Health professionals’ dealing with hope in palliative patients with cancer, an explorative qualitative research

2018 ◽  
Vol 28 (1) ◽  
pp. e12889 ◽  
Author(s):  
Corine Nierop-van Baalen ◽  
Mieke Grypdonck ◽  
Ann van Hecke ◽  
Sofie Verhaeghe
Psico-USF ◽  
2019 ◽  
Vol 24 (4) ◽  
pp. 661-671
Author(s):  
Meyrielle Belotti ◽  
Alexandra Iglesias ◽  
Luziane Zacché Avellar

Abstract The article aims to analyze the conceptions conferred by the health professionals that compose the Expanded Nuclei of Family Health (NASF) on their work assignments. This is a qualitative research, in which was used, for the data collection, eight focus groups, with a total of 43 participants. The data were submitted to content analysis. The results outlined the following categories: integrating NASF work with the Family Health Teams (ESF); developing specialized care; promoting intersectionality; contributing to the promotion of teamwork in Primary Care (AB) and strengthening AB. The study indicates the importance of a better understanding of the functions of the NASF, so that it does not restrict the opportunity to perform specialized care in AB. It is pointed out, the need for adjustments in the work processes of the ESF, in order to enable the shared work in the AB.


2021 ◽  
Vol 42 ◽  
Author(s):  
Myllena Ferreira Peixoto ◽  
Vander Monteiro da Conceição ◽  
Silvio Eder Dias da Silva ◽  
Manoel Antônio dos Santos ◽  
Lucila Castanheira Nascimento ◽  
...  

ABSTRACT Objective To reveal the comprehension of women and health professionals about the feminine vulnerability belonging to the collective of lesbians, bisexuals, and transsexuals’ women. Method Qualitative research, carried out from October 2018 to March 2019, in a Basic Health Unit located in Marabá - Pará, Brazil, using the hermeneutic-dialectic circle and inductive hermeneutic analysis. Five lesbians, bisexuals, and transsexuals’ women and five health professionals participated, through interviews. Results Health care for women, as described by the participants, promoted social and programmatic vulnerabilities structured by taboos and preconception, which endorsed exclusive professional behaviors in the provision of specific care, which consequently amplified risks and threatened the quality of life of this population. Conclusion The dissemination of this evidence is configured as an indicator to support future decisions regarding priorities, application of resources and professional training in the care of lesbians, bisexuals and transsexuals’ women.


2021 ◽  
pp. 026921632110656
Author(s):  
Raymond Voltz ◽  
Kathleen Boström ◽  
Thomas Dojan ◽  
Carolin Rosendahl ◽  
Leonie Gehrke ◽  
...  

Background: Palliative patients frequently express a desire to die. Health professionals report uncertainty regarding potential risks of addressing it. Aim: We aim to evaluate effects of desire to die-conversations on palliative patients. Design: Within a prospective mixed-methods cohort study, we trained health professionals in dealing with desire to die. Afterwards, they held conversations about it with patients. Effects on depressiveness, hopelessness, wish to hasten death, death anxiety, patient-health professional-relationship, and will to live were evaluated at baseline (t0), 1 (t1), and 6 weeks afterwards (t2). Results were analyzed descriptively. Setting/participants: From April 2018 to March 2020, 43 health professionals asked 173 patients from all stationary and ambulatory palliative care settings (within 80 km radius) for participation. Complete assessments were obtained from n = 85 (t0), n = 64 (t1), and n = 46 (t2). Results: At t1, patients scored significantly lower on depressiveness (med = 8, M = 8.1, SD = 5.4) than at t0 (med = 9.5, M = 10.5, SD = 5.8) with Z = −3.220, p = 0.001 and Cohen’s d = 0.42. This was due to medium-severely depressed patients: At t1, their depressiveness scores decreased significantly (med = 9, M = 9.8; SD = 5.1) compared to t0 (med = 14, M = 15.2; SD = 3.9) with Z = −3.730, p ⩽ 0.000 and Cohen’s d = 1.2, but others’ did not. All other outcomes showed positive descriptive trends. Conclusions: Desire to die-conversations through trained health professionals do not harm palliative patients. Results cautiously suggest temporary improvement.


