was the only variable significantly related to perceived social support ( β=0.210, t=2.210, P<0.30). Conclusions: This study supports the premise that heart failure rehospitalizations are related to inadequate self-care.


2014 ◽  
Author(s):  
Soraya Siabani ◽  
Stephen R. Leeder ◽  
Patricia M. Davidson ◽  
Farid Najafi ◽  
Behrooz Hamzeh ◽  
...  

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