scholarly journals Autism in black, Asian and minority ethnic communities: a report on the first Autism Voice UK Symposium

2020 ◽  
Vol 6 (2) ◽  
pp. 165-175
Author(s):  
Mariama Seray Kandeh ◽  
Mariama Korrca Kandeh ◽  
Nicola Martin ◽  
Joanna Krupa
Keyword(s):  
Public Awareness ◽  
Action Plan ◽  
Cultural Perspective ◽  
Ethnic Communities ◽  
Cultural Groups ◽  
Content Type ◽  
Autistic People ◽  
The Uk ◽  
Autism Education ◽  
Minority Ethnic

Purpose Little is known about the way autism is interpreted and accepted among the black, Asian and minority ethnic (BAME) populations in the UK. This report summarises a Symposium on autism in the UK-BAME community in 2018, organised by Autism Voice UK, Participatory Autism Research Collective and the Critical Autism and Disabilities Studies Research Group at London South Bank University. Design/methodology/approach The stance a family or community takes about a condition such as autism is influenced by their cultural background. The aims of the Symposium were to highlight different perspectives about autism in BAME communities and to preserve the cultural dignity of the community in supporting autistic members. Beliefs about autism, its diagnosis and acceptance of and support for autistic people from a specific cultural perspective of BAME communities must be cautiously interpreted by autism professionals because beliefs vary among different cultural groups. Findings Thematic analysis of feedback from participants yielded the following foci. Firstly, cultural, ethnic and religious sensitivities were important to participants who felt that these were often ignored by non-BAME professionals. Secondly, the need for collaboration to improve autism awareness within the community and understanding by professionals of the intersectionality between autism and identity in BAME families was prioritised. Thirdly, issues around feelings of stigma were common, but delegates felt that these were not well understood beyond people identifying as BAME. Originality/value An action plan was created which highlighted raising public awareness through community engagement, improvement of access to information for parents and culturally aware autism education for professionals and BAME communities.

Moving towards culturally competent dementia care: have we been barking up the wrong tree?

2005 ◽  
Vol 15 (1) ◽  
pp. 39-46 ◽  
Author(s):  
Jenny Mackenzie ◽  
Ruth Bartlett ◽  
Murna Downs
Keyword(s):  
Service Providers ◽  
Evidence Base ◽  
Culturally Competent ◽  
Ethnic Communities ◽  
Cultural Groups ◽  
Care Services ◽  
People With Dementia ◽  
Health And Social Care ◽  
The Uk ◽  
Minority Ethnic

In the UK it is established that health and social care services for people with dementia from black and minority ethnic communities need to move towards providing evidence-based culturally appropriate care. At present, however, the evidence base available to guide professionals working with people with dementia from diverse ethnic and cultural groups is limited, and beliefs about dementia and the type of treatment and support needed have received little attention. Consequently this creates problems for service providers faced with appropriately supporting people with dementia and their families from black and minority ethnic communities.

scholarly journals “A child with autism only has one childhood”: main themes and questions for research from the “Digital Bubbles” seminar series

2017 ◽  
Vol 11 (3) ◽  
pp. 113-119 ◽  
Author(s):  
Sarah Parsons ◽  
Nicola Yuill ◽  
Mark Brosnan ◽  
Judith Good
Keyword(s):  
Teaching And Learning ◽  
Social Research ◽  
Responsible Innovation ◽  
Future Research ◽  
Content Type ◽  
Community Stakeholders ◽  
Autistic People ◽  
Seminar Series ◽  
The Uk ◽  
Main Ideas

Purpose The purpose of this paper is to present an overview of the main messages and key questions for further research arising from the seven-seminar series entitled, “Innovative technologies for autism: critical reflections on digital bubbles”, funded by the Economic and Social Research Council in the UK. Design/methodology/approach A synthesis of the main ideas is presented, drawing on the presentations, discussions, participant feedback, and short papers from across the seminar series, which took place between November 2014-2016. Findings There were many positive examples where technologies were positioned and used as facilitative “bridges” between ideas, communities, understanding, and experiences. Researchers and community stakeholders also emphasised the importance of taking different perspectives and working in stronger partnerships with each other. Four overarching research questions were developed from these themes to provide a roadmap for future research, relating to: responsible innovation, technology-enabled social interaction, learning and pedagogy, and engagement. Originality/value The findings and methodologies produced by the Digital Bubbles seminar series, available on the project website (http://digitalbubbles.org.uk/) and in a series of short papers, provide a rich repository of state-of-the-art thinking in the field of autism and technology that is being utilised nationally and internationally in teaching and learning. This paper suggests some valuable future research directions and highlights the importance of establishing and maintaining multi-disciplinary research teams, with autistic people and their families at their core.