2019 ◽  
Vol 24 (6) ◽  
pp. 257-257 ◽  
Author(s):  
Laura Daly ◽  
Caroline E. Gibson ◽  
Jan Dewing

Research suggests that a large proportion of people living with multiple sclerosis (PwMS) are using cannabis to self-manage symptoms, or at least believe there are potential benefits in using this drug. Since community nurses are frontline caregivers, they are likely to encounter PwMS who use cannabis within the home setting. The literature base surrounding this topic is largely driven by quantitative research examining the effectiveness of cannabis as a medicine. This review found that qualitative research exploring the experiences of PwMS who use cannabis is lacking worldwide and is completely absent within UK nursing literature. PwMS using cannabis may not feel safe discussing this with health professionals, as they might fear being judged. This literature review discusses how people perceive the effectiveness of cannabis in helping symptoms associated with MS, while also considering the stigma and legal concerns people face. This review may help community nurses inform their practice and enhance person-centred relationships between them and PwMS.


2015 ◽  
Vol 49 (2) ◽  
pp. 0229-0235 ◽  
Author(s):  
Rúbia Aguiar Alencar ◽  
Suely Itsuko Ciosak

OBJECTIVE To identify vulnerabilities of elderly people with HIV/AIDS and the trajectory that they follow until reaching the diagnosis of the disease. METHOD Qualitative research conducted in specialized clinics in the state of São Paulo, from January to June 2011. Semi-structured interviews were conducted with 11 elderly people who were found to be infected with the virus at the age of 60 years or older. The interviews were analyzed using content analysis. RESULTS In this process four categories emerged, then analyzed with reference to the theoretical framework of vulnerability. CONCLUSION Late diagnosis of HIV infection or AIDS among the elderly happens in the secondary or tertiary service. Issues related to sexual life of the elderly are only questioned by health professionals after the diagnosis, also the time that condom use becomes absolute. It is believed that the investigation of the vulnerability of the elderly to HIV/AIDS allows for carrying out appropriate interventions for this population.


2015 ◽  
Vol 43 (1) ◽  
pp. 203-207 ◽  
Author(s):  
Lilian H. van Tuyl ◽  
Martina Sadlonova ◽  
Bev Davis ◽  
Caroline Flurey ◽  
Niti Goel ◽  
...  

Objective.The treatment of rheumatoid arthritis (RA) should target patient-relevant outcomes, making patient perspective on remission essential. In 2010, patients, physicians, health professionals, and researchers at the Outcome Measures in Rheumatology (OMERACT) conference developed an ambitious research agenda to study the concept of remission. Qualitative research has since helped us understand the concept of remission from the patient perspective.Methods.During OMERACT 12, the OMERACT working group on patient perspective on remission in RA elaborated on data generated to date and discussed the methodological challenges ahead. Challenges included (1) selection of domains, (2) choice of a patient remission definition or a single domain to add to the current remission definition, and (3) the importance of pain in defining remission from a patient perspective.Results.Focus in the coming years will be on increasing our understanding by identifying the most important domains from the patient perspective regarding remission and investigating how these domains can be measured. Investigation into the Rheumatoid Arthritis Impact of Disease questionnaire, disease flare, as well as the concordance of domains from our ongoing remission survey is appropriate. More data and further discussions are needed to decide on the next steps.Conclusion.Progress summarized over 4 years highlights the main methodological challenges discussed within the working group on patient perspective on remission in RA during OMERACT 12.


2006 ◽  
Vol 13 (1) ◽  
pp. 15-21
Author(s):  
Margaret Thomson ◽  
Paula Hourston ◽  
Jo Ladley ◽  
Leigh Findlay ◽  
Aileen Kelly

2019 ◽  
Vol 23 (3) ◽  
Author(s):  
Janaina Pinto Janini ◽  
Rosangela da Silva Santos ◽  
Lívia Fajin de Mello dos Santos ◽  
Viviane de Melo Souza

Abstract Objective: To know the common sense of transsexual women in reaction to the transsexual process and to discuss the epistemological construction about the transsexuality and nursing in this process. Method: Qualitative research, carried out between May and June 2017, with 90 transsexual women attending a specialized center. Results: The common sense of the interviewees evidenced the transsexuality as an identity issue and not a disease, barriers to attendance in health demands and absence of the nursing professional. Discussion: The epistemological construction of the transsexuality takes place through science, which instrumentalized the Transsexual Process Policy and does not have the knowledge presented by the common sense of the users. Conclusion and implications for nursing practice: Science has a role to create order and practices from the refinement of common sense, but does not use the common sense of transsexual women in the epistemological construction of transsexuality, which compromises care and reinforces stereotyped and pathological character by health professionals. Science has the power to validate common sense, sedimenting the care to transsexual women, especially nursing practice. Nursing has the challenge of understanding issues related to transsexuality by articulating common sense with scientific knowledge.


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