Identity

2018 ◽  
Author(s):  
Zanib Rasool
Keyword(s):  
Young People ◽  
Young Women ◽  
Social Cohesion ◽  
National Narrative ◽  
Ethnic Communities ◽  
Writing Group ◽  
Sociocultural Practices ◽  
Parallel Lives ◽  
The Uk ◽  
Minority Ethnic

This chapter focuses on the identities of British Muslim young women from a writing group, and shares some of the themes that emerged during these writing sessions. Three specific themes related to identity came out of the girls' writing group: place and globalisation; religion; and language. In the UK, there is an increased focus on social cohesion and integration. Young people from minority ethnic communities experience a great deal of pressure in order to fit in with the national narrative of ‘Britishness’, and often feel that they should conform outwardly in their dress and physical appearance, and adopt British sociocultural practices. Those individuals who maintain their faith, language, and cultural identity are seen as segregating themselves and living parallel lives.

“Give it a Try”: experiences of black, Asian and minority ethnic young men in a prison-based offender personality disorder service

2019 ◽  
Vol 21 (1) ◽  
pp. 14-26
Author(s):  
Stephanie Hunter ◽  
Eleanor Craig ◽  
Jake Shaw
Keyword(s):  
Personality Disorder ◽  
Thematic Analysis ◽  
Design Methodology ◽  
Policy Implications ◽  
Future Research ◽  
Content Type ◽  
The Uk ◽  
Minority Ethnic ◽  
Practical Implications ◽  
Insight Into

Purpose Within the current offender personality disorder (OPD) pathway in the UK, black, Asian and minority ethnic (BAME) populations are underrepresented. Fewer BAME offenders are engaging with services despite being proportionately identified for inclusion and referred on to the pathway. The paper aims to discuss this issue. Design/methodology/approach This qualitative study explored the experiences of 11 BAME men engaged in a prison-based OPD service for young offenders to identify the highlights and challenges of engagement within the service and to what extent they experienced a sense of inclusion/belonging. Findings Thematic analysis was used to identify three overarching themes and sub-themes. Why am I going to be an Outcast? describes the barriers to engagement encountered by the participants; and Give it a Try and Nothing but Respect describe the process of overcoming these barriers. Barriers revolved around the experiences of judgement, alienation and hopelessness. These were overcome through peer encouragement, developing relationships with staff and freedom to regulate levels of engagement. Practical implications Practice and policy implications are considered to support similar services in addressing the barriers to engagement faced by BAME individuals. Areas for future research are also recommended. Originality/value Currently, no research has directly explored the under-representation of young BAME offenders with emerging personality disorder in the OPD pathway. The findings provided an insight into some of the difficulties these young BAME offenders faced when accessing this service, alongside aspects which maintained their engagement.

The experiences of mothers caring for a child with developmental disabilities: a cross cultural perspective

2015 ◽  
Vol 8 (4) ◽  
pp. 218-232 ◽  
Author(s):  
Kuljit Heer ◽  
John Rose ◽  
Michael Larkin ◽  
Nidhi Singhal
Keyword(s):  
Developmental Disabilities ◽  
Focus Groups ◽  
Skills Training ◽  
Cross Cultural ◽  
Small Scale ◽  
Cultural Perspective ◽  
Content Type ◽  
Starting Point ◽  
New Perspective ◽  
The Uk

Purpose – India has one of the more progressive disability frameworks in the developing world which tends to adopt western philosophies and principles (e.g. parent participation and advocacy) which to some degree mirrors the type of service delivery in the UK. The purpose of this paper is to adopt a cross-cultural perspective to explore caregiving amongst parents caring for a child with intellectual/developmental disabilities in India. Design/methodology/approach – Three focus groups were used to interview parents at Action for Autism (AFA) located in Delhi, India. The focus groups explored how disability is encountered within an Indian context. Findings – Two main themes were identified in the parents narratives which were “making the decision to get help” and “seeing disabilities in from a new perspective”. Family members played an important role in the decision to get help and acted as a platform for mothers to explore their own concerns. Seeing disability from a new perspective was a four stage process which included initially accepting the diagnosis and their child; regaining control through parenting skills training; witnessing positive changes in their children and themselves and reaping personal benefits as a result of their involvement with AFA. Research limitations/implications – The research is very small scale and focused on parents in a specific organisation, as a consequence the results cannot be generalised. Originality/value – The discourses of these individuals do provide a useful insight into the provision of services to children in India and provide a starting point for cross-cultural understanding of parenting children with disabilities.

scholarly journals Identity and difference – re-thinking UK South Asian entrepreneurship

2017 ◽  
Vol 11 (5) ◽  
pp. 564-589
Author(s):  
Mark Christopher McPherson
Keyword(s):  
South Asian ◽  
First Generation ◽  
Second Generation ◽  
Cultural Perspective ◽  
Structured Interviews ◽  
Content Type ◽  
The Uk ◽  
First And Second Generation ◽  
Identity And Difference ◽  
Insight Into

Purpose This paper, which is part of a larger study, aims to discuss from an ethno-cultural perspective, the notion of self-identification and difference pertaining to first and second-generation South Asian male entrepreneurs. In essence, previous studies have not explored this dimension to any sufficient depth. Therefore, evidence is unclear as to how ethno-culture has informed entrepreneurial identity and difference. Design/methodology/approach Adopting a phenomenological research paradigm, 42 semi-structured interviews were conducted with first- and second-generation Sikh and Pakistani Muslim male entrepreneurs in Greater London. A typology of second-generation entrepreneurs is developed and a research agenda proposed. Findings First-generation respondents regard the UK as home and do not suffer from shifts in identity. These particular respondents identify themselves as Sikh or Pakistani Muslim or a Businessman. However, the second-generation identify themselves via three distinct labels. Here respondents stress their ethnicity by using Hyphenated British identities or hide their ethnicity behind the term a Normal Businessman, or appear opportunists by using ethnicity as a resource to espouse a true entrepreneurial identity. Research limitations/implications The research environment within the Greater London area where the respondents are located may not be as generalisable when compared with other parts of the UK. Originality/value This paper offers a unique insight into self-prescribed identity and difference noted among London’s ethnic entrepreneurs.

scholarly journals The Mental Health needs of the UK's Chinese children

2010 ◽  
Vol 7 (1) ◽  
pp. 23-24 ◽  
Author(s):  
W. Cheng ◽  
P. A. Tiffin
Keyword(s):  
Mental Health ◽  
Health Care ◽  
Mental Health Care ◽  
Action Plan ◽  
Health Needs ◽  
Ethnic Communities ◽  
Mental Health Needs ◽  
Department Of Health ◽  
Adults And Children ◽  
Minority Ethnic

Sir: In 2005, the Department of Health for England set a five-year action plan, Delivering Race Equality in Mental Health Care. The aim was to encourage the development of services that were more appropriate and responsive to the needs of both adults and children in Black and minority ethnic communities.

scholarly journals A critical reflection on the development of the Participatory Autism Research Collective (PARC)

2019 ◽  
Vol 24 (2) ◽  
pp. 82-89 ◽  
Author(s):  
Damian Elgin Maclean Milton ◽  
Susy Ridout ◽  
Marianthi Kourti ◽  
Gillian Loomes ◽  
Nicola Martin
Keyword(s):  
Design Methodology ◽  
Early Career ◽  
Content Type ◽  
Autism Research ◽  
Early Career Researchers ◽  
Autistic People ◽  
Set Up ◽  
The Uk ◽  
Participatory Research Methods ◽  
Research Collective

Purpose The Participatory Autism Research Collective (PARC) was initially set up with the purpose of bringing autistic people, including scholars and activists (but not exclusively), together with early career researchers and practitioners who work with autistic people, with the aim being to build a community where those who wished to see more significant involvement of autistic people in autism research could share knowledge and expertise. This paper aims to discuss this issue. Design/methodology/approach This paper explores the development of the PARC network, reflecting upon its activities and ethos within current higher education practices and structures. Findings In supporting autistic individuals in their attempts to establish themselves within academic systems that may not always be considerate or accommodating, the existence of PARC creates a structure with which autistic people can influence social change. PARC serves as a network of support, strengthening the presence of autistic scholars in academia. It also provides a structure through which autistic people are able to demonstrate helpful practices with which to engage more broadly. Originality/value The PARC network is the first autistic-led venture of its kind in the UK to have a sustained impact. PARC is growing to become an important element in the field of autism studies both by supporting emerging autistic academics and by promoting ethical and participatory research methods and practices.

